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by BethD
Wed Jan 17, 2018 4:15 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CT results
Replies: 16
Views: 1398

Re: CT results

Great news Susie!
Very glad to hear your good news!

Beth
by BethD
Wed Jan 17, 2018 1:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Female Pains AFTER radiation, No Doc will Listen...
Replies: 41
Views: 3314

Re: Female Pains AFTER radiation, No Doc will Listen...

Hi Caat, I'm sorry you are in so much pain. I hope you can find relief. My radiation nurses suggested over the counter pyridium to help with burning pain during urination. They also suggested aquaphor and Vitamin A & E cream to put on around the clock, except not within two hours before radiatio...
by BethD
Wed Jan 17, 2018 1:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Facing a permanent stoma
Replies: 41
Views: 2513

Re: Facing a permanent stoma

My surgery went really well & I am happy to be home!
No sitting for 6 weeks.
You all were right--The colostomy is not so bad afterall.
More details later.

talk to you soon
Beth
by BethD
Wed Jan 17, 2018 1:15 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colostomy
Replies: 4
Views: 478

Re: Colostomy

Best wishes to you Joecool.
I had my surgery last Monday and overall, its not too bad

talk to you soon
Beth
by BethD
Wed Jan 17, 2018 1:14 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Symptom stages
Replies: 14
Views: 1075

Re: Symptom stages

My radiation nurse recommended pyridium to help with the burning sensation when I pee. My radiation team also had me use dilators during treatment to help keep my vaginal tissue out of the radiation field and help prevent stenosis. I had my period in October during the start of radiation, and that's...
by BethD
Sun Jan 07, 2018 2:47 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Facing a permanent stoma
Replies: 41
Views: 2513

Re: Facing a permanent stoma

Thank you everyone for all of your comments.

I am doing my surgery prep today. By this time tomorrow I should be in the recovery room.

talk to you soon
Beth
by BethD
Thu Jan 04, 2018 12:09 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Skin Pain after radiation/Xeloda
Replies: 15
Views: 900

Re: Skin Pain after radiation/Xeloda

& my nurse suggested pyridium for the urination pain
by BethD
Thu Jan 04, 2018 12:06 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Skin Pain after radiation/Xeloda
Replies: 15
Views: 900

Re: Skin Pain after radiation/Xeloda

I hope you're feeling better Caat I had 25 treatments of radiation + Xeloda and my pain was at its worst 5-7 days after the last radiation treatment, and pretty healed up by day 14. I used a lot of Aquaphor, calendula, coconut oil, Rick Simpson oil and Vitamin A & E. cream and tried to air out a...
by BethD
Wed Jan 03, 2018 8:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Facing a permanent stoma
Replies: 41
Views: 2513

Re: Facing a permanent stoma

Yes thank you for all the replies. & thank you Lee. I'm able to see the silver lining. I'm alive and I'm getting a little bit better everyday. I feel very grateful and fortunate to be in the care of UCSF. I verified that my surgeon is board certified. She is the Chief of Colorectal Surgery. My n...
by BethD
Tue Jan 02, 2018 10:10 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Facing a permanent stoma
Replies: 41
Views: 2513

Re: Facing a permanent stoma

Hi Adele I'm still coming around to the idea. I had initially hoped to avoid surgery altogether, and planned on having a resection connection. I've done chemo and radiation with the intention to shrink my tumor enough to give my surgeon a bit more margin to work with. The tumor did shrink quite a bi...
by BethD
Tue Jan 02, 2018 9:51 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: SWF, so many uncertainties NOW!!!!
Replies: 34
Views: 1993

Re: SWF, so many uncertainties NOW!!!!

Hi Adele Its nice to meet you but I am sorry for the reason you are here. I was diagnosed in Feb 2017. My tumor is 2 cm from the anal verge. I did my chemo over the summer and radiation in Oct & Nov 2017 and now heading in for surgery in Jan 2018. I was able to walk to and from my radiation appo...
by BethD
Wed Dec 27, 2017 2:45 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Facing a permanent stoma
Replies: 41
Views: 2513

Facing a permanent stoma

Hello friends I have an upcoming Stoma Marking appointment to prepare for my permanent colostomy. Surgery date January 2018 at UCSF What questions should I ask my surgical team? What do you wish you had known earlier or asked about sooner? I really appreciate any tips or experiences you can share. T...
by BethD
Sun Dec 17, 2017 10:08 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stoma Life - Awsome Life :)
Replies: 8
Views: 837

Re: Stoma Life - Awsome Life :)

Thank you Ana,
I appreciate your post. I am looking for more information as I am preparing for my surgery in January 2018 and a permanent colostomy.

I just met with my surgeon and the news was a surprise.

I am glad to have found this support forum.

all the best,
BethD

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