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by Dionca
Tue Nov 20, 2018 11:53 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CEA as a marker during chemo?
Replies: 6
Views: 116

Re: CEA as a marker during chemo?

The protocol at the hospital where I had chemo was not to test for CEA or have scans, until a few weeks after chemo had ended. The reason being, is that CEA can rise due to inflammation etc and therefore is not always a good indication of what is actually happening. I happened to have a scan for an ...
by Dionca
Fri Nov 16, 2018 7:55 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Sleeping with: bag, heart monitor and pump accached
Replies: 8
Views: 225

Re: Sleeping with: bag, heart monitor and pump accached

The chemo pump is attached via a tube, which is fairly long, so you have flexibility as to where it lies at night. It doesn't have to be on the same side as the port.
by Dionca
Tue Oct 02, 2018 10:37 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I am so worried.
Replies: 39
Views: 4110

Re: I am so worried.

It's not so much the size, but how far it has spread through the rectal/colon wall. See Weisssoccermom's explanation for the T/N/M (tumour/nodes/metastasis). The size of the mass does not determine the stage - it's based on the TNM.
by Dionca
Mon Oct 01, 2018 6:57 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I am so worried.
Replies: 39
Views: 4110

Re: I am so worried.

I don't have much to add to Weisssoccermom's excellent and thorough information and advice, other than to point out that you shouldn't be "preparing for the worst due to her age". She is about the average age for colon cancer and it can be curable. I know you are in shock right now, but ho...
by Dionca
Sat Sep 29, 2018 1:45 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: MSI-H with liver met, in search of help
Replies: 17
Views: 1221

Re: MSI-H with liver met, in search of help

Hi, my husband has same history. He is stage 4 rectum ca. And lots of liver mets.and surgeon says inoperable. We think immunoteraphy.and I ask you somethngs. Mr shows his liver mets but pet ct doesnt show. So we curious. Mr shows 12 mm liver met and little mets. We are very confused :( :( is that n...
by Dionca
Wed Aug 29, 2018 12:42 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Keytruda....Working for MSS....Mutation Burden is the Key
Replies: 26
Views: 6787

Re: Keytruda....Working for MSS....Mutation Burden is the Key

I wonder, can Canadians get Foundation One testing? What exactly am I asking them for, (just for “mutation burden testing of my tumour”) and how much could I expect to pay, any ideas? Steph - here is a recent article posted on Colorectal Cancer Canada, that makes reference to the Foundation's mutat...
by Dionca
Sun Jul 08, 2018 2:16 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: lung nodules
Replies: 11
Views: 1298

Re: lung nodules

Try not to worry - they are tiny and could be unrelated to cancer. I've had liver, and then lung nodules pop up, but so far they haven't grown, so are hopefully benign. I think all they can do at this stage anyway, is to wait to see if they grow. Regarding CEA - check your blood test results, it sho...
by Dionca
Thu Jun 28, 2018 11:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Alberta, Canada——-coverage for Capecitabine (Xeloda)?
Replies: 2
Views: 271

Re: Alberta, Canada——-coverage for Capecitabine (Xeloda)?

It's on the Alberta Health Services drug benefit list. Here's the link https://www.albertahealthservices.ca/assets/programs/ps-1025651-drug-benefit-list.pdf Alberta Health Services shall provide cancer drugs specified in the Outpatient Cancer Drug Benefit Program, at no charge, to eligible residents...
by Dionca
Thu Jun 07, 2018 11:04 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Signs of travelling to lungs?
Replies: 10
Views: 992

Re: Signs of travelling to lungs?

My CT scan always includes both abdomen and chest, so I thought that was pretty standard. The hospital sends me a form with the appointment date and shows chest and abdomen checked off. Why don't you call your dr's office tomorrow and ask them if both were included? I can understand the anxiety - ar...
by Dionca
Sun May 06, 2018 5:11 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Repeat Performance
Replies: 4
Views: 686

Re: Repeat Performance

I feel for you, having to go through this again, almost 20 yrs later. Were you on the 3 or 5 year colonoscopy follow-up routine? St Mike's has a good reputation, so I'm sure you will be in good hands. My gastro suggested that I go there, but I preferred the location of a different hospital (I also h...
by Dionca
Mon Apr 30, 2018 12:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: The Grim Reaper took another swipe at me !!
Replies: 1933
Views: 230720

Re: The Grim Reaper took another swipe at me !!

Hi Diane I know Frenchie was a legend on here, so it must have left a huge hole in your heart when he departed. I love that you "took him with you" to Australia and that his presence continues to be with you, in many ways. Now that you have this new job, it seems as if all the pieces are s...
by Dionca
Sun Apr 22, 2018 3:28 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Pain following right hemicolectomy
Replies: 7
Views: 1204

Re: Pain following right hemicolectomy

Hi Carstella I had a similar surgery, but was in the hospital for 6 days ( I had a leak at the surgical join). You are only 4 days out, so it appears to me that what you are experiencing is pretty normal. As Beckster said, they don't usually discharge you until you are able to poop. I was given hydr...
by Dionca
Thu Jan 04, 2018 4:40 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Spleen and liver enlargement after Neulasta
Replies: 7
Views: 872

Re: Spleen and liver enlargement after Neulasta

I had neulasta with 10 of my 12 treatments, and didn't experience any enlargement of the spleen. However, after the fact, I did wonder why they didn't prescribe it on as "as needed" basis, rather than automatically give it to me each time. You could also take neupogen to boost your white b...
by Dionca
Thu Jan 04, 2018 5:52 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Question for Canadians re genomic testing
Replies: 20
Views: 1842

Re: Question for Canadians re genomic testing

Isn't testing for MSI, the standard in Ontario? The following is from my pathology report: Histologic type Histologic grade Histolic features suggestive of Microsatellite Instability (MSI) Intratumoral Lymphocytic Response Peritumor Lymphocytic Response (Crohn-like response) edited to add - In case ...
by Dionca
Sat Dec 02, 2017 1:03 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: bleeding after right hemicolectomy
Replies: 5
Views: 598

Re: bleeding after right hemicolectomy

I had a right hemi and after a day in the hospital I started bleeding. I understand this was a leak caused by the surgery. I couldn't eat the first few days (no appetite) and just drank water, and the output, like you mentioned was dark red in colour. I was in the hospital for 6 days and it had pret...

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