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by heiders33
Sat Sep 15, 2018 9:45 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My furbaby passed away last week
Replies: 12
Views: 416

Re: My furbaby passed away last week

So sorry for your loss. It is heartbreaking. In August I had to say goodbye to my cat of ten years, the only pet I’ve ever owned. He had similar symptoms in the last days - couldn’t eat or walk. I too was in the room with him when the vet gave him the injection. It was the saddest thing I have ever ...
by heiders33
Fri Sep 14, 2018 5:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Dang 1cm Liver Met!
Replies: 75
Views: 5804

Re: Dang 1cm Liver Met!

Ok will do. When you say get the CA199 value, you mean what it was at diagnosis, right?
by heiders33
Fri Sep 14, 2018 4:19 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Dang 1cm Liver Met!
Replies: 75
Views: 5804

Re: Dang 1cm Liver Met!

Ok, maybe I will hold off for now. I found out today that I am KRAS mutant so I’m not sure if that affects anything. I don’t know what my CA199 levels were at diagnosis although if I called my oncologist he could probably tell me.
by heiders33
Fri Sep 14, 2018 3:55 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Dang 1cm Liver Met!
Replies: 75
Views: 5804

Re: Dang 1cm Liver Met!

I would love to take Cimitedine starting today, and take it for two days after surgery. But I would have to ask for it via IV, and how would I do that?
by heiders33
Fri Sep 14, 2018 4:20 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Dang 1cm Liver Met!
Replies: 75
Views: 5804

Re: Dang 1cm Liver Met!

FWIW, my integrative care doctor at MSK, Dr Gary Deng, does not recommend Cimitidene. He said this: “Don’t use cimetidine. Only risks and no benefit. It is a drug known to potently change other drugs’ metabolism, either increasing side effects or decreasing effects.” I’m sure that RP and others here...
by heiders33
Thu Sep 13, 2018 7:55 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: NEW-Need some positivity here.
Replies: 460
Views: 51510

Re: NEW-Need some positivity here.

Great news! Hope the recovery goes well.
by heiders33
Wed Sep 12, 2018 7:51 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer stage IV
Replies: 159
Views: 20772

Re: Rectal cancer stage IV

Congrats! I can’t wait to get there one day!
by heiders33
Tue Sep 11, 2018 6:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Good news!
Replies: 13
Views: 1298

Re: Good news!

Can you tell me more about the rash side effect? I don’t know much about it except it shows up on the face and chest. I might be doing Vectibix.
by heiders33
Tue Sep 11, 2018 10:19 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Hai pumps?
Replies: 8
Views: 536

Re: Hai pumps?

Your onc is incorrect. MSK is getting HAI pumps now from Medtronic. They are battery powered rather than pressure powered. The Codman pumps are being saved for people who qualify for Kemeny’s trial (non KRAs mutation). The Medtronic pumps are for everyone else. See if you can get in Kemeny’s trial, ...
by heiders33
Tue Sep 11, 2018 7:11 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Dang 1cm Liver Met!
Replies: 75
Views: 5804

Re: Dang 1cm Liver Met!

I agree wholeheartedly!!!
by heiders33
Wed Sep 05, 2018 7:04 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Dang 1cm Liver Met!
Replies: 75
Views: 5804

Re: Dang 1cm Liver Met!

I had the same situation teacher - don’t know how it got there! I’m having surgery the day after you at MSK. Best of luck with your recovery!
by heiders33
Mon Sep 03, 2018 7:32 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: The things people say to cancer patients
Replies: 44
Views: 2317

Re: The things people say to cancer patients

Oh my goodness, I get the “you look good” and hair comments ALL THE TIME. People are so clueless. It makes me feel embarrassed about how clueless I was before this all started. Yesterday I was telling someone about my upcoming liver resection, and he said “Yeah my wife went through the same thing, s...
by heiders33
Fri Aug 31, 2018 2:31 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Dang 1cm Liver Met!
Replies: 75
Views: 5804

Re: Dang 1cm Liver Met!

Yes, what matters is that you made the right decision for you. It is a very hard one for people in our situation. I appreciate not wanting to feel like a cancer patient, and certainly the pump is always an option later if needed.
by heiders33
Thu Aug 30, 2018 1:07 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Dang 1cm Liver Met!
Replies: 75
Views: 5804

Re: Dang 1cm Liver Met!

Yup, hiker, I get all that. I met with Dr Kingham at MSK today and he gave me the spiel again. He specializes in laparoscopic surgeries so it would not be open. I’m going to think it over over the weekend, but I am leaning toward the pump, mainly bc I am young and I live in NYC so it would be relati...

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