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by susie0915
Wed Jun 20, 2018 7:34 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 966
Views: 83385

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

The hands and feet/neuropathy peaked yesterday. It's often worst in the morning and it's notable when I don't notice it when waking up. The bigger problem right now is blisters. But those aren't cancer-related problems. My neuropathy got worse about a month after finishing chemo. That was over 2 ye...
by susie0915
Mon Jun 18, 2018 7:51 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Better news, Neuropathy & questions
Replies: 20
Views: 463

Re: Better news, Neuropathy & questions

My neuropathy didn't really kick in until about a month after finishing chemo 2 years ago. It has improved as I don't drop things, my balance is better, and it is basically just tingling on the bottom of my feet. It doesn't prevent me from doing anything more annoying than anything. I usually always...
by susie0915
Thu Jun 14, 2018 10:36 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mother
Replies: 4
Views: 256

Re: Mother

I'm not sure. When my cancer was diagnosed the surgeon told me it had probably been there 5 years. I had a colonoscopy 5 years before. He told me it probably started right after, or was too small to detect. Mine was only stage 2A rectal at that point after 5 years. Unless your mother's tumor was ver...
by susie0915
Thu Jun 14, 2018 8:27 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New Member here on the forum
Replies: 112
Views: 13409

Re: New Member here on the forum

Thanks for the thoughts Mike and Claudia - you two are such amazing and inspirational warriors. Onc said he would be happy with five rounds, have completed four (short capecetibine on the fourth.) Doc and I agreed together that a case could be made for wait and watch, but neither of us were comfort...
by susie0915
Thu Jun 14, 2018 8:22 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New Member here on the forum
Replies: 112
Views: 13409

Re: New Member here on the forum

I did 6 rounds but my xeloda was reduced 2-3 times due to diarrhea. I was suppose to do 7 rounds but oncologist was fine with me stopping at 6 as I wanted a month to recover for my sons wedding. I don't know if the xeloda can be reduced more, or switching to the pump would be better. I think with th...
by susie0915
Wed Jun 13, 2018 11:27 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Endoscopic ultrasound
Replies: 2
Views: 157

Re: Endoscopic ultrasound

Yes I had an endoscopic ultrasound for staging when I was originally diagnosed. The doctor can see how deep the tumor is as well as any lymph nodes that may be affected.
by susie0915
Wed Jun 13, 2018 11:18 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Reversal
Replies: 44
Views: 1142

Re: Reversal

I'm so glad you are doing so well. Reversals are so unpredictable, but you seem to be really having a smooth transition. This is great to hear.
by susie0915
Tue Jun 05, 2018 7:56 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Life Earthquake: Wednesday Feb 21 Rectal Cancer T3C N2 M0
Replies: 44
Views: 4383

Re: Life Earthquake: Wednesday Feb 21 Rectal Cancer T3C N2 M0

I was able to do six infusions without a port. Since every 3 weeks, we alternated arms, and even used a vein near my wrist a couple times. It's important to stay hydrated as this helps access the vein, also the nurses would put a warm towel on my arm before putting in the IV. The area would be sore ...
by susie0915
Mon Jun 04, 2018 7:53 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Reversal
Replies: 44
Views: 1142

Re: Reversal

Just give it time. Everyone responds differently, but there are many things that can be done to control bowel movements. Many do well right out of the gate, others use fiber supplements, immodium, or lomotil to slow things down. Diet can play a role as well. I tried different things for about 15 mon...
by susie0915
Sun Jun 03, 2018 4:16 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: OT- My dog Harlee has passed away
Replies: 12
Views: 347

Re: OT- My dog Harlee has passed away

So sorry Lee. I know how hard it is to lose a pet. My two dogs are by my side all the time. Our pets are never here long enough.
by susie0915
Thu May 31, 2018 8:00 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: NEW-Need some positivity here.
Replies: 414
Views: 36424

Re: NEW-Need some positivity here.

So glad your colonoscopy was clear. I had mine in Sept, 2016 and the doctor said don't need another for 3 years. The screening tests do provide us with alot of anxiety. I just finished my 6 month bloodwork and scan. Even without lymph node involvement, the anxiety is still there every time testing t...
by susie0915
Wed May 30, 2018 6:16 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scan scheduled
Replies: 40
Views: 2399

Re: Scan scheduled

My six month checks were good this month. CEA still less than .5 and scan showed now evidence of disease. 4mm lung nodule still there no change in a year. Scar tissue and inflammation doctors think is due to possible auto immune disorder unchanged. So now upcoming appointments with pulmonologist mon...
by susie0915
Tue May 29, 2018 5:19 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CEA dropped!
Replies: 27
Views: 882

Re: CEA dropped!

This is good news Shana. Praying you will continue to see decreases in your CEA level.
by susie0915
Sun May 27, 2018 7:46 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CEA and the chicken pox virus?
Replies: 2
Views: 218

Re: CEA and the chicken pox virus?

My CEA is generally less than .5. However last summer it was 1.0. My oncologist told me not to worry and the next draw was back to less than .5. Your increase is very small and is still well within the normal range. I agree I wouldn't worry about it and the biggest indicator would be the trend. If i...
by susie0915
Thu May 24, 2018 8:05 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New Member here on the forum
Replies: 112
Views: 13409

Re: New Member here on the forum

This is such a tough decision. I was originally diagnosed stage 2a rectal and also had a good response to preadjuvant therapy. Only scar tissue remained and pet scan was negative before surgery. After surgery pathology came back showing no lymph nodes, clean margins but did have minimal residual ca...

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