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by susie0915
Tue Jan 23, 2018 7:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Reversal is Over
Replies: 10
Views: 54

Re: Reversal is Over

Hope your feeling better soon
by susie0915
Tue Jan 23, 2018 9:19 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Son is ill and I am scared
Replies: 5
Views: 213

Re: Son is ill and I am scared

So sorry you are having to go through this. I hope they can find what is going on with your son. I know I still worry about all three of my children's health and they are 32,30,27. Two of them are married. It's just the mom is us and we always want to make things better for them. Please keep us upda...
by susie0915
Tue Jan 23, 2018 9:14 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Took my last dose of Xeloda last night
Replies: 5
Views: 115

Re: Took my last dose of Xeloda last night

I am over 2 years out from finishing treatment and it is always in my head. I am so thankful I am cancer free and for the most part have done pretty well, but I don't think we are ever free from cancer. Talking to my survivorship nurse and oncology therapist helped. I am hoping the further out I get...
by susie0915
Mon Jan 22, 2018 3:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My dear wife's graduation from this earth life
Replies: 14
Views: 429

Re: My dear wife's graduation from this earth life

So sorry for your loss. Prayers for you and your family.
by susie0915
Sun Jan 21, 2018 5:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: another anniversary
Replies: 11
Views: 248

Re: another anniversary

Congratulations! It is awesome.
by susie0915
Sun Jan 21, 2018 12:21 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Chemotherapy Journey
Replies: 53
Views: 1407

Re: Chemotherapy Journey

My ileo was reversed early due to a bowel blockage so I also didn't have it during chemo. It was tough as I did experience alot of diarrhea. My oncologist prescribed questran which is a powder you put in water or orange juice. It is used for cholesterol but bulks up stool and helps with diarrhea. It...
by susie0915
Sun Jan 21, 2018 10:01 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Adhesions
Replies: 3
Views: 193

Re: Adhesions

I had adhesions that caused a bowel blockage 4 weeks after my resection. I knew I had a blockage as I was not getting anything in my ileo bag. I eventually had to have surgery to remove the adhesions after a week of ng tube and walking in the hospital. The surgeon reversed my ileo at the same time. ...
by susie0915
Sat Jan 20, 2018 4:04 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Tumor gone, cea level of 1
Replies: 16
Views: 372

Re: Tumor gone, cea level of 1

I understand. After chemo/radiation which got pretty tough at the end, I wanted to be done. Especially after the surgeon said all that was left was scar tissue and my pet scan showed no cancer anywhere. He told me I may not need chemo after depending on pathology after surgery. I cried when my oncol...
by susie0915
Sat Jan 20, 2018 8:32 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Tumor gone, cea level of 1
Replies: 16
Views: 372

Re: Tumor gone, cea level of 1

After I finished chemo/radiation my surgeon did a sigmoidoscopy and said all that was left was scar tissue. I also had a pet scan that showed no evidence of disease especially in the distal rectal area. And my CEA was less than .5. However, after surgery the pathology report did show minimal residua...
by susie0915
Wed Jan 17, 2018 5:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 622
Views: 40716

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

heiders33 wrote:I just had my fifth round today and boy do I feel terrible. But it helps knowing that I’m near the end, and that I can recover.

You're almost there. I had six rounds of Xelox also. I remember how excited I was for my last round. Hope your next 3 weeks aren't too bad.
by susie0915
Wed Jan 17, 2018 2:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 622
Views: 40716

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

I did love my week off. Chemo is tough. It's amazing how crappy it can make you feel. You're getting closer to the end.
by susie0915
Wed Jan 17, 2018 1:54 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Facing a permanent stoma
Replies: 41
Views: 1479

Re: Facing a permanent stoma

Glad you are doing well.
by susie0915
Wed Jan 17, 2018 11:13 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Follow up at 5 year mark(next year)
Replies: 2
Views: 168

Re: Follow up at 5 year mark(next year)

Wouldn't you have one more year after this year? Your were diagnosed in 2014 and it is 2018, that is only 4 years. Is it 5 years from diagnosis or when determined cancer free? I know it's only a couple months different for your case.
I just read your post again, you did mean 2019 right?

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