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by Foggyocean
Tue Jan 15, 2019 10:58 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Radiation on mets
Replies: 8
Views: 945

Re: Radiation on mets

Hi Trying, My husband also had SBRT on a single liver met a year ago (the met was too close to the IVC to resect surgically). He has been NED since (last scan was yesterday). His radiation oncologist told us there is a 90%+ success rate in the procedure killing the tumor completely and that if it we...
by Foggyocean
Tue Dec 11, 2018 8:42 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: No longer NED - DEVASTATED
Replies: 37
Views: 3971

Re: No longer NED - DEVASTATED

Hi mpbser, I'm so sorry to hear about your husband's recurrence and the way in which you found out is awful. I don't post much here, but wanted to chime in as your husband's journey reflects my husband's journey. He, too, was treated at MGH for Stage IV w/liver mets. He had a liver resection and mop...
by Foggyocean
Fri Jun 29, 2018 9:14 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My recent surgery & update on MSK HAI pump (long)
Replies: 11
Views: 903

Re: My recent surgery & update on MSK HAI pump (long)

Congrats on the successful surgery, VeggieLvr! I hope the rest of your recovery goes smoothly!
by Foggyocean
Tue Jun 12, 2018 9:45 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Recommendations for stage 4/liver mets
Replies: 6
Views: 832

Re: Recommendations for stage 4/liver mets

Hi, I agree your sister should not give up! We are in Mass. too and my husband was at MGH (is that what you meant?). Once he had a liver recurrence, we sought a 2nd opinion with Dr. Kemeny at Memorial Sloan Kettering in NYC. If your sister is willing to travel, I would HIGHLY recommend she get a sec...
by Foggyocean
Tue Jun 12, 2018 9:38 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 4 support?
Replies: 12
Views: 976

Re: Stage 4 support?

My husband is Stage 4 (diagnosed 2 years ago). He had 4 mets to the liver that were successfully surgically resected. A year later he had a recurrence of 1 met to the liver which was radiated. He has been NED since radiation (4 months ago). There are many options for Stage 4 patients, just keep push...
by Foggyocean
Tue Apr 17, 2018 8:12 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Elevated CEA from radiation?
Replies: 6
Views: 909

Re: Elevated CEA from radiation?

My husband had radiation (SBRT) to his liver met in January. His CEA went from 4.8 pre-radiation to 14.3 about 3 weeks after his last dose. Two weeks after that (5 weeks after his last dose) it was back down to 3.2 and has continued to fall since. His radiation oncologist told us this could happen s...
by Foggyocean
Mon Oct 02, 2017 11:53 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rooms at MSK Hospital
Replies: 9
Views: 1586

Re: Rooms at MSK Hospital

I think we are going to just play it by ear. Hopefully he will have a considerate roommate, I just want him to be able to get some rest but I guess that will come once he gets home. I'm glad to hear everyone has had great experiences there with nurses, etc. because I won't be able to stay in NYC wi...
by Foggyocean
Fri Sep 29, 2017 9:11 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rooms at MSK Hospital
Replies: 9
Views: 1586

Re: Rooms at MSK Hospital

I think we are going to just play it by ear. Hopefully he will have a considerate roommate, I just want him to be able to get some rest but I guess that will come once he gets home. I'm glad to hear everyone has had great experiences there with nurses, etc. because I won't be able to stay in NYC wit...
by Foggyocean
Thu Sep 28, 2017 9:40 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rooms at MSK Hospital
Replies: 9
Views: 1586

Rooms at MSK Hospital

Hi All, My husband is have surgery at MSKCC next week for the first time (previous surgeries were at MGH in Boston). Can anyone give me insight into what the rooms are like there? He is expected to have a 4-5 day recovery. Is it very common to have a roommate? I have booked a hotel for myself for a ...
by Foggyocean
Mon Sep 18, 2017 10:36 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: UPDATE: New here -- questions about HAI pump
Replies: 20
Views: 2992

UPDATE: New here -- questions about HAI pump

Just a quick update...thank you for everyone who shared their stories with me...I got an appointment for my husband with Dr. K at MSKCC and we will see her this week! I am very excited to hear what she says about my husband's case. After his MRI it turns out that what they thought was 1 bigger liver...
by Foggyocean
Sun Sep 03, 2017 9:52 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: UPDATE: New here -- questions about HAI pump
Replies: 20
Views: 2992

Re: New here -- questions about HAI pump

Hi, just responding to a comment from Mariane...I have no idea if Dr. Kemeny is or isn't taking new patients right now; I was assigned to the very capable care of Dr. R seven(!) years ago, and I never even asked about Dr. K. Just wanted to make clear that the docs at MSK all work well together as a...
by Foggyocean
Sun Sep 03, 2017 9:49 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: UPDATE: New here -- questions about HAI pump
Replies: 20
Views: 2992

Re: New here -- questions about HAI pump

Wow, everyone, thank you SO much for your replies!! It sounds like it is quite doable and really, a 4 hour car ride is nothing compared to what some of you have gone through. Like all of you know, the sitting around and waiting is the excruciating part so after double checking with my husband I cal...
by Foggyocean
Fri Sep 01, 2017 9:09 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: UPDATE: New here -- questions about HAI pump
Replies: 20
Views: 2992

Re: New here -- questions about HAI pump

Wow, everyone, thank you SO much for your replies!! It sounds like it is quite doable and really, a 4 hour car ride is nothing compared to what some of you have gone through. Like all of you know, the sitting around and waiting is the excruciating part so after double checking with my husband I call...
by Foggyocean
Thu Aug 31, 2017 7:23 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: UPDATE: New here -- questions about HAI pump
Replies: 20
Views: 2992

Re: New here -- questions about HAI pump

Hi All,. Has anyone on this board traveled to MSK to get the HAI pump? How often do you have to go there? Do you continue to receive treatment at your local cancer center? It is overwhelming to think about navigating a new hospital and system, but it seems like it would be worth it. Does anyone hav...

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