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by heiders33
Thu Sep 05, 2019 8:11 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: What can I do about diarrhea-like cramps?
Replies: 10
Views: 722

Re: What can I do about diarrhea-like cramps?

Thanks Henry, that's interesting. I have to say, my cramps are not always predictable. I had bad cramps this morning, and I hadn't eaten since about 7 pm the night before - and this was around 8:30 or 9 am. I had to go to the bathroom when I got to the office. I had taken my Metamucil powder that mo...
by heiders33
Thu Sep 05, 2019 6:13 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: What can I do about diarrhea-like cramps?
Replies: 10
Views: 722

Re: What can I do about diarrhea-like cramps?

Susan and Jachut, it's good to know that you both go through the same thing and that this isn't unusual. I was just out of town and tried Metamucil capsules, but those didn't seem to help much (although it may have been because I was eating more since I was on vacation). I'm back home and doing Meta...
by heiders33
Fri Aug 30, 2019 6:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: What can I do about diarrhea-like cramps?
Replies: 10
Views: 722

Re: What can I do about diarrhea-like cramps?

I will try the psyllium husk powder or pills and see if that works. I will say that my stool is not watery, just slightly soft (although sometimes I get pellets). I really do think I just need to up my fiber intake to firm things up.
by heiders33
Wed Aug 28, 2019 4:34 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: What can I do about diarrhea-like cramps?
Replies: 10
Views: 722

Re: What can I do about diarrhea-like cramps?

Oh thanks, I will try that! I took Metamucil today and had no cramps all day despite eating a lot. So presumably that would work.
by heiders33
Wed Aug 28, 2019 6:50 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: What can I do about diarrhea-like cramps?
Replies: 10
Views: 722

What can I do about diarrhea-like cramps?

For the past six months or so, I've been dealing with diarrhea-like cramps almost every time I eat something. Dr. Kemeny's NP told me it's probably soft stool and to take Metamucil to firm it up. I've been doing that, and I also take Imodium if the cramps are really bad. That usually works, but to b...
by heiders33
Thu Aug 22, 2019 6:30 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Thin scope for colonoscopy?
Replies: 6
Views: 394

Re: Thin scope for colonoscopy?

Thank you so much everyone! Very reassuring.
by heiders33
Tue Aug 20, 2019 8:49 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Thin scope for colonoscopy?
Replies: 6
Views: 394

Re: Thin scope for colonoscopy?

Thanks, this is helpful. I did have those procedures done before my reversal. But when my colorectal surgeon went to do my colonoscopy eight months later, there was something about the shape of my colon that made him stop. I’m going to have him speak directly to the GI doc who will perform my colono...
by heiders33
Tue Aug 20, 2019 6:18 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Thin scope for colonoscopy?
Replies: 6
Views: 394

Thin scope for colonoscopy?

I am tentatively scheduled for my annual colonoscopy on September 16. I had a colonoscopy last October with my colorectal surgeon, but he couldn't get past the sigmoid area for fear of puncturing the colon because of its post-surgical shape. (I had a Low Anterior Resection in Sep 2017). So this upco...
by heiders33
Tue Jun 25, 2019 8:39 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Our Miss Molly/Karen going into hospice
Replies: 47
Views: 7356

Re: Our Miss Molly/Karen going into hospice

Just checking in and so sorry to hear this. Karen was so helpful to me when I had my ileostomy. Karen, you selflessly helped others while dealing with your own pain - thank you.
by heiders33
Fri Mar 29, 2019 6:10 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My CRC with liver mets journey
Replies: 218
Views: 32897

Re: My CRC with liver mets journey

Glad the surgery went well! I also had a slow time getting my appetite back. Make sure to walk as much as you can for a faster recovery. If you have muscle spasms in your abdomen like I did, ask for Ativan or Toradol if your kidney can handle it. It was the only thing that allowed me to get out of b...
by heiders33
Fri Mar 29, 2019 6:07 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Slowly rising CEA..
Replies: 5
Views: 903

Re: Slowly rising CEA..

My CEA was at 1.7 after my liver resection and is now at 4.7 after almost six months of chemo. Hoping to see it go down after my last treatment on April 10. It was 5.1 at diagnosis so I’m not even sure it’s a good indicator. It’s good to read posts like this!
by heiders33
Tue Mar 12, 2019 5:19 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: HAI pump criteria
Replies: 21
Views: 2160

Re: HAI pump criteria

I never trust that the nurse has the final answer. Definitely try to get an answer from Dr K herself.
by heiders33
Tue Feb 05, 2019 6:40 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Is your life worth the fight?
Replies: 8
Views: 1058

Re: Is your life worth the fight?

You know I agree with you, hiker! Thanks for that message.
by heiders33
Sun Feb 03, 2019 6:07 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Questions on choosing a surgeon
Replies: 5
Views: 557

Re: Questions on choosing a surgeon

I think you will actually be good with either surgeon. My colon and rectal surgeon was more like the older one you describe (although he did it laparoscopically), while my liver surgeon was much more like the younger one. They both did an excellent job. Ask them both about litigation of the bowel du...
by heiders33
Thu Jan 31, 2019 6:21 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 5FU infusions
Replies: 20
Views: 1534

Re: 5FU infusions

Yes, MSK absolutely lets you disconnect on your own. They sent me home with detailed instructions and all the supplies I need. I get connected on Wednesday and disconnect on Friday morning. It takes me about ten minutes to disconnect. You just have to follow each step in order to prevent infection a...

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