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by heiders33
Wed Jan 17, 2018 2:41 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 622
Views: 39472

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

I just had my fifth round today and boy do I feel terrible. But it helps knowing that I’m near the end, and that I can recover.
by heiders33
Mon Jan 15, 2018 11:26 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Low Anterior Resection Syndrome: Do you have it?
Replies: 53
Views: 15892

Re: Low Anterior Resection Syndrome: Do you have it?

In my opinion, there is a serious shortcoming in the way that rectal cancer patients are typically treated. Specifically, the 'standard of care' for rectal cancer patients is far too narrowly defined. It needs to also encompass the treatment of surgery-induced disorders, radiation-induced disorders...
by heiders33
Sun Jan 14, 2018 12:27 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surgery scheduled, clinical study for Lifeseal, questions about recovery
Replies: 19
Views: 322

Re: Surgery scheduled, clinical study for Lifeseal, questions about recovery

I have started having my treatments on Wednesdays. I take Wednesday off, then work from home Thursday and Friday. Thankfully I have the flexibility to do this. I use the weekend to recover, then back to the office on Monday. If I had a more physical job I'm not sure if I could go back so soon. The l...
by heiders33
Sun Jan 14, 2018 7:48 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scan timing
Replies: 5
Views: 217

Scan timing

My chemo ends in February and my oncologist told me that my first follow-up scan won’t be for three months after that. Is this normal? I feel like I’ve read of others on here having their first follow-up scan about a month after treatment. I actually haven’t been scanned at all since last May when I...
by heiders33
Thu Jan 11, 2018 8:57 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Got good news today!
Replies: 12
Views: 500

Re: Got good news today!

Great news! I would love to know how your reversal goes.
by heiders33
Thu Jan 11, 2018 8:55 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Xeloda or 5fu only for adjuvant chemotherapy?
Replies: 7
Views: 169

Re: Xeloda or 5fu only for adjuvant chemotherapy?

12 cycles seems like a lot for stage 1. I’m stage 3 and only doing six. That’s because of the recent IDEA study that came out showing that three months of treatment is just about as effective as six. Maybe mention this study to your Onc? I don’t have experience with Xeloda only but it seems like it ...
by heiders33
Thu Jan 11, 2018 5:04 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Fasting During Chemo
Replies: 25
Views: 977

Re: Fasting During Chemo

Interesting! Has anyone tried to do this with Xeloda, where you have to eat something with the pills?
by heiders33
Thu Jan 11, 2018 8:12 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CT results
Replies: 14
Views: 612

Re: CT results

Wonderful news! Enjoy these six months!
by heiders33
Wed Jan 10, 2018 9:04 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 622
Views: 39472

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Yeah, it’s one of the cruelties of Oxaliplatin.
by heiders33
Wed Jan 10, 2018 7:19 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 622
Views: 39472

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Sorry about the bad side effects! I know you can make it through. Sometimes you just have to sleep to allow your body to rest and, honestly, to make the time go by faster.
by heiders33
Wed Jan 10, 2018 4:24 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 622
Views: 39472

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

I always take a Lyft home from infusion because I have the same issues you do - immediate cold sensitivity, eyes shutting, can’t talk. It’s awful.
by heiders33
Tue Jan 09, 2018 7:14 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Feeling stressed....
Replies: 29
Views: 1344

Re: Feeling stressed....

I hope it goes well, Susie!
by heiders33
Tue Jan 09, 2018 5:53 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Awatiing colonoscopy - very worred
Replies: 3
Views: 228

Re: Awatiing colonoscopy - very worred

I have rectal cancer, and yes it is curable, and I don’t need a colostomy (just have a temp ileostomy). The treatment isn’t a fun time but it is totally manageable. It’s just a different protocol from colon cancer, usually involving radiation prior to surgery to shrink the tumor.
by heiders33
Sun Jan 07, 2018 4:58 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone doing xelox and xeloda. Please help
Replies: 23
Views: 559

Re: Anyone doing xelox and xeloda. Please help

Oh, ok, those links all say to take it with food or within 30 minutes after eating. I was confused by what you said about not taking it with the meal. I guess each person is different in terms of figuring out how soon to take it after eating to manage any side effects. I’ve always just taken it righ...
by heiders33
Sun Jan 07, 2018 4:27 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone doing xelox and xeloda. Please help
Replies: 23
Views: 559

Re: Anyone doing xelox and xeloda. Please help

I almost always take my Xeloda with a meal or snack because it says “take with food” on the label. I’ve never been given specific instructions beyond that. Where did you find out not to take it with a meal?

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