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by hannahw
Tue May 21, 2013 4:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: More confused after MD Anderson eval than before....
Replies: 20
Views: 3273

Re: More confused after MD Anderson eval than before....

I think sometimes docs forget, or lose awareness, or never realized to begin with, how difficult it is for patients and caregivers to enter this brand new world with all it's terminology and challenges and decision making. Sometimes docs just cut to the chase and tell you what they recommend, which ...
by hannahw
Wed May 15, 2013 6:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Venting after a couple of Doc visits...
Replies: 6
Views: 1204

Re: Venting after a couple of Doc visits...

It's interesting, plenty of people eat terribly and don't get CRC while some people do all the "right" things and do get CRC, go figure. Given the ever expanding number of toxins we encounter in our daily lives, it seems like there are a lot of potential culprits to choose from. Also, I do...
by hannahw
Wed May 15, 2013 12:57 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Venting after a couple of Doc visits...
Replies: 6
Views: 1204

Re: Venting after a couple of Doc visits...

I'm with you in terms of what I don't want to hear from the doc, but in reading this board I've found there are plenty of people who do want to hear it. It's just one of those "different strokes for different folks" kind of things. Why does it seem to be the default? These conversations ar...
by hannahw
Tue May 14, 2013 6:22 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: HIPEC & still in ICU a week later with pulm. edema
Replies: 13
Views: 1807

Re: HIPEC & still in ICU a week later with pulm. edema

So sorry to hear about your dog and your husband's post surgery complications. When it rains, it pours. But it sounds like you've taken a good approach to dealing with it all - one step at a time. I think when a loved one is hospitalized it can feel endless and the complications can sometimes feel h...
by hannahw
Tue May 14, 2013 5:55 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stupid things ppl tell you...
Replies: 58
Views: 4415

Re: Stupid things ppl tell you...

Amongst my favorite stupid comments are the ones that start with "why aren't you..." It gives off this feeling of "if only you were handling your disease the 'right' way you'd be cured, or at least doing better, or perhaps more importantly, not inconveniencing the people around you so...
by hannahw
Fri May 10, 2013 4:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stupid things ppl tell you...
Replies: 58
Views: 4415

Re: Stupid things ppl tell you...

If I got frustrated every time anyone said something stupid about my Dad's cancer, I'd spend most of my time frustrated. And honestly, if I held myself to the same standard, I'd have to be frustrated with myself too because I've definitely heard some stupid things come out of my own mouth when talki...
by hannahw
Fri May 10, 2013 1:40 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Father has cancer in his colon,liver,& lungs.
Replies: 12
Views: 1080

Re: Father has cancer in his colon,liver,& lungs.

One thing to remember is that there's no real template for end of life. Things like hospice care be helpful, but the experience itself is different for everyone. You and I won't have the same experience. More importantly, you won't have the same experience as members of your own family. There isn't ...
by hannahw
Tue May 07, 2013 1:57 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Passed Xeloda undissolved
Replies: 15
Views: 1518

Re: Passed Xeloda undissolved

This isn't directly related, but when you said you don't like the change in plans it reminded me of two things that happened to my Dad a while ago. He had a PEG tube (basically direct access to the stomach) and was on coumadin for a previous blood clot. After a while he didn't need the PEG tube but ...
by hannahw
Mon May 06, 2013 3:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Terrible, cruel visit @ MDA
Replies: 21
Views: 2663

Re: Terrible, cruel visit @ MDA

Hannahw-- What a profoundly wonderful note and book ref! Ordered it right away. Thank you 1000 times. Concerned Relative I hope it will be as meaningful to you as it has been to me. It doesn't excuse the failures, it puts some perspective around them. I think maybe, at first, I expected the doctor ...
by hannahw
Mon May 06, 2013 2:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Terrible, cruel visit @ MDA
Replies: 21
Views: 2663

Re: Terrible, cruel visit @ MDA

There's a book called "The Anatomy of Hope" by Dr. Jerome Groopman which is a series of short stories about Groopman's experiences, particularly his failings, as a doctor. It's interesting because he clearly tries to do right and yet it doesn't always turn out as he hoped. There are two st...
by hannahw
Sun May 05, 2013 3:04 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Terrible, cruel visit @ MDA
Replies: 21
Views: 2663

Re: Terrible, cruel visit @ MDA

Sorry you had to go through that. It really sucks when you're sitting in an appointment and they just blindside you and then make you feel like you're inconveniencing them. Sometimes I wonder what doctors are thinking when they deliver bad news. Do they expect the patient to just absorb it right the...
by hannahw
Sat May 04, 2013 10:11 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Palliative Care Misunderstandings
Replies: 39
Views: 3278

Re: Palliative Care Misunderstandings

With regard to how much a patient death impacts a doctor, it's probably like most things, mileage varies by doctor. I'm sure there are some docs who just pick up and move on without a second thought, but I think for most doctors death of a patient has a deep emotional and psychological impact. Studi...
by hannahw
Sat May 04, 2013 12:19 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Palliative Care Misunderstandings
Replies: 39
Views: 3278

Re: Palliative Care Misunderstandings

Totally agree with all of you that reality is a good thing and it doesn't mean you have to give up your hope, let alone your life. But since I know not everyone chooses this path and since I know that different approaches can create conflict within a family, I also want to say, if your approaches di...
by hannahw
Thu May 02, 2013 8:19 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Palliative Care Misunderstandings
Replies: 39
Views: 3278

Re: Palliative Care Misunderstandings

I know my dad and aunt are under similar misunderstandings regarding treatment. I've asked my aunt why she pushes the idea that his treatments are curative. She then just started crying. The little more I could get out of her was that she NEEDED to believe this. I didn't push the topic anymore. I a...
by hannahw
Thu May 02, 2013 4:41 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Bloody Urine
Replies: 9
Views: 1405

Re: Bloody Urine

Kidney stones suck, but what a relief. Hope it passes.

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