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by heiders33
Tue Jul 10, 2018 4:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: what happens after chemo?
Replies: 15
Views: 486

Re: what happens after chemo?

My follow up is basically the same as benben’s. Blood draw every three months and CT scans every 6 months, for two years. Had my first CT scan three months after treatment ended. It found a liver spot so I’m having a PET done on August 1. I’m supposed to have a colonoscopy done once a year for five ...
by heiders33
Sat Jul 07, 2018 6:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: lung nodules
Replies: 6
Views: 384

Re: lung nodules

I hope someone else can chime in to help; I can only say that I’ve read of plenty of survivors who have had lung nodules. I just want to add that my doctor never once mentioned CEA either. I read about it on here and had to specifically ask for it. I don’t even know what my starting CEA was so I don...
by heiders33
Thu Jul 05, 2018 6:49 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mop up chemo experiences
Replies: 158
Views: 15641

Re: Mop up chemo experiences

Congrats! I remember that 5th cycle being an absolute whammy. So glad that you are done! Go out and celebrate!
by heiders33
Thu Jul 05, 2018 6:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Modifications to prevent/lessen chance of recurrence
Replies: 33
Views: 1152

Re: Modifications to prevent/lessen chance of recurrence

I’ve been taking 81mg Aspirin daily but I keep seeing bruises on my legs. Has anyone else experienced this? I thought maybe it was due to anesthesia but my last surgery was in March. I know aspirin thins the blood, but I’m also on HRT which thickens blood. I wish I could keep taking aspirin, but I a...
by heiders33
Tue Jul 03, 2018 3:45 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Modifications to prevent/lessen chance of recurrence
Replies: 33
Views: 1152

Re: Modifications to prevent/lessen chance of recurrence

I’m definitely more conscientious about drinking alcohol in moderation, but haven’t given it up completely. I also try to avoid added sugars and refined carbs as much as possible. However, that’s balanced with the fact that starchy foods slow my system up really well. I mainly am avoiding highly pro...
by heiders33
Thu Jun 28, 2018 3:08 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Start tomorrow. So scared.
Replies: 43
Views: 2052

Re: Start tomorrow. So scared.

I know that Folfox and Xelox are different in terms of dosage each time because Folfox is every two weeks and Xelox is every three weeks. I was told that four rounds was the minimum and six rounds the sweet spot for Xelox. So I don’t know what it is for Folfox. However, I was also told that if my si...
by heiders33
Thu Jun 28, 2018 2:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Start tomorrow. So scared.
Replies: 43
Views: 2052

Re: Start tomorrow. So scared.

Definitely ask your onc for a reduction. You have already done three rounds and reducing for the fourth round shouldn’t make that much of a difference in terms of effectiveness. If I had described what you are describing to my onc, he definitely would have reduced. Also, I agree with Mike about taki...
by heiders33
Mon Jun 25, 2018 7:08 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scan scheduled
Replies: 45
Views: 3105

Re: Scan scheduled

Oh wow, thanks. I’ve been menopausal for over a year now. Good to know. I hope the PET gets scheduled soon.
by heiders33
Fri Jun 22, 2018 11:38 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1024
Views: 91253

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

If you want, you can read about my experience on my thread here: http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=59411&start=15#p472865 Also, my surgeon told me about this procedure for months before it took place, so I searched for it on this forum and found lots of helpful info...
by heiders33
Thu Jun 21, 2018 7:30 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scan scheduled
Replies: 45
Views: 3105

Re: Scan scheduled

I can imagine the frustration of not getting a conclusive result, but there is still a good chance that it is not a metastasis. When are having the PET scan? Claudia The PET scan is not scheduled yet, it still needs to be approved by my insurance. I hope it can be scheduled soon. I’m frustrated, bu...
by heiders33
Thu Jun 21, 2018 7:25 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1024
Views: 91253

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

For me, the dripping after the gastrografin enema (similar to barium, just a different substance) was less dripping and more like an explosion! Definitely bring diapers or pads. I also asked for the smaller tube because of radiation and worry about pain if they inserted the larger tube. Make sure yo...
by heiders33
Thu Jun 21, 2018 9:30 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scan scheduled
Replies: 45
Views: 3105

Re: Scan scheduled

The MRI was still inconclusive, so I am going to get a PET scan. If the 1 CM spot lights up then it’s malignant and my oncologist said a surgeon can remove it. He is concerned because this didn’t show up a year ago when I had my first scan. Question: did anyone here develop benign liver spots during...
by heiders33
Tue Jun 19, 2018 5:40 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1024
Views: 91253

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

My oncologist advised keeping my port for two years, so that’s what I’m doing. I got it in November 2017, so if all goes well I’m getting it out in November 2019.
by heiders33
Mon Jun 18, 2018 7:58 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New Member here on the forum
Replies: 112
Views: 14275

Re: New Member here on the forum

Congrats on being done! Hopefully things will only get better from here on out.

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