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by retiredteacher
Sun Apr 05, 2020 7:14 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Bone Density / Females
Replies: 9
Views: 1646

Re: Bone Density / Females

Alendronate sodium 70 mg. Do not seem to have much of a side effect so far as I can tell. PCP retired and still getting squared away with the new doc. No one has given me a timeframe, but I am guessing about five years. One thing was obvious: the tailbone healed up and the (longish term) pain went a...
by retiredteacher
Sun Apr 05, 2020 3:14 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Bone Density / Females
Replies: 9
Views: 1646

Re: Bone Density / Females

Yes. Followup scans indicated sacral fractures - subsequent bone scans revealed full blown osteoporosis. PCP believes due to radiation and a bicycle crash (post radiation) months previously which had not healed. Stopped dancing and took it easy a couple months, on the medication and calcium and ever...
by retiredteacher
Wed Apr 01, 2020 11:59 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I will always be grateful I found Colon Talk
Replies: 12
Views: 2080

Re: I will always be grateful I found Colon Talk

Beautiful Mike. Powerful heartfelt words. Feel likewise about this forum and believe you speak for many of us sharing the same connection to this place ... A wonderful tribute and many thanks to the admins and moderators who have kept afloat this lifeboat for so many years. With love - Terri
by retiredteacher
Sat Mar 07, 2020 2:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Another clear CT!
Replies: 15
Views: 1259

Re: Another clear CT!

Congrats and a big hug!
by retiredteacher
Sat Jan 11, 2020 1:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New member - scared & looking for tips
Replies: 35
Views: 3719

Re: New member - scared & looking for tips

Hi Malidosa, Sorry you have to be here, but it the best place for questions and support. Fissure - I did have one which was overlooked by my first GI doc and first surgeon, but identified by my second surgeon. (Changed surgeons in the middle of treatment and was very happy with my second.) Incredibl...
by retiredteacher
Tue Dec 10, 2019 3:41 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: What is radiation/chemo treatment actually like?
Replies: 42
Views: 7760

Re: What is radiation/chemo treatment actually like?

Pretty much same as what folks have reported above. First two weeks were a breeze - last week, not so much. I did ask for painkillers and the doc was happy to prescribe. Made a world of difference. Note also there is a prescription med for diarrhea if the OTC stuff is ineffective.
Terri
by retiredteacher
Wed Oct 30, 2019 11:12 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I'm getting worried
Replies: 53
Views: 7970

Re: I'm getting worried

As much as I agree with all the previous replies ... this was our approach with my hubby's last surveillance scan in June (NED from small cell lung cancer 2011) and it did not work out well. We waited for the mandatory two week followup with the pulmonologist, were rescheduled two more weeks further...
by retiredteacher
Sat Aug 17, 2019 11:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Questions about Health Insurance
Replies: 2
Views: 687

Re: Questions about Health Insurance

Hi - not out of state, but out of network here in Northern California. My oncologist spoke with a review physician to get the approval for out of network coverage. Took some time. Try to get a nurse case manager to help walk things through.
by retiredteacher
Mon Aug 05, 2019 2:10 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Quick intro -- diagnosed Friday
Replies: 147
Views: 23573

Re: Quick intro -- diagnosed Friday

So much of the story cannot be told until your post surgical pathology. Your very nice distance from the AV is a huge plus. I had what my GP told me was a huge (7 cm) tumor that had been there awhile. Struggled getting a qualified surgeon. But once the insurance approvals came through, absolutely ro...
by retiredteacher
Mon Aug 05, 2019 12:37 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Please allow me to introduce myself
Replies: 36
Views: 5898

Re: Please allow me to introduce myself

OK. I have absolutely nothing of value to add to this conversation. But I truly appreciated and could identify with the Alice's Restaurant reference. Carry on ...
by retiredteacher
Mon Aug 05, 2019 12:18 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stupid health insurance...
Replies: 6
Views: 1078

Re: Stupid health insurance...

Repeating Rock Robster's advice. Please bring your oncologist into the discussion right away and ask him to have a conversation with the insurance company. I tried tangling with my insurance company for over six weeks (going out of network for surgery.) Got nowhere until I brought in my oncologist. ...
by retiredteacher
Sat Jul 27, 2019 2:51 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Radiation relief?
Replies: 13
Views: 1329

Re: Radiation relief?

There are rectal pain creams with lidocaine. Believe I found one at CVS in California. I asked my radiation oncologist for a prescription strength pain killer for the last two weeks and used it for about two weeks after radiation ended. Some describe this as broken glass, others as razor blades, oth...
by retiredteacher
Wed Jun 05, 2019 11:42 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Need thoughts
Replies: 20
Views: 2772

Re: Need thoughts

Sorry to hear about your diagnosis. While I did not get a decent initial staging, guessing I was close to yours, about 20 months ago, except rectal. Wondered to my oncologist if he could make a case for "wait and watch." He said the yes, he probably could if he wanted to. But, he added, wh...
by retiredteacher
Tue May 21, 2019 12:30 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Newly diagnosed and questions
Replies: 11
Views: 1676

Re: Newly diagnosed and questions

The pill is capecitabine; Xelox is a brand name. The pill is the oral version of the 5-FU (https://www.macmillan.org.uk/information-and-support/treating/chemotherapy/drugs-and-combination-regimens/individual-drugs/fluorouracil.html) Your hubby is on the standard best practice for this type and stage...
by retiredteacher
Wed Apr 17, 2019 9:17 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mop up chemo experiences
Replies: 220
Views: 80125

Re: Mop up chemo experiences

Good luck on your reversal - best wishes ---
Terri from Linden

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