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by Robino1
Tue Feb 20, 2018 10:47 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Just scared
Replies: 9
Views: 363

Re: Just scared

That a girl!!!!

I truly do understand that scared thing. Usually it takes about a day to get it back under control, for me.

It freaking feels like a roller coaster at times!! I want off this ride!!!!! LOL. But only if I can get off on the side of living ;)
by Robino1
Sat Feb 17, 2018 2:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mr Ziggy has passed away
Replies: 14
Views: 640

Re: Mr Ziggy has passed away

Reposting Mrs. Ziggy, Your husband passing has hit me harder than any of the others for some reason. That was so fast! My heart hurts for you. I can't seem to stop crying. May you be blessed with the knowledge that he deeply loves you. Oh GOD I hate this disease. All my love to you. PS: my darling h...
by Robino1
Sat Feb 17, 2018 9:20 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: any peeps with BRAF mutation on here?
Replies: 185
Views: 6805

Re: any peeps with BRAF mutation on here?

Mrs. Ziggy,

Your husband passing has hit me harder than any of the others for some reason. That was so fast! My heart hurts for you. I can't seem to stop crying.

May you be blessed with the knowledge that he deeply loves you.

Oh GOD I hate this disease.

All my love to you.
by Robino1
Thu Feb 15, 2018 6:28 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 9 months NED after 5 years stage IV
Replies: 15
Views: 553

Re: 9 months NED after 5 years stage IV

Congratulations! Way to keep fighting :D
by Robino1
Wed Feb 14, 2018 8:45 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: any peeps with BRAF mutation on here?
Replies: 185
Views: 6805

Re: any peeps with BRAF mutation on here?

Hi all, I don’t know what to say, but I know you’ve all been very supportive and kind to me and Mr Ziggy. I wish I had better news to report. Today Mr Ziggy is getting stents put in his ureters due to some kidney stones and disease blockage. Hopefully they can he’s still a bit weak. He has absolute...
by Robino1
Tue Feb 13, 2018 8:20 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: any peeps with BRAF mutation on here?
Replies: 185
Views: 6805

Re: any peeps with BRAF mutation on here?

Hi Mrs Z! Did you all go to the hospital today to get Mr Z checked out? We went up for FOLOX+A, first treatment since Dec 26. Sort of glad to be back into the routine. New scheduling system causing problems for us (a 3 hour wait between Dr and infusion? no thanks) but perhaps they will get it worke...
by Robino1
Tue Feb 13, 2018 9:24 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: any peeps with BRAF mutation on here?
Replies: 185
Views: 6805

Re: any peeps with BRAF mutation on here?

Robino you’re not hijacking the thread! I want to hear about grand babies, visits, family and Florida! You sound like you have a very full life with activity and lots of grand kids! So much fun! I wanted to ask, is Florida warm right now? Just wondering how it is in the winter. I’ve been there a fe...
by Robino1
Tue Feb 13, 2018 8:17 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: OTC Suggestions for Nausea from Oxaliplatin
Replies: 25
Views: 502

Re: OTC Suggestions for Nausea from Oxaliplatin

Before they dropped the Oxaliplatin, I needed just one pill the day my pump was disconnected. I took it in the afternoon. That's all I needed. Now that the Oxaliplatin is dropped, they don't give me the anti nausea med in IV. I've started feeling not quite nauseous but off after treatment. I think I...
by Robino1
Tue Feb 13, 2018 7:58 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colonoscopy tomorrow
Replies: 7
Views: 330

Re: Colonoscopy tomorrow

Thinking about you today and sending good thoughts for a good...erm .... outcome. ;)
by Robino1
Tue Feb 13, 2018 7:55 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: any peeps with BRAF mutation on here?
Replies: 185
Views: 6805

Re: any peeps with BRAF mutation on here?

Thanks Shana :) Decreases are SWEEEEEET! Increases, notsomuch. Putting all thoughts of what if's out of my mind and concentrating on not letting it get to me until I get the next test. Planning upcoming events (multiple families coming end of March, beginning of April) and making sure I'm ready for ...
by Robino1
Mon Feb 12, 2018 12:58 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 3 Month Post Treatment Update
Replies: 4
Views: 306

Re: 3 Month Post Treatment Update

Awesome! Great pictures also!!
by Robino1
Mon Feb 12, 2018 8:49 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ Feb/2018
Replies: 176
Views: 38598

Re: Ten years on forum ⓊⓟⒹⒶⓉⒺ Feb/2018

Sometime during this week ..... OR last week, or maybe next week :shock: ????? Isn't that just about how a CRC patient's schedule works ? I registered, joined and logged into this very forum in February 2008. I even posted my first post :!: :mrgreen: I was less than a week away from temp ileo taked...
by Robino1
Mon Feb 12, 2018 8:31 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: any peeps with BRAF mutation on here?
Replies: 185
Views: 6805

Re: any peeps with BRAF mutation on here?

Prayers!!

Keep us posted. {{{{hugs}}}}
by Robino1
Sat Feb 10, 2018 8:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Blood in stool please help
Replies: 3
Views: 222

Re: Blood in stool please help

Hi i am a 22 year old male and have booked an appointment with my doctor about 8 months ago i had a colonoscopy because my doctor recommend one for a different health reason. that colonoscopy came back fine and they took a biopsy which came back fine. fastforward to now and about 5-6 months ago i n...

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