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by martd
Tue Oct 09, 2018 7:16 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 4 to NED- Please tell us
Replies: 31
Views: 1351

Re: Stage 4 to NED- Please tell us

A couple of hours ago today I left my appt going over my first PET MRI since finishing treatment and was told it was clear. I started with 17 liver Mets back in Nov of 2017. The same Doctor that broke that news to me then told me today with a smile I'm giving you the best possible news you can expec...
by martd
Sun Oct 07, 2018 8:54 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: DH wondering how others dealt with pain and how long it lasts?
Replies: 2
Views: 273

Re: DH wondering how others dealt with pain and how long it lasts?

I experienced relief fairly quick, within the first couple of treatments and that was with only chemo no radiation. It will all depend on his response. The beginning is rough but once you get settled into treatment it gets easier. Hope it all goes well for him.

Dan
by martd
Sat Sep 29, 2018 11:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I need a pep talk
Replies: 14
Views: 619

Re: I need a pep talk

It's good that you are responding to chemo and feeling good. Start looking into clinical trials and immunotherapy. Has your oncologist mentioned this yet? Keep fighting you can do this, try not to think and worry about the future, just focus on getting through today.
by martd
Fri Sep 21, 2018 12:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 2 swollen nodes in abdomen...
Replies: 15
Views: 1405

Re: 2 swollen nodes in abdomen...

I don't have experience with that type of incision but I have had internal stitches fester up through my incision. Thought this might help. Good luck to you, hope your appt goes good.
by martd
Fri Sep 21, 2018 11:51 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: endoscopic full thickness resection
Replies: 4
Views: 543

Re: endoscopic full thickness resection

That's good news Tom. I hope it goes well wishing you the best.
by martd
Thu Sep 20, 2018 6:38 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surgery Tomorrow - 27th New Zealand Time
Replies: 45
Views: 12540

Re: Surgery Tomorrow - 27th New Zealand Time

Hang in there Steve. Sorry you're such a rough time. Smooth sailing from here on out. You'll get through it.

Dan
by martd
Mon Sep 17, 2018 1:47 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rejected at mskcc because of 3mm possible ling met
Replies: 5
Views: 441

Re: Rejected at mskcc because of 3mm possible ling met

I don't know of any that use HAI pump, any major cancer center is a good choice. Stay with research cancer centers. MD Anderson is ranked #1 in the country for cancer. Mayo Clinic is a good choice, Cleveland clinic, Dana Farber. There are many others. I received treatment at Mayo in Phoenix they did...
by martd
Sun Sep 16, 2018 3:48 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: FOLFIRI side effects, horrible 4th tx
Replies: 3
Views: 364

Re: FOLFIRI side effects, horrible 4th tx

I don't have any experience with folfri I was on folfox with avastin with no major side effects. What you described could be serious. How is he doing now, better hopefully. Have you contacted your oncologist? I would definitely report that side effect . Are they doing blood work at his infusion? His...
by martd
Wed Sep 12, 2018 4:58 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Sorry, I can't do that, I have cancer....
Replies: 10
Views: 1592

Re: Sorry, I can't do that, I have cancer....

You know what guys, everyone with this disease can and SHOULD be able to play that card anytime you want to, and not feel even slightest bit of guilt or shame for it. F anyone who would give you sh*t for doing so... Well said, I agree I got out of jury duty last month playing the cancer card. First...
by martd
Sun Sep 09, 2018 10:15 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Encouragement
Replies: 15
Views: 4426

Re: Encouragement

rtomlin wrote:Congrats! ]Similar diagnosis -- are you allowed to share where you were treated? Thx so much..


Are you looking for a major cancer center? Are you familiar with MSK in New York? With having liver mets they are probably the best choice. There are many more also.
by martd
Fri Sep 07, 2018 10:15 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: endoscopic full thickness resection
Replies: 4
Views: 543

Re: endoscopic full thickness resection

I don't have any info on that procedure, but it might be worth a call to one of the major centers you mentioned. Many of them have housing assistance programs for traveling from out of state. The Mayo here in Phoenix has a Marriott residence inn next door pretty much exclusive to Mayo. And the Ameri...
by martd
Thu Sep 06, 2018 7:30 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scanxiety Part 1000
Replies: 18
Views: 4861

Re: Scanxiety Part 1000

My first visit with the oncologist I was told then there was no surgery for my condition having 17 tumors , he told me my liver would look like Swiss cheese. But a week later at my appt with my liver surgeon I was told there was potential with a good response from chemo. My CEA at the beginning was ...
by martd
Tue Sep 04, 2018 9:01 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: MSI-H with liver met, in search of help
Replies: 13
Views: 823

Re: MSI-H with liver met, in search of help

Hi Trevor, sorry you're going through this. If you scroll down , it may even be on the next page but there is a thread on MSS with some new info. I believe the poster is jackandkatiesmom, that could be wrong but it's close. Not sure if it applies to your situation but check it out could be something...
by martd
Tue Aug 28, 2018 8:46 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Life ins. policy...critical illness rider
Replies: 5
Views: 609

Re: Life ins. policy...critical illness rider

I didn't even realize the riders were in the policy, I've had it for over ten years and didn't remember the details. I'm glad I called my agent. I was actually apprehensive of calling him, thinking with my condition I shouldn't be letting them know.

Dan
by martd
Tue Aug 28, 2018 8:40 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I got to update my signature!
Replies: 16
Views: 4555

Re: I got to update my signature!

Congrats Dave, awesome news!!

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