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by heiders33
Sat Oct 20, 2018 10:51 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New here. Bleeding from bum
Replies: 13
Views: 260

Re: New here. Bleeding from bum

I would think that, if the other prep worked for you, they would let you use it! If it gets your colon cleaned out, then that’s all that matters. I would like to use your prep next time.
by heiders33
Sat Oct 20, 2018 5:37 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New here. Bleeding from bum
Replies: 13
Views: 260

Re: New here. Bleeding from bum

I can’t answer the question about the soreness, but I do think they will allow you to use a different bowel prep. I had a colonoscopy yesterday (clear!) and I used Suprep. I got so nauseated and ended up vomiting it back up after the second dose. When I told the nurse this she said to talk to the do...
by heiders33
Sat Oct 20, 2018 4:50 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Are your chemo IVs in a Glucose solution?
Replies: 6
Views: 128

Re: Are your chemo IVs in a Glucose solution?

Yes, they gave me dexamethasone last year and when I start Folfiri in a few weeks they will again, I believe. This increases blood sugar. I am interested in trying the Keto Diet when I start chemo in order to mitigate side effects. I can’t do full on fasting because that would mean fasting for at le...
by heiders33
Thu Oct 18, 2018 6:05 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Worried -genetic results are in. KRAS MSS
Replies: 12
Views: 430

Re: Worried -genetic results are in. KRAS MSS

I didn't find out my genetic mutation until I switched to MSK. Why my previous oncologist never told me I was KRAS I'll never know. I just looked up my surgical pathology report again and I'm KRAS G12A. Yes, I did end up with a pesky liver met that escaped the initial treatment. But I've had it remo...
by heiders33
Tue Oct 16, 2018 5:12 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Question about necessity of CEA labwork
Replies: 31
Views: 1600

Re: Question about necessity of CEA labwork

Thanks for your input, everyone! I guess I should be happy that it’s going down.
by heiders33
Mon Oct 15, 2018 6:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Question about necessity of CEA labwork
Replies: 31
Views: 1600

Re: Question about necessity of CEA labwork

My CEA was 5.1 when I was diagnosed. I didn't really follow it during my initial course of treatment. Then it was 2.4 when I was diagnosed with a liver met. Today it's 1.8 and I am currently NED. Given that my initial CEA at diagnosis was a little higher than normal, but was apparently in normal ran...
by heiders33
Thu Oct 11, 2018 6:59 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1306
Views: 226559

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

I've definitely noticed that the neuropathy in my feet has faded over time. I used to get major pins and needles when I took my shoes off at the end of the day, but now it's very faint. We'll see how winter goes when I wear socks and boots again. Just want to encourage anyone else who may be dealing...
by heiders33
Wed Oct 10, 2018 5:40 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I am so worried.
Replies: 39
Views: 3133

Re: I am so worried.

Questions for you guys: 1. If it is rectal cancer, it seems surgery is 4 months out—is that pretty standard? I’m so nervous about it spreading during that time, but the doctor said the chemo/radiation would be fighting to do the opposite. Yes, 4 months is pretty standard. I started radiation in Jun...
by heiders33
Wed Oct 10, 2018 5:21 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stoma Reversal
Replies: 5
Views: 325

Re: Stoma Reversal

If you would like, you can read through my thread of my experience here: http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=59411&hilit=Reversal&start=30 There are also many other experiences chronicled on this board if you search “reversal” or “takedown.” Everyone is different ...
by heiders33
Mon Oct 08, 2018 11:46 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New diagnosis and scared
Replies: 30
Views: 1918

Re: New diagnosis and scared

I second what hiker said. My liver spot lit up on the PET, and they were able to determine from looking at both the CT and MRI that it was a met. They didn’t need to do a biopsy. It was something about the glow around the spot that differentiated it from a benign spot. But in any case, the biopsy wi...
by heiders33
Sat Oct 06, 2018 9:41 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Robino1 has left us today at 6:40pm.
Replies: 23
Views: 1632

Re: Robino1 has left us today at 6:40pm.

:( So so sorry to hear this. She was always so encouraging to everyone even in the midst of her own difficulties. RIP
by heiders33
Fri Oct 05, 2018 12:14 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New diagnosis and scared
Replies: 30
Views: 1918

Re: New diagnosis and scared

I tried to get a second opinion at MSK after I had started treatment and they have a policy of not offering a second opinion until your current course of treatment is done. Not sure if that’s true at other places.
by heiders33
Sat Sep 22, 2018 1:51 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: MSI or MSS
Replies: 28
Views: 7221

Re: MSI or MSS

My oncologist was able to tell me that I was MSS from the biopsy taken at diagnosis. However, he didn’t offer it up, I had to ask about it after learning about it on this board. I too have no idea what the standard practice is.
by heiders33
Sat Sep 22, 2018 9:10 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Dang 1cm Liver Met!
Replies: 79
Views: 27525

Re: Dang 1cm Liver Met!

I had the same situation teacher - don’t know how it got there! I’m having surgery the day after you at MSK. Best of luck with your recovery! Hi! Checking in on you! How are you feeling????? Hey! My surgery actually got moved to the 18th, so I'm still in full on recovery mode. My surgery was roboti...

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