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by susie0915
Wed Jan 17, 2018 5:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 622
Views: 39524

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

heiders33 wrote:I just had my fifth round today and boy do I feel terrible. But it helps knowing that I’m near the end, and that I can recover.

You're almost there. I had six rounds of Xelox also. I remember how excited I was for my last round. Hope your next 3 weeks aren't too bad.
by susie0915
Wed Jan 17, 2018 2:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 622
Views: 39524

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

I did love my week off. Chemo is tough. It's amazing how crappy it can make you feel. You're getting closer to the end.
by susie0915
Wed Jan 17, 2018 1:54 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Facing a permanent stoma
Replies: 41
Views: 1307

Re: Facing a permanent stoma

Glad you are doing well.
by susie0915
Wed Jan 17, 2018 11:13 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Follow up at 5 year mark(next year)
Replies: 2
Views: 86

Re: Follow up at 5 year mark(next year)

Wouldn't you have one more year after this year? Your were diagnosed in 2014 and it is 2018, that is only 4 years. Is it 5 years from diagnosis or when determined cancer free? I know it's only a couple months different for your case.
I just read your post again, you did mean 2019 right?
by susie0915
Wed Jan 17, 2018 8:49 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Female Pains AFTER radiation, No Doc will Listen...
Replies: 8
Views: 187

Re: Female Pains AFTER radiation, No Doc will Listen...

I also did soak in a tub a couple times a day, and the nurse suggested laying under or in front of fan to cool area. Being I went through radiation during the summer that was okay. My radiation oncologist also offered oxycodone but I told him I would just take Advil. The lidocaine really did help in...
by susie0915
Tue Jan 16, 2018 7:31 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Female Pains AFTER radiation, No Doc will Listen...
Replies: 8
Views: 187

Re: Female Pains AFTER radiation, No Doc will Listen...

My radiation oncologist have me 2% lidocaine gel. I would dab some up on vagina before urinating to numb the area. Otherwise it was like passing glass. It started a couple weeks before ending radiation and a couple after finishing. I think it's just the area so burned from radiation
by susie0915
Tue Jan 16, 2018 1:08 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Resection Distance / Margins - what were yours?
Replies: 3
Views: 177

Re: Resection Distance / Margins - what were yours?

Mine was rectal cancer 5 cm from anal verge and my closest margin was .9 cm which I think is 9 mm. Yes I had chemo/radiation. Your margin is twice the length of mine so I'm not sure.
by susie0915
Mon Jan 15, 2018 8:04 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Low Anterior Resection Syndrome: Do you have it?
Replies: 53
Views: 15923

Re: Low Anterior Resection Syndrome: Do you have it?

I am already impressed with the pelvic health center associated with my hospital. After talking with me for a while, the physical therapist examined me (old me would have been a bit put off by that, not anymore) to see how strong my muscles were. After that we discussed how she is going to teach me...
by susie0915
Mon Jan 15, 2018 1:44 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Symptom stages
Replies: 14
Views: 510

Re: Symptom stages

Good. I'm glad you got some meds. Hope you will feeling better soon
by susie0915
Mon Jan 15, 2018 11:47 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Low Anterior Resection Syndrome: Do you have it?
Replies: 53
Views: 15923

Re: Low Anterior Resection Syndrome: Do you have it?

This is true. All they tell you is to take Metamucil/Citrucel, and it takes time. I went to a bowel control clinic at University of Michigan about a 15 months after surgery. This is not the hospital I was treated at, and I found it by accident online looking for solutions. The staff there was very h...
by susie0915
Mon Jan 15, 2018 8:38 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Tribute to my dear friend Anne - aka BeansMama
Replies: 24
Views: 1102

Re: Tribute to my dear friend Anne - aka BeansMama

I am so sorry you lost your good friend. I read her story when I joined and was always so impressed with her strength during the issues she faced. I have been thinking of her since I read the news. Prayers to her family.
by susie0915
Sun Jan 14, 2018 7:14 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Symptom stages
Replies: 14
Views: 510

Re: Symptom stages

it would just take a little to put up there and numb it so I could go. Mine was 2% Lidocaine hydrochloride jelly. I kind of just figured it out on my own and told the doctor what I was doing and he was okay with it. Good luck, I know how awful that is.
by susie0915
Sun Jan 14, 2018 4:48 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Symptom stages
Replies: 14
Views: 510

Re: Symptom stages

I thought the same the urinary tract infection but was negative. I think it's just the tissue burned from radiation and when urine hits it's like passing glass. The lidocaine was awesome, I would dab it up in there before I urinated and it numbed the area otherwise I wouldn't have drank anything bec...
by susie0915
Sun Jan 14, 2018 1:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Symptom stages
Replies: 14
Views: 510

Re: Symptom stages

I did fine with radiation/xeloda until about the last couple weeks. Severe pain when I would urinate and basically a charred bottom. I soaked in a tub once or twice a day, and the radiation oncologist gave me lidocaine that I would use to numb the area so I could urinate without pain. Worked great. ...

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