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by heiders33
Sat Aug 18, 2018 5:47 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Dang 1cm Liver Met!
Replies: 18
Views: 1239

Re: Dang 1cm Liver Met!

Hey teacher, I met with the surgeon today, although my appointment left much to be desired for several reasons and I will be getting a second opinion at MSK. Just want to mention that she said there are different schools of thought on chemo in this situation, and she recommends a short chemo regime...
by heiders33
Fri Aug 17, 2018 8:27 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Dang 1cm Liver Met!
Replies: 18
Views: 1239

Re: Dang 1cm Liver Met!

Hey teacher, I met with the surgeon today, although my appointment left much to be desired for several reasons and I will be getting a second opinion at MSK. Just want to mention that she said there are different schools of thought on chemo in this situation, and she recommends a short chemo regime ...
by heiders33
Thu Aug 16, 2018 9:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Dang 1cm Liver Met!
Replies: 18
Views: 1239

Re: Dang 1cm Liver Met!

I don’t know yet if my 1cm spot is cancer, although it likely is. In any case, my onc does not recommend additional chemo. I meet with the surgeon tomorrow to determine whether I need a biopsy and whether I am an RFA candidate. We are in the exact same boat and hopefully we can both get to NED soon!
by heiders33
Wed Aug 08, 2018 8:21 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Liver spot - abnormal PET
Replies: 6
Views: 743

Re: Liver spot - abnormal PET

I keep feeling little twinges in the general area of my liver, and I’m not sure if they’re real or if I’m just imagining things! I’m kind of on pins and needles until I can meet with my oncologist and surgeon on Monday. Also I think I will get a second opinion at MSK.
by heiders33
Tue Aug 07, 2018 8:39 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: NEW-Need some positivity here.
Replies: 447
Views: 44855

Re: NEW-Need some positivity here.

I haven’t met with my doctor yet, he is out of the country. I see both him and the liver surgeon on Monday. After the CT scan he said that it was concerning because the spot wasn’t there a year ago. He also said it could be removed surgically if needed. He also said at the time it could be benign be...
by heiders33
Tue Aug 07, 2018 6:08 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: NEW-Need some positivity here.
Replies: 447
Views: 44855

Re: NEW-Need some positivity here.

I am in your exact same shoes. Mine is probably cancer and I'll have to have it surgically removed. I know it feels like you can't catch a break, but you don't know for sure if it's cancer yet, and it's better to know now than later. It's frustrating, right, since we just ended treatment recently. G...
by heiders33
Tue Aug 07, 2018 5:07 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1183
Views: 101980

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

I showered with my wound uncovered. It helped clean the area and actually felt pretty good.
by heiders33
Tue Aug 07, 2018 2:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 4 Colon Cancer
Replies: 31
Views: 2099

Re: Stage 4 Colon Cancer

Thank you, Stu! I’ll let you know how it goes.
by heiders33
Mon Aug 06, 2018 7:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Liver spot - abnormal PET
Replies: 6
Views: 743

Liver spot - abnormal PET

I found out this morning that my liver spot lit up on the PET scan, so I’m scheduled to meet with a surgeon specializing in surgical oncology next Friday. I’m assuming the next thing is a biopsy to confirm. This is disappointing and feels never ending, but I’m just going to research my options and d...
by heiders33
Mon Aug 06, 2018 5:24 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 4 Colon Cancer
Replies: 31
Views: 2099

Re: Stage 4 Colon Cancer

This is good to read because I am facing a possible liver resection. I have a 1 cm liver spot that came back abnormal on my PET scan. Looking for encouraging stories anywhere I can!
by heiders33
Mon Aug 06, 2018 6:48 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1183
Views: 101980

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Anyone have a rough idea as to how long it took for the hole to close up? If I recall correctly, it took me about four weeks for the hole to close up completely. Now I have a dent in abomen that looks a little ridiculous, but I think that's due to where the ileostomy was located. For those that acq...
by heiders33
Sat Aug 04, 2018 8:08 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Positive Quality Life after LAR
Replies: 12
Views: 459

Re: Positive Quality Life after LAP

I went through it all - chemo, radiation, LAR - and now that I am on the other side I am very happy with my QOL. During and after radiation, I was running to the bathroom a lot like you are, but a year later that is no longer the case. Yes, I do go to the bathroom more than I used to before all this...
by heiders33
Fri Aug 03, 2018 10:25 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colon cancer: my treatment and side effects
Replies: 16
Views: 1133

Re: Colon cancer: my treatment and side effects

I always sneezed a lot the day of the infusion, and I read somewhere to take Benadryl, which took care of it and also helped me sleep. The sneezing is most likely a mild allergic reaction to the drug. I also belched a lot during chemo, and after the first couple days when the steroids wore off my ap...
by heiders33
Thu Aug 02, 2018 6:33 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Hormone Replacement Therapy
Replies: 13
Views: 403

Re: Hormone Replacement Therapy

I have been taking Estradiol Noreth (Activella) since April 2018. My gynecologist prescribed it and said it is very low risk for causing cancer. She said "all studies prove that estrogen replacement doesn't cause breast cancer." It is a very low dose and is even less estrogen than the body...
by heiders33
Mon Jul 30, 2018 8:41 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1183
Views: 101980

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Congrats, Mike! And way to go on the walking. That will get things going faster than anything. Sorry about the heavy anesthetic.

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