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by Robino1
Tue Jul 24, 2018 3:29 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Goodbye
Replies: 25
Views: 6578

Re: Goodbye

My deepest condolences on your loss

I have no words
by Robino1
Fri Jun 29, 2018 8:46 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Please advise. Blood in stool!! Scary!
Replies: 10
Views: 995

Re: Please advise. Blood in stool!! Scary!

Always best to push for a colonoscopy if for no other reason than to set your mind at ease.

Good luck with your appointment. :)
by Robino1
Fri Jun 29, 2018 8:19 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone have experience with this???
Replies: 4
Views: 600

Re: Anyone have experience with this???

I've heard of a few that have reached long term NED status. They don't post here much anymore from what I understand. I was just turned down for HIPEC which was devastating for me. They did say that a change in chemo was warranted since there is progression under FOLFOX. I was encouraged to do the c...
by Robino1
Fri Jun 29, 2018 7:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Life Earthquake: Wednesday Feb 21 Rectal Cancer T3C N2 M0
Replies: 55
Views: 11989

Re: Life Earthquake: Wednesday Feb 21 Rectal Cancer T3C N2 M0

Today my oncologist office called to let me know they had phoned in an RX for numbing cream to put on my port one hour before my appointment, so glad they did this. I can't imagine the port being used this Friday as it is very sensitive to touch, the incision very raw looking, with plenty of bruisi...
by Robino1
Fri Jun 29, 2018 9:15 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My recent surgery & update on MSK HAI pump (long)
Replies: 11
Views: 684

Re: My recent surgery & update on MSK HAI pump (long)

Very good news on the surgery being successful! May your pain lessen each day. :)
by Robino1
Thu Jun 28, 2018 8:20 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My mom is dying
Replies: 24
Views: 6313

Re: My mom is dying

My thoughts and prayers are with you during this trying time. Get all the love in that you can.

{{{virtual hugs}}}
by Robino1
Wed Jun 27, 2018 12:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Empyema
Replies: 4
Views: 444

Re: Empyema

Gosh, seems like neither of you can catch a break! My continued prayers for some peace.
by Robino1
Tue Jun 26, 2018 9:16 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Life Earthquake: Wednesday Feb 21 Rectal Cancer T3C N2 M0
Replies: 55
Views: 11989

Re: Life Earthquake: Wednesday Feb 21 Rectal Cancer T3C N2 M0

Today my oncologist office called to let me know they had phoned in an RX for numbing cream to put on my port one hour before my appointment, so glad they did this. I can't imagine the port being used this Friday as it is very sensitive to touch, the incision very raw looking, with plenty of bruisi...
by Robino1
Sun Jun 24, 2018 8:58 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Life hacks anyone?
Replies: 7
Views: 654

Re: Life hacks anyone?

For the first month or so, I would use a large clip that you use for a stack of papers (those big black clips for office use) and just clip the seatbelt to my sleeve at the shoulder. I kept it in the cup holder when not in use. Now I don't use anything. Took a while before it was no longer sensitive
by Robino1
Sun Jun 24, 2018 8:43 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: G-Tube placed
Replies: 11
Views: 669

Re: G-Tube placed

I am so sorry :(

You are a wonderful caring spouse. My thoughts and prayers are with you.
by Robino1
Thu Jun 21, 2018 10:33 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Chemo before or after surgery?
Replies: 19
Views: 4796

Re: Chemo before or after surgery?

Hi again. My mom is getting her port tomorrow and will start her FOLFOX chemo on Monday. Did anyone with this same protocol have experience with hair loss? She has pretty thick, healthy hair so we are hoping for the best. Also what about travel while on chemo? Any experience or advice? My strong-wi...
by Robino1
Sun Jun 17, 2018 7:17 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Losing the will to live
Replies: 16
Views: 4897

Re: Losing the will to live

My prayers for you and your family during this trying time. Hopefully her will to fight kicks in.

{{{virtual hugs from afar}}}
by Robino1
Fri Jun 15, 2018 6:27 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: hospice
Replies: 13
Views: 1351

Re: hospice

I am so deeply sorry.

Cancer sucks!
by Robino1
Tue Jun 12, 2018 1:51 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 2- no follow up care???
Replies: 16
Views: 4081

Re: Stage 2- no follow up care???

I was 2A. I really don't mean to scare you. I'm now dealing with a nasty metastasis. I had no chemo after the initial surgery. No lymph nodes were involved, all margins clear. 3 years after the resection, metastasis. And now here I am. Fighting a huge battle. I'm just unlucky, or so I've been told. ...

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