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by prayingof3
Wed Jan 17, 2018 12:27 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Help with Disability please! UPDATED
Replies: 10
Views: 2364

Re: Help with Disability please!

Hello everyone! I just wanted to update in case it could help others! My dh was approved for ssdi and long term disability with his company. His long term will be offset when he starts to receive his ssdi. This took less than 30 days to be approved with no attorney. I didn't think it would've been t...
by prayingof3
Mon Dec 11, 2017 12:43 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Help with Disability please! UPDATED
Replies: 10
Views: 2364

Re: Help with Disability please!

Thanks for all the great replies so far! Gosh, I never even thought about getting an attorney for this. With my limited knowledge I thought my dh would be approved via the compassionate allowance. He did talk to someone in person at the local Social Security office, after applying online, when he dr...
by prayingof3
Thu Dec 07, 2017 10:19 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Help with Disability please! UPDATED
Replies: 10
Views: 2364

Help with Disability please! UPDATED

Hello, everyone! We made a decision along with my dh's doctors last week that he will not be returning to work right now. There are many things that led to this decision and I am worried and have questions. My dh has only had one round of FOLFOX, but it kicked his butt to be honest. It took him a so...
by prayingof3
Sun Nov 19, 2017 9:16 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Results of PET scan and questions about the liver!
Replies: 18
Views: 3600

Re: Results of PET scan and questions about the liver!

Thank you so much! Your post is so encouraging! I'm still really in shock a little from all of this. Trying so hard to remain positive though for my husband and our family.
by prayingof3
Fri Nov 17, 2017 10:56 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Results of PET scan and questions about the liver!
Replies: 18
Views: 3600

Re: Results of PET scan and questions about the liver!

Hello everyone! I said I would update. It is cancer in his liver. I was hoping so much that the PET scan was wrong. But still weird that it didn't show up on the CT or the MRI. Guess it was hiding or grew really fast. They are also checking it for mutations, but we don't have those results yet. So n...
by prayingof3
Wed Nov 15, 2017 6:10 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Results of PET scan and questions about the liver!
Replies: 18
Views: 3600

Re: Results of PET scan and questions about the liver!

Wanted to update.. the meeting with the oncologist went well. After lengthy discussion about the biopsy and how it would change his treatment, we are doing the biopsy today. He was supposed to start FOLFOX this week but because of results from PET, that was put on hold for a couple of weeks. The onc...
by prayingof3
Mon Nov 13, 2017 10:57 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Results of PET scan and questions about the liver!
Replies: 18
Views: 3600

Re: Results of PET scan and questions about the liver!

Lee,


Thank you so much! This is pretty much what I am going to ask. I appreciate your knowledge in this. All of these decisions are just hard. Cancer is hard period.
by prayingof3
Mon Nov 13, 2017 10:12 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Results of PET scan and questions about the liver!
Replies: 18
Views: 3600

Re: Results of PET scan and questions about the liver!

praying3, . . . . I also don't think that the suggestion for a needle biopsy is unusual. . . . Be very careful there. Know the surgeon and his/her experience. When dealing with a liver and biopsy, sometimes cancer cells get left behind (seeding). Then you have many new tumors. For some reason and I...
by prayingof3
Fri Nov 10, 2017 8:51 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Results of PET scan and questions about the liver!
Replies: 18
Views: 3600

Results of PET scan and questions about the liver!

So, my husband had a PET scan this week and it showed several things that really concern me. The oncologist is mainly concerned about the liver. He previously had a ct and mri and the lesions that they found on the pet of the liver are new! So, 3 hypermetabolic hepatic lesions that are consistent wi...
by prayingof3
Sat Oct 28, 2017 9:03 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Husband recovering from LAR and need opinions on Path report please!
Replies: 13
Views: 2283

Re: Husband recovering from LAR and need opinions on Path report please!

Sorry to be so long answering and updating! It's been a crazy few days! We met with the oncologist and we loved him! Finally someone that answered our questions! So he is scheduled for a PET scan now. The doctor was concerned about his high CEA prior to surgery and it's not coming down very quickly....
by prayingof3
Sat Oct 21, 2017 2:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Husband recovering from LAR and need opinions on Path report please!
Replies: 13
Views: 2283

Re: Husband recovering from LAR and need opinions on Path report please!

To answer some of these questions, I looked at the report again. It is adenocarcinoma, clear margins, tumor was whole, there was tumor budding, no lymphovascular invasion. And his high CEA of 131 was prior to his operation. They haven't taken it again since.
by prayingof3
Fri Oct 20, 2017 9:04 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Husband recovering from LAR and need opinions on Path report please!
Replies: 13
Views: 2283

Husband recovering from LAR and need opinions on Path report please!

I posted previously because my 49 year old husband was recently diagnosed. I thought everything was moving so slow and then it seemed to move so fast!! I tried to make my signature with basic updates. My husband had his LAR surgery last week laparoscopic. He seems to be doing well except he has lost...
by prayingof3
Thu Sep 28, 2017 9:16 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New and husband just diagnosed
Replies: 36
Views: 9987

Re: New and husband just diagnosed

Thanks for the replies!! Several of you have asked about the oncologist. Well, we don't have one yet. Apparently the way they do things around here is you start with the colorectal surgeon first and they stage you after surgery and then you are sent to the oncologist after. The colorectal surgeon ri...
by prayingof3
Tue Sep 26, 2017 11:19 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New and husband just diagnosed
Replies: 36
Views: 9987

Re: New and husband just diagnosed

Anyone have any opinions or knowledge on these results I posted? Thanks! And also he hasn't even started any treatment yet and just in the last week I've noticed his energy levels going way down. It worries me!

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