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by henry123
Fri Feb 07, 2020 4:33 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lynch syndrome questions
Replies: 9
Views: 1455

Re: Lynch syndrome questions

Please see my signature.
Two suggestions
Aspirin
Immunotherapy
by henry123
Wed Feb 05, 2020 11:36 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Switching back to Pembro
Replies: 80
Views: 40469

Re: Switching back to Pembro

Finally after almost 3 years of immunotherapy and 2 years of clear CT and blood work , the onco team has decided to stop further infusions. It is still largely an uncharted territory but some data has emerged to suggest that it is time to remove the immunotherapy life jacket . Tighter monitoring reg...
by henry123
Wed Jan 15, 2020 12:27 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Cancer and coffee????
Replies: 12
Views: 1577

Re: Cancer and coffee????

Mrned82 wrote:What is the relation between..chemo and coffee??
Is it good to take during the treatment or not?
Any tips??
Thanks

Milk rather than Coffee may be the thing to avoid . But that's another controversy for you.
by henry123
Wed Jan 15, 2020 3:45 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Adventures in Immunotherapy - Hopeful beginnings
Replies: 10
Views: 2237

Re: Adventures in Immunotherapy - Hopeful beginnings

Best of luck Trevor. 4 Infuisions may be too few to assess. Be wary of pseudoprogression. I am sure it will work out for you. Hi Henry123.....can you tell me more about your warning to beware of pseudo progression? My husband was just taken off of a clinical trial after 3 infusions due to “progress...
by henry123
Sat Nov 30, 2019 4:16 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: “Near” Complete Clinical Response and what to do next
Replies: 10
Views: 1395

Re: “Near” Complete Clinical Response and what to do next

I would say trust your doctors. This is what they do. Also, a stoma isn’t automatic. I was prepped for one but the surgeon determined that it wasn’t necessary in my case. They won’t know anything for sure until they open you up and see what’s what. I concur that they don't have exact picture till t...
by henry123
Sat Nov 16, 2019 5:41 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Exercise
Replies: 5
Views: 1027

Re: Exercise

It definitely helps both mentally and physically.
Yoga and running are part of my exercise regimen.
by henry123
Wed Oct 16, 2019 4:27 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Adventures in Immunotherapy - Hopeful beginnings
Replies: 10
Views: 2237

Re: Adventures in Immunotherapy - Hopeful beginnings

Best of luck Trevor.
4 Infuisions may be too few to assess.

Be wary of pseudoprogression.

I am sure it will work out for you.
by henry123
Wed Oct 16, 2019 4:19 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Calling ALL Colorectal CANUCKS !
Replies: 344
Views: 114409

Re: Calling ALL Colorectal CANUCKS !

Happy Thanksgiving..
Grateful for still being around.
Grateful to all the people, known and unknown , who helped along the way.
by henry123
Mon Sep 23, 2019 3:57 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Switching back to Pembro
Replies: 80
Views: 40469

Re: Switching back to Pembro

Month 27 . Infusion every six weeks. CEA under control. Have started some non-vegan foods. Still taking aspirin and continuing with juicing. Outstanding Henry, well done and thanks for the update. Although I’m not MSI-H, your signature was one of the ones that motivated me in the early tough days. ...
by henry123
Mon Sep 23, 2019 1:02 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My Sister is talking to my bf behind my back
Replies: 3
Views: 947

Re: My Sister is talking to my bf behind my back

Let go of all the negativities inside you. Forgive everyone including yourself . Seek forgiveness from those whom you may have hurt. Be at peace with all that's happening around you. You are here for greater things than worrying about behaviour of your sister or/ and your bf. None is worth an iota o...
by henry123
Mon Sep 23, 2019 12:54 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Switching back to Pembro
Replies: 80
Views: 40469

Re: Switching back to Pembro

Month 27 .
Infusion every six weeks.
CEA under control.
Have started some non-vegan foods.
Still taking aspirin and continuing with juicing.
by henry123
Wed Sep 11, 2019 3:28 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Multiple tiny mets on lungs—-need knowledge.
Replies: 19
Views: 2809

Re: Multiple tiny mets on lungs—-need knowledge.

You probably got it tested but what is your MSI status . if if you are a msi-high then you may be a candidate for immunotherapy.
I had innumerable growths on my liver and a few on lungs but nivolumab worked for me.
I am MSI High.
by henry123
Thu Sep 05, 2019 12:20 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: What can I do about diarrhea-like cramps?
Replies: 10
Views: 1235

Re: What can I do about diarrhea-like cramps?

Besides medicine like imodium , fresh aloe vera gel from plant works really well for me some times.
Just fillet a large aloe vera leaf and eat raw gel , not green part.
You can add gel to your green juice too.
Important : do not consume green part as it causes diarrhoea.
by henry123
Wed Sep 04, 2019 6:53 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: The Budwig diet
Replies: 8
Views: 1130

Re: The Budwig diet

Hi
I don't remember exact reason but I think I was hospitalized for blockage and never restarted taking taking cheese and flaxseed oil.
I am taking 150 mg aspirin daily as I am Lynch positive. Aspirin is for preventing ( hopefully) future reoccurrence.
by henry123
Tue Sep 03, 2019 9:22 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: The Budwig diet
Replies: 8
Views: 1130

Re: The Budwig diet

I tried it for some. Don't remember why I stopped though.
I actually liked taste of it , nice creamy feel.
Add a bit of black salt and cucumbers chunks. See if it helps.

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