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by Dionca
Sat Mar 28, 2020 7:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Nuelasta Injector
Replies: 7
Views: 722

Re: Nuelasta Injector

I was given a choice to either inject Neulasta myself or have a home care nurse come in the day after the disconnect to give me the injection. I chose the home care nurse, so would pick up the Neulasta from the hospital pharmacy, take it home and the nurse would inject it the next day. But I think i...
by Dionca
Wed Mar 11, 2020 8:36 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Almost made 5 years and now have a recurrence
Replies: 10
Views: 992

Re: Almost made 5 years and now have a recurrence

Thank you all for your well wishes. Surgery sounds like the way to go – not looking forward to tubes and stuff (need to look that up) but whatever it takes to get rid of this. My oncologist tells me that it’s fairly rare for a recurrence to happen at this stage (lucky me) but hopefully this will be ...
by Dionca
Tue Mar 10, 2020 9:30 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Almost made 5 years and now have a recurrence
Replies: 10
Views: 992

Re: Almost made 5 years and now have a recurrence

Thanks Crguy – just read your “trip report” and true to your nature, you even managed to have too much fun, while undergoing your lung procedure. Makes me almost look forward to it – - not :) You said you had a local block (marcaine) outside chest – does this mean you were awake during the procedure...
by Dionca
Tue Mar 10, 2020 7:22 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Almost made 5 years and now have a recurrence
Replies: 10
Views: 992

Re: Almost made 5 years and now have a recurrence

Hi Kiwininoz

I can’t thank you enough for all this info. So I'm guessing having a tube inserted is routine for this kind of surgery.

The location of the nodule is left upper lobe anterior – is this a good or bad location?

Dionca
by Dionca
Tue Mar 10, 2020 5:10 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Almost made 5 years and now have a recurrence
Replies: 10
Views: 992

Almost made 5 years and now have a recurrence

I really thought I was out of the woods, as in 3 months I will have reached the 5 year mark with no recurrence. So this has been pretty devastating news. There was a mix up (long, so I won’t go into it) and instead of my usual abdomen and chest CT scan, I only got the chest part, and didn’t get the ...
by Dionca
Fri Oct 25, 2019 3:14 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anemia -- how have you dealt with it?
Replies: 5
Views: 724

Re: Anemia -- how have you dealt with it?

It was severe anemia that led to my diagnosis (It got so I could hardly walk a few feet without getting winded), so I was given a couple of blood transfusions at the ER, which helped a lot. On my family doctor's orders, I also started to take iron tablets. After surgery, I had a bleed at the incisio...
by Dionca
Tue Oct 01, 2019 3:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: So excited, had to share CEA results!!
Replies: 14
Views: 1713

Re: So excited, had to share CEA results!!

Wow, just wonderful news - that's what I like to hear. Sounds like the chemo and the liver resection, really delivered a knock out punch to those damn cancer cells. Congrats!
by Dionca
Sat Sep 21, 2019 11:04 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Questions regarding Folfox treatments
Replies: 15
Views: 2015

Re: Questions regarding Folfox treatments

It doesn't appear that you are experiencing any major effects from the oxi so far, but you have only had 3 sessions. It seems like it's the fingers and feet that are the main concern. My onc told me that if the tingling/numbness in the fingers/feet didn't resolve by the time the next chemo session c...
by Dionca
Wed Aug 28, 2019 5:20 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Quick intro -- diagnosed Friday
Replies: 147
Views: 23032

Re: Quick intro -- diagnosed Friday

Port installation was a breeze - they give you twilight sedation, so you don't feel any pain. It was a bit sore while healing, and I sleep on that side, but with some pillow readjustment was ok. I felt having a port was the best thing ever - I would put some Emla cream on it (with a little saran wra...
by Dionca
Wed Aug 28, 2019 11:58 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Quick intro -- diagnosed Friday
Replies: 147
Views: 23032

Re: Quick intro -- diagnosed Friday

Hi Zack: Regarding Isolated tumour cells. I had the same thing, and couldn't figure out why I was still classified as having only 2 nodes affected, when I had these others floating around. Didn't these count? Anyway, I researched this, and I'm showing my findings below. Long and short is, that they ...
by Dionca
Mon Jul 08, 2019 7:15 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scared Son, dad maybe has IIIC? Can anyone help me understand this pathology?
Replies: 7
Views: 1431

Re: Scared Son, dad maybe has IIIC? Can anyone help me understand this pathology?

I had a similar diagnosis, with cancer of the cecum, involving the valve. My pathology report showed an inflammatory reaction on the serosal surface raising the possibiity of a peritoneal breach. However as there were no tumour cells found at the surface, they staged it at T3 (if it had breached the...
by Dionca
Sat Jun 29, 2019 11:59 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Here we go. Xeloda dosage question
Replies: 13
Views: 1805

Re: Here we go. Xeloda dosage question

If it's not available online, you should ask for copies of everything - bloodwork and scan reports etc. each time your husband sees the oncologist.

I always have to ask, they never offer them automatically.
by Dionca
Mon Jun 24, 2019 3:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CT shows my liver met is SMALLER!!
Replies: 18
Views: 2185

Re: CT shows my liver met is SMALLER!!

That's wonderful news. I see you've been on a big roller coaster this week, but ending on a high is the best thing ever :)
by Dionca
Thu Jun 20, 2019 7:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Hair removal - help?
Replies: 13
Views: 1454

Re: Hair removal - help?

Why not try an epilator or a razor. My Braun epilator has a few attachments, one of which is a razor, so you get two hair removal gadgets in one.
by Dionca
Sun Jun 16, 2019 2:06 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: UPDATED Back On chemo - Every ache and pain becoming related to Cancer
Replies: 5
Views: 1339

Re: UPDATED Back On chemo - Every ache and pain becoming related to Cancer

I'm very sorry that you have to go through this again, but glad you didn't ignore what your body was telling you. I like how they moved so fast, without even waiting for results, so you know you are in good hands. I hear very good things about Sunnybrook, so at least you are in the right place and t...

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