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by Zig2017
Wed Jan 17, 2018 4:02 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: any peeps with BRAF mutation on here?
Replies: 120
Views: 3498

Re: any peeps with BRAF mutation on here?

I’m glad you’re doing well Robino! No, they don’t do CEA every time, at least that’s been our experience, and quite frankly it’s good if they do it monthly or every other month. He’s on a clinical trial so they will check probably 4-6 weeks. As for heart, they won’t leave me alone. Another echo to s...
by Zig2017
Wed Jan 17, 2018 6:45 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: any peeps with BRAF mutation on here?
Replies: 120
Views: 3498

Re: any peeps with BRAF mutation on here?

Robino checking in on you this morning to see how you are doing. Hope you have a good day!
by Zig2017
Wed Jan 17, 2018 6:40 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Wives of husbands with Stage IV Colon Freaking Cancer
Replies: 3518
Views: 483483

Re: Wives of husbands with Stage IV Colon Freaking Cancer

MHF waiting is the worst. And the checking of patient portal. Why did he send an email like that with no follow up? Ugh! If anything maybe he’s changing treatment? I hope you were able to sleep somewhat, but I know that’s difficult after your doc pulled that one. I would address with doc about what ...
by Zig2017
Sun Jan 14, 2018 10:15 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Wives of husbands with Stage IV Colon Freaking Cancer
Replies: 3518
Views: 483483

Re: Wives of husbands with Stage IV Colon Freaking Cancer

LPL thank you for your encouragement. ALL of the men and women going through this have my heart. I started the BRAF thread hoping to help others see that this really is a good phase III trial for this subtype, and even if he’s struggling with it, there are many showing stable or regression. Treatmen...
by Zig2017
Sun Jan 14, 2018 1:32 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Wives of husbands with Stage IV Colon Freaking Cancer
Replies: 3518
Views: 483483

Re: Wives of husbands with Stage IV Colon Freaking Cancer

Lena thank you. I hope hubby’s scan on the 18th shows regression! It is a rollercoaster with the tumor markers, I know. But scans can tell what’s going on. Sending love and hope, Mrs Z
by Zig2017
Sun Jan 14, 2018 12:31 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: All Lung Nodule Experiences
Replies: 17
Views: 773

Re: All Lung Nodule Experiences

My husband has had several scans he has lung nodules too, but they felt it was an inflammatory process as opposed to any metastasis. It can happen, they haven’t changed and the guess is he had pneumonia a while back, or maybe from chemo? Dunno but the docs don’t seem concerned and he gets scans ever...
by Zig2017
Sun Jan 14, 2018 12:25 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Wives of husbands with Stage IV Colon Freaking Cancer
Replies: 3518
Views: 483483

Re: Wives of husbands with Stage IV Colon Freaking Cancer

MHF I’m hoping for encouraging scans for hubby. Yes, it never hurts to ask for a reduction in dosage if they feel efficacy will be good and the symptoms are intolerable on it. Sometimes they start high see what is tolerated and then lower if they have to. There has to be a balance. All my love to yo...
by Zig2017
Sat Jan 13, 2018 2:17 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: any peeps with BRAF mutation on here?
Replies: 120
Views: 3498

Re: any peeps with BRAF mutation on here?

I wish I could hug you too Robino! Virtual hugs to you! We will definitely discuss when we see her again, and i’ll Ask if bisphosphanate would be appropriate for bone lesions. I know they use it for breast cancer to bone lesions and it helps not only strengthen and heal but against lesions as well. ...
by Zig2017
Sat Jan 13, 2018 9:25 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: any peeps with BRAF mutation on here?
Replies: 120
Views: 3498

Re: any peeps with BRAF mutation on here?

He is helping by being on this trial as is others. It is promising for a lot of people and hopefully will be standard of care along with BRAF, KRAS testing so that people in the future will be treated at earlier stages. This is my hope and it’s coming! Hang on people there are great things coming do...
by Zig2017
Sat Jan 13, 2018 9:21 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: any peeps with BRAF mutation on here?
Replies: 120
Views: 3498

Re: any peeps with BRAF mutation on here?

Mr Ziggy’s brain scan report is up. It says several nodules in left orbit tissue, which they told me. Brain is fine. However several lesions in cervical spine now and base of skull. Not treatment related, they are osseous lesions. He is vomiting more easily now, sleeping A LOT. Starting with some di...
by Zig2017
Thu Jan 11, 2018 5:27 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: any peeps with BRAF mutation on here?
Replies: 120
Views: 3498

Re: any peeps with BRAF mutation on here?

Yikes! I better reassess. My score was in the shitter on that quiz. Spa day?
by Zig2017
Thu Jan 11, 2018 5:21 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: any peeps with BRAF mutation on here?
Replies: 120
Views: 3498

Re: any peeps with BRAF mutation on here?

Ok I’ll keep the appointment. Got to look at the caregiver links o stoma Mia sent. My family has had a rough ride since 2008 and unfortunately I’m the caregiver for mom, brother, and now hubby. Won’t get into boring details here, but it all hit the fan one year out from Breast cancer, chemo, mastect...
by Zig2017
Thu Jan 11, 2018 1:34 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: any peeps with BRAF mutation on here?
Replies: 120
Views: 3498

Re: any peeps with BRAF mutation on here?

Cardiologist has been trying to get me but of corse I ignore, you know like you do... so get this one. I thought I had a heart attack November 29. Figured I was just being a girl or anxiety attack. That was some chest crusher let me tell you. Next day weak couldn’t walk. So finally went for stress, ...
by Zig2017
Wed Jan 10, 2018 9:15 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 622
Views: 39472

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Mike during my husbands FOLFOX he would sometimes use a heating pad on low setting if things got rough. He also rested with hands a little above his heart and he swore that worked. I know it’s miserable, but worth doing “just in case” and to keep any cancer at bay. I hope you start feeling better af...
by Zig2017
Wed Jan 10, 2018 9:00 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: any peeps with BRAF mutation on here?
Replies: 120
Views: 3498

Re: any peeps with BRAF mutation on here?

Hugs Robino keep me updated as to how you are doing. I’m in your corner! xo Mrs Z

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