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by ilovemyfrenchie
Sun Dec 23, 2018 11:27 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My Heart Is Gone
Replies: 17
Views: 2930

Re: My Heart Is Gone

Sorry for your loss and prayers for your girls <3
by ilovemyfrenchie
Sat Dec 15, 2018 7:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Frustrated, need your opinion
Replies: 4
Views: 1134

Re: Frustrated, need your opinion

Thank you for your replies Molly and Grouseman. I researched so much before seeing the doctors and suggested the diversion colitis and they did not want to prescribe any steroid or enema, just antibiotics for one week. Which didn’t help. We finally saw the oncologist again yesterday and they are ref...
by ilovemyfrenchie
Thu Dec 13, 2018 12:12 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Frustrated, need your opinion
Replies: 4
Views: 1134

Frustrated, need your opinion

Hello everyone! Just wondering if anyone has any advice. Just saw the surgeon and no help. My mom has rectal cancer with liver Mets and a colostomy (no colectomy). Her colostomy is working fine but the past 2 months she’s been having rectal discharge and pain where she is running to the bathroom eve...
by ilovemyfrenchie
Sat Aug 11, 2018 7:19 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Any Stage 4 long term survivors/cured ?
Replies: 26
Views: 7620

Re: Any Stage 4 long term survivors/cured ?

Congratulations! So happy to hear the results.
by ilovemyfrenchie
Fri Aug 10, 2018 4:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I need help understanding CEA
Replies: 10
Views: 1435

Re: I need help understanding CEA

My mom gets her CEA checked every 2 weeks with her chemo sessions. The nurses and the doctor never mentions it, unless you ask. We have patient portal where the CEA and other lab work results the same day the lab work is drawn. So I never ask what the current CEA is, I just look online.

Best of luck
by ilovemyfrenchie
Fri Mar 02, 2018 11:56 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Any Stage IV currently in NEDville? Please share any advice or tips? P
Replies: 67
Views: 16053

Re: Any Stage IV currently in NEDville? Please share any advice or tips? P

I was diagnosed stage IV 3 years sgo, Mets to liver. Had the chemo with good response, several surgeries..the last one a year ago, and so far I'm NED! I have a scan scheduled in April...not planning on any surprises. Good luck to you! Hello Joannerogers! Well wishes to you! Were you originally told...
by ilovemyfrenchie
Mon Feb 19, 2018 11:04 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Side effects question
Replies: 2
Views: 525

Side effects question

Good morning! I have a question. My mom gets Folfiri + avastin every 2 weeks and has gotten 8 treatments so far. Since starting Chemo she has little side effects with the typical disconnect days side effects of diarrhea and fatigue for 3 days, no nausea. But now she’s been having nausea/vomiting on ...
by ilovemyfrenchie
Fri Feb 09, 2018 10:03 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My Mom’s Journey is Over
Replies: 10
Views: 2099

Re: My Mom’s Journey is Over

I’m so sorry...but I can tell she raised a wonderful and caring family that supported her through her journey.
by ilovemyfrenchie
Fri Feb 09, 2018 5:48 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Question about bowel obstruction
Replies: 6
Views: 923

Re: Question about bowel obstruction

It’s confirmed by imaging such as a CT scan or abdominal X-ray. It’s a good sign also if passing gas, not vomiting, and stooling. That means you have GI motility or movement.
by ilovemyfrenchie
Thu Jan 25, 2018 11:06 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Small bowel obstruction
Replies: 5
Views: 852

Re: Small bowel obstruction

From my understanding for bowel obstruction the first treatment for anyone is to keep them on bowel rest meaning nothing by mouth (no food or water) and they insert an NG tube to suck out any bile or fluid that is not moving through the GI tract, hence the vomiting. They leave the tube in to help th...
by ilovemyfrenchie
Sat Jan 13, 2018 9:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal tumor question
Replies: 3
Views: 536

Rectal tumor question

Hello! My mother was told that her primary cancer originated from her rectal tumor. Her initial CT in the ER showed her liver Mets but we did not find out about her rectal tumor until her colonoscopy the next day. They actually could not even advance the scope due to the size of the rectal tumor and...
by ilovemyfrenchie
Mon Jan 08, 2018 4:40 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 1st CT since diagnosis - question
Replies: 14
Views: 1556

Re: 1st CT since diagnosis - question

Thank you SweetC80 and everyone else for your reply and well wishes! My mom got her CT results back today and the doctor said she's responding really well to the chemo and her liver mets shrunk significantly. Unfortunately the results doesn't upload on her patient portal until 4 days later and still...
by ilovemyfrenchie
Thu Jan 04, 2018 1:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mental status changes
Replies: 9
Views: 1610

Re: Mental status changes

Did they check his ammonia level or urine sample for a bladder infection? When your ammonia level is high you can get encephalopathy and confusion.
by ilovemyfrenchie
Thu Jan 04, 2018 10:52 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 1st CT since diagnosis - question
Replies: 14
Views: 1556

1st CT since diagnosis - question

Hello everyone! Today is my mother's first CT since her initial diagnosis in the ER. We are both so nervous! she has had 5 rounds of folriri + avastin and has been tolerating it okay. She did have to add a BP medicine due to the Avastin. Her starting CEA was 171 right before chemo, now it is 25.1. I...
by ilovemyfrenchie
Tue Dec 26, 2017 12:39 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Bowel Perforation -Avastin
Replies: 3
Views: 632

Re: Bowel Perforation -Avastin

I’m sorry your mom is in this situation. She is in the right place though. She should already be on very strong antibiotics right now. They are maybe waiting for her to be “stable” or to make sure she doesn’t have a blood infection (blood cultures). That takes a couple days to result. I don’t think ...

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