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by clj12288
Fri Aug 02, 2019 7:33 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Olymphians w/ surgery advice/experiences??
Replies: 37
Views: 3400

Re: Olymphians w/ surgery advice/experiences??

Hi jep I believe I responded to you before on a thread about para-aortic lymph nodes/olymphians. I just had a major surgery in early June where they went in and got what tissue they could along my aorto/common illiacs as there were several 'hot spots' on scans that were persistent, even after a lot ...
by clj12288
Fri Oct 19, 2018 7:40 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: lymph node tested positive :(
Replies: 14
Views: 2467

Re: lymph node tested positive :(

Jep
Please do keep me posted and if there is any more advice or questions I can answer I would love to help!
CLJ
by clj12288
Tue Oct 16, 2018 9:06 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 2 swollen nodes in abdomen...
Replies: 25
Views: 4550

Re: 2 swollen nodes in abdomen...

Jep, I am sorry to hear about this discovery. I am hoping it's not abdominal lymph nodes. However, if they are, I want to give you some info because I have experience with it. Mine have only been detected by PET scans - never big enough by CT criteria to be seen. So, I've had PETs every 2-3 months ...
by clj12288
Tue Oct 16, 2018 9:00 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: lymph node tested positive :(
Replies: 14
Views: 2467

Re: lymph node tested positive :(

Jep, I am so sorry. But, as AT mentioned please have hope as there are a good number of us here with positive distant lymph nodes that are doing ok and have been for several years. You will see from my signature - I've tried a lot. Surgery - chemo - radiation - more chemo. You will have more informa...
by clj12288
Thu Sep 27, 2018 9:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 2 swollen nodes in abdomen...
Replies: 25
Views: 4550

Re: 2 swollen nodes in abdomen...

Hi jep, Still a possibility that the nodes are due to inflammation. But the biopsy is the only way to be 100% sure. PETs can definitely show false positives and any surgeon would be hesitant to do it shortly after surgery because of the inflammation and the healing process of the tissues. After my P...
by clj12288
Sun Sep 23, 2018 9:06 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 2 swollen nodes in abdomen...
Replies: 25
Views: 4550

Re: 2 swollen nodes in abdomen...

Jep, I am sorry to hear about this discovery. I am hoping it's not abdominal lymph nodes. However, if they are, I want to give you some info because I have experience with it. Mine have only been detected by PET scans - never big enough by CT criteria to be seen. So, I've had PETs every 2-3 months s...
by clj12288
Sun Sep 23, 2018 8:53 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Vectibix - Distant LN spread
Replies: 6
Views: 1247

Re: Vectibix - Distant LN spread

Thanks for the feedback! Hiker, it sounds like you had good results since you've been clear since surgery. I'm hoping for something similar - mainly to mop up any micro-metastasis that's out there and then get to the point to locally treat the nodes we know of. I'm not expecting the nodes to complet...
by clj12288
Sat Sep 22, 2018 4:47 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Vectibix - Distant LN spread
Replies: 6
Views: 1247

Vectibix - Distant LN spread

Hi Everyone, I have been a member for a while, read here and there, but never posted. I've done a little searching on the topic but thought it may be useful to start a new thread on this. As you can see from my signature, I have been through a lot of tx since being diagnosed in July of 14. I have on...

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