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by lovelife789
Tue Jul 09, 2019 5:12 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: A thought on chemo side effects
Replies: 10
Views: 901

Re: A thought on chemo side effects

We were kinda upset to hear this morning that DH would get his 9th Folfiri treatment postponed by a week because of neutropenia. But then I found this article: https://medivizor.com/blog/SampleLibrary/colorectal-cancer/does-chemotherapy-induced-neutropenia-improve-survival-in-metastatic-colorectal-...
by lovelife789
Mon Jul 08, 2019 10:27 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Keytruda Side Effects: bad joint pain
Replies: 7
Views: 589

Re: Keytruda Side Effects: bad joint pain

So I had the 6-day prednisone pack starting 6/28, and it gave me a few days of glorious low pain and high energy...but the pain came roaring back as soon as I was done. It is probably at a level about 10% less than pre-prednisone, though. Ibuprofen helps a bit, but I'm still semi-crippled. I think ...
by lovelife789
Mon Jul 08, 2019 9:05 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage IV (with liver cyst) - 6 yrs NED
Replies: 10
Views: 1065

Re: Stage IV (with liver cyst) - 6 yrs NED

Great news Leon!!! Happy for you!!!
by lovelife789
Tue Jul 02, 2019 12:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Bucket List
Replies: 43
Views: 2120

Re: Bucket List

Just wanna cheer for Pyro. Folfiri is not easy, I'm doing it and really pushing hard. I can't imagine the many rounds you have done.

I keep my fingers crossed for you!!!

P.s. the car really rocks!!!! :P :P
by lovelife789
Wed Jun 26, 2019 3:57 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Questions, questions, too many questions.
Replies: 24
Views: 1824

Re: Questions, questions, too many questions.

Mohrfamily, I don't feel that your doctor has that curative intent at heart. I may be wrong. Just my gut feeling. I had 5 tumors in my liver at diagnosis, the largest one was 8cm. Almost all segments were involved. The doctors got me to NED in 6 months and told me at every consultation in that 6 mon...
by lovelife789
Mon Jun 24, 2019 11:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: What do you think?
Replies: 34
Views: 1909

Re: What do you think?

Hi Paola, Just to give you some encouragement on the chemo bit. I trust chemo works to a certain extent, and I used to work for a pharmaceutical player. That says a lot. But when I say I trust, I mean it from my own experience. I was originally not a candidate for surgery because of the tumor bulk I...
by lovelife789
Mon Jun 24, 2019 6:42 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CT shows my liver met is SMALLER!!
Replies: 18
Views: 1094

Re: CT shows my liver met is SMALLER!!

I'm soooooo happy for you! I know that feeling :D let's kick those cancer cells hard!!!
by lovelife789
Thu Jun 20, 2019 10:16 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Low platelets before chemo
Replies: 9
Views: 473

Re: Low platelets before chemo

My platelets were barely scraping the low end of the normal range when I started Folfox, maybe around 140, and went steadily down from there. I had to postpone chemo a week for the count to come back up a few times. My count was below 80 many times, and no one ever mentioned getting a transfusion. ...
by lovelife789
Thu Jun 20, 2019 9:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Low platelets before chemo
Replies: 9
Views: 473

Re: Low platelets before chemo

Hi Debsta, I have done FolFox before and before one cycle (can't remember it was #5/6), my platelets suddenly dropped to 55... I was almost immediately hospitalized. Anyway, I was allowed to go home at last. I was then drinking a tea made out of peanut skin and red dates (you can buy both from Amazo...
by lovelife789
Thu Jun 20, 2019 4:53 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Currently in the ER...woo.
Replies: 56
Views: 2745

Re: Currently in the ER...woo.

Wish you all the best with the lab results and everything!!!
by lovelife789
Mon Jun 17, 2019 1:08 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: A thought on chemo side effects
Replies: 10
Views: 901

Re: A thought on chemo side effects

My experience with FolFox and erbitux was not bad. Didn't have neutropenia, neuropathy was manageable, hair loss and rash was tolerable. I did get very good results, most of my tumors shrunk 50%. But I have to agree, when I was dealing with the rash, I was quite happy thinking the treatment must hav...
by lovelife789
Sun Jun 16, 2019 12:21 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage IV (with liver cyst) - 6 yrs NED
Replies: 10
Views: 1065

Re: Stage IV (with liver cyst) - 6 yrs NED

Congrats!!! Have been reading your posts. Am sure the move to a new town had some positive impact!
by lovelife789
Wed Jun 12, 2019 12:44 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Another 6 months
Replies: 13
Views: 799

Re: Another 6 months

Congrats!!! So happy for you!!!
by lovelife789
Thu Jun 06, 2019 4:15 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: It has come back...in the LNs...
Replies: 14
Views: 1333

Re: It has come back...in the LNs...

Thanks RP for the explanation, I read your reply a few times to make sure I understand everything. :oops:

I don't take Tagamet anymore, dropped like it's wildfire....

Really appreciate all the knowledge and idea!!!

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