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by heiders33
Fri Jun 22, 2018 11:38 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 976
Views: 84311

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

If you want, you can read about my experience on my thread here: http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=59411&start=15#p472865 Also, my surgeon told me about this procedure for months before it took place, so I searched for it on this forum and found lots of helpful info...
by heiders33
Thu Jun 21, 2018 7:30 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scan scheduled
Replies: 43
Views: 2701

Re: Scan scheduled

I can imagine the frustration of not getting a conclusive result, but there is still a good chance that it is not a metastasis. When are having the PET scan? Claudia The PET scan is not scheduled yet, it still needs to be approved by my insurance. I hope it can be scheduled soon. I’m frustrated, bu...
by heiders33
Thu Jun 21, 2018 7:25 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 976
Views: 84311

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

For me, the dripping after the gastrografin enema (similar to barium, just a different substance) was less dripping and more like an explosion! Definitely bring diapers or pads. I also asked for the smaller tube because of radiation and worry about pain if they inserted the larger tube. Make sure yo...
by heiders33
Thu Jun 21, 2018 9:30 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scan scheduled
Replies: 43
Views: 2701

Re: Scan scheduled

The MRI was still inconclusive, so I am going to get a PET scan. If the 1 CM spot lights up then it’s malignant and my oncologist said a surgeon can remove it. He is concerned because this didn’t show up a year ago when I had my first scan. Question: did anyone here develop benign liver spots during...
by heiders33
Tue Jun 19, 2018 5:40 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 976
Views: 84311

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

My oncologist advised keeping my port for two years, so that’s what I’m doing. I got it in November 2017, so if all goes well I’m getting it out in November 2019.
by heiders33
Mon Jun 18, 2018 7:58 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New Member here on the forum
Replies: 112
Views: 13832

Re: New Member here on the forum

Congrats on being done! Hopefully things will only get better from here on out.
by heiders33
Fri Jun 15, 2018 4:36 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mop up chemo experiences
Replies: 132
Views: 13438

Re: Mop up chemo experiences

“If it’s not one thing, it’s another” was my mantra during treatment. I would recover from my infusion, and then my bag would blow out. Etc, etc.

Great job on all the steps!
by heiders33
Thu Jun 14, 2018 8:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Does anyone have a little drinky drink during chemo?
Replies: 10
Views: 457

Re: Does anyone have a little drinky drink during chemo?

Oh my goodness yes, I had so much trouble getting lukewarm water when I would go out. It made me want to go to Europe where they don’t put ice in everything. One time I was on a flight and they announced that there would be no hot drinks. Oy. I mostly abstained during treatment, although I would hav...
by heiders33
Wed Jun 13, 2018 6:02 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Just diagnosed with rectal cancer and terrified
Replies: 16
Views: 818

Re: Just diagnosed with rectal cancer and terrified

When you know your staging and have a plan in place, things will get better, I promise. I was in your shoes over a year ago and I remember that first week. My emotions didn’t know whether to go up or down and every appointment would bring new news and was terrifying. I was able to work through my tr...
by heiders33
Thu Jun 07, 2018 8:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 976
Views: 84311

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Mike, I bought a lot of diapers but I only used a few, mostly in the week after surgery.
by heiders33
Thu Jun 07, 2018 8:31 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Advice for caregivers
Replies: 8
Views: 386

Re: Advice for caregivers

My sister was my primary caregiver. She is very calm and steadfast, but I think her stress came out through her eating habits because she probably gained 10-15 pounds since my diagnosis. Part of it was her finishing my meals that I couldn’t finish. Now that I am a few months from treatment I have st...
by heiders33
Thu Jun 07, 2018 6:13 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scan scheduled
Replies: 43
Views: 2701

Re: Scan scheduled

Susan, so glad to hear you had such a good time in my town. :D It sounds like it was a restorative vacation for you. I am going out to the Black Hills to be with my extended family for a week in July. It's also my parents' 50th wedding anniversary, which we will celebrate. I can't wait! Thank you al...
by heiders33
Wed Jun 06, 2018 5:59 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 976
Views: 84311

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

I’m also pretty convinced that it has something to do with the altering of the microbiome, since it’s so connected to our immune system. That’s an interesting connection to GMO’s. I would not be surprised if that was at least part of the story.
by heiders33
Wed Jun 06, 2018 1:45 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scan scheduled
Replies: 43
Views: 2701

Re: Scan scheduled

I got the MRI rescheduled for June 20 and just found out that I got insurance authorization. Glad to get that taken care of!
by heiders33
Wed Jun 06, 2018 7:23 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Reversal
Replies: 44
Views: 1360

Re: Reversal

I also spent two nights in the hospital. I felt good enough to do a ton of walking and that helped move things along. I hope you don’t have much pain!

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