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by Mercy110
Thu Feb 13, 2020 2:28 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone heard about TAS102?
Replies: 4
Views: 321

Re: Anyone heard about TAS102?

Thank you so much for the replies. I do found some more information with the name Lonsurf. Anyone with first-hand experience here for the drug? My mum had tried Xeloda / 5-fu before but this drug alone seems not so promising... makes me wonder how useful Lonsurf could be.
by Mercy110
Wed Feb 12, 2020 12:15 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone heard about TAS102?
Replies: 4
Views: 321

Anyone heard about TAS102?

After receiving the treatments (please take a look at my signature), pet scan showed my mum’s rectum might have another tumour again. She had thus received radiotherapy for 25 times in December and now taking rest. The doctor now suggested my mum to start TAS102 now but we had never heard about this...
by Mercy110
Thu Jul 25, 2019 10:03 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Clinical trial NIS793 & PDR001
Replies: 2
Views: 528

Clinical trial NIS793 & PDR001

Hello all. My mum is now a candidate of the clinical trial for NIS793 & PDR001, which we know they are drugs for immunotherapy. We have difficulty choosing between the trial and the current treatment plan (plz see my signature below). Mum’s CEA was 200 last month, but now dropped to 164 with the...
by Mercy110
Tue Jun 11, 2019 8:48 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Chemo for stage 4 patient who failed afolfox and afolfiri
Replies: 1
Views: 599

Chemo for stage 4 patient who failed afolfox and afolfiri

Hi all. My mum is a stage 4 rectal cancer patient that be th folfox and folfiri failed. We had a private medical consultation and doctor suggested her continue using Irinotecan ( I hope I have correctly spelling this), with a new drug called Zaltrip, and oral med TS-1. Anyone here in the forum has b...
by Mercy110
Wed May 08, 2019 9:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage IV patient with increasing CEA: wait-and-see?
Replies: 3
Views: 802

Re: Stage IV patient with increasing CEA: wait-and-see?

Thanks for asking. I guess the drug trials may involve immunotherapy coz the Onco told us it is related to PD-1. As for Keytruda, it is a drug that could only be founded in private oncology clinics so that would be one of our last resorts.
by Mercy110
Wed May 08, 2019 9:26 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage IV patient with increasing CEA: wait-and-see?
Replies: 3
Views: 802

Stage IV patient with increasing CEA: wait-and-see?

Hello. Some background of my mum. My mum is a stage IV patient who had tried both Folfox and Folfiri with Avastin for chemo. She showed good response to the former while poor response to the later that her CEA is now increasing from 9 to 100. CT scan was done two weeks before and showed more nodules...
by Mercy110
Fri Nov 09, 2018 11:53 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Did you travel during treatment?
Replies: 20
Views: 2403

Re: Did you travel during treatment?

Welcome to HK!
I think this is a good choice. My family traveled to Japan last year during my mum’s treatment, Folfox with Avastin. And with lots of good memories!
Enjoy your trip!
by Mercy110
Thu Oct 18, 2018 11:25 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: obturator lymph node metastasis?
Replies: 1
Views: 612

obturator lymph node metastasis?

Mum has just done a CT last week and result received today. Nothing very significant except her lung mets increased in number and size, and obturator lymph node metastasis. So the question is what is obturator lymph node metastasis and are there any methods eliminating or destroying it? Anyone with ...
by Mercy110
Fri Sep 28, 2018 8:53 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CEA increase on FOLFIRI
Replies: 5
Views: 1220

Re: CEA increase on FOLFIRI

My mum has similar situation that her CEA increased steadily throughout the first two treatments of folfiri. We are not so optimistic because last time her CEA increase proved to be mets to lungs. No scan so far so we still can’t figure out what has been wrong. She has no syndromes at all and x-ray ...
by Mercy110
Fri Aug 31, 2018 9:08 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Really worried. Stage 4 with increasing CEA despite of chemo
Replies: 3
Views: 1269

Really worried. Stage 4 with increasing CEA despite of chemo

I have shared my mum’s situation before but there are some inputs today. We have met the oncologist as she finished her first round of folfiri on 20 Aug. We were supposed to hear some good news such as lowered CEA, but the marker turned out higher then the one before chemo. Now it is 22, which broke...
by Mercy110
Sat Aug 18, 2018 8:51 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Increased CEA
Replies: 3
Views: 1333

Re: Increased CEA

A number of people have used glutamine for iri- diarrhea. IV vitamin C with K2 or K3 has been used to improve quality of life for some, when they were ready to quit, worn out on Folfiri . Thank you so much for your suggestions. Mum has been receiving her first round of folfiri today, which takes th...
by Mercy110
Thu Aug 16, 2018 4:10 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Increased CEA
Replies: 3
Views: 1333

Increased CEA

My mum has stopped chemo for 6 months since her allergic reaction to Oxaliplatin. Now her rountine checking of CEA increased from 3.5 to 19.2, so she has to start folfiri. We heard that this drug is going to make her easier for diarrhea, are there any possible tips for our family? It is also scaring...
by Mercy110
Fri Aug 10, 2018 9:55 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: survivor since 1991
Replies: 19
Views: 7113

Re: survivor since 1991

Just realised it is such an old post (from 2009, seriously??). You are definitely an inspiring survivor. Advice well-received :D God bless.
by Mercy110
Tue Jul 24, 2018 9:23 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: HELP.....Oxaliplatin allergy
Replies: 6
Views: 1003

Re: HELP.....Oxaliplatin allergy

So sorry to hear that but I think they are right not to continue with oxaliplatin. My mum had similar allergic syndrome on her 10th chemo of folfox. It is life threatening. It is difficult to accept stopping folfox at once, but it is more important to ask for aggressive treatments other than folfox....
by Mercy110
Fri Jun 08, 2018 7:49 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stable CT or not
Replies: 0
Views: 2764

Stable CT or not

My mum has completed her CT scan on May. According to the onco, her multiple lung modules are stable as the largest shrinks. However we find that the onco has miss the two modules enlarged a bit refer to the CT result. Now we have another appointment on August, but we are not sure about the scan is ...

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