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by Caat55
Fri Jul 20, 2018 1:53 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: All Looking Pretty Good
Replies: 12
Views: 427

Re: All Looking Pretty Good

Thumbs up, good news.
by Caat55
Mon Jul 16, 2018 11:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mop up chemo experiences
Replies: 158
Views: 15806

Re: Mop up chemo experiences

My husband likes me to change his wafer every weekend. So we take it off so he can shower without it once a week. We use to have problems with leaking and the edges peeling, the wafer sliding around but I've gotten it to stay. It would stay longer, but he likes to replace it every week. I have to p...
by Caat55
Mon Jul 16, 2018 11:25 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mop up chemo experiences
Replies: 158
Views: 15806

Re: Mop up chemo experiences

Susan I need to get to work on those exercises - reversal is in two weeks! I started with Yoga this morning. Will do some more yoga in my office and then do machines tonight after walking. Also did some barbell squats this morning. I'll try to get back to doing deadlifts. Try something called a gob...
by Caat55
Mon Jul 16, 2018 10:17 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 6 years NED after stage IV
Replies: 21
Views: 844

Re: 6 years NED after stage IV

Wonderful. Thank you for sharing your news.
by Caat55
Sun Jul 15, 2018 4:47 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mop up chemo experiences
Replies: 158
Views: 15806

Re: Mop up chemo experiences

Hi guys, while im delighted to see u all come through this alive and kicking,,, I on the other hand am n the horrors I'm post 1st FOLFOX chemo 5 days,,, while I thought I would choak to death day after disconnect, Thursday Today Sunday I feel kinda" normal" As per New European protocol, I...
by Caat55
Thu Jul 12, 2018 1:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: what happens after chemo?
Replies: 15
Views: 491

Re: what happens after chemo?

Our local hospital is a different system but I have access to my records, can download and send them to Stanford but the visiting doctor's note are not detailed. I will try anyway and hope it is enough. In the mean time I will try to schedule the enema, things tend to book out months in advance out...
by Caat55
Thu Jul 12, 2018 1:36 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Howdy
Replies: 8
Views: 350

Re: Howdy

Welcome . I was diagnosed in September too, joined earlier as I had so many questions, needing support from survivor. Congrats on the CEA number coming down.
S
by Caat55
Thu Jul 12, 2018 1:34 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1024
Views: 91455

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

I noticed a leak in my bag two days ago - slow but annoying. It appears to be due to a misaligned Velcro strip not sealing the bottom of the bag all of the way. I put some Hypafix tape to try to contain it but I think that I'm just going to change it now. The annoying thing is that the next bag has...
by Caat55
Thu Jul 12, 2018 1:31 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: what happens after chemo?
Replies: 15
Views: 491

Re: what happens after chemo?

Our local hospital is a different system but I have access to my records, can download and send them to Stanford but the visiting doctor's note are not detailed. I will try anyway and hope it is enough. In the mean time I will try to schedule the enema, things tend to book out months in advance out ...
by Caat55
Wed Jul 11, 2018 5:49 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Second parent diagnosed with stage 4 colon cancer
Replies: 15
Views: 654

Re: Second parent diagnosed with stage 4 colon cancer

Cancer is not fair, it sucks. I am so sorry you are going through this. I hope you get another opinion just to be sure everything is being done. My kids were 1 and 3 when I lost my brother to cancer, there is no way to make this understandable.

S
by Caat55
Wed Jul 11, 2018 5:46 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: what happens after chemo?
Replies: 15
Views: 491

Re: what happens after chemo?

My surgeon needs a treatment summary so I called local oncologist and was told I needed to come in for another appointment. I asked why as seeing me shouldn't be necessary for them to basically give a historical timeline of treatment, it is all in medical record, but they insist. They are sticking w...
by Caat55
Tue Jul 10, 2018 9:58 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: what happens after chemo?
Replies: 15
Views: 491

Re: what happens after chemo?

Thank you Deb and Susie. I will be getting CEA today after pressing for it yesterday, I haven't had one since May, before that in January. Wonder how I get results as it doesn't show up on portal.
Waiting to hear from surgeon, 2nd opinion oncologist.
S
by Caat55
Tue Jul 10, 2018 12:04 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: what happens after chemo?
Replies: 15
Views: 491

Re: what happens after chemo?

What happens after the infusion and chemo is over? ... What is supposed to happen is that the patient is given two written documents: (1) a brief summary of the patient's DX and all treatments given to date, and (2) a comprehensive 5-year surveillance plan that includes not only monitoring for poss...
by Caat55
Mon Jul 09, 2018 6:46 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mop up chemo experiences
Replies: 158
Views: 15806

Re: Mop up chemo experiences

Congrats! Time to celebrate on your success! How do you know it worked? Did you do any followup PET scan, MRI? Oncologist said just come back in 6 months. S This is the surveillance schedule that my oncologist at Dana Farber recommended: Three months after you complete the chemo, we will perform a ...
by Caat55
Mon Jul 09, 2018 6:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: what happens after chemo?
Replies: 15
Views: 491

what happens after chemo?

What happens after the infusion and chemo is over? Scans, blood work, follow up when?

I was told to come back in 6 months, seems odd after all this. Is this typical? I read through many summaries, can't find an answer.
S

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