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by martd
Sat May 30, 2020 10:52 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Hi again , hoping for opinions
Replies: 18
Views: 2064

Re: Hi again , hoping for opinions

In regards to your insurance question social security disability might be an option for you. They have an accelerated approval process for stage 4 cancer patients. After receiving disability he would then qualify for Medicare. As for the second opinion I would say definitely go for it. At least star...
by martd
Wed Apr 15, 2020 12:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Leronlimab : new drug treatment for metastasis
Replies: 4
Views: 804

Re: Leronlimab : new drug treatment for metastasis

Update: Leronlimab was granted a phase 2 basket trial involving 22 solid cancer tumors. Colon cancer is included. The first patient was injected today, I believe it was breast cancer. So far they have been seeing very good results with the metastatic breast cancer trial, and a big plus is side effec...
by martd
Fri Apr 10, 2020 10:17 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Leronlimab : new drug treatment for metastasis
Replies: 4
Views: 804

Leronlimab : new drug treatment for metastasis

I wanted to share a new drug in trials that looks very promising. Leronlimab developed by a company named Cytodyn in Vancouver Washington. Now it's in clinical trials for breast cancer butt there is also mention that it should work on colorectal cancer as well. I believe it's in phase 2 butt has bee...
by martd
Sat Feb 22, 2020 12:20 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Life insurance
Replies: 3
Views: 591

Re: Life insurance

Are you referring to selling your policy, or filing a claim with the insurance company? My life insurance policy has a terminal illness rider and also a critical illness rider. I was able to file for the critical rider and draw out a portion. There are no taxes due on life insurance payouts. I don't...
by martd
Tue Jan 07, 2020 8:56 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Suggestions for treatment facility for liver and lung mets
Replies: 22
Views: 3723

Re: Suggestions for treatment facility for liver and lung mets

I can tell you about my experience with my first appointments. The oncologist told me surgery wouldn't be possible but my liver surgeon told me he saw potential, his exact words were he would swing for the fences for me. He was very adamant in telling me that I'd be surprised at how many people coul...
by martd
Fri Jan 03, 2020 8:26 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Reoccurance Questions/Help
Replies: 7
Views: 1634

Re: Reoccurance Questions/Help

Mayo clinic in Phoenix has proton beam therapy. I don't even know if that would be an option for you but might be worth a call. They have very convenient accomodations for out of town patients. There's even a large Marriott residents inn on their campus. Also I've heard alot of good things about Hun...
by martd
Wed Dec 18, 2019 12:00 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Bile duct leak
Replies: 7
Views: 1060

Re: Bile duct leak

I have a bile duct leaking right now, been leaking for about a year and half now. With mine it's pretty much contained in a cavity where the right side of my liver was. I didn't have drains after my liver surgery but there was a growing fluid collection that showed on scans every 3 months. It seemed...
by martd
Fri Dec 06, 2019 10:39 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Pill thru j tube
Replies: 4
Views: 1046

Re: Pill thru j tube

Most likely it's beyond the pharmacy to make that call. Have you discussed it with the doctors? They might ok with it or feel it's safe enough to try.
by martd
Fri Dec 06, 2019 8:46 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Pill thru j tube
Replies: 4
Views: 1046

Re: Pill thru j tube

Any possibility of dissolving the pill in a small amount of water and taking it in liquid form?
by martd
Sun Nov 10, 2019 10:43 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Need help metallic taste
Replies: 15
Views: 1298

Re: Need help metallic taste

The jaw spasms you mentioned could be what's know as "first bite" most people experienced this. When taking the first bite of food the jaw would feel like it locks up but then it would go away. If that's what she's feeling it's a typical side effect and will go away after the oxi is stoppe...
by martd
Thu Nov 07, 2019 11:55 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Fellow LARS-ites, Can we talk gas?!
Replies: 5
Views: 558

Re: Fellow LARS-ites, Can we talk gas?!

Not sure if it will help in your situation but when I had the blockage I would get gas and pain in my stomach. Eating blue berries worked well. It worked almost immediately.
by martd
Mon Nov 04, 2019 8:55 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Need help metallic taste
Replies: 15
Views: 1298

Re: Need help metallic taste

One thing I found worked good for me was the peppermint candies. The red and white pinwheel ones. It helped with drinking water also, I would have one in my mouth while drinking. As far as eating, different things work for different people. Sauce type foods worked good for me, anything wet. Mash pot...
by martd
Sat Nov 02, 2019 8:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 3 month scan ? What to expect. (Rectal)
Replies: 18
Views: 1460

Re: 3 month scan ? What to expect. (Rectal)

I did 12 rounds of folfox, after the first couple of rounds I noticed a big difference, bowl movements were back to normal. At my first scan it showed about 40% shrinkage with the liver Mets, the scan wasn't a good image for the rectal tumor but I believe it's because the tumor was gone at that time...
by martd
Thu Oct 17, 2019 11:09 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Need your hindsight! (Scared)
Replies: 11
Views: 1536

Re: Need your hindsight! (Scared)

I've seen numerous post where people have used THC for nausea. I never tried it myself but they all said It works really good. THC gummies seem to be what people use. In my case the worse nausea I had was from constipation, after relieving that the nausea would clear up.
by martd
Thu Sep 05, 2019 11:12 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Itchy Skin
Replies: 7
Views: 1026

Re: Itchy Skin

The day after my liver resection my bilirubin numbers were elevated and symptoms was itching, it was all over not just one particular spot.

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