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by martd
Sun Nov 10, 2019 10:43 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Need help metallic taste
Replies: 15
Views: 427

Re: Need help metallic taste

The jaw spasms you mentioned could be what's know as "first bite" most people experienced this. When taking the first bite of food the jaw would feel like it locks up but then it would go away. If that's what she's feeling it's a typical side effect and will go away after the oxi is stoppe...
by martd
Thu Nov 07, 2019 11:55 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Fellow LARS-ites, Can we talk gas?!
Replies: 5
Views: 171

Re: Fellow LARS-ites, Can we talk gas?!

Not sure if it will help in your situation but when I had the blockage I would get gas and pain in my stomach. Eating blue berries worked well. It worked almost immediately.
by martd
Mon Nov 04, 2019 8:55 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Need help metallic taste
Replies: 15
Views: 427

Re: Need help metallic taste

One thing I found worked good for me was the peppermint candies. The red and white pinwheel ones. It helped with drinking water also, I would have one in my mouth while drinking. As far as eating, different things work for different people. Sauce type foods worked good for me, anything wet. Mash pot...
by martd
Sat Nov 02, 2019 8:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 3 month scan ? What to expect. (Rectal)
Replies: 18
Views: 563

Re: 3 month scan ? What to expect. (Rectal)

I did 12 rounds of folfox, after the first couple of rounds I noticed a big difference, bowl movements were back to normal. At my first scan it showed about 40% shrinkage with the liver Mets, the scan wasn't a good image for the rectal tumor but I believe it's because the tumor was gone at that time...
by martd
Thu Oct 17, 2019 11:09 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Need your hindsight! (Scared)
Replies: 9
Views: 672

Re: Need your hindsight! (Scared)

I've seen numerous post where people have used THC for nausea. I never tried it myself but they all said It works really good. THC gummies seem to be what people use. In my case the worse nausea I had was from constipation, after relieving that the nausea would clear up.
by martd
Thu Sep 05, 2019 11:12 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Itchy Skin
Replies: 7
Views: 760

Re: Itchy Skin

The day after my liver resection my bilirubin numbers were elevated and symptoms was itching, it was all over not just one particular spot.
by martd
Wed Aug 07, 2019 10:30 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Life insurance, anyone?
Replies: 16
Views: 1732

Re: Life insurance, anyone?

I started a policy after diagnosed. No cancer or health questions, the only real stipulation was if I die from an illness within the first two years it wouldn't pay, although all the premiums paid would be refunded. A little more pricey than I would like it's 32.50 a month for $10,000 with the optio...
by martd
Sat Aug 03, 2019 11:10 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Intro, and please give your feedback
Replies: 63
Views: 4990

Re: Intro, and please give your feedback

All it takes is a phone call. My personal experience, after my first appointment with an oncologist and colon surgeon I called Mayo Clinic. They scheduled 2 appointments the following day, they retrieved all my medical records and pathology that same day. In the morning had my first CT scan, 2 appoi...
by martd
Fri Jul 26, 2019 9:01 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Unrelenting fatigue...help!
Replies: 4
Views: 635

Re: Unrelenting fatigue...help!

I experienced fatigue also after PVE, although not near that bad, but it was different than the chemo fatigue. One thing I noticed that made it much worse was Altitude. I took a trip north went from elevation 1100 to 7000 and I could hardly breath or even walk, took a couple hours to acclimate. Mayb...
by martd
Tue Jul 16, 2019 6:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Family history
Replies: 3
Views: 646

Re: Family history

The 45 year age is for people at average risk, with you having an immediate family member with colon cancer that puts you at high risk and lowers the age. I would say do it, not only being high risk but more and more younger people are being diagnosed with colon cancer. The procedure is a piece of c...
by martd
Fri Jul 12, 2019 10:02 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mayo clinic coming to the UK
Replies: 1
Views: 415

Mayo clinic coming to the UK

Mayo clinic is coming to London with possibly opening a large campus soon.

https://www.standard.co.uk/news/health/ ... d=70366880
by martd
Sun Jun 30, 2019 11:30 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My CRC with liver mets journey
Replies: 282
Views: 41448

Re: My CRC with liver mets journey

Just a thought here, maybe make some strategic moves, start getting all client's contact info for future employment or even a business venture on his own. Termination happens fast he may end up locked out of all access to the company with no notice. Hope it doesn't come to this but sounds like he wi...
by martd
Sun Jun 23, 2019 8:12 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Questions, questions, too many questions.
Replies: 27
Views: 3213

Re: Questions, questions, too many questions.

My liver surgeon told me "you'd be surprised how many people never get surgery when it is possible". Unfortunately I find this both unsurprising and borderline criminal. If the one thing I can achieve throughout this process is that every newly-diagnosed patient with liver mets gets an ea...
by martd
Fri Jun 21, 2019 12:22 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Questions, questions, too many questions.
Replies: 27
Views: 3213

Re: Questions, questions, too many questions.

I agree with robster, With my situation had it been up to my oncologist I would never of had surgery, At my second scan he told me " I know the surgeon told you surgery was possible but it's not going to happen, We'll put you on maintenance chemo after folfox". It was a different story wit...
by martd
Mon Jun 17, 2019 8:15 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My CRC with liver mets journey
Replies: 282
Views: 41448

Re: My CRC with liver mets journey

For what it's worth, although my situation is different my two scans before surgery showed the tumors shrunk, the first scan showed 40% the second showed only 30%. Although the scan still showed tumor, pathology after resection showed they were dead. You mentioned having a good response in the begin...

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