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by heiders33
Mon Jun 18, 2018 7:58 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New Member here on the forum
Replies: 111
Views: 13009

Re: New Member here on the forum

Congrats on being done! Hopefully things will only get better from here on out.
by heiders33
Fri Jun 15, 2018 4:36 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mop up chemo experiences
Replies: 128
Views: 12363

Re: Mop up chemo experiences

“If it’s not one thing, it’s another” was my mantra during treatment. I would recover from my infusion, and then my bag would blow out. Etc, etc.

Great job on all the steps!
by heiders33
Thu Jun 14, 2018 8:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Does anyone have a little drinky drink during chemo?
Replies: 10
Views: 379

Re: Does anyone have a little drinky drink during chemo?

Oh my goodness yes, I had so much trouble getting lukewarm water when I would go out. It made me want to go to Europe where they don’t put ice in everything. One time I was on a flight and they announced that there would be no hot drinks. Oy. I mostly abstained during treatment, although I would hav...
by heiders33
Wed Jun 13, 2018 6:02 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Just diagnosed with rectal cancer and terrified
Replies: 11
Views: 461

Re: Just diagnosed with rectal cancer and terrified

When you know your staging and have a plan in place, things will get better, I promise. I was in your shoes over a year ago and I remember that first week. My emotions didn’t know whether to go up or down and every appointment would bring new news and was terrifying. I was able to work through my tr...
by heiders33
Thu Jun 07, 2018 8:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 958
Views: 82594

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Mike, I bought a lot of diapers but I only used a few, mostly in the week after surgery.
by heiders33
Thu Jun 07, 2018 8:31 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Advice for caregivers
Replies: 8
Views: 356

Re: Advice for caregivers

My sister was my primary caregiver. She is very calm and steadfast, but I think her stress came out through her eating habits because she probably gained 10-15 pounds since my diagnosis. Part of it was her finishing my meals that I couldn’t finish. Now that I am a few months from treatment I have st...
by heiders33
Thu Jun 07, 2018 6:13 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scan scheduled
Replies: 39
Views: 2373

Re: Scan scheduled

Susan, so glad to hear you had such a good time in my town. :D It sounds like it was a restorative vacation for you. I am going out to the Black Hills to be with my extended family for a week in July. It's also my parents' 50th wedding anniversary, which we will celebrate. I can't wait! Thank you al...
by heiders33
Wed Jun 06, 2018 5:59 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 958
Views: 82594

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

I’m also pretty convinced that it has something to do with the altering of the microbiome, since it’s so connected to our immune system. That’s an interesting connection to GMO’s. I would not be surprised if that was at least part of the story.
by heiders33
Wed Jun 06, 2018 1:45 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scan scheduled
Replies: 39
Views: 2373

Re: Scan scheduled

I got the MRI rescheduled for June 20 and just found out that I got insurance authorization. Glad to get that taken care of!
by heiders33
Wed Jun 06, 2018 7:23 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Reversal
Replies: 37
Views: 936

Re: Reversal

I also spent two nights in the hospital. I felt good enough to do a ton of walking and that helped move things along. I hope you don’t have much pain!
by heiders33
Tue Jun 05, 2018 5:37 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Life Earthquake: Wednesday Feb 21 Rectal Cancer T3C N2 M0
Replies: 41
Views: 4192

Re: Life Earthquake: Wednesday Feb 21 Rectal Cancer T3C N2 M0

I agree, I did my first infusion without a port and it was extremely painful. I think in general we women have smaller veins. I would recommend getting a port - it’s not a big deal and so worth it.
by heiders33
Mon Jun 04, 2018 7:27 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scan scheduled
Replies: 39
Views: 2373

Re: Scan scheduled

I redeemed the day by heading to Gilda’s Club NYC for a free yoga class. It was so nice, challenging, and refreshing. What a great institution.
by heiders33
Mon Jun 04, 2018 7:04 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Reversal
Replies: 37
Views: 936

Re: Reversal

Yup, the hard part of this surgery’s recovery comes after you leave the hospital. :o Keep us posted!
by heiders33
Mon Jun 04, 2018 8:05 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scan scheduled
Replies: 39
Views: 2373

Re: Scan scheduled

I showed up for my MRI this morning, but I couldn’t have it done because my insurance hasn’t approved it yet. :roll: Now I have to wait for the imaging place to call to reschedule. I’m trying to schedule summer travel, etc., and I’m just going to go ahead and do it because I am fed up.
by heiders33
Mon Jun 04, 2018 6:05 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Reversal
Replies: 37
Views: 936

Re: Reversal

Good luck with the reversal! Be sure to have some diapers and calmoseptine ointment on hand just in case.

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