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by heiders33
Thu Oct 11, 2018 6:59 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1305
Views: 224659

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

I've definitely noticed that the neuropathy in my feet has faded over time. I used to get major pins and needles when I took my shoes off at the end of the day, but now it's very faint. We'll see how winter goes when I wear socks and boots again. Just want to encourage anyone else who may be dealing...
by heiders33
Wed Oct 10, 2018 5:40 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I am so worried.
Replies: 36
Views: 2558

Re: I am so worried.

Questions for you guys: 1. If it is rectal cancer, it seems surgery is 4 months out—is that pretty standard? I’m so nervous about it spreading during that time, but the doctor said the chemo/radiation would be fighting to do the opposite. Yes, 4 months is pretty standard. I started radiation in Jun...
by heiders33
Wed Oct 10, 2018 5:21 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stoma Reversal
Replies: 5
Views: 257

Re: Stoma Reversal

If you would like, you can read through my thread of my experience here: http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=59411&hilit=Reversal&start=30 There are also many other experiences chronicled on this board if you search “reversal” or “takedown.” Everyone is different ...
by heiders33
Mon Oct 08, 2018 11:46 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New diagnosis and scared
Replies: 30
Views: 1715

Re: New diagnosis and scared

I second what hiker said. My liver spot lit up on the PET, and they were able to determine from looking at both the CT and MRI that it was a met. They didn’t need to do a biopsy. It was something about the glow around the spot that differentiated it from a benign spot. But in any case, the biopsy wi...
by heiders33
Sat Oct 06, 2018 9:41 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Robino1 has left us today at 6:40pm.
Replies: 23
Views: 1413

Re: Robino1 has left us today at 6:40pm.

:( So so sorry to hear this. She was always so encouraging to everyone even in the midst of her own difficulties. RIP
by heiders33
Fri Oct 05, 2018 12:14 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New diagnosis and scared
Replies: 30
Views: 1715

Re: New diagnosis and scared

I tried to get a second opinion at MSK after I had started treatment and they have a policy of not offering a second opinion until your current course of treatment is done. Not sure if that’s true at other places.
by heiders33
Sat Sep 22, 2018 1:51 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: MSI or MSS
Replies: 28
Views: 6921

Re: MSI or MSS

My oncologist was able to tell me that I was MSS from the biopsy taken at diagnosis. However, he didn’t offer it up, I had to ask about it after learning about it on this board. I too have no idea what the standard practice is.
by heiders33
Sat Sep 22, 2018 9:10 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Dang 1cm Liver Met!
Replies: 79
Views: 27268

Re: Dang 1cm Liver Met!

I had the same situation teacher - don’t know how it got there! I’m having surgery the day after you at MSK. Best of luck with your recovery! Hi! Checking in on you! How are you feeling????? Hey! My surgery actually got moved to the 18th, so I'm still in full on recovery mode. My surgery was roboti...
by heiders33
Sat Sep 15, 2018 9:45 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My furbaby passed away last week
Replies: 12
Views: 597

Re: My furbaby passed away last week

So sorry for your loss. It is heartbreaking. In August I had to say goodbye to my cat of ten years, the only pet I’ve ever owned. He had similar symptoms in the last days - couldn’t eat or walk. I too was in the room with him when the vet gave him the injection. It was the saddest thing I have ever ...
by heiders33
Fri Sep 14, 2018 5:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Dang 1cm Liver Met!
Replies: 79
Views: 27268

Re: Dang 1cm Liver Met!

Ok will do. When you say get the CA199 value, you mean what it was at diagnosis, right?
by heiders33
Fri Sep 14, 2018 4:19 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Dang 1cm Liver Met!
Replies: 79
Views: 27268

Re: Dang 1cm Liver Met!

Ok, maybe I will hold off for now. I found out today that I am KRAS mutant so I’m not sure if that affects anything. I don’t know what my CA199 levels were at diagnosis although if I called my oncologist he could probably tell me.
by heiders33
Fri Sep 14, 2018 3:55 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Dang 1cm Liver Met!
Replies: 79
Views: 27268

Re: Dang 1cm Liver Met!

I would love to take Cimitedine starting today, and take it for two days after surgery. But I would have to ask for it via IV, and how would I do that?
by heiders33
Fri Sep 14, 2018 4:20 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Dang 1cm Liver Met!
Replies: 79
Views: 27268

Re: Dang 1cm Liver Met!

FWIW, my integrative care doctor at MSK, Dr Gary Deng, does not recommend Cimitidene. He said this: “Don’t use cimetidine. Only risks and no benefit. It is a drug known to potently change other drugs’ metabolism, either increasing side effects or decreasing effects.” I’m sure that RP and others here...
by heiders33
Thu Sep 13, 2018 7:55 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: NEW-Need some positivity here.
Replies: 467
Views: 95294

Re: NEW-Need some positivity here.

Great news! Hope the recovery goes well.

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