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by heiders33
Mon Nov 20, 2017 5:21 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: ileostomy
Replies: 7
Views: 83

Re: ileostomy

When removing the bag, you can use a no sting medical adhesive remover. Hollister makes one and I’m sure the other companies do too. It comes in both spray and wipe form (I have both). You simply start removing the sticker, then start spraying or wiping until the whole thing comes off. It makes the ...
by heiders33
Mon Nov 20, 2017 5:07 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Age 30 (M) Recently Diagnosed, Family History
Replies: 32
Views: 2507

Re: Age 30 (M) Recently Diagnosed, Family History

I have first bite pretty bad. It’s been one week since my infusion and it’s only just now starting to go away.
by heiders33
Sun Nov 19, 2017 4:04 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 2/3 Rectal Cancer Scan Question/Results
Replies: 8
Views: 138

Re: Stage 2/3 Rectal Cancer Scan Question/Results

I did not have any scans done prior to my surgery. My surgeon said he did not need them - he did a physical exam to see what my response was to chemo/radiation. I haven’t had a scan since DX and won’t get another one until post-adjuvant chemo. So I don’t think it’s necessarily standard procedure, un...
by heiders33
Sat Nov 18, 2017 8:55 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Just found out I have cancer
Replies: 14
Views: 480

Re: Just found out I have cancer

I told my boss and my two direct reports and HR right away, so that they would know why I would be out a few days for tests. I told a few other coworkers in stages, either by text or in person. The rest of my coworkers I told via a written update that was read by my boss at a staff meeting, after I ...
by heiders33
Fri Nov 17, 2017 6:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: How many diagnosed have family with history?
Replies: 7
Views: 212

Re: How many diagnosed have family with history?

My paternal grandmother died of colon cancer in 1986. Otherwise, no history. And I took the genetic Color test and found no genetic mutations.
by heiders33
Fri Nov 17, 2017 3:40 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: LAR Syndrome and laparoscopic surgery, new paper on origins
Replies: 15
Views: 285

Re: LAR Syndrome and laparoscopic surgery, new paper on origins

I spoke with my colorectal surgeon today. He was unfamiliar with this study and asked me to send it to him, which I did. He said it was likely they did high litigation of the IMA during my surgery, but he doesn't remember for sure as it was a couple of months ago now. He did spare the sphincter, as ...
by heiders33
Fri Nov 17, 2017 8:29 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New here. Just found out I have stage 3
Replies: 16
Views: 570

Re: New here. Just found out I have stage 3

I asked my nurses about the numbing agent, but they recommended against it because they wanted me to be able to feel if something went wrong with the infusion. I actually didn't need it - there was less pain with the needle than with a regular IV.
by heiders33
Fri Nov 17, 2017 7:47 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New here. Just found out I have stage 3
Replies: 16
Views: 570

Re: New here. Just found out I have stage 3

Hey Hopegirl- I'm right here with you. Totally blindsided at 48 with stage 3c. 12/17 Lns and scared out of my mind. Terrible dreams and morbid thoughts. PTSD definitely. I am finished with chemo 1. It was a hard road to get here. I have learned a lot about myself. I am stronger than I seem and I'm ...
by heiders33
Thu Nov 16, 2017 11:42 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: LAR Syndrome and laparoscopic surgery, new paper on origins
Replies: 15
Views: 285

Re: LAR Syndrome and laparoscopic surgery, new paper on origins

I was not aware of these risks associated with laparoscopic surgery either. It was considered a victory when my surgery was done entirely laparoscopically, since there was a chance it wouldn't be. But this makes me not so sure. However, I have a very experienced, board-certified colorectal surgeon. ...
by heiders33
Tue Nov 14, 2017 4:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Ileostomy woes
Replies: 28
Views: 771

Re: Ileostomy woes

After I had my reversal early, I was left with so many supplies. Since I had only had the ileo for a few weeks, I was a getting samples in the mail, and was about to try a new appliance due to my bleeding issues. I was able to donate everything. It felt good to know that these supplies were not goi...
by heiders33
Tue Nov 14, 2017 11:59 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone diagnosed in their 20's?
Replies: 16
Views: 595

Re: Anyone diagnosed in their 20's?

I'm a little older than you at age 35, but I started experiencing symptoms when I was 34. I definitely got told by my GI doc that I "didn't need a colonoscopy" and I got treated for internal hemorrhoids. When the symptoms didn't go away, I had to push for a colonoscopy. I only wish I had g...
by heiders33
Sun Nov 12, 2017 3:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: NEW-Need some positivity here.
Replies: 352
Views: 14630

Re: NEW-Need some positivity here.

Congrats, Aqx99! I will be you in a few months.
by heiders33
Sun Nov 12, 2017 2:36 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: NEW-Need some positivity here.
Replies: 352
Views: 14630

Re: NEW-Need some positivity here.

I have had one cycle so far and found it emotionally draining as well. I was fatigued and nauseous and napped a lot. Mentally I felt like I was never going to get out of the fog I was in. But I did! Now I am gearing up for my next Oxi infusion tomorrow and am determined to not let it take over my li...
by heiders33
Fri Nov 10, 2017 6:40 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Recommendations for cold weather gloves?
Replies: 7
Views: 235

Recommendations for cold weather gloves?

I live in a pretty cold climate, and with winter coming (actually, the cold is already here), I'm looking for a good pair of gloves. The Oxaliplatin makes me extra sensitive to cold in my fingers and toes - it probably lasts for about two weeks after treatment. Has anyone found a good pair of gloves...

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