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by Caat55
Sun Nov 04, 2018 11:59 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Extra stoma supplies
Replies: 4
Views: 303

Re: Extra stoma supplies

Check in your area for a Colostomy/Ileo Support Group. I am sure there are folks there who would be happy for the gift.
S
by Caat55
Sun Nov 04, 2018 11:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1333
Views: 237464

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Mike,
Ab work. I notice my stomach is a little bulgy on ileoside, concerned that doing ab work could cause some issues, hernia at site of stoma. Did you notice anything like that, here it mentioned anywhere?
S
by Caat55
Sun Nov 04, 2018 11:51 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: A touch of neuropathy
Replies: 11
Views: 517

Re: A touch of neuropathy

I notice some stiffness in my hands when I do stuff initially but it is way better than on chemo. It is still warm here and I am curious about what cold will do. The crazy hands started about 3rd round of chemo, got worse and I think are better though not back to normal. Dealing cards is my baromete...
by Caat55
Thu Nov 01, 2018 7:25 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: A touch of neuropathy
Replies: 11
Views: 517

Re: A touch of neuropathy

My hands were messed up during chemo and after for a bit. II am a occupational therapist so my hands are literally critical to my ability to do my job. I am happy to say it is only a minor issue for me. My feet are still funny, tingly and sometime painful but not limiting me. I avoided folic acid en...
by Caat55
Thu Nov 01, 2018 7:20 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Have ileostomy, stool going other way HELP
Replies: 13
Views: 2685

Re: Have ileostomy, stool going other way HELP

Cat: As Mike points out, overflow fecal matter from the working stoma also migrates to the mucus stoma. A certain amount of fecal matter will “go down the hatch,” so to speak, and pass through the disconnected/resting length of intestine. Sleeping with your head on elevated incline can help lessen ...
by Caat55
Thu Nov 01, 2018 7:17 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Have ileostomy, stool going other way HELP
Replies: 13
Views: 2685

Re: Have ileostomy, stool going other way HELP

There can be mucus discharge which is normal - it's a lubricant the body generates. It's usually clear and doesn't cause a problem outside the wetness. I did have these from time to time. I've experienced what you're describing though - waste coming through, and it was usually caused by backflow of...
by Caat55
Tue Oct 30, 2018 8:17 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Hi, I'm new to the club
Replies: 14
Views: 1264

Re: Hi, I'm new to the club

Sorry you are a part of the club but glad you found it. This site is a wealth of support and knowledge.
Susan
by Caat55
Tue Oct 30, 2018 8:15 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colon cancer: my treatment and side effects
Replies: 53
Views: 11699

Re: Colon cancer: my treatment and side effects

Jannine
My tingling in feet showed up about one month off chemo. It is different than the tingling, painful feeling from cold but definitely the cold makes it worse. It isn't always an issue. I do hope it goes away but I can live with it.
S
by Caat55
Tue Oct 30, 2018 8:11 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Newly diagnosed rectum cancer
Replies: 37
Views: 11519

Re: Newly diagnosed rectum cancer

Ditto what Mike said. I got a sample kit from Hollister, Coloplast and Conatec. I put one in each of our cars, the other in my desk. I loved sleeping in bed but can understand the easy in/out of a recliner. Things get better
by Caat55
Tue Oct 30, 2018 8:06 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Have ileostomy, stool going other way HELP
Replies: 13
Views: 2685

Re: Have ileostomy, stool going other way HELP

Once again an old post to the rescue. I was too lazy and tired to get up last night to empty my bag. I felt the hard belly bag there and just refused to get up to empty it. This morning I had a stomach ache, on way to work had an odd feeling of having to go poop. Indeed, I had a b.m. which totally f...
by Caat55
Fri Oct 26, 2018 12:35 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Time from dx to first treatment?
Replies: 23
Views: 1370

Re: Time from dx to first treatment?

Diagnosed in September 2017, started chemo/radiation about 4 weeks later, surgery January 31, 2018, chemo April to July 2018.
Clean CT Sept. 2018/


Susan
by Caat55
Fri Oct 19, 2018 12:24 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surviving radiation for rectal cancer
Replies: 127
Views: 29008

Re: Surviving radiation for rectal cancer

Plumbing is pretty easy to manage except when it balloons up, I call it a jelly bean . Have a 3 year patient whose mom had a reversal, she is a great resource she Uses immodium to manage bowels, 8 a day. Never taken meds, been sick before this, guess I will learn. Scheduled barium enema.
S
by Caat55
Tue Oct 16, 2018 10:49 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surviving radiation for rectal cancer
Replies: 127
Views: 29008

Re: Surviving radiation for rectal cancer

Would you do watch and wait ? If complete response ? Did all your original symptoms go and bowels return to normal ? Or not ? Thanks you guys xxx annie My bowels were fine after radiation, then came the ileostomy. My doctor's advised against waiting, why take any chances. In Europe they do it diffe...
by Caat55
Fri Oct 12, 2018 9:57 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Some odd symptoms. Anyone got any idea?
Replies: 2
Views: 400

Re: Some odd symptoms. Anyone got any idea?

Sounds like you have your diagnosis, internal hemmoroids. See a doctor to be sure and ease your mind.
by Caat55
Fri Oct 12, 2018 9:55 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1333
Views: 237464

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

It seems like I all of a sudden have control. Or at least a lot more of it. I'm not sure why it is now - it could be time or it could be the running or it could be the barbell exercises (squats and deadlifts) that worked on some muscles that had been weak. But I'm cautiously optimistic as I have be...

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