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by henry123
Sat Nov 30, 2019 4:16 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: “Near” Complete Clinical Response and what to do next
Replies: 10
Views: 813

Re: “Near” Complete Clinical Response and what to do next

I would say trust your doctors. This is what they do. Also, a stoma isn’t automatic. I was prepped for one but the surgeon determined that it wasn’t necessary in my case. They won’t know anything for sure until they open you up and see what’s what. I concur that they don't have exact picture till t...
by henry123
Sat Nov 16, 2019 5:41 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Exercise
Replies: 5
Views: 637

Re: Exercise

It definitely helps both mentally and physically.
Yoga and running are part of my exercise regimen.
by henry123
Wed Oct 16, 2019 4:27 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Adventures in Immunotherapy - Hopeful beginnings
Replies: 4
Views: 772

Re: Adventures in Immunotherapy - Hopeful beginnings

Best of luck Trevor.
4 Infuisions may be too few to assess.

Be wary of pseudoprogression.

I am sure it will work out for you.
by henry123
Wed Oct 16, 2019 4:19 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Calling ALL Colorectal CANUCKS !
Replies: 344
Views: 107346

Re: Calling ALL Colorectal CANUCKS !

Happy Thanksgiving..
Grateful for still being around.
Grateful to all the people, known and unknown , who helped along the way.
by henry123
Mon Sep 23, 2019 3:57 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Switching back to Pembro
Replies: 77
Views: 33904

Re: Switching back to Pembro

Month 27 . Infusion every six weeks. CEA under control. Have started some non-vegan foods. Still taking aspirin and continuing with juicing. Outstanding Henry, well done and thanks for the update. Although I’m not MSI-H, your signature was one of the ones that motivated me in the early tough days. ...
by henry123
Mon Sep 23, 2019 1:02 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My Sister is talking to my bf behind my back
Replies: 3
Views: 770

Re: My Sister is talking to my bf behind my back

Let go of all the negativities inside you. Forgive everyone including yourself . Seek forgiveness from those whom you may have hurt. Be at peace with all that's happening around you. You are here for greater things than worrying about behaviour of your sister or/ and your bf. None is worth an iota o...
by henry123
Mon Sep 23, 2019 12:54 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Switching back to Pembro
Replies: 77
Views: 33904

Re: Switching back to Pembro

Month 27 .
Infusion every six weeks.
CEA under control.
Have started some non-vegan foods.
Still taking aspirin and continuing with juicing.
by henry123
Wed Sep 11, 2019 3:28 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Multiple tiny mets on lungs—-need knowledge.
Replies: 19
Views: 2190

Re: Multiple tiny mets on lungs—-need knowledge.

You probably got it tested but what is your MSI status . if if you are a msi-high then you may be a candidate for immunotherapy.
I had innumerable growths on my liver and a few on lungs but nivolumab worked for me.
I am MSI High.
by henry123
Thu Sep 05, 2019 12:20 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: What can I do about diarrhea-like cramps?
Replies: 10
Views: 930

Re: What can I do about diarrhea-like cramps?

Besides medicine like imodium , fresh aloe vera gel from plant works really well for me some times.
Just fillet a large aloe vera leaf and eat raw gel , not green part.
You can add gel to your green juice too.
Important : do not consume green part as it causes diarrhoea.
by henry123
Wed Sep 04, 2019 6:53 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: The Budwig diet
Replies: 8
Views: 860

Re: The Budwig diet

Hi
I don't remember exact reason but I think I was hospitalized for blockage and never restarted taking taking cheese and flaxseed oil.
I am taking 150 mg aspirin daily as I am Lynch positive. Aspirin is for preventing ( hopefully) future reoccurrence.
by henry123
Tue Sep 03, 2019 9:22 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: The Budwig diet
Replies: 8
Views: 860

Re: The Budwig diet

I tried it for some. Don't remember why I stopped though.
I actually liked taste of it , nice creamy feel.
Add a bit of black salt and cucumbers chunks. See if it helps.
by henry123
Sun Sep 01, 2019 2:18 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I don't have much longer.
Replies: 11
Views: 1715

Re: I don't have much longer.

Joe
Best wishes to you. Try and enjoy whatever time you have on this planet. It may be longer than you think. Or maybe not. Leave that decision to higher power with whom we all ultimately remerge.

We are all individual souls with our own scripts so don't worry about future too much.
Hugs and love.
H
by henry123
Fri Aug 30, 2019 4:11 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Any Stage IV currently in NEDville? Please share any advice or tips? P
Replies: 72
Views: 20668

Re: Any Stage IV currently in NEDville? Please share any advice or tips? P

I'm bumping this thread back up to the top. KNOW there are many people out there who are stage IV survivors (many in NEDville). They just do not check in as often. If you do a search, you will find other threads asking the same question. Know that it is possible to beat this cancer and MANY stage I...
by henry123
Tue Aug 20, 2019 12:31 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Immunotherapy failed
Replies: 1
Views: 491

Re: Immunotherapy failed

Since you are msi-h , you are a candidate for immunotherapy. But again it works in a certain percentage of MSI High cases only. Normally 3 months period is considered to be good time to know if it is pseudoprogression or medicine is not working but it can take up to 6 months for the correct results ...
by henry123
Mon Jul 29, 2019 2:53 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Switching back to Pembro
Replies: 77
Views: 33904

Re: Switching back to Pembro

Updates , folks.
What's going on at your end.
Tests. Continuing or stopped medication.

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