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by henry123
Wed Sep 11, 2019 3:28 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Multiple tiny mets on lungs—-need knowledge.
Replies: 19
Views: 1694

Re: Multiple tiny mets on lungs—-need knowledge.

You probably got it tested but what is your MSI status . if if you are a msi-high then you may be a candidate for immunotherapy.
I had innumerable growths on my liver and a few on lungs but nivolumab worked for me.
I am MSI High.
by henry123
Thu Sep 05, 2019 12:20 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: What can I do about diarrhea-like cramps?
Replies: 10
Views: 707

Re: What can I do about diarrhea-like cramps?

Besides medicine like imodium , fresh aloe vera gel from plant works really well for me some times.
Just fillet a large aloe vera leaf and eat raw gel , not green part.
You can add gel to your green juice too.
Important : do not consume green part as it causes diarrhoea.
by henry123
Wed Sep 04, 2019 6:53 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: The Budwig diet
Replies: 8
Views: 653

Re: The Budwig diet

Hi
I don't remember exact reason but I think I was hospitalized for blockage and never restarted taking taking cheese and flaxseed oil.
I am taking 150 mg aspirin daily as I am Lynch positive. Aspirin is for preventing ( hopefully) future reoccurrence.
by henry123
Tue Sep 03, 2019 9:22 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: The Budwig diet
Replies: 8
Views: 653

Re: The Budwig diet

I tried it for some. Don't remember why I stopped though.
I actually liked taste of it , nice creamy feel.
Add a bit of black salt and cucumbers chunks. See if it helps.
by henry123
Sun Sep 01, 2019 2:18 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I don't have much longer.
Replies: 11
Views: 1389

Re: I don't have much longer.

Joe
Best wishes to you. Try and enjoy whatever time you have on this planet. It may be longer than you think. Or maybe not. Leave that decision to higher power with whom we all ultimately remerge.

We are all individual souls with our own scripts so don't worry about future too much.
Hugs and love.
H
by henry123
Fri Aug 30, 2019 4:11 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Any Stage IV currently in NEDville? Please share any advice or tips? P
Replies: 72
Views: 19697

Re: Any Stage IV currently in NEDville? Please share any advice or tips? P

I'm bumping this thread back up to the top. KNOW there are many people out there who are stage IV survivors (many in NEDville). They just do not check in as often. If you do a search, you will find other threads asking the same question. Know that it is possible to beat this cancer and MANY stage I...
by henry123
Tue Aug 20, 2019 12:31 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Immunotherapy failed
Replies: 1
Views: 359

Re: Immunotherapy failed

Since you are msi-h , you are a candidate for immunotherapy. But again it works in a certain percentage of MSI High cases only. Normally 3 months period is considered to be good time to know if it is pseudoprogression or medicine is not working but it can take up to 6 months for the correct results ...
by henry123
Mon Jul 29, 2019 2:53 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Switching back to Pembro
Replies: 74
Views: 32453

Re: Switching back to Pembro

Updates , folks.
What's going on at your end.
Tests. Continuing or stopped medication.
by henry123
Mon Jul 29, 2019 6:56 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: We Still Need to Laugh Resumed : 2019
Replies: 151
Views: 23302

Re: We Still Need to Laugh Resumed : 2019

Maggie Nell wrote:#argggh!

henry123 and Utwo get thee to Netflix - Hitchcock's movie "The Birds"....


Of course. Thanks
by henry123
Mon Jul 29, 2019 6:55 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: We Still Need to Laugh Resumed : 2019
Replies: 151
Views: 23302

Re: We Still Need to Laugh Resumed : 2019

https://scontent.fsyd4-1.fna.fbcdn.net/v/t1.0-0/cp0/e15/q65/s320x320/66503656_2457136784546292_2279988281049350144_n.jpg?_nc_cat=102&efg=eyJpIjoiYiJ9&_nc_oc=AQnUnx0NxMi1kHHkpLyXXFWwDkMh186iTvLhQbrFe795HwPpM8Ox7LWwL94RGhClYYA&_nc_ht=scontent.fsyd4-1.fna&oh=497d7551246f52892a3a5c628c7...
by henry123
Fri Jul 19, 2019 10:26 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: We Still Need to Laugh Resumed : 2019
Replies: 151
Views: 23302

Re: We Still Need to Laugh Resumed : 2019

https://scontent.fsyd4-1.fna.fbcdn.net/v/t1.0-0/cp0/e15/q65/p320x320/66855853_1286043714891471_6053241110715695104_n.jpg?_nc_cat=106&efg=eyJpIjoiYiJ9&_nc_eui2=AeG5GHaHt1lPBoza-Tg0EBrT5nLeJG9-W_ygez0DbKKJRXt4wMmYSBmCQ-aJEzeNwxujvEf6pZhcTOA-TS0swEfhVc8A4MHepSvX8amAW8SO1g&_nc_oc=AQnhpSZhLs...
by henry123
Fri Jun 28, 2019 5:59 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Keytruda Side Effects: bad joint pain
Replies: 11
Views: 1353

Re: Keytruda Side Effects: bad joint pain

Hi ,
Sorry to hear about your complications.

While I do experience pain for some time after infusions, nothing like what you're describing.
by henry123
Thu Jun 13, 2019 3:37 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Probiotics while on Immunotherapy. Good or bad?
Replies: 4
Views: 534

Re: Probiotics while on Immunotherapy. Good or bad?

Hi all. Title explains it all. I have been seeing conflicting data (well not super hard evidence since they aren’t from trials). Any opinions on this? I used to take probiotic pills while on Keytruda but stopped them now. My response on Keytruda has been splendid. Now just loading up on “natural” p...
by henry123
Thu Jun 13, 2019 3:29 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Switching back to Pembro
Replies: 74
Views: 32453

Re: Switching back to Pembro

Ok. My oncologist after much discussions have decided to continue with 6-week infusions of Nivolumab for foreseeable future . I was hoping that the medicine would be stopped at this stage but I guess the doctor knows the best. Also infusion at 6 week interval is not that bad as long as the disease i...
by henry123
Sat Jun 08, 2019 10:44 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Visualization and Other non-medical stuff
Replies: 9
Views: 618

Re: Visualization and Other non-medical stuff

I used to imagine immunotherapy eating away tumors like Pacman video game.

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