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by Dionca
Mon Jul 08, 2019 7:15 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scared Son, dad maybe has IIIC? Can anyone help me understand this pathology?
Replies: 7
Views: 741

Re: Scared Son, dad maybe has IIIC? Can anyone help me understand this pathology?

I had a similar diagnosis, with cancer of the cecum, involving the valve. My pathology report showed an inflammatory reaction on the serosal surface raising the possibiity of a peritoneal breach. However as there were no tumour cells found at the surface, they staged it at T3 (if it had breached the...
by Dionca
Sat Jun 29, 2019 11:59 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Here we go. Xeloda dosage question
Replies: 13
Views: 1019

Re: Here we go. Xeloda dosage question

If it's not available online, you should ask for copies of everything - bloodwork and scan reports etc. each time your husband sees the oncologist.

I always have to ask, they never offer them automatically.
by Dionca
Mon Jun 24, 2019 3:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CT shows my liver met is SMALLER!!
Replies: 18
Views: 1098

Re: CT shows my liver met is SMALLER!!

That's wonderful news. I see you've been on a big roller coaster this week, but ending on a high is the best thing ever :)
by Dionca
Thu Jun 20, 2019 7:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Hair removal - help?
Replies: 13
Views: 692

Re: Hair removal - help?

Why not try an epilator or a razor. My Braun epilator has a few attachments, one of which is a razor, so you get two hair removal gadgets in one.
by Dionca
Sun Jun 16, 2019 2:06 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: UPDATED Back On chemo - Every ache and pain becoming related to Cancer
Replies: 5
Views: 846

Re: UPDATED Back On chemo - Every ache and pain becoming related to Cancer

I'm very sorry that you have to go through this again, but glad you didn't ignore what your body was telling you. I like how they moved so fast, without even waiting for results, so you know you are in good hands. I hear very good things about Sunnybrook, so at least you are in the right place and t...
by Dionca
Sun Jun 09, 2019 11:45 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Visualization and Other non-medical stuff
Replies: 9
Views: 449

Re: Visualization and Other non-medical stuff

CR Guy

The FOLFOX Prison Blues is brilliant - it s/be the Colon Talk anthem :)
by Dionca
Mon May 27, 2019 10:15 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Treatment break - advice sought!
Replies: 8
Views: 697

Re: Treatment break - advice sought!

I'm confused - why would continuing with the xeloda be just considered to be of "psychological benefit". It's chemo, not carrot juice.

I would opt for either continuing with xeloda or having FOLFOX without the oxi.

Good Luck!
by Dionca
Thu May 02, 2019 2:54 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Neuropathy improvement: individual experience
Replies: 23
Views: 1903

Re: Neuropathy improvement: individual experience

Don't place too much hope in a foot massager (that's the same as a TENS machine right?). I used one religiously starting midway through chemo, and for months after, hoping to ward off neuropathy, but it didn't do a thing for me. In fact, a cheap wooden foot roller helped me more (albeit temporarily)...
by Dionca
Wed May 01, 2019 11:12 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Neuropathy improvement: individual experience
Replies: 23
Views: 1903

Re: Neuropathy improvement: individual experience

I experienced exactly the same symptoms as you mentioned, including the weird "electric" sensation in my arms when outstretched. I think the unexpected (and potentially dangerous one) was the lack of balance in the shower. If I closed my eyes to shampoo my hair, I would be very unsteady an...
by Dionca
Wed Mar 27, 2019 11:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Slowly rising CEA..
Replies: 5
Views: 774

Re: Slowly rising CEA..

If you look at my signature, you will see that my CEA rose during chemo. When I was first diagnosed my CEA was 8.6 and went down to 1.2 after surgery. It then rose during chemo and levelled off after treatment was over. My oncologist said he doesn't usually test CEA during chemo, because inflammatio...
by Dionca
Sun Mar 03, 2019 5:30 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Tumours shrinking....now what?
Replies: 11
Views: 850

Re: Tumours shrinking....now what?

I was pretty alarmed to hear that chemo was not offered for Stage 2 in Canada, so I checked up on this. However, the Standard of Care seems to be the same as in the US. While most Stage 2s don't get chemo, those with a high risk of recurrence, will get it. High risk is determined by: - The tumour is...
by Dionca
Sat Feb 09, 2019 7:32 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Folfox protocols
Replies: 9
Views: 1057

Re: Folfox protocols

I dug out some of the info (shown below) that I researched while undergoing FOLFOX. I did get permanent neuropathy in my feet, despite taking vitamins. My hands were pretty bad as well, but that went away in time, and they are fine. From reading other accounts, it seems to be the feet, are more impa...
by Dionca
Mon Feb 04, 2019 3:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Terrified - 3cm polyp
Replies: 16
Views: 1840

Re: Terrified - 3cm polyp

If your dr is experienced, he can probably tell by just looking at it, if it's cancer or not. Immediately after my colonoscopy, the dr told me it was cancer, and recommended a surgeon, without even waiting for a biopsy. I was then given a blood test, which showed an elevated CEA. Your dr told you th...
by Dionca
Mon Feb 04, 2019 3:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Coffee...yes or no?
Replies: 17
Views: 1753

Re: Coffee...yes or no?

Coffee was the only thing I enjoyed drinking during chemo - cold drinks/water had a metallic taste and I had to force them down. If I had to give up my morning coffee, I would have been really depressed. So my take is, that it was beneficial to my mental health, during a time when I neeed a boost, a...
by Dionca
Wed Dec 26, 2018 9:08 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Any body knows of Clinical trials for BRAF 600?
Replies: 16
Views: 2845

Re: Any body knows of Clinical trials for BRAF 600?

Wow, that's quite the Christmas present - a very impressive drop in CEA. That, combined with pain reduction and tumour shrinkage, sounds like you found the right trial. I'm very happy for you, and hope you continue to see good results.

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