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by martd
Wed Feb 13, 2019 9:14 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Just how bad is it?
Replies: 7
Views: 804

Re: Just how bad is it?

When I was diagnosed I had 17 tumors, 14 were on the right side of the liver 3 were on the left side the largest was 7 cm. When I first met with my liver surgeon I was told with a good response from chemo he could do the surgery. The plan was to first resect the left side tumors then PVE surgery all...
by martd
Mon Feb 11, 2019 9:22 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: smallest tumors that turned up on your PET, PET/CT or PET/MRI ??
Replies: 8
Views: 261

Re: smallest tumors that turned up on your PET, PET/CT or PET/MRI ??

Have they mentioned doing a biopsy? I believe it's an easy procedure, they use a needle. My onc mentioned biopsying my liver mets at my first appt. but he never did saying it wasn't necessary.
by martd
Sun Jan 27, 2019 10:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Its me....Again
Replies: 12
Views: 623

Re: Its me....Again

Hang in there Nicole, you've come a long way so far and you're doing awesome. I had chemo sessions that were also much worse than previous ones but then the next would be a lot better. Be sure and hydrate the day before and stay hydrated during. You're having a really good response to chemo let that...
by martd
Wed Dec 05, 2018 6:04 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Supporting my husband with a new DX *UPDATE*
Replies: 14
Views: 1423

Re: Supporting my husband with a new DX

I lost 20 pounds, went from 150 to 129. I wasn't a big guy to begin with so 20 pounds was alot to lose. Most of my weight loss was from not eating right because of the tumor blockage. Once I started treatment the chemo killed the tumor , I actually put my weight back on during treatment. That's exce...
by martd
Fri Nov 23, 2018 3:25 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Wedge resection vs. full lobe removal?
Replies: 8
Views: 638

Re: Wedge resection vs. full lobe removal?

That sounds like a very good plan. Hopefully they are able to do the resection laparoscopically also. My first resection was laparoscopic, recovery went really good, except I was feeling to good and over did it, was a little to active and ended up in alot of pain for 3 days. I should have sat on my ...
by martd
Fri Nov 23, 2018 1:55 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Coping with FOLFOX - first doses
Replies: 9
Views: 729

Re: Coping with FOLFOX - first doses

For me the two days after disconnect I was wiped out, fatigue and nauseous. By the third day I started feeling better. I tried different things for the nausea, what worked the best was eating small snacks when I felt it coming on. Crackers and toast was good for me when I wanted something quick. It ...
by martd
Thu Nov 22, 2018 3:44 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Happy Thanksgiving!
Replies: 9
Views: 570

Re: Happy Thanksgiving!

Happy Thanksgiving!!
by martd
Tue Nov 20, 2018 10:47 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Wedge resection vs. full lobe removal?
Replies: 8
Views: 638

Re: Wedge resection vs. full lobe removal?

The liver will regenerate, most likely even grow back to it's original size. I had over half my liver removed along with my gallbladder in July. I recovered quickly with no problems other than an incisional site infection. Either way it will be an open surgery and sounds like good advice about not k...
by martd
Sat Nov 17, 2018 12:22 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 4 - liver mets disappeared
Replies: 16
Views: 1566

Re: Stage 4 - liver mets disappeared

Oncologist typically lean towards treatment. That is good advice your's gave you. Maybe an option might be to continue the maintenance chemo for at least a year or two and then choose to stop if the monitoring goes well. It's a fine balancing act with risk vs reward. Maybe talk with the oncologist a...
by martd
Fri Nov 16, 2018 10:14 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Sleeping with: bag, heart monitor and pump accached
Replies: 9
Views: 690

Re: Sleeping with: bag, heart monitor and pump accached

I was able to sleep on my right side and stomach with the port accessed. At first I wouldn't even try it, but after a few treatments I did, wasn't a problem at all no pain or discomfort . But I did use a very small throw pillow right beside the needle so there wasn't direct pressure.
by martd
Tue Nov 13, 2018 9:53 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: HAI pump without Dr. K at MSK
Replies: 26
Views: 1596

Re: HAI pump without Dr. K at MSK

With a stage 4 cancer diagnosis you will qualify for SSI disability, they have a compassionate allowance program that streamlines the process. It will take a few months before checks start rolling in so if this is something that will work for you start the process soon. Also does you employer offer ...
by martd
Tue Nov 06, 2018 9:25 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: For those previously advised no surgery.....
Replies: 14
Views: 1803

Re: For those previously advised no surgery.....

I did 10 rounds before first lever surgery then 2 more before the second. At my first scan my oncologist told me I wouldn't have surgery, he talked about maintenance chemo. The scan showed about 40% shrinkage. My surgeon told me in the beginning there was potential for surgery with a good response f...
by martd
Sun Nov 04, 2018 11:42 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Maybe a problem ...
Replies: 11
Views: 1148

Re: Maybe a problem ...

You're complaining about doing paperwork? There are people on this forum fighting for their lives and you want them to figure out your medical insurance problems because you detest paperwork? You received alot of excellent advise here now all you have to do is put in a little effort and apply it. Yo...
by martd
Mon Oct 29, 2018 10:11 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Major cancer centers/insurance
Replies: 26
Views: 2353

Re: Major cancer centers/insurance

I did my Open Enrollment this morning and found that I had already signed up for 66 2/3rds after-tax Long-Term Disability. I must have done this last year during Open Enrollment. I don't recall doing this but I was thinking more about life insurance and maybe I changed both and unchanged life insur...
by martd
Fri Oct 26, 2018 10:00 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Major cancer centers/insurance
Replies: 26
Views: 2353

Re: Major cancer centers/insurance

Here in Arizona there is only one insurance provider available to purchase from, some company named Ambetter. Mayo Clinic is here in Arizona but does not accept Ambetter. And Mayo accepts almost all major Ins, even Medicaid. The medical insurance industry is almost non-existent for people that pay t...

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