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by heiders33
Fri Apr 20, 2018 7:54 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 827
Views: 60630

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

If I was still on Oxaliplatin, I would be insanely frustrated by this prolonged cold. It's bad enough not being on it. During treatment, I remember thinking about all the things that people don't tell you will intersect: cramped hands and loose stools when you're trying to change the bag, hot flashe...
by heiders33
Mon Apr 16, 2018 9:32 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Repeated Bowel Blockages After Surgery
Replies: 4
Views: 195

Re: Repeated Bowel Blockages After Surgery

Hi James, my colorectal surgeon is Dr. Jeffrey Aronoff, affiliated with Lenox Hill Hospital in NYC. I recommend him highly. He has over 25 years experience and is board certified. Don’t know where you are located but that’s my recommendation from personal experience. I hope your friend can get this ...
by heiders33
Sat Apr 14, 2018 9:50 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New Member here on the forum
Replies: 64
Views: 5447

Re: New Member here on the forum

The nurse has never seen those types of side effects, seriously? I had very similar side effects right after infusion. I didn’t know ahead of time about the eye twitching and shutting.
by heiders33
Sat Apr 14, 2018 5:23 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: SO FRUSTRATED! - I hate these 'mega' medical groups
Replies: 12
Views: 615

Re: SO FRUSTRATED! - I hate these 'mega' medical groups

I agree, I hate it when people you are dealing with in customer service can only think one way. It’s the bureacracy that kills the service. A little bit is good, but too much is deadening. This recent article in The NY Times is on this topic: https://www.nytimes.com/2018/04/07/health/health-care-mer...
by heiders33
Fri Apr 13, 2018 7:40 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mop up chemo experiences
Replies: 64
Views: 2895

Re: Mop up chemo experiences

I always changed my bag the morning of because I knew my hands couldn’t do it afterward. And the side effects did come on quicker and stronger each round. I’m so sorry you’re having a hard time. Keep a pair of gloves around and stay warm. Also it helped me to drink a lot of electrolytes the day befo...
by heiders33
Thu Apr 12, 2018 6:50 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surgery Completed
Replies: 8
Views: 436

Re: Surgery Completed

I also had my staples removed by my surgeon a couple weeks after surgery and it was no big deal, I barely felt it. I was glad to get them out because they were bothering me. Congrats on being done and swift healing!
by heiders33
Wed Apr 11, 2018 11:34 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Reversal surgery
Replies: 59
Views: 4474

Re: Reversal surgery

Yes, I have definitely discovered that raw spinach is my enemy, which I will certainly avoid for a while. My trip isn't really that big of a deal, though - only two hours away. And I'm actually taking another trip on Friday down south. I'm not worried at all about my bowel control, just know to avoi...
by heiders33
Sun Apr 08, 2018 10:55 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Request for help sending pm
Replies: 4
Views: 253

Re: Request for help sending pm

I’ve had the same issue and cannot figure it out.
by heiders33
Sat Apr 07, 2018 8:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Reversal surgery
Replies: 59
Views: 4474

Re: Reversal surgery

The other day I ate too much roughage and it ended up causing some diarrhea-like symptoms - some painful waves and frequency, although it didn’t come out as diarrhea per se. Earlier that day I had been going more frequently than normal, although I’m not sure why since I hadn’t changed anything in my...
by heiders33
Fri Apr 06, 2018 6:45 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Any Stage IV currently in NEDville? Please share any advice or tips? P
Replies: 66
Views: 5447

Re: Any Stage IV currently in NEDville? Please share any advice or tips? P

Thanks, juliej! I just heard back from my integrative care doctor and he said to take this curcumin supplement twice daily. It seems similar to what you posted. https://www.amazon.com/gp/product/B00KI41OL2/ref=ox_sc_act_title_2?smid=AEO1YSQ570UWR&psc=1 He also recommended 81 mg of enteric-coated...
by heiders33
Wed Apr 04, 2018 11:58 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 827
Views: 60630

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

I am totally the responsible type, and totally get how hard it is to push back! But you have a perfectly good excuse. I started getting used to saying no to things. Once you’re recovered from treatment, you will have plenty of opportunity to say yes to things again. But now you have to do what’s rig...
by heiders33
Sun Apr 01, 2018 12:25 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Is it an ovarian cyst or a potential ovarian met?
Replies: 12
Views: 755

Re: Is it an ovarian cyst or a potential ovarian met?

I had a pelvic ultrasound done last summer and it found an ovarian cyst but my OB GYN said nothing to worry about. This was after I finished my initial regimen of chemo and radiation. It’s probably a good idea to get the ultrasound just to be sure. I didn’t ask too many questions of my doctor, I jus...
by heiders33
Sat Mar 31, 2018 4:15 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Reversal surgery
Replies: 59
Views: 4474

Re: Reversal surgery

I’m pretty pleased that I have been able to eat a variety of foods. The only thing that seems to affect me is anything spicy, which has given me very slight heartburn. Otherwise I have had no diarrhea or adverse effects from eating vegetables, nuts, popcorn, or anything high in fiber. I do have mult...
by heiders33
Sat Mar 31, 2018 11:22 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New Diagnosis/Overwhelmed
Replies: 18
Views: 1212

Re: New Diagnosis/Overwhelmed

Just as a follow up, I saw my surgeon first after my tumor was discovered. I was referred to him by my GI doc. He is a board certified colon and rectal surgeon and has tons of experience with this stuff. He referred me to my oncologist who I liked so I stuck with him. He also referred me to my endos...

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