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by henry123
Wed Jul 25, 2018 10:56 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scan Results 15 months post surgery. NDED vs NED?
Replies: 19
Views: 746

Re: Scan Results 15 months post surgery. NDED vs NED?

Seems all ok to me.
Best wishes for your oncologist appointment
by henry123
Mon Jul 23, 2018 3:30 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Keytruda? What else is new?
Replies: 43
Views: 6428

Re: Keytruda? What else is new?

Fatigue is the most persistent. It started out as just standard fatigue, but has since progressed to what can only be described as narcoleptic. The last two weeks I have seen a large increase in bleeding during loose bowel movements, which have become frequent enough to keep me from sleeping. I was...
by henry123
Mon Jul 16, 2018 11:47 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Some good, non-cancer related news
Replies: 11
Views: 406

Re: Some good, non-cancer related news

I totally agree. We should not expect special treatment from world because of being a cancer patient or survivor. If anything, we are likely to be considered a handicap by most hard nosed ppl. So we have to reset our own expectation level accordingly. We have or are undergoing the learning experienc...
by henry123
Sun Jul 01, 2018 12:18 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Modifications to prevent/lessen chance of recurrence
Replies: 33
Views: 1358

Re: Modifications to prevent/lessen chance of recurrence

I am
@ mostly vegan though I slack off while on vacations.
@ curcumin,
@ aspirin 150 mg
@ 8000+ steps + yoga
@ try to avoid emotions like jealousy, conflict and stress
@ veggie juice 2 to 3 glasses - carrot, pomegranate, greens, ginger etc
@ apricot kernels etc
by henry123
Tue Jun 26, 2018 12:14 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Probiotic and cream for frequent BM?
Replies: 6
Views: 359

Re: Probiotic and cream for frequent BM?

Apply pure coconut oil generously outside and inside the butt for reducing soreness. Highly effective.
I used to take vsl#3 ( the best) but now take econorm sachet once a while.
by henry123
Tue Jun 19, 2018 1:01 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Taste Change Advice
Replies: 18
Views: 737

Re: Taste Change Advice

I had a really bad episode of nausea and taste change during xeloda chemo. There were huge episodes before each meal . I would throw tantrums like a baby. My wife actually had to call my friend over to convince me to eat something. Some of things that worked: Boiled rice with yogurt with mild sauces...
by henry123
Thu Jun 14, 2018 11:58 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Keytruda? What else is new?
Replies: 43
Views: 6428

Re: Keytruda? What else is new?

Fatigue is the most persistent. It started out as just standard fatigue, but has since progressed to what can only be described as narcoleptic. The last two weeks I have seen a large increase in bleeding during loose bowel movements, which have become frequent enough to keep me from sleeping. I was...
by henry123
Thu Jun 14, 2018 9:59 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Keytruda? What else is new?
Replies: 43
Views: 6428

Re: Keytruda? What else is new?

Any update on approval for immunotherapy drugs for msi-high CRC in Canada ?
by henry123
Tue Jun 12, 2018 6:53 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Signs of travelling to lungs?
Replies: 10
Views: 767

Re: Signs of travelling to lungs?

Liver , lungs and skin are the organs to which body sends whatever it perceived to be harmful or toxic.
That's why most of the mets start with liver and lungs.
by henry123
Sun Jun 10, 2018 9:46 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colon cancer screening at 45 - New guidelines
Replies: 15
Views: 754

Re: Colon cancer screening at 45 - New guidelines

Definitely step in the right direction.
Agree with posters that it should be in 30s.
I think reason could be increased sedentary lifestyle due to gadgets alongwith western diet.
by henry123
Sun Jun 10, 2018 9:31 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Adverse reaction to capecitabine?
Replies: 14
Views: 598

Re: Adverse reaction to capecitabine?

I second what Beth ( Stewsbetty ) has written. I had a cardiac incident on first infusion of 5FU and was almost gone . Then I was shifted to xeloda ( which is 5fu in tablet form) . Didn't do a bit for me except 6 months of pure suffering and misery. Besides disease progressed from stage 3 to stage 4...
by henry123
Sat Jun 09, 2018 5:27 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colon cancer and dentistry questions and CEA question
Replies: 11
Views: 1646

Re: Colon cancer and dentistry questions and CEA question

I have not lost any teeth but have cracked a tooth and got deep cavities in another two. Dentist says it is due to reduced salivation and wanted root canal. But Med oncologist has forbidden the same. Thankful to have survived with a couple of lost teeth and occasional bone and muscle pain. The reas...
by henry123
Thu Jun 07, 2018 9:00 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: It's baaaaaaack!
Replies: 13
Views: 1562

Re: It's baaaaaaack!

Mike,
I would advise being on rolls till you are out of woods with at least current episode.
Wait till your recovery from surgeries and chemos to make your decision.
You have backing of a good employer. Keep that.
Best of luck and stay strong.

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