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by retiredteacher
Wed Oct 30, 2019 11:12 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I'm getting worried
Replies: 17
Views: 862

Re: I'm getting worried

As much as I agree with all the previous replies ... this was our approach with my hubby's last surveillance scan in June (NED from small cell lung cancer 2011) and it did not work out well. We waited for the mandatory two week followup with the pulmonologist, were rescheduled two more weeks further...
by retiredteacher
Sat Aug 17, 2019 11:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Questions about Health Insurance
Replies: 2
Views: 486

Re: Questions about Health Insurance

Hi - not out of state, but out of network here in Northern California. My oncologist spoke with a review physician to get the approval for out of network coverage. Took some time. Try to get a nurse case manager to help walk things through.
by retiredteacher
Mon Aug 05, 2019 2:10 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Quick intro -- diagnosed Friday
Replies: 144
Views: 17365

Re: Quick intro -- diagnosed Friday

So much of the story cannot be told until your post surgical pathology. Your very nice distance from the AV is a huge plus. I had what my GP told me was a huge (7 cm) tumor that had been there awhile. Struggled getting a qualified surgeon. But once the insurance approvals came through, absolutely ro...
by retiredteacher
Mon Aug 05, 2019 12:37 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Please allow me to introduce myself
Replies: 28
Views: 2883

Re: Please allow me to introduce myself

OK. I have absolutely nothing of value to add to this conversation. But I truly appreciated and could identify with the Alice's Restaurant reference. Carry on ...
by retiredteacher
Mon Aug 05, 2019 12:18 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stupid health insurance...
Replies: 6
Views: 865

Re: Stupid health insurance...

Repeating Rock Robster's advice. Please bring your oncologist into the discussion right away and ask him to have a conversation with the insurance company. I tried tangling with my insurance company for over six weeks (going out of network for surgery.) Got nowhere until I brought in my oncologist. ...
by retiredteacher
Sat Jul 27, 2019 2:51 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Radiation relief?
Replies: 13
Views: 963

Re: Radiation relief?

There are rectal pain creams with lidocaine. Believe I found one at CVS in California. I asked my radiation oncologist for a prescription strength pain killer for the last two weeks and used it for about two weeks after radiation ended. Some describe this as broken glass, others as razor blades, oth...
by retiredteacher
Wed Jun 05, 2019 11:42 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Need thoughts
Replies: 20
Views: 1946

Re: Need thoughts

Sorry to hear about your diagnosis. While I did not get a decent initial staging, guessing I was close to yours, about 20 months ago, except rectal. Wondered to my oncologist if he could make a case for "wait and watch." He said the yes, he probably could if he wanted to. But, he added, wh...
by retiredteacher
Tue May 21, 2019 12:30 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Newly diagnosed and questions
Replies: 11
Views: 1251

Re: Newly diagnosed and questions

The pill is capecitabine; Xelox is a brand name. The pill is the oral version of the 5-FU (https://www.macmillan.org.uk/information-and-support/treating/chemotherapy/drugs-and-combination-regimens/individual-drugs/fluorouracil.html) Your hubby is on the standard best practice for this type and stage...
by retiredteacher
Wed Apr 17, 2019 9:17 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mop up chemo experiences
Replies: 219
Views: 71573

Re: Mop up chemo experiences

Good luck on your reversal - best wishes ---
Terri from Linden
by retiredteacher
Fri Mar 01, 2019 10:06 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New - Daughter to Father with Stage 3B Colon Cancer
Replies: 4
Views: 722

Re: New - Daughter to Father with Stage 3B Colon Cancer

Hi Salma, I finished the Xelox last year. While not the most fun thing in the world, it is definitely doable. You can research this site for people's experiences - there are many similarities. Sensitivity to cold, first bite syndrome from the oxiliplatin (sp?) It is important that he stay well hydra...
by retiredteacher
Sat Jan 19, 2019 9:46 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer
Replies: 7
Views: 1226

Re: Rectal cancer

Hi there! Welcoming you aboard. From my experience, this is the best place to be - for good informative discussions and support. ThInk about constructing a signature soon - it will be easier for folks to help you and offer their experiences, advice, or even links and articles. Even if you have the b...
by retiredteacher
Mon Dec 10, 2018 10:16 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Radiation Xeloda Side Effects Question
Replies: 5
Views: 997

Re: Radiation Xeloda Side Effects Question

Just catching up - have not been here in awhile. I am so sorry about your mom.
by retiredteacher
Sun Dec 09, 2018 11:55 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Newbie here
Replies: 9
Views: 1049

Re: Newbie here

Hi Mike - welcome to the club - many experienced and helpful folks here. You may need questions answered, resources, or advice as your journey progresses. Many, many folks continue to work through treatment - it all depends on the individual and type of work. Just the distraction of work provides a ...
by retiredteacher
Sat Oct 13, 2018 5:55 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Question about necessity of CEA labwork
Replies: 31
Views: 4172

Re: Question about necessity of CEA labwork

NCCN guidelines still have it listed. You can pull a copy and show it to your surgeon.
Terri
by retiredteacher
Sat Oct 13, 2018 5:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Happy news
Replies: 9
Views: 1646

Re: Happy news

Fantastic news! Congratulations!

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