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by susie0915
Mon Nov 20, 2017 3:47 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Age 30 (M) Recently Diagnosed, Family History
Replies: 32
Views: 2507

Re: Age 30 (M) Recently Diagnosed, Family History

Thanks for the note on First Bite - first time I've heard of that one. There are a few on here who have had it. I don't think it's a common side effect. The first time was shocking, after that I was ready for it. It is weird though, you have that pain when you take your first bite of something, the...
by susie0915
Mon Nov 20, 2017 8:49 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Near-complete pathological response !
Replies: 20
Views: 478

Re: Near-complete pathological response !

I was stage 2A. After chemo/radiation the surgeon did a sigmoidoscopy and said all that was left was scar tissue and I may not need chemo after surgery. I was thrilled. However, the pathology report showed minimal residual cancer cells and even tho margins were clear and no lymph nodes involved he ...
by susie0915
Mon Nov 20, 2017 8:35 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone with Stage IVa just do Xelolda or 5-fu?
Replies: 62
Views: 2753

Re: Anyone with Stage IVa just do Xelolda or 5-fu?

I was going through chemo during the holidays in 2015. I didn't drink alcohol only because I didn't really feel like it. I don't remember anyone saying I couldn't but I didn't ask either. Seems to me that it probably wouldn't be a good idea, just for the fact you don't know how it may affect him wit...
by susie0915
Sun Nov 19, 2017 6:49 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 2/3 Rectal Cancer Scan Question/Results
Replies: 8
Views: 138

Re: Stage 2/3 Rectal Cancer Scan Question/Results

I did have a pet scan after chemo/radiation. I also had a ct scan at diagnosis. My next ct scan wasn't until a month after I finished treatment. Idk maybe there are different protocols doctors follow.
by susie0915
Sun Nov 19, 2017 3:11 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lung nodule and mesenteric nodes
Replies: 5
Views: 170

Re: Lung nodule and mesenteric nodes

Hello. I had my first post chemo scan in February 2017. They saw one enlarged lymph node that was 1.2 x1.1 in my mesentery. I had a PET scan with no activity in the node. I was not able to biopsy due to its small size. I had a follow up scan in June and it was the same size. I had another scan in O...
by susie0915
Sun Nov 19, 2017 1:02 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Nails issues after chemo
Replies: 4
Views: 145

Re: Nails issues after chemo

I've taken biotin for years. It's suppose to help with skin, hair, and nails. I never had any nail issues. Maybe ask your oncologist if you can take, it may help.
by susie0915
Sun Nov 19, 2017 12:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Age 30 (M) Recently Diagnosed, Family History
Replies: 32
Views: 2507

Re: Age 30 (M) Recently Diagnosed, Family History

Thanks for the note on First Bite - first time I've heard of that one. There are a few on here who have had it. I don't think it's a common side effect. The first time was shocking, after that I was ready for it. It is weird though, you have that pain when you take your first bite of something, the...
by susie0915
Sun Nov 19, 2017 12:31 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lung nodule and mesenteric nodes
Replies: 5
Views: 170

Re: Lung nodule and mesenteric nodes

I have a 4mm lung nodule that was seen at my one year scan. So tiny can't biopsy or will pet scan pick it up. I have scarring and inflammation in my lungs and doctors think it is related to that. However, radiologist recommend even though it is non specific to continue follow up due to past cancer d...
by susie0915
Sun Nov 19, 2017 12:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Testing on Tuesday
Replies: 6
Views: 218

Re: Testing on Tuesday

I guess all we can do is stay positive, and live our lives. It can be tough, and get into your head.
by susie0915
Sun Nov 19, 2017 9:52 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Age 30 (M) Recently Diagnosed, Family History
Replies: 32
Views: 2507

Re: Age 30 (M) Recently Diagnosed, Family History

I did chemo/radiation for 5 weeks and had complete response. Only scar tissue remained. Surgeon suggested I may not need chemo after surgery depending on pathology report. Path report showed minimal residual cancer, 0/24 lymph nodes and clear margins. Oncologist did recommend chemo as she couldn't ...
by susie0915
Sun Nov 19, 2017 9:26 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colorectal cancer surgery 11/09/17- still in hospital 11/15/17
Replies: 22
Views: 475

Re: Colorectal cancer surgery 11/09/17- still in hospital 11/15/17

Ooo....now here's a question. When you have a right hemi and you're left-handed, do you have an easier time with sitting up and so forth without aids? Anyone left-handed who had a left hemi and noticed that extra degree of difficulty? It's funny that you mention that as I think that the side that y...
by susie0915
Sun Nov 19, 2017 9:21 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Near-complete pathological response !
Replies: 20
Views: 478

Re: Near-complete pathological response !

My ostomy nurse started me on that because sometimes your output can get on the vent and leak through to your clothes. Yes, that happened to my mommy. She was too scared and nervous to change the whole pouch herself so I helped her with the whole change. She is afraid to shower with it off, which t...
by susie0915
Sat Nov 18, 2017 4:22 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: O/T Need to vent
Replies: 25
Views: 764

Re: O/T Need to vent

So he is now off your policy? So glad you won't have to worry about this. He is probably paying a lot for that insurance with his history. Yes, he is off my policy. The agent made sure of that. I'm sure his premium is out the roof, but frankly I don't care. And you shouldn't care. One less thing to...
by susie0915
Sat Nov 18, 2017 1:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: O/T Need to vent
Replies: 25
Views: 764

Re: O/T Need to vent

So he is now off your policy? So glad you won't have to worry about this. He is probably paying a lot for that insurance with his history.

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