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by KathyLynn
Thu Jul 12, 2018 6:16 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 8 year TAE for T3 follow up - NED!, so I opened a winery!
Replies: 3
Views: 178

Re: 8 year TAE for T3 follow up - NED!, so I opened a winery!

Awesome!! This is a great! I’ll definitely stop by when I visit my daughter in PA and have a drink of FURC with you!!

Enjoy your life!!

KathyLynn
by KathyLynn
Tue Jul 10, 2018 12:25 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 6 years NED after stage IV
Replies: 21
Views: 733

Re: 6 years NED after stage IV

Congratulations!! I’m so glad you are moving on with your life!
Enjoy your family and enjoy your life!
by KathyLynn
Tue Apr 17, 2018 8:37 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Alcohol use since diagnosis
Replies: 28
Views: 3267

Re: Alcohol use since diagnosis

I love my wine. After surgery I stopped drinking But I’m back to having a glass or two a night. Maybe I should cut back, but I enjoy my wine! I think moderation is the answer. Not sure if two glasses a night is!

KathyLynn
by KathyLynn
Fri Feb 02, 2018 6:45 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer diagnose with isolated tumor cells (ITC)
Replies: 18
Views: 1294

Re: Rectal cancer diagnose with isolated tumor cells (ITC)

Thanks for all the information. I will definitely read up on all of this.
I was so excited when they told me that I didn’t need treatment, but now I still find myself worrying about that ITC.
One day at a time! I’m heading to see my grand kids in PA. They keep me busy and happy!

KathyLynn
by KathyLynn
Thu Feb 01, 2018 3:34 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer diagnose with isolated tumor cells (ITC)
Replies: 18
Views: 1294

Re: Rectal cancer diagnose with isolated tumor cells (ITC)

Hi All, So after my second opinion, I waited for the oncologist to bring it up at the board All agreed that I should not have any chemo or radiation So, I will see my surgeon for all follow up tests. I cancelled my appointment with John Hopkins. (Third opinion) I hope I made the right decision I’ll ...
by KathyLynn
Tue Jan 23, 2018 5:57 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surgery is over!
Replies: 52
Views: 3827

Re: Surgery is over!

You are amazing, I just want to Thank you for everything that you have done for me. Really, thank you! I have so much more information from you, I’m ready for my next two appointments! As far as having two reports, my doctor works at one hospital, GBMC. The oncologist/radiologist is at university of...
by KathyLynn
Tue Jan 23, 2018 10:07 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer diagnose with isolated tumor cells (ITC)
Replies: 18
Views: 1294

Re: Rectal cancer diagnose with isolated tumor cells (ITC)

I’ll check into this, I’m heading to Baltimore tomorrow
They have offices there
My doctor will be on GBMC’s FB Page Live tomorrow at 10:00, just an FYI Dr. DiRocco.
Greater Baltimore Medical Center

KathyLynn
by KathyLynn
Mon Jan 22, 2018 3:47 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer diagnose with isolated tumor cells (ITC)
Replies: 18
Views: 1294

Re: Rectal cancer diagnose with isolated tumor cells (ITC)

Also, I did check the thread with the girl stating she had ITC. I saw she did no treatment. But she hasn’t been on for awhile. I did send her a message, but haven’t heard back. I wish there was a test for this.

KathyLynn
by KathyLynn
Mon Jan 22, 2018 3:30 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer diagnose with isolated tumor cells (ITC)
Replies: 18
Views: 1294

Re: Rectal cancer diagnose with isolated tumor cells (ITC)

Thanks again, I really appreciate your work on this
I need to stay off google, it takes me everywhere
This keeps my head in the right direction
I’ll bring this up at my next appointment on Wednesday
Why do you think they still say I’m NED?
Does that make sense?

KathyLynn
by KathyLynn
Mon Jan 22, 2018 12:03 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer diagnose with isolated tumor cells (ITC)
Replies: 18
Views: 1294

Re: Rectal cancer diagnose with isolated tumor cells (ITC)

Wow, this is a lot to take in I wonder if the treatment after surgery is as successful as before the surgery? Just the not knowing is driving me crazy Should I go for chemo/Rad? What does radiation do after surgery? Is it that bad? Or is it the Chemo that’s bad after surgery? Seems like I went from ...
by KathyLynn
Sun Jan 21, 2018 5:59 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer diagnose with isolated tumor cells (ITC)
Replies: 18
Views: 1294

Re: Rectal cancer diagnose with isolated tumor cells (ITC)

Thanks Lee
I’m hoping for just chemo
My surgeon does not want me to have radiation
I’ll be in touch

KathyLynn
by KathyLynn
Sun Jan 21, 2018 5:31 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer diagnose with isolated tumor cells (ITC)
Replies: 18
Views: 1294

Re: Rectal cancer diagnose with isolated tumor cells (ITC)

The way they explain this is, the isolated tumor cell is less than 0.1mm in a lymph node. I had my samples done by another pathology. They said it was one cell. (2 reports done) I’m really confused. They said some over treat ITC. But then what is under treat?? My surgeon was a board certified colon ...
by KathyLynn
Sun Jan 21, 2018 1:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surgery is over!
Replies: 52
Views: 3827

Re: Surgery is over!

Would you be able to update your signature to show more about your pathology risk profile? e.g., Tumor type, Tumor grade, Lymphovascular invasion, Perineural invasion, Proximal, distal, and circumferential margins, Lymph nodes positive/lymph nodes removed, Size of tumor, Location of tumor, Distance...
by KathyLynn
Sat Jan 20, 2018 6:06 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer diagnose with isolated tumor cells (ITC)
Replies: 18
Views: 1294

Rectal cancer diagnose with isolated tumor cells (ITC)

Hi All, I was diagnosed with Stage 1 after surgery But I have an issue with a lymph node (N0) that had ITC when removed after surgery I went to an oncologist/radiatologist at one university. They are totally leaving the treatment up to me. They said there is not much on this and the university would...
by KathyLynn
Sat Jan 20, 2018 8:41 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surgery is over!
Replies: 52
Views: 3827

Re: Surgery is over!

I will update my signature
I’m out of town, so it maybe a day or two
I remember that my pathology report was considered a really good report, from all Drs except for the ITC

Thanks!!

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