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by susie0915
Sun Dec 17, 2017 4:04 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 467
Views: 33838

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

I've had Raynaud's for about 7-8 years. When it's cold my finger tips turn blue then white. It's like frost bite. I've come home and run hot water over them. That's why I wear gloves until it hits 50. I also always have my heated steering wheel on. So the cold sensitivity from oxi really didn't make...
by susie0915
Sun Dec 17, 2017 1:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 467
Views: 33838

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

I had sensitivity to cold even before the cancer. I have raynauds in my hands, so I wear gloves until it hits 50 degrees. The cold sensitivity from the chemo only did last a couple days though in other parts of my body. Same with the neuropathy until after I finished completely then set in for good....
by susie0915
Fri Dec 15, 2017 6:40 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 467
Views: 33838

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Yes my xeloda was reduced due to weight loss. I think my oxi was also once, the xeloda 2-3 times.
by susie0915
Fri Dec 15, 2017 5:40 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Upcoming colonoscopy
Replies: 3
Views: 164

Re: Upcoming colonoscopy

That is good news about no cancer. Now is time to find out how to take care of crohns or colitis. I know both of those conditions can be tough at times. Good luck and have a Happy Holiday season.
by susie0915
Fri Dec 15, 2017 3:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stoma Life - Awsome Life :)
Replies: 4
Views: 176

Re: Stoma Life - Awsome Life :)

This is how I feel doing daily enemas. 30 minutes and I'm done until the next morning. No immodium, I can eat without worry and have gained some of the weight back that I lost. I'm so glad you are happy and feel you have quality of life. I have a friend who irrigates is colostomy as well. You sound ...
by susie0915
Fri Dec 15, 2017 9:40 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CT Scan of Pelvis with Contrast
Replies: 1
Views: 190

Re: CT Scan of Pelvis with Contrast

I had the same results without the honeycombing in my post chemo ct scan in the lungs. It is basically scarring and inflammation in the lungs that can be caused by chemo or from an autoimmune disorder. I was referred to a pulmonologist who is now monitoring me for an autoimmune disorder such as scle...
by susie0915
Thu Dec 14, 2017 9:46 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Reversal Thread
Replies: 81
Views: 3778

Re: Reversal Thread

Glad you are doing well. Merry Christmas!
by susie0915
Thu Dec 14, 2017 9:41 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Throat issue/ Xeloda/Radiation
Replies: 4
Views: 123

Re: Throat issue/ Xeloda/Radiation

I did pretty well with xeloda only during chemo/radiation, but that was before surgery. During my chemo after surgery I did have diarrhea which was prob from the xeloda. My ileo was reversed early due to bowel blockage so made chemo tougher. I didn't have any hand and foot syndrome, I did notice my ...
by susie0915
Thu Dec 14, 2017 9:33 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: One year today since colonoscopy
Replies: 2
Views: 121

Re: One year today since colonoscopy

Feels so good to be done. It does consume your life for a year though. Enjoy your holidays.
by susie0915
Wed Dec 13, 2017 8:03 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Upcoming colonoscopy
Replies: 3
Views: 164

Re: Upcoming colonoscopy

O understand your worry, but Friday you'll know. It is good you have had scans and all are negative for metastasis. Good luck and keep us updated.
by susie0915
Wed Dec 13, 2017 3:14 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 161
Views: 38761

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

It's hard to move on with your life. I have a small lung nodule being watched and I did every phase of the treatment. There is never a guarantee, and I have a scan coming up in January to check the nodule and anxiety is starting to begin. With all the follow up tests and appointments it's always in ...
by susie0915
Wed Dec 13, 2017 1:04 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 161
Views: 38761

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

It is scary. I was told after chemo/radiation all that was left was scar tissue as well. No mets and a clean pet scan. The surgeon maybe no chemo after surgery, didn't offer watch and wait. I prob would've done it I think if knew it could be an option. After surgery, even though margins were clean, ...
by susie0915
Wed Dec 13, 2017 9:23 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: oxaliplatin side effects - 9 years after treatment
Replies: 31
Views: 950

Re: oxaliplatin side effects - 9 years after treatment

delemur wrote:You may want to try a cannabis-infused salve. I used one on my hands and feet during my CAPOX & FOLFOX treatments and my neuropathy was manageable during treatment and hasn't flared up since.

Where do you get this? Do I have to go to a dispensary?
by susie0915
Wed Dec 13, 2017 9:21 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: oxaliplatin side effects - 9 years after treatment
Replies: 31
Views: 950

Re: oxaliplatin side effects - 9 years after treatment

Has anyone experienced professional massage of the hands and feet helping with neuropathy, at least temporarily? I'm trying acupuncture right now. I've had 3 or 4 sessions no real improvement t yet. I have a foot massager that does make it feel better temporarily. I'm not sure if it's harder to see...

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