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by Dionca
Fri Oct 25, 2019 3:14 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anemia -- how have you dealt with it?
Replies: 5
Views: 311

Re: Anemia -- how have you dealt with it?

It was severe anemia that led to my diagnosis (It got so I could hardly walk a few feet without getting winded), so I was given a couple of blood transfusions at the ER, which helped a lot. On my family doctor's orders, I also started to take iron tablets. After surgery, I had a bleed at the incisio...
by Dionca
Tue Oct 01, 2019 3:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: So excited, had to share CEA results!!
Replies: 14
Views: 1277

Re: So excited, had to share CEA results!!

Wow, just wonderful news - that's what I like to hear. Sounds like the chemo and the liver resection, really delivered a knock out punch to those damn cancer cells. Congrats!
by Dionca
Sat Sep 21, 2019 11:04 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Questions regarding Folfox treatments
Replies: 15
Views: 1406

Re: Questions regarding Folfox treatments

It doesn't appear that you are experiencing any major effects from the oxi so far, but you have only had 3 sessions. It seems like it's the fingers and feet that are the main concern. My onc told me that if the tingling/numbness in the fingers/feet didn't resolve by the time the next chemo session c...
by Dionca
Wed Aug 28, 2019 5:20 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Quick intro -- diagnosed Friday
Replies: 144
Views: 17347

Re: Quick intro -- diagnosed Friday

Port installation was a breeze - they give you twilight sedation, so you don't feel any pain. It was a bit sore while healing, and I sleep on that side, but with some pillow readjustment was ok. I felt having a port was the best thing ever - I would put some Emla cream on it (with a little saran wra...
by Dionca
Wed Aug 28, 2019 11:58 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Quick intro -- diagnosed Friday
Replies: 144
Views: 17347

Re: Quick intro -- diagnosed Friday

Hi Zack: Regarding Isolated tumour cells. I had the same thing, and couldn't figure out why I was still classified as having only 2 nodes affected, when I had these others floating around. Didn't these count? Anyway, I researched this, and I'm showing my findings below. Long and short is, that they ...
by Dionca
Mon Jul 08, 2019 7:15 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scared Son, dad maybe has IIIC? Can anyone help me understand this pathology?
Replies: 7
Views: 1177

Re: Scared Son, dad maybe has IIIC? Can anyone help me understand this pathology?

I had a similar diagnosis, with cancer of the cecum, involving the valve. My pathology report showed an inflammatory reaction on the serosal surface raising the possibiity of a peritoneal breach. However as there were no tumour cells found at the surface, they staged it at T3 (if it had breached the...
by Dionca
Sat Jun 29, 2019 11:59 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Here we go. Xeloda dosage question
Replies: 13
Views: 1468

Re: Here we go. Xeloda dosage question

If it's not available online, you should ask for copies of everything - bloodwork and scan reports etc. each time your husband sees the oncologist.

I always have to ask, they never offer them automatically.
by Dionca
Mon Jun 24, 2019 3:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CT shows my liver met is SMALLER!!
Replies: 18
Views: 1767

Re: CT shows my liver met is SMALLER!!

That's wonderful news. I see you've been on a big roller coaster this week, but ending on a high is the best thing ever :)
by Dionca
Thu Jun 20, 2019 7:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Hair removal - help?
Replies: 13
Views: 1141

Re: Hair removal - help?

Why not try an epilator or a razor. My Braun epilator has a few attachments, one of which is a razor, so you get two hair removal gadgets in one.
by Dionca
Sun Jun 16, 2019 2:06 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: UPDATED Back On chemo - Every ache and pain becoming related to Cancer
Replies: 5
Views: 1089

Re: UPDATED Back On chemo - Every ache and pain becoming related to Cancer

I'm very sorry that you have to go through this again, but glad you didn't ignore what your body was telling you. I like how they moved so fast, without even waiting for results, so you know you are in good hands. I hear very good things about Sunnybrook, so at least you are in the right place and t...
by Dionca
Sun Jun 09, 2019 11:45 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Visualization and Other non-medical stuff
Replies: 9
Views: 664

Re: Visualization and Other non-medical stuff

CR Guy

The FOLFOX Prison Blues is brilliant - it s/be the Colon Talk anthem :)
by Dionca
Mon May 27, 2019 10:15 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Treatment break - advice sought!
Replies: 8
Views: 957

Re: Treatment break - advice sought!

I'm confused - why would continuing with the xeloda be just considered to be of "psychological benefit". It's chemo, not carrot juice.

I would opt for either continuing with xeloda or having FOLFOX without the oxi.

Good Luck!
by Dionca
Thu May 02, 2019 2:54 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Neuropathy improvement: individual experience
Replies: 25
Views: 3028

Re: Neuropathy improvement: individual experience

Don't place too much hope in a foot massager (that's the same as a TENS machine right?). I used one religiously starting midway through chemo, and for months after, hoping to ward off neuropathy, but it didn't do a thing for me. In fact, a cheap wooden foot roller helped me more (albeit temporarily)...
by Dionca
Wed May 01, 2019 11:12 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Neuropathy improvement: individual experience
Replies: 25
Views: 3028

Re: Neuropathy improvement: individual experience

I experienced exactly the same symptoms as you mentioned, including the weird "electric" sensation in my arms when outstretched. I think the unexpected (and potentially dangerous one) was the lack of balance in the shower. If I closed my eyes to shampoo my hair, I would be very unsteady an...
by Dionca
Wed Mar 27, 2019 11:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Slowly rising CEA..
Replies: 5
Views: 964

Re: Slowly rising CEA..

If you look at my signature, you will see that my CEA rose during chemo. When I was first diagnosed my CEA was 8.6 and went down to 1.2 after surgery. It then rose during chemo and levelled off after treatment was over. My oncologist said he doesn't usually test CEA during chemo, because inflammatio...

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