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by Robino1
Sun Jun 17, 2018 7:17 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Losing the will to live
Replies: 7
Views: 404

Re: Losing the will to live

My prayers for you and your family during this trying time. Hopefully her will to fight kicks in.

{{{virtual hugs from afar}}}
by Robino1
Fri Jun 15, 2018 6:27 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: hospice
Replies: 9
Views: 397

Re: hospice

I am so deeply sorry.

Cancer sucks!
by Robino1
Tue Jun 12, 2018 1:51 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 2- no follow up care???
Replies: 12
Views: 334

Re: Stage 2- no follow up care???

I was 2A. I really don't mean to scare you. I'm now dealing with a nasty metastasis. I had no chemo after the initial surgery. No lymph nodes were involved, all margins clear. 3 years after the resection, metastasis. And now here I am. Fighting a huge battle. I'm just unlucky, or so I've been told. ...
by Robino1
Thu Jun 07, 2018 6:19 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: NEW-Need some positivity here.
Replies: 414
Views: 36221

Re: NEW-Need some positivity here.

Awesome attitude!

I still remember your first post. You've come a long way baby!!!! And you certainly ROCK! :mrgreen:
by Robino1
Thu Jun 07, 2018 6:17 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Symptom management at home
Replies: 14
Views: 641

Re: Symptom management at home

Hey RObin, We asked DH's oncologist the same question...why not drain? The response was to see if Vectabix does its job (so far it's been doing something because his belly is shrinking and the liver function tests are improving) and then maybe do some diurectics later. I've also read that the pocke...
by Robino1
Tue Jun 05, 2018 3:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Symptom management at home
Replies: 14
Views: 641

Re: Symptom management at home

I just don't understand why they don't drain the fluid!

Once drained she would be able to use a girdle.
by Robino1
Tue Jun 05, 2018 10:42 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CEA
Replies: 7
Views: 446

Re: CEA

Hi everyone, just got my blood results and cea has gone from 2.2 to 2.8 - concerned about this.....have my ct results on Thursday. Any thoughts?? I don't know much about this, but do know when it starts to go up its not good right?? thanks That is a very small fluctuation. Mine is concerning as it ...
by Robino1
Tue Jun 05, 2018 10:39 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Symptom management at home
Replies: 14
Views: 641

Re: Symptom management at home

I have ascites in my abdomen. They can drain it to relieve the pressure. Right now I'm controlling how much is manufactured by the cancer by wearing a girdle 24/7. Even sleeping in it. It was suggested by my surgeon. It truly does help. I still get uncomfortable when I eat too much but I can snack ...
by Robino1
Mon Jun 04, 2018 7:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Hand and foot syndrome
Replies: 9
Views: 282

Re: Hand and foot syndrome

I've found that the really painful areas are the ones where it looks like a blister has popped and that tender new skin has no protection. Bandaids on just those parts, it's right where the skin folds on itself in the thumb and forefinger area, help tremendously. It also seems to heal that skin fast...
by Robino1
Sat Jun 02, 2018 9:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Please! Read me...
Replies: 23
Views: 1606

Re: Please! Read me...

The pain will subside. The doctor should have told him not to raise his arms for a few days. Not sure how long it was before I could. It took me a while to feel ok with the port. Sideways hugs, patting it clean when showering... Now it is like it has always been there. I give full hugs, no hesitatio...
by Robino1
Sat Jun 02, 2018 5:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Diverticulitis surgery recovery
Replies: 2
Views: 130

Re: Diverticulitis surgery recovery

Were you told to eat a BRAT diet? https://www.healthline.com/health/brat-diet You want to give your intestines a chance to heal and wake up fully. My surgeon had told me to eat the non healthy foods until the swelling from surgery goes away. After that, flip flop the diet. 5 weeks isn't that terribl...
by Robino1
Fri Jun 01, 2018 9:16 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Symptom management at home
Replies: 14
Views: 641

Re: Symptom management at home

I have ascites in my abdomen. They can drain it to relieve the pressure. Right now I'm controlling how much is manufactured by the cancer by wearing a girdle 24/7. Even sleeping in it. It was suggested by my surgeon. It truly does help. I still get uncomfortable when I eat too much but I can snack a...
by Robino1
Fri Jun 01, 2018 8:58 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Exercise with a port
Replies: 26
Views: 4328

Re: Exercise with a port

It took a while for me to get used to the port. I've had mine for a year now and it doesn't bother me. I can do anything I used to do at this point.

Give it more healing time.

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