Search found 339 matches

Go to advanced search

by heiders33
Tue Jun 25, 2019 8:39 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Our Miss Molly/Karen going into hospice
Replies: 47
Views: 6511

Re: Our Miss Molly/Karen going into hospice

Just checking in and so sorry to hear this. Karen was so helpful to me when I had my ileostomy. Karen, you selflessly helped others while dealing with your own pain - thank you.
by heiders33
Fri Mar 29, 2019 6:10 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My CRC with liver mets journey
Replies: 206
Views: 28720

Re: My CRC with liver mets journey

Glad the surgery went well! I also had a slow time getting my appetite back. Make sure to walk as much as you can for a faster recovery. If you have muscle spasms in your abdomen like I did, ask for Ativan or Toradol if your kidney can handle it. It was the only thing that allowed me to get out of b...
by heiders33
Fri Mar 29, 2019 6:07 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Slowly rising CEA..
Replies: 5
Views: 806

Re: Slowly rising CEA..

My CEA was at 1.7 after my liver resection and is now at 4.7 after almost six months of chemo. Hoping to see it go down after my last treatment on April 10. It was 5.1 at diagnosis so I’m not even sure it’s a good indicator. It’s good to read posts like this!
by heiders33
Tue Mar 12, 2019 5:19 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: HAI pump criteria
Replies: 21
Views: 1942

Re: HAI pump criteria

I never trust that the nurse has the final answer. Definitely try to get an answer from Dr K herself.
by heiders33
Tue Feb 05, 2019 6:40 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Is your life worth the fight?
Replies: 8
Views: 976

Re: Is your life worth the fight?

You know I agree with you, hiker! Thanks for that message.
by heiders33
Sun Feb 03, 2019 6:07 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Questions on choosing a surgeon
Replies: 5
Views: 522

Re: Questions on choosing a surgeon

I think you will actually be good with either surgeon. My colon and rectal surgeon was more like the older one you describe (although he did it laparoscopically), while my liver surgeon was much more like the younger one. They both did an excellent job. Ask them both about litigation of the bowel du...
by heiders33
Thu Jan 31, 2019 6:21 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 5FU infusions
Replies: 20
Views: 1441

Re: 5FU infusions

Yes, MSK absolutely lets you disconnect on your own. They sent me home with detailed instructions and all the supplies I need. I get connected on Wednesday and disconnect on Friday morning. It takes me about ten minutes to disconnect. You just have to follow each step in order to prevent infection a...
by heiders33
Tue Jan 29, 2019 6:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Happy Post- Rectal Metastatic to Liver, now cured
Replies: 14
Views: 1397

Re: Happy Post- Rectal Metastatic to Liver, now cured

Wow, your signature is VERY similar to mine! I am in the middle of HAI treatment and hope to be where you are one day.
by heiders33
Sun Jan 27, 2019 4:30 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Coping at work while on rectal cancer treatments
Replies: 10
Views: 1053

Re: Coping at work while on rectal cancer treatments

Dear all - thanks for sharing your work situation while coping with the treatment ! It gave me an idea of how best to manage my expectations and work place responsibilities over the next few months ! I'm sorry to hear that some of you are in an employment situation that is less than ideal, it sucks...
by heiders33
Fri Jan 25, 2019 6:02 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Coping at work while on rectal cancer treatments
Replies: 10
Views: 1053

Re: Coping at work while on rectal cancer treatments

1) How long were you off work in order to recover for the surgery ? 2) Did you continue going to work while on the mop-up chemo ? 3) And if you did continue going to work, how did you cope with the fatigue and all ? 4) Were you able to resume work as per normal after the chemo ended ? 1) I took two...
by heiders33
Fri Jan 18, 2019 10:46 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: This chemo is knocking me down
Replies: 13
Views: 1060

Re: This chemo is knocking me down

I agree on the steroids. I don’t think I realized until later how much they made me feel not like myself. I would sit on the couch in a sort of catatonic state. I would watch funny stuff on TV and not even laugh. It was weird, but it did go away.
by heiders33
Tue Jan 15, 2019 9:57 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My CRC with liver mets journey
Replies: 206
Views: 28720

Re: My CRC with liver mets journey

Hi Rebecca, happy to help answer your questions. I think you joined a couple of the Facebook groups, which is good because you'll get a lot more perspectives there. To answer your questions one by one: 1) I don't know the structure of Dr. K with the other oncologists at MSK. I would think if your cu...
by heiders33
Sun Jan 13, 2019 9:05 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: MSK patients with HAI pump - prep for Dr K meeting
Replies: 37
Views: 5105

Re: MSK patients with HAI pump - prep for Dr K meeting

Yes, you can eat at the 53rd St location. I've eaten entire meals, bagels with lots of cream cheese, etc. I am wary of anything that might be smelly, but as far as I know there are no rules about eating and not eating.
by heiders33
Sat Jan 12, 2019 2:20 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My CRC with liver mets journey
Replies: 206
Views: 28720

Re: My CRC with liver mets journey

I decided to get the pump as adjuvant therapy even though I had just one liver spot pop up after my initial stage III treatment. I decided this because: 1) I live in NYC as well, close to MSK!; 2) I am young (36 years old); 3) I have the KRAS mutation which makes certain treatments unavailable to me...
by heiders33
Mon Jan 07, 2019 8:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: MSK patients with HAI pump - prep for Dr K meeting
Replies: 37
Views: 5105

Re: MSK patients with HAI pump - prep for Dr K meeting

If you get the Medtronic pump, you will have to get it filled every two weeks. While in treatment, that’s chemo one week, and two weeks later saline, then repeat. But when treatment is over, you have to get it filled with saline every two weeks while you have it. I bet Northwestern will learn how to...

Go to advanced search