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by henry123
Sat Oct 20, 2018 12:55 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone with peri mets who survived?
Replies: 11
Views: 1044

Re: Anyone with peri mets who survived?

Hi I has peri mets but was considered unfit for HIPEC as mets were there in lungs and liver too. Fortunately, immunotherapy worked for me and it seems peritoneal mets are gone. As per my understanding traditional Chemo doesn't work too well for peri mets as there is not a lot of blood supply in that...
by henry123
Wed Oct 17, 2018 10:20 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Is my Mom the longest colon-cancer survivor?
Replies: 3
Views: 571

Re: Is my Mom the longest colon-cancer survivor?

So encouraging to read about your mom's story.
Congrats.
Do share about her lifestyle after her initial occurrence.
Did she do anything different?
Thanks for sharing.
by henry123
Wed Oct 03, 2018 12:29 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Calling ALL Colorectal CANUCKS !
Replies: 325
Views: 84182

Re: Calling ALL Colorectal CANUCKS !

Hi
Can anyone suggest a good medical oncologist in GTA Area of Ontario.
Someone with experience in immunotherapy or GI medical Oncologist would be great.
by henry123
Sat Sep 29, 2018 3:50 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Switching back to Pembro
Replies: 42
Views: 15047

Re: Switching back to Pembro

Great news Plastikos, Even my oncologist is increasing duration between fusions by a week every 3 months or so after a year of infusions every 2 weeks. It started with once every 2 weeks. It is now at once a month. Great to hear that Henry. Looks like we are kind of in the same boat right now. If i...
by henry123
Sat Sep 29, 2018 3:46 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: MSI-H with liver met, in search of help
Replies: 13
Views: 835

Re: MSI-H with liver met, in search of help

Maybe not even mess with liver met.
Hopefully immunotherapy would take care of that too.
by henry123
Thu Sep 27, 2018 5:07 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: MSI-H with liver met, in search of help
Replies: 13
Views: 835

Re: MSI-H with liver met, in search of help

Hope things work out for you and you have a great team to handle your case.
by henry123
Thu Sep 27, 2018 5:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Switching back to Pembro
Replies: 42
Views: 15047

Re: Switching back to Pembro

Great news Plastikos,
Even my oncologist is increasing duration between fusions by a week every 3 months or so after a year of infusions every 2 weeks.
It started with once every 2 weeks. It is now at once a month.
by henry123
Tue Sep 25, 2018 2:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: MSI or MSS
Replies: 28
Views: 7210

Re: MSI or MSS

Please , does someone know what society /organisation can work to push the Canadian government also for immunotherapy options for msi-high cases.
by henry123
Tue Sep 25, 2018 2:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: IMMUNOTHERAPY
Replies: 25
Views: 6770

Re: IMMUNOTHERAPY

The only important test right now for you is msi-high vs mss status as only that would alter course of treatment from chemo to possibly immunotherapy from a very good lab. Other test is not really that useful but if u can comfortably afford it , no harm. My oncologist said it was a waste of resource...
by henry123
Tue Sep 04, 2018 10:30 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: MSI-H with liver met, in search of help
Replies: 13
Views: 835

Re: MSI-H with liver met, in search of help

Hello friend Your case is almost same as mine. After surgeries and chemos , I am currently on Opdivo. My advise: Start immunotherapy at the earliest. Do not waste time and body strength on anything else. Most important : do not get any surgery once you start immunotherapy. Start aspirin too along wi...
by henry123
Tue Sep 04, 2018 10:21 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Keytruda? What else is new?
Replies: 47
Views: 14763

Re: Keytruda? What else is new?

Yea! Yea! Yea! So excited to hear this. I hope to join you in the future! Beth Those on immunotherapy , what else are you doing besides keytruda or opdivo with regards to lifestyle , supplements, diet etc. Hi Henry, I haven’t changed a lot. I quit drinking pop on a regular basis and have added in m...
by henry123
Mon Sep 03, 2018 8:44 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: The things people say to cancer patients
Replies: 44
Views: 6938

Re: The things people say to cancer patients

Here are a few basic need-to-knows about cancer: first, it’s NEVER fine. It is insidious, and a cancer diagnosis stays with you for life. Yes, you celebrate milestones of getting past it at its various stages, but the fear of recurrence is always with you; every second of every minute of every day....
by henry123
Tue Aug 28, 2018 7:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Genetic Testing?
Replies: 20
Views: 4626

Re: Genetic Testing?

GINA only protects against discrimination in health insurance and employment and that’s all, it does not protect against discrimination for life insurance. This was explained to me by my oncologist as well and there are a ton of articles about it you can find on the Internet. I already had a life i...
by henry123
Sun Aug 26, 2018 10:32 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Keytruda? What else is new?
Replies: 47
Views: 14763

Re: Keytruda? What else is new?

Stewsbetty wrote:
Yea! Yea! Yea! So excited to hear this. I hope to join you in the future!
Beth


Those on immunotherapy , what else are you doing besides keytruda or opdivo with regards to lifestyle , supplements, diet etc.

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