Search found 934 matches

Go to advanced search

by susie0915
Fri Jul 26, 2019 11:01 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CLUSTERINGGGGGGGGG!!!!!!!
Replies: 56
Views: 3183

Re: CLUSTERINGGGGGGGGG!!!!!!!

Clustering is where you go to the bathroom a lot. The rectum collects and stores waste for when you have the opportunity to go to the bathroom and it can release large amounts quickly. Waste normally comes into the rectum over a long period of time. If you don't have a rectum, then it wants to exit...
by susie0915
Thu Jul 18, 2019 7:26 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: daily enema HELP
Replies: 18
Views: 1023

Re: daily enema HELP

Lots of good advice in here, i want to warn the community of the other outcome of this horrible path, blockages. I’ve messed up and spent the last week in the hospital with an emergency surgery to remove a blockage. These things hurt like hell and there was nothing I could have done on my own to re...
by susie0915
Wed Jul 17, 2019 7:34 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CLUSTERINGGGGGGGGG!!!!!!!
Replies: 56
Views: 3183

Re: CLUSTERINGGGGGGGGG!!!!!!!

Thanks Susie I really appreciate your time and effort to help with this. I don't think your pushing enemas on everyone, you just found a solution that works or you. I am so nervous to try it lol...I need to give it a try though because I rather not get the bag back. I too felt the pressure of poopi...
by susie0915
Wed Jul 17, 2019 7:23 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: daily enema HELP
Replies: 18
Views: 1023

Re: daily enema HELP

the past four days she has changed it up some and it has been working as far as it is down to an hour in the bathroom. She wakes up and has a glass of celery juice and than goes and walks with the girls for an hour. After her walk she does the enema. After about an hour she feels done and takes 1-2...
by susie0915
Tue Jul 16, 2019 6:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: daily enema HELP
Replies: 18
Views: 1023

Re: daily enema HELP

Nate is it safe to use laxatives daily? When does he use it? When my GI recommended enemas, his other option was miralax daily. The goal was to empty at one sitting. I chose enemas as I had control of when I was in the bathroom. He did say as you take miralax everyday your body will adjust and you ...
by susie0915
Tue Jul 16, 2019 10:29 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CLUSTERINGGGGGGGGG!!!!!!!
Replies: 56
Views: 3183

Re: CLUSTERINGGGGGGGGG!!!!!!!

I been slacking on Metamucil every night before I go to bed. Has anyone taking it and things are better? Sometimes I think it makes me cluster, but I have not consistently taking it every night. I am going to try to take it every night to see if it keeps everything together. Today is another day of...
by susie0915
Sun Jul 14, 2019 2:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CLUSTERINGGGGGGGGG!!!!!!!
Replies: 56
Views: 3183

Re: CLUSTERINGGGGGGGGG!!!!!!!

Hi Suzie, I totally would go for ur option but ATM my mornings with the kids don't allow, In saying that, I've just giving up work so might b an option after summer, My surgeons nurse mentioned enemas to me if Im desperate ,and she said shes experienced and would go throug it with me so, obviously ...
by susie0915
Sun Jul 14, 2019 2:28 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: daily enema HELP
Replies: 18
Views: 1023

Re: daily enema HELP

I wish I had some suggestions. My routine is somewhat like yours. I get up and walk for an hour, do some resistance training. I then go up to the bathroom, and do my enema. I put on music, light a candle, put a thick yoga mat down with a towel on it. I use 4 cups of water and lie on my left side wi...
by susie0915
Sun Jul 14, 2019 11:24 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CLUSTERINGGGGGGGGG!!!!!!!
Replies: 56
Views: 3183

Re: CLUSTERINGGGGGGGGG!!!!!!!

Susie, thank you and I know you mentioned it several times before. I think I will try it before making any rash decisions. Can you provide links to what you buy from amazon? I'm having a hard time getting the link to post, but the Mikacare 13 pc enema kit on amazon for $25 is a good one. It is wort...
by susie0915
Sun Jul 14, 2019 7:37 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: daily enema HELP
Replies: 18
Views: 1023

Re: daily enema HELP

I wish I had some suggestions. My routine is somewhat like yours. I get up and walk for an hour, do some resistance training. I then go up to the bathroom, and do my enema. I put on music, light a candle, put a thick yoga mat down with a towel on it. I use 4 cups of water and lie on my left side wit...
by susie0915
Sun Jul 14, 2019 7:21 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CLUSTERINGGGGGGGGG!!!!!!!
Replies: 56
Views: 3183

Re: CLUSTERINGGGGGGGGG!!!!!!!

I have seriously considered getting my bag back. This just suck without a rectum it is just a up and down roller coaster. Somem day your fine and other days its just a clustering burning nonsense I know I have mentioned this before, but enemas may just be what would work for you. Before going throu...
by susie0915
Tue Jun 18, 2019 3:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 2 year scan
Replies: 17
Views: 1627

Re: 2 year scan

I so get the anxiety. I just had mine in April and it was clear. I'll be 4 years cancer free in September. I wonder if the anxiety ever ends.
by susie0915
Tue Jun 11, 2019 1:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mop up chemo - Port vs non-port for Oxi?
Replies: 21
Views: 1649

Re: Mop up chemo - Port vs non-port for Oxi?

I did six rounds of Xelox without a port. I also didn't want another procedure. After my resection 4 weeks later was in the hospital with a bowel blockage and had to have surgery to remove scar tissue and also had my ileo reversed at the same time. I was in the hospital for 3 1/2 weeks so I asked my...
by susie0915
Mon Jun 10, 2019 7:48 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Positive Cologuard testing?
Replies: 6
Views: 637

Re: Positive Cologuard testing?

This is how my cancer was found. I had seen blood a couple times on my stool but not often. I was sure it was my hemorrhoids. My doctor gave me the test and it was positive. The sample I made sure the sample I sent in did not have any visible blood. I had a clean colonoscopy 5 years before. I was im...

Go to advanced search