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by Atoq
Fri May 25, 2018 4:10 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New on the forum
Replies: 153
Views: 16154

Re: New on the forum

Finally I got to talk to the surgeon and my last CAT scan showed no changes, still one solitary metastasis in one lung, 11 mm in diameter (was 10 mm last time). :)

Claudia
by Atoq
Fri May 25, 2018 4:03 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New on the forum
Replies: 153
Views: 16154

Re: New on the forum

Does anyone here know what a “non-circumferential” Timor means? My husband’s report mentions he has a 6 cm mass about 10-11 cm from the anal verge. Is non-circumferential good, bad or neither? I am not a doctor, but I think it is a good think that is not growing all around the rectum wall. Circumfe...
by Atoq
Thu May 24, 2018 3:30 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Not sure how to feel right now
Replies: 26
Views: 2720

Re: Not sure how to feel right now

teacher2017 wrote:So I’m making my own statistic. I’ve decided to live. You need to decide to. Move forward. Make plans. LIVE.
Best wishes,
Lydia


Me too from my little 11% :mrgreen:

Claudia
by Atoq
Thu May 24, 2018 12:28 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: What would you do??
Replies: 1
Views: 176

Re: What would you do??

I think it is very difficult to answer, I live in Norway, I am stage IV and I am not even getting mop up chemo after surgery. It is impossible to know if we are overtreating or undertreating, only time will show. And even in the case of reoccurrence it is not sure that more chemo would have helped. ...
by Atoq
Thu May 24, 2018 10:04 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New on the forum
Replies: 153
Views: 16154

Re: New on the forum

The scan must be okay of they wouldn't have scheduled surgery, no news is good news? I remember the lupine in Norway were so lovely. Susan Yes, I hope you are right, at least that would be true for the lung surgery, but maybe not for the ileostomy reversal. At least I live better with no news than ...
by Atoq
Wed May 23, 2018 3:21 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Not sure how to feel right now
Replies: 26
Views: 2720

Re: Not sure how to feel right now

Rectal cancers that have spread to other parts of the body are often harder to treat and tend to have a poorer outlook. Metastatic, or stage IV rectal cancers, have a 5-year relative survival rate of about 12%. Still, there are often many treatment options available for people with this stage of ca...
by Atoq
Wed May 23, 2018 2:12 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer-Blocked and Painful
Replies: 7
Views: 242

Re: Rectal Cancer-Blocked and Painful

If the tumor is blocking the passage, I would be very careful and only eat liquid food. With radiation the tumor can shrink, but also get edematous and swallen. I was not careful enough and ended up with at emergency colostomy after the end of radiation therapy. All fibers where just packing against...
by Atoq
Wed May 23, 2018 7:53 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New on the forum
Replies: 153
Views: 16154

Re: New on the forum

Hi! I am still waiting the results of CAT scan of whole body, today I got fed up and called several numbers, but nobody can tell me whether the situation is stable or not. I had the scan on the 7th of Maj :evil: But at least they scheduled my reversal for the 4th of June, I guess they will tell me s...
by Atoq
Tue May 22, 2018 4:44 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Starting FolFox tomorrow
Replies: 2
Views: 136

Re: Starting FolFox tomorrow

I hope you get through the new round with Folfox with minimal side effects. As I understood, the bag is an advantage during chemo, but someone with more experience will for sure answer you.

All the best and wish you stay NED forever :D

Claudia
by Atoq
Thu May 17, 2018 1:21 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scan scheduled
Replies: 23
Views: 1110

Re: Scan scheduled

Congratulations for the nice results! Hopefully the spot is just a benign spot. I am still waiting for be results of my CAT scan from 10 days ago, and really not looking forward to hearing from the hospital! :)

Claudia
by Atoq
Thu May 17, 2018 3:11 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: How can I help my family watch me die?
Replies: 20
Views: 1171

Re: How can I help my family watch me die?

You have done already a lot to make it easier for them. Is there really anything you can try to prolonge your life?
A big hug, you are a very brave and wise woman.

Claudia
by Atoq
Tue May 15, 2018 12:29 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scan results not what I had hoped for ...
Replies: 29
Views: 1387

Re: Scan results not what I had hoped for ...

I am sorry to read that, on the other side is good that you feel well and strong, and you can join trials. The most important thing, I am realizing, is not the cat scan result but how you feel. I did one one week ago and still waiting for the results...big hug!

Claudia
by Atoq
Wed May 09, 2018 1:12 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Just diagnosed and it's EVERYWHERE...what to do now??
Replies: 24
Views: 1801

Re: Just diagnosed and it's EVERYWHERE...what to do now??

I am at a loss for words adequate for what you are going through. My only comment/recommendation would be to use a multi-disciplinary practice/institution whose various experts (oncologist, radiologists, surgeons, nutritiinist, counselor, social worker, etc.) can work together closely and in a time...
by Atoq
Tue May 08, 2018 12:34 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New on the forum
Replies: 153
Views: 16154

Re: New on the forum

Caat55 wrote:What is a staffette? Congrats on both flying and running, mind over body!
Susan


Relay race in English :D it is staffett in Norvegian and staffetta in Italian, so I assumed it was the same.

Best

Claudia
by Atoq
Mon May 07, 2018 4:14 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New on the forum
Replies: 153
Views: 16154

Re: New on the forum

This evening I had a complete CAT scan, three months since my last PET scan, so I guess they are evaluating both the pelvis for reversal and the lung metastasis. On Saturday I ran a staffette in Oslo with 15 laps and my team won in the class superveteran women :mrgreen: It was quite cool to be in a ...

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