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by henry123
Sat Jul 11, 2020 1:07 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: FDA Approved Keytruda for MSS Tumors w/ TMB of 10+!!!
Replies: 12
Views: 2069

Re: FDA Approved Keytruda for MSS Tumors w/ TMB of 10+!!!

That’s great news .
I stopped Nivolumab after 3 years of infusions and almost 2 yrs NED.
by henry123
Wed Jun 17, 2020 12:53 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Switching back to Pembro
Replies: 81
Views: 44542

Re: Switching back to Pembro

thanks for your wishes.
do take care.
by henry123
Wed Jun 17, 2020 12:39 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: An aspirin a day helps keep bowel cancer away
Replies: 10
Views: 2018

Re: An aspirin a day helps keep bowel cancer away

I have been taking aspirin 150 mg since the past 3 years or so.
It is definitely beneficial for people having Lynch Syndrome as per the various articles I have read.
I would strongly recommend it.
by henry123
Fri Feb 07, 2020 4:33 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lynch syndrome questions
Replies: 9
Views: 1701

Re: Lynch syndrome questions

Please see my signature.
Two suggestions
Aspirin
Immunotherapy
by henry123
Wed Feb 05, 2020 11:36 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Switching back to Pembro
Replies: 81
Views: 44542

Re: Switching back to Pembro

Finally after almost 3 years of immunotherapy and 2 years of clear CT and blood work , the onco team has decided to stop further infusions. It is still largely an uncharted territory but some data has emerged to suggest that it is time to remove the immunotherapy life jacket . Tighter monitoring reg...
by henry123
Wed Jan 15, 2020 12:27 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Cancer and coffee????
Replies: 12
Views: 1787

Re: Cancer and coffee????

Mrned82 wrote:What is the relation between..chemo and coffee??
Is it good to take during the treatment or not?
Any tips??
Thanks

Milk rather than Coffee may be the thing to avoid . But that's another controversy for you.
by henry123
Wed Jan 15, 2020 3:45 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Adventures in Immunotherapy - Hopeful beginnings
Replies: 10
Views: 2413

Re: Adventures in Immunotherapy - Hopeful beginnings

Best of luck Trevor. 4 Infuisions may be too few to assess. Be wary of pseudoprogression. I am sure it will work out for you. Hi Henry123.....can you tell me more about your warning to beware of pseudo progression? My husband was just taken off of a clinical trial after 3 infusions due to “progress...
by henry123
Sat Nov 30, 2019 4:16 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: “Near” Complete Clinical Response and what to do next
Replies: 10
Views: 1570

Re: “Near” Complete Clinical Response and what to do next

I would say trust your doctors. This is what they do. Also, a stoma isn’t automatic. I was prepped for one but the surgeon determined that it wasn’t necessary in my case. They won’t know anything for sure until they open you up and see what’s what. I concur that they don't have exact picture till t...
by henry123
Sat Nov 16, 2019 5:41 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Exercise
Replies: 5
Views: 1138

Re: Exercise

It definitely helps both mentally and physically.
Yoga and running are part of my exercise regimen.
by henry123
Wed Oct 16, 2019 4:27 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Adventures in Immunotherapy - Hopeful beginnings
Replies: 10
Views: 2413

Re: Adventures in Immunotherapy - Hopeful beginnings

Best of luck Trevor.
4 Infuisions may be too few to assess.

Be wary of pseudoprogression.

I am sure it will work out for you.
by henry123
Wed Oct 16, 2019 4:19 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Calling ALL Colorectal CANUCKS !
Replies: 345
Views: 119110

Re: Calling ALL Colorectal CANUCKS !

Happy Thanksgiving..
Grateful for still being around.
Grateful to all the people, known and unknown , who helped along the way.
by henry123
Mon Sep 23, 2019 3:57 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Switching back to Pembro
Replies: 81
Views: 44542

Re: Switching back to Pembro

Month 27 . Infusion every six weeks. CEA under control. Have started some non-vegan foods. Still taking aspirin and continuing with juicing. Outstanding Henry, well done and thanks for the update. Although I’m not MSI-H, your signature was one of the ones that motivated me in the early tough days. ...
by henry123
Mon Sep 23, 2019 1:02 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My Sister is talking to my bf behind my back
Replies: 3
Views: 1000

Re: My Sister is talking to my bf behind my back

Let go of all the negativities inside you. Forgive everyone including yourself . Seek forgiveness from those whom you may have hurt. Be at peace with all that's happening around you. You are here for greater things than worrying about behaviour of your sister or/ and your bf. None is worth an iota o...
by henry123
Mon Sep 23, 2019 12:54 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Switching back to Pembro
Replies: 81
Views: 44542

Re: Switching back to Pembro

Month 27 .
Infusion every six weeks.
CEA under control.
Have started some non-vegan foods.
Still taking aspirin and continuing with juicing.
by henry123
Wed Sep 11, 2019 3:28 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Multiple tiny mets on lungs—-need knowledge.
Replies: 19
Views: 2978

Re: Multiple tiny mets on lungs—-need knowledge.

You probably got it tested but what is your MSI status . if if you are a msi-high then you may be a candidate for immunotherapy.
I had innumerable growths on my liver and a few on lungs but nivolumab worked for me.
I am MSI High.

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