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by lovelife789
Sun May 24, 2020 3:41 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Celebrating 10 years since my Stage IV DX!!!!!
Replies: 21
Views: 2887

Re: Celebrating 10 years since my Stage IV DX!!!!!

Wow your story is amazing!gives lots of us hope :D
May I know what nodes did you have mets?

Thanks in advance for sharing :P
by lovelife789
Sun May 24, 2020 11:02 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: very rough day post Folfiri + Avastin
Replies: 10
Views: 908

Re: very rough day post Folfiri + Avastin

Yes, it is my only time taking avastin. It is so easy (had erbitux before which gave me breakouts from head to toe), only runny nose. But my platelet did not climb back to normal level for a long time. I finished in Nov 2019 :D :D .
by lovelife789
Sat May 23, 2020 1:17 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: very rough day post Folfiri + Avastin
Replies: 10
Views: 908

Re: very rough day post Folfiri + Avastin

I'm doing well :) minor recurrence but no treatment for now. Enjoying life :P What I did back then was I would always have fresh lemon with me. Whenever I felt like committing, I would cut it open and sniff the lemon. Of course I had all the anti nausea medication in the world too (some gave me cons...
by lovelife789
Sat May 23, 2020 11:38 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: very rough day post Folfiri + Avastin
Replies: 10
Views: 908

Re: very rough day post Folfiri + Avastin

I had exactly that same reaction together with neverending vomit after my folfiri+avastin. I was at one point crawling on the floor coz I was too weak to walk to the bathroom to vomit some more. My WBC dropped rapidly and I had lost 7lbs in one week as well by the second round. The Dr felt I probabl...
by lovelife789
Mon Apr 20, 2020 3:41 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: SBRT
Replies: 7
Views: 1113

Re: SBRT

8) Hi there, I have done SBRT, but not to my lungs. I know someone who has done SBRT to their lungs. I can share with you both experience. SBRT was very easy to me. I had a total of 5 sessions to my pelvic area, I hadn't done more as it would damage too much of my colon. Each session lasted for abou...
by lovelife789
Tue Apr 14, 2020 6:10 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anything to avoid or relieve first bite pain after FOLFOX ?
Replies: 7
Views: 1447

Re: Anything to avoid or relieve first bite pain after FOLFOX ?

Avoid cold things, sour things. I also noticed whenever saliva came out from the side of mouth, it would hurt too, not just when I took the first bite. Like if someone was cooking up something delicious, and I was hungry, even the small walk to the dinner table, I could feel my jaw hurting a bit. So...
by lovelife789
Tue Apr 14, 2020 6:04 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My CRC with liver mets journey
Replies: 344
Views: 73203

Re: My CRC with liver mets journey

I’ve thought a lot about why this recurrence is so emotionally deflating (other than the obvious). When I decided to keep working in the wake of my initial diagnosis, I got the feeling that if I recurred, THAT would be the time to quit because it would be a sign that I wouldn’t make it. My therapis...
by lovelife789
Thu Sep 05, 2019 2:25 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Adjuvant chemo or not / Decision time for adjuvant chemo
Replies: 31
Views: 3061

Re: Adjuvant chemo or not

If I were you, I wouldn't do chemo and I share with you why. I am a stage IV and had 18 months chemo free until the latest recurrence in my lymph nodes. It is not a good place to have Mets and I'm now doing chemo. I had a pseudo recurrence last Aug in my lung which VATS took care of it. Surgeon and ...
by lovelife789
Mon Jul 22, 2019 10:32 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Liver resection scheduled!!
Replies: 23
Views: 2369

Re: Liver resection scheduled!!

Congrats. I'm so excited for you!!!
by lovelife789
Tue Jul 09, 2019 5:12 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: A thought on chemo side effects
Replies: 10
Views: 1790

Re: A thought on chemo side effects

We were kinda upset to hear this morning that DH would get his 9th Folfiri treatment postponed by a week because of neutropenia. But then I found this article: https://medivizor.com/blog/SampleLibrary/colorectal-cancer/does-chemotherapy-induced-neutropenia-improve-survival-in-metastatic-colorectal-...
by lovelife789
Mon Jul 08, 2019 10:27 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Keytruda Side Effects: bad joint pain
Replies: 25
Views: 4216

Re: Keytruda Side Effects: bad joint pain

So I had the 6-day prednisone pack starting 6/28, and it gave me a few days of glorious low pain and high energy...but the pain came roaring back as soon as I was done. It is probably at a level about 10% less than pre-prednisone, though. Ibuprofen helps a bit, but I'm still semi-crippled. I think ...
by lovelife789
Mon Jul 08, 2019 9:05 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage IV (with liver cyst) - 6 yrs NED
Replies: 12
Views: 2496

Re: Stage IV (with liver cyst) - 6 yrs NED

Great news Leon!!! Happy for you!!!
by lovelife789
Tue Jul 02, 2019 12:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Bucket List
Replies: 43
Views: 4909

Re: Bucket List

Just wanna cheer for Pyro. Folfiri is not easy, I'm doing it and really pushing hard. I can't imagine the many rounds you have done.

I keep my fingers crossed for you!!!

P.s. the car really rocks!!!! :P :P
by lovelife789
Wed Jun 26, 2019 3:57 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Questions, questions, too many questions.
Replies: 27
Views: 3923

Re: Questions, questions, too many questions.

Mohrfamily, I don't feel that your doctor has that curative intent at heart. I may be wrong. Just my gut feeling. I had 5 tumors in my liver at diagnosis, the largest one was 8cm. Almost all segments were involved. The doctors got me to NED in 6 months and told me at every consultation in that 6 mon...
by lovelife789
Mon Jun 24, 2019 11:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: What do you think?
Replies: 34
Views: 4275

Re: What do you think?

Hi Paola, Just to give you some encouragement on the chemo bit. I trust chemo works to a certain extent, and I used to work for a pharmaceutical player. That says a lot. But when I say I trust, I mean it from my own experience. I was originally not a candidate for surgery because of the tumor bulk I...

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