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by susie0915
Fri Sep 21, 2018 7:56 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Can tumors bleed big amounts at a time?
Replies: 10
Views: 258

Re: Can tumors bleed big amounts at a time?

I think any blood should be checked out. I had a 2cm rectal tumor. The bleeding was never heavy. It was usually occasionally streaked on the stool or when I wiped. I also assumed it was hemorrhoids as I had a colonoscopy a few years before that showed internal hemorrhoids. I did one of those take ho...
by susie0915
Thu Sep 20, 2018 7:05 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Down to 104 pounds. Help
Replies: 7
Views: 753

Re: Down to 104 pounds. Help

I lost 40lbs during all my treatment. My doctors kept telling me to gain weight. I also went through chemo without a bag and always had diarrhea. After finishing treatment I could not gain weight either. Because of having to go to the bathroom all the time I either just would not eat, or if a did it...
by susie0915
Sat Sep 15, 2018 1:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surviving radiation for rectal cancer
Replies: 93
Views: 11043

Re: Surviving radiation for rectal cancer

The chemo is hard on the bottom. I had a blockage 4 weeks after resection and had to have surgery to remove scar tissue. My surgeon decided to reverse my ileo while he was in there. I was happy for the reversal but it made it much harder during chemo. Had alot of diarrhea.
by susie0915
Sat Sep 15, 2018 9:08 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surviving radiation for rectal cancer
Replies: 93
Views: 11043

Re: Surviving radiation for rectal cancer

I also had that burning when urinating during radiation. Was horrible like passing glass. I had to use lidocaine gel to numb the area before I went. It took about two weeks to totally subside. I didn't have alot of symptoms before diagnosis, just some blood on my stool. But the sigmoidoscopy a few w...
by susie0915
Thu Sep 13, 2018 6:22 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1278
Views: 115810

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

I know some doctors recommend or have no problems with enemas while others are not onboard. It may be too soon after your reversal. I was a year and a half after my reversal before enemas were recommended to me. I went through a couple tests, met with a dietician, and had pelvic floor therapy. The G...
by susie0915
Sat Sep 08, 2018 8:02 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: STAGE 3 rectal cancer treatment without surgery
Replies: 25
Views: 923

Re: STAGE 3 rectal cancer treatment without surgery

I know after my chemo/radiation the surgeon did a sigmoidoscopy and said all that was left was scar tissue. While he never offered watch and wait he did say I may not need chemo after surgery. This made me happy. The pathology after surgery showed minimal residual cancer cells, so oncologist did rec...
by susie0915
Fri Sep 07, 2018 7:19 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Feeling confused . What symptoms to watch for
Replies: 23
Views: 1899

Re: Feeling confused . What symptoms to watch for

I understand. I always feel sad and stressed when test time and appointments come up. I will be 3 years NED on September 9. I am hoping it continues to get easier as time goes on. Not a day goes by that I don't think of cancer though.
by susie0915
Tue Sep 04, 2018 1:55 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: STAGE 3 rectal cancer treatment without surgery
Replies: 25
Views: 923

Re: STAGE 3 rectal cancer treatment without surgery

My tumor shrunk 90 percent after chemo and radiation but it still remained so I don’t kno that there was a real option besides surgery. I’m definitely feeling the LARS pain though. I will get to trying the enemas. Enemas are becoming more and more accepted and recommended. Irrigating stomas has bee...
by susie0915
Tue Sep 04, 2018 12:59 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: STAGE 3 rectal cancer treatment without surgery
Replies: 25
Views: 923

Re: STAGE 3 rectal cancer treatment without surgery

Have you two tried using daily tap water enemas. I started them about a year and a half ago with great success. It takes about 30 minutes in the morning, 5-6 cups of tap water in an enema bag and I don't go again until I do an enema the next morning. It can be awkward at first to become proficient ,...
by susie0915
Tue Sep 04, 2018 12:49 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mop up chemo experiences
Replies: 192
Views: 23136

Re: Mop up chemo experiences

My feet feel weird, tingly. Is this normal? Feels almost painful but more just uncomfortable. Susan Yep. Mine started about a month after chemo was done. It isn't painful but annoying. My hands are better, I don't drop things like a used to. Mostly just my feet now. Tingly and a little numb, no pai...
by susie0915
Tue Sep 04, 2018 7:36 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Feeling confused . What symptoms to watch for
Replies: 23
Views: 1899

Re: Feeling confused . What symptoms to watch for

I didn't have my CEA checked until after I finished chemo/radiation before surgery. It was less than .5, but since I had a good response to the chemo/radiation I don't know if it is a marker for me. I that was left after preadjuvant therapy was scar tissue, I wish it would've been drawn before chemo...
by susie0915
Mon Sep 03, 2018 4:28 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1278
Views: 115810

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Our only concern now with retirement is healthcare. There are not many companies that pay for your health insurance after you retire anymore. Unless you work for the government, maybe a public school teacher, or the auto companies and a package is offered, you're on your own for health insurance unt...
by susie0915
Fri Aug 31, 2018 11:29 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Fecal blood test Positive
Replies: 5
Views: 481

Re: Fecal blood test Positive

I also had a positive fecal test in 2015. Had a clear colonoscopy 5 years prior. Saw the GI and of course another colonoscopy was warranted. Was diagnosed with stage 2a rectal cancer. When I asked the surgeon how long he thought it had been there he said 5 years. He said the colonoscopy 5 years ago ...

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