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by heiders33
Wed May 23, 2018 2:53 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rebuilding neutrophils and platelets
Replies: 4
Views: 123

Re: Rebuilding neutrophils and platelets

I ate a lot of beans and chicken when my platelets were down during chemo. I managed to get my platelets up for my next treatment, so I assume it worked.
by heiders33
Sun May 20, 2018 1:49 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New Member here on the forum
Replies: 98
Views: 11562

Re: New Member here on the forum

I remember getting that rock feeling in my chest - I described it as a piece of lead or a bowling ball in my insides. I had never felt anything like that before, wasn’t even sure if it was nausea or some other appetite suppression. But it wasn’t fun. I got my Oxi reduced in round six to 50% due to n...
by heiders33
Sun May 20, 2018 1:39 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Start tomorrow. So scared.
Replies: 22
Views: 526

Re: Start tomorrow. So scared.

Actually, here is a post I did when I was in the middle of treatment with some tips: viewtopic.php?f=1&t=59205&p=468403#p468403

Again, it’s Xelox not Folfox, but most of my side effects were from the Ox.
by heiders33
Sun May 20, 2018 1:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Start tomorrow. So scared.
Replies: 22
Views: 526

Re: Start tomorrow. So scared.

I didn’t do Folfox, but rather the Xelox regime, which is the pill rather than the pump. Being familiar with Xeloda, I dreaded the side effects of Oxaliplatin more. I remember crying the night before my first infusion because I was reading about side effects and got so scared. The first round was de...
by heiders33
Fri May 18, 2018 2:32 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scan scheduled
Replies: 15
Views: 916

Re: Scan scheduled

Thank you everyone! I am hopeful that it is just benign. Will keep you posted.
by heiders33
Thu May 17, 2018 10:19 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scan scheduled
Replies: 15
Views: 916

Re: Scan scheduled

My scan came back all clear, except there is one teeny 1 cm spot on my liver that they want to check. Both the radiologist and oncologist don't think it looks suspicious, but I have to get an MRI to confirm. My bloodwork has been normal so they don't think it's malignant. But they want me to do the ...
by heiders33
Wed May 16, 2018 8:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 897
Views: 76553

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

I'm still not understanding why your oncologist would want to wait that long. I'm not sure what potential spread has to do with an ileostomy reversal, unless I am missing something? My oncologist's only input into my surgery timing was monitoring my bloodwork to make sure I was ready for surgery. Be...
by heiders33
Wed May 16, 2018 6:38 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 897
Views: 76553

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

My reversal was about a month after chemo ended. It had nothing to do with the timing of the scans, but rather waiting for my blood counts to go up. I'm not sure why your oncologist thinks you have to wait to have a scan before having the reversal. What does your surgeon say? My oncologist told me t...
by heiders33
Thu May 10, 2018 5:34 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Please need prayers
Replies: 23
Views: 1790

Re: Please need prayers

Congratulations! Hoping for the same result a week from today.
by heiders33
Thu May 10, 2018 2:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 897
Views: 76553

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

I started taking aspirin but then I started bruising on my leg so I stopped.

I eat nuts and I take probiotics, vitamin D3, curcumin, lglutamine, and Turkey tail mushroom extract every day. I don’t know if it will help but it’s not hurting so I continue.
by heiders33
Thu May 10, 2018 6:26 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 897
Views: 76553

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

If you don't want to do one more, it seems like you should be able to tell your oncologist that, especially with the side effects you've been having. I've been eating tree nuts every day - walnuts, almonds, hazelnuts, pecans. I love them! And they have the added benefit of making me feel full. I cou...
by heiders33
Wed May 09, 2018 7:14 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 897
Views: 76553

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Wow, congrats on your last infusion! You’ve almost made it! Thanks for chronicling your journey here. Enjoy the beautiful weather!
by heiders33
Sat May 05, 2018 6:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scan scheduled
Replies: 15
Views: 916

Re: Scan scheduled

Thank you all for your encouragement! What a long journey this is - and like everyone here says, most people think that when you’re done with treatment, you’re done. How untrue that is!

OSM, I’ll look into those extra blood tests, thanks. Very helpful.
by heiders33
Fri May 04, 2018 4:07 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: HELP!!!!!!!!! PRE SURGERY QUESTIONS
Replies: 27
Views: 2046

Re: HELP!!!!!!!!! PRE SURGERY QUESTIONS

I was not allowed to eat or drink anything the morning of the surgery, including water.
by heiders33
Wed May 02, 2018 5:31 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Capecitabine (Xeloda) and Hearing Loss ?!?!?!
Replies: 29
Views: 1984

Re: Capecitabine (Xeloda) and Hearing Loss ?!?!?!

Pray tell - what are the female anatomy side effects from radiation? Thank you. For me, I went into chemo/radiation-induced menopause a few weeks into treatment. I am still peri-menopausal and am coming up on one year with no period, which would make me fully menopausal. Some women do get their per...

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