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by e_enyedy
Sun Jan 12, 2020 10:30 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Cancer and coffee????
Replies: 12
Views: 1812

Re: Cancer and coffe????

Don't think there are any impediments.
The Clinic where I receive treatment has several coffee stand on every floor- even in the infusion sections.
by e_enyedy
Mon Nov 11, 2019 11:58 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: HELP! suspended treatment (nephrology)
Replies: 8
Views: 1646

Re: HELP! suspended treatment (nephrology)

Unfortunately, Oxaliplatin is one of the least nephrotoxic chemo agent for CRC. I looked into this when I had renal issues caused by Avastin.
Perhaps you should ask your Oncologist.
by e_enyedy
Fri Jul 05, 2019 6:10 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone who experienced pre-sacral tumor or surgery?
Replies: 0
Views: 4079

Anyone who experienced pre-sacral tumor or surgery?

I have an inactive mass in my abdomen, right next to the anastomosis (sutures) of the colectomy I had over six years ago. PET/CT scan every three months confirmed the inactivity and the stability of the mass (no changes in size). Some radiologists read it as adhesions, following surgery. Others read...
by e_enyedy
Sun Jun 16, 2019 11:21 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Things I should know about Avastin
Replies: 13
Views: 1682

Re: Things I should know about Avastin

Avastin is an angiogenesis inhibitor- it simply means that it impedes the formation of blood vessels to the tumor. In other words, it is NOT chemotherapy. I was on Avastin for almost 4 and half years, --luckily- with no side effects. What I did have was constant urine check. Also, you can not have a...
by e_enyedy
Sat Mar 30, 2019 6:16 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Radioactive Sugar Uptake -PET
Replies: 3
Views: 764

Re: Radioactive Sugar Uptake -PET

The Standard Uptake Value (SUV) is kind of a complex topic. Assuming you had your scan at the same place and there were no other physical changes (your weight, etc) a lower uptake value is definitely a good sign. Nonetheless, I would suggest you discuss it with your Radiologist. (FYI: there are no u...
by e_enyedy
Sun Feb 03, 2019 12:32 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: NED maybe. Stage 4, after 10 years Free. FOLFIRi?
Replies: 9
Views: 1744

Re: NED maybe. Stage 4, after 10 years Free. FOLFIRi?

according to "universal" wisdom, the effectiveness of Foilfox and Folfiri are just about the same.
Unfortunately - even after long searches--I could not find any comparative studies.

all the best

E
by e_enyedy
Thu Jan 24, 2019 11:35 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Coping at work while on rectal cancer treatments
Replies: 10
Views: 1622

Re: Coping at work while on rectal cancer treatments

please do keep in mind that individual responses vary greatly, so whatever I went trough is pretty much meaningless for you. (Though a positive frame of mind does help a lot!) My surgery was a laparoscopic sigmoid resection. Ten days after surgery had a follow=up visit with the surgeon. He found eve...
by e_enyedy
Tue Jan 22, 2019 8:43 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Folfox v. Folfiri?
Replies: 19
Views: 2883

Re: Folfox v. Folfiri?

Both chemo regimens seem to have the same effectiveness for treating metastatic CRC.
As far as I could make it out, there are no direct comparisons of the two treatments. I guess most of us will meet both treatments in the c ourse of
our disease.

Cordially
E
by e_enyedy
Fri Jan 04, 2019 9:41 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 3C Recently Diagnosed - need support
Replies: 18
Views: 4081

Re: 3C Recently Diagnosed - need support

All I can tell you: forget the statistics. Statistics apply for large numbers. You are ONE human being, If you read carefully the available (good) information, you will see that nobody has a clue how a person's disease will behave. When you start your treatments, nobody has a clue on how the disease...
by e_enyedy
Fri Jan 04, 2019 9:17 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lymph nodes and chemo
Replies: 7
Views: 2299

Re: Lymph nodes and chemo

Ask your Onco to order a PET/CAT scan.

E
by e_enyedy
Fri Jan 04, 2019 9:15 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: How long on Xeloda?
Replies: 2
Views: 1062

Re: How long on Xeloda?

Hello again:
forgot to add:
If you search carefully on the Web, there are some clinical trials (unfortunately not very many) on maintenance chemo with Xeloda.


E
by e_enyedy
Fri Jan 04, 2019 9:10 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: How long on Xeloda?
Replies: 2
Views: 1062

Re: How long on Xeloda?

my case is different- but I will try to give an idea of my Xeloda treatment. A met showed up at the beginning of 2015, two and a half years after surgery, which was NOT followed by chemo. Had 8 3-weekly sessions of Folfox with Avastin- great result: NED ; immediately followed with the same routine, ...
by e_enyedy
Tue Dec 11, 2018 2:41 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Sigh! Nervous again
Replies: 13
Views: 2198

Re: Sigh! Nervous again

Unfortunately (?) we can not escape both: the scope shows the inside of the colon; the scan shows the outside.
all the best

E
by e_enyedy
Sat Dec 01, 2018 2:20 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: A reaction to what?
Replies: 6
Views: 1217

Re: A reaction to what?

My regimen started with prep (anti-emetics)- then Oxaliplatin and Avastin - it went so-so/
Then we switched the sequenceadministering Avastin, leaving Oxaiplatin last - and it went much better.
Maybe this might help

E
by e_enyedy
Sat Dec 01, 2018 2:12 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New and scared...
Replies: 8
Views: 1467

Re: New and scared...

Look at it this way: exclude cancer or the very very low risk of some side effect?
E

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