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by retiredteacher
Thu Jul 19, 2018 11:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: OT Grilling chicken
Replies: 37
Views: 2667

Re: OT Grilling chicken

Y'all are awesome! Here at Chez Mercer, we take the cowards' way out. Sous vide till done then a flaming sear over charcoal with a little apricot wood. No guts all glory ... :-D
by retiredteacher
Sat Jul 07, 2018 8:38 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Are we doing everything we can?
Replies: 29
Views: 1003

Re: Are we doing everything we can?

Was this rectal or colon?
Terri
by retiredteacher
Sat Jul 07, 2018 8:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: lung nodules
Replies: 6
Views: 390

Re: lung nodules

My oncologist never mentioned CEA. The surgeon did - it was notable only because it was so low - and it's not a guaranteed marker for everyone. Consider getting copies of ALL your diagnostic and blood reports and keeping them in a binder. Lots of people here have noted lung nodules - they can be a r...
by retiredteacher
Sat Jul 07, 2018 8:11 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mop up chemo experiences
Replies: 162
Views: 16204

Re: Mop up chemo experiences

Congrats! Last one! Report from the front: wine will be TASTY again in five weeks!
Terri
by retiredteacher
Sun Jul 01, 2018 11:40 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Start tomorrow. So scared.
Replies: 43
Views: 2080

Re: Start tomorrow. So scared.

Not a lot to add except that my experience has been very similar to yours. Be sure to drink your liquids at home, even if you set a 15 minute timer on your phone and take a few small sips each time. Stay on your Zofran or other anti-nausea - take it on a schedule even if you think you don't need it....
by retiredteacher
Wed Jun 20, 2018 10:51 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Life Earthquake: Wednesday Feb 21 Rectal Cancer T3C N2 M0
Replies: 55
Views: 5790

Re: Life Earthquake: Wednesday Feb 21 Rectal Cancer T3C N2 M0

My oncologist suggested I try without a port. First infusion was very painful - for days - so I requested and received the port. Installation was very easy with local and a light general. Mine was tender and maybe a little painful the first week or so, but made the subsequent infusions super easy an...
by retiredteacher
Wed Jun 20, 2018 10:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mop up chemo experiences
Replies: 162
Views: 16204

Re: Mop up chemo experiences

Abdominal pains, acid etc. is tailing down. Up and down. Feet are an issue - think may take a couple months to square away - quite painful off and on. Frustrating to be so weak, not have energy. Got in the pool for the first time this year and then just baked in the sun on the hot concrete. Felt gre...
by retiredteacher
Tue Jun 19, 2018 11:29 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mop up chemo experiences
Replies: 162
Views: 16204

Re: Mop up chemo experiences

Hang in there - it gets better from this point forward!
t.
by retiredteacher
Mon Jun 18, 2018 9:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New Member here on the forum
Replies: 112
Views: 14316

Re: New Member here on the forum

Thank you! Doc said my body needs to recuperate from all the trauma and he will see me back in 2 months to talk about surveillance etc. He doesn't want any blood work etc. until then. Mike - Dr. Kin at Stanford was able to skip the ileostomy so no reversal - just a matter of bouncing back. Will call...
by retiredteacher
Mon Jun 18, 2018 6:53 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New Member here on the forum
Replies: 112
Views: 14316

Re: New Member here on the forum

Oncologist recommended stopping the chemo - so completion of four cycles rather than five. He says with the gut problems (capecetibine) and foot neuropathy (ice picks in toes) the negative side effects may be outweighing positive benefits, given my staging etc. He has felt the this third phase shows...
by retiredteacher
Thu Jun 14, 2018 10:44 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New Member here on the forum
Replies: 112
Views: 14316

Re: New Member here on the forum

FOlfox is the infusion 5FU- plus the Oxi. CAPEOX or XELOX is supposed to be tolerated well - but some people more likely to have some kind of gut problems ... they say gut problems more associated with the pill - makes sense. The pain is independent of feeding schedule - I tend to graze all day to k...
by retiredteacher
Thu Jun 14, 2018 7:59 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: The Miseries - But 'Hey I have it pretty good...'
Replies: 35
Views: 2237

Re: The Miseries - But 'Hey I have it pretty good...'

Steve, this radiation neoadjuvant phase is the most difficult, I believe, for all the reasons you have so colorfully and accurately described. Are you walking much? It's a decent way to keep the guts awake and working ... hydration also help .... congrats on making it around this corner!
by retiredteacher
Thu Jun 14, 2018 7:49 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New Member here on the forum
Replies: 112
Views: 14316

Re: New Member here on the forum

Thanks for the thoughts Mike and Claudia - you two are such amazing and inspirational warriors. Onc said he would be happy with five rounds, have completed four (short capecetibine on the fourth.) Doc and I agreed together that a case could be made for wait and watch, but neither of us were comforta...

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