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by martd
Fri Aug 07, 2020 10:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Clinical trial for CCR5 positive metastatic tumors
Replies: 0
Views: 997

Clinical trial for CCR5 positive metastatic tumors

This is a clinical trial that has shown very good results in triple negative metastatic breast cancer. It's been expanded to include over 20 different solid tumors including colon cancer.

https://clinicaltrials.gov/ct2/show/NCT04504942
by martd
Fri Jul 17, 2020 4:34 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Personal question ... how do YOU do it?
Replies: 13
Views: 1717

Re: Personal question ... how do YOU do it?

Thank you, I'm not sure the process for Medicare. At the time I had medical insurance so I didn't even look into it. But I did eventually get Medicare. Earlier this year I received my Medicare card in the mail, apparently it was an automatic process, I never applied for it. And that would put it nea...
by martd
Thu Jul 16, 2020 9:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Personal question ... how do YOU do it?
Replies: 13
Views: 1717

Re: Personal question ... how do YOU do it?

SSDI has a compassionate review process for stage 4 cancer patients. It quick and easy. shortly after I applied they called me and took all my information over the phone. Approval is only a matter of a couple months. I was very surprised how quick and easy it was.
by martd
Sat May 30, 2020 10:52 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Hi again , hoping for opinions
Replies: 18
Views: 2469

Re: Hi again , hoping for opinions

In regards to your insurance question social security disability might be an option for you. They have an accelerated approval process for stage 4 cancer patients. After receiving disability he would then qualify for Medicare. As for the second opinion I would say definitely go for it. At least star...
by martd
Wed Apr 15, 2020 12:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Leronlimab : new drug treatment for metastasis
Replies: 4
Views: 967

Re: Leronlimab : new drug treatment for metastasis

Update: Leronlimab was granted a phase 2 basket trial involving 22 solid cancer tumors. Colon cancer is included. The first patient was injected today, I believe it was breast cancer. So far they have been seeing very good results with the metastatic breast cancer trial, and a big plus is side effec...
by martd
Fri Apr 10, 2020 10:17 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Leronlimab : new drug treatment for metastasis
Replies: 4
Views: 967

Leronlimab : new drug treatment for metastasis

I wanted to share a new drug in trials that looks very promising. Leronlimab developed by a company named Cytodyn in Vancouver Washington. Now it's in clinical trials for breast cancer butt there is also mention that it should work on colorectal cancer as well. I believe it's in phase 2 butt has bee...
by martd
Sat Feb 22, 2020 12:20 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Life insurance
Replies: 3
Views: 617

Re: Life insurance

Are you referring to selling your policy, or filing a claim with the insurance company? My life insurance policy has a terminal illness rider and also a critical illness rider. I was able to file for the critical rider and draw out a portion. There are no taxes due on life insurance payouts. I don't...
by martd
Tue Jan 07, 2020 8:56 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Suggestions for treatment facility for liver and lung mets
Replies: 22
Views: 3857

Re: Suggestions for treatment facility for liver and lung mets

I can tell you about my experience with my first appointments. The oncologist told me surgery wouldn't be possible but my liver surgeon told me he saw potential, his exact words were he would swing for the fences for me. He was very adamant in telling me that I'd be surprised at how many people coul...
by martd
Fri Jan 03, 2020 8:26 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Reoccurance Questions/Help
Replies: 7
Views: 1678

Re: Reoccurance Questions/Help

Mayo clinic in Phoenix has proton beam therapy. I don't even know if that would be an option for you but might be worth a call. They have very convenient accomodations for out of town patients. There's even a large Marriott residents inn on their campus. Also I've heard alot of good things about Hun...
by martd
Wed Dec 18, 2019 12:00 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Bile duct leak
Replies: 7
Views: 1093

Re: Bile duct leak

I have a bile duct leaking right now, been leaking for about a year and half now. With mine it's pretty much contained in a cavity where the right side of my liver was. I didn't have drains after my liver surgery but there was a growing fluid collection that showed on scans every 3 months. It seemed...
by martd
Fri Dec 06, 2019 10:39 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Pill thru j tube
Replies: 4
Views: 1082

Re: Pill thru j tube

Most likely it's beyond the pharmacy to make that call. Have you discussed it with the doctors? They might ok with it or feel it's safe enough to try.
by martd
Fri Dec 06, 2019 8:46 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Pill thru j tube
Replies: 4
Views: 1082

Re: Pill thru j tube

Any possibility of dissolving the pill in a small amount of water and taking it in liquid form?
by martd
Sun Nov 10, 2019 10:43 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Need help metallic taste
Replies: 15
Views: 1316

Re: Need help metallic taste

The jaw spasms you mentioned could be what's know as "first bite" most people experienced this. When taking the first bite of food the jaw would feel like it locks up but then it would go away. If that's what she's feeling it's a typical side effect and will go away after the oxi is stoppe...
by martd
Thu Nov 07, 2019 11:55 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Fellow LARS-ites, Can we talk gas?!
Replies: 5
Views: 571

Re: Fellow LARS-ites, Can we talk gas?!

Not sure if it will help in your situation but when I had the blockage I would get gas and pain in my stomach. Eating blue berries worked well. It worked almost immediately.
by martd
Mon Nov 04, 2019 8:55 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Need help metallic taste
Replies: 15
Views: 1316

Re: Need help metallic taste

One thing I found worked good for me was the peppermint candies. The red and white pinwheel ones. It helped with drinking water also, I would have one in my mouth while drinking. As far as eating, different things work for different people. Sauce type foods worked good for me, anything wet. Mash pot...

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