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by heiders33
Thu Dec 06, 2018 6:10 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: NEW-Need some positivity here.
Replies: 486
Views: 103657

Re: NEW-Need some positivity here.

Congrats, great news!
by heiders33
Sun Dec 02, 2018 5:39 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Pressure in rectum. PLEASE HELP.
Replies: 3
Views: 180

Re: Pressure in rectum. PLEASE HELP.

You may have some form of IBS - have you been diagnosed with this? Try drinking fennel tea to help with passing gas. Try other natural probiotics like yogurt and kefir and kombucha. You don’t have colorectal cancer so don’t panic. It’s slow-growing and wouldn’t form so soon after your colonoscopy. A...
by heiders33
Thu Nov 29, 2018 8:11 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Fistula Questions
Replies: 7
Views: 259

Re: Fistula Questions

This is good to know about, because I will need to use a pediatric scope or virtual colonoscopy in the future because of the post-radiation/surgery shape of my colon. My colonoscopy in October didn’t go past the recto-sigmoid junction. I will definitely ask about the risks of a fistula in the future...
by heiders33
Sat Nov 24, 2018 9:36 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Is LARS a foregone conclusion? Anyone doing W&W?
Replies: 24
Views: 787

Re: Is LARS a foregone conclusion? Anyone doing W&W?

I had a LAR, ileostomy, and reversal and do not have LARS at all. I also had radiation. My tumor was somewhere mid-rectum. None of my doctors talked to me about LARS beforehand and I knew nothing going in. After my surgery I read a lot about it. I did pelvic floor exercises before my reversal and ha...
by heiders33
Sun Nov 11, 2018 12:07 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colonoscopy prep question
Replies: 10
Views: 500

Re: Colonoscopy prep question

Personally I think you can use whatever works for you. All that matters is that the colon is clean.
by heiders33
Sat Nov 10, 2018 8:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 4. Anyone experienced failure of Folfiri but a good response with Folfox / 2nd line?
Replies: 1
Views: 189

Re: Stage 4. Anyone experienced failure of Folfiri but a good response with Folfox / 2nd line?

Hi there, sorry to hear about the progression. I don’t have an answer for you, but when she’s on 5FU she should avoid folic acid. When I did XELOX I took mushroom extract, probiotic, Vitamin D, and also magnesium for cramping. For neuropathy I bought some glass marbles and put them in a bowl with lu...
by heiders33
Sat Nov 10, 2018 8:19 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage IV to NED in 9.5 months!
Replies: 12
Views: 682

Re: Stage IV to NED in 9.5 months!

Amazing story! Gives me encouragement as my liver enzymes went up after just one round of FUDR. But I know Dr K is truly a wizard and I trust her. Thanks for sharing and congrats!
by heiders33
Mon Nov 05, 2018 5:59 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Hospitals that install HAI pump?
Replies: 39
Views: 2287

Re: Hospitals that install HAI pump?

Wow that’s incredible. I wonder how many of them are adopting and servicing the Medtronic pumps.

I deactivated Facebook several years ago but I might have to rejoin just for this group. I wonder if there’s a way I can filter everything else out....
by heiders33
Thu Nov 01, 2018 7:20 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Does the successful result of hydrocortisone suppositories rule out cancer?
Replies: 6
Views: 416

Re: Does the successful result of hydrocortisone suppositories rule out cancer?

I had rectal bleeding and was prescribed hydrocortisone suppositories, but they didn’t stop the bleeding at all. I’m just one case though. Get the colonoscopy if it will give you peace of mind. The risk is very low.
by heiders33
Thu Nov 01, 2018 6:45 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Hospitals that install HAI pump?
Replies: 39
Views: 2287

Re: Hospitals that install HAI pump?

I will be there on November 7 as well, getting treatment. Maybe I'll see you in the waiting room! Great to hear about Northwestern. I'm still curious to see how other pump programs adopt the Medtronic pump. I'll just have to ask Dr. Kemeny's team about it.
by heiders33
Wed Oct 31, 2018 10:03 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Upstaged after surgery
Replies: 11
Views: 1158

Re: Upstaged after surgery

Your doctor shouldn’t minimize this. I was always told after surgery to watch for the very symptoms you describe. It could be an infection.
by heiders33
Tue Oct 30, 2018 10:03 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Hospitals that install HAI pump?
Replies: 39
Views: 2287

Re: Hospitals that install HAI pump?

Yes, KRAS wild means you do not have the KRAS mutation.
by heiders33
Tue Oct 30, 2018 6:08 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Hospitals that install HAI pump?
Replies: 39
Views: 2287

Re: Hospitals that install HAI pump?

Cartech, do you know your KRAS mutation? If you are KRAS wild, you may be able to get into Dr Kemeny's clinical trial, which uses the Codman pump and only has to be serviced every six weeks. Did they say anything about that when you called them?
by heiders33
Mon Oct 29, 2018 7:19 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Hospitals that install HAI pump?
Replies: 39
Views: 2287

Re: Hospitals that install HAI pump?

Please post here if you find out who else manages Medtronic pump programs! I’ll try to do some of my own research as well. This will be helpful to me as I think about how long I want to keep and maintain my pump. I am sure that more and more pump programs will be switching to it as it comes online.
by heiders33
Sun Oct 28, 2018 1:14 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 3 to 4
Replies: 23
Views: 2639

Re: Stage 3 to 4

Thanks for the info, cartech. It's possible I wasn't included in this study because Dr. Jarnagin wasn't my surgeon, and it looks like he's one of the principals. However, I seem to be the perfect candidate for it, so I'll ask if I can be enrolled. It looks like it just started on October 18. I like ...

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