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by susie0915
Sat Nov 23, 2019 2:22 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: “Near” Complete Clinical Response and what to do next
Replies: 10
Views: 619

Re: “Near” Complete Clinical Response and what to do next

I went through 5 weeks of chemo/radiation. After finishing my surgeon did a sigmoidoscopy and said all that was left was scar tissue. I had a pet scan that showed no evidence of disease. I was never offered watch and wait, but my surgeon said I may not need chemo after depending on pathology. When t...
by susie0915
Fri Nov 22, 2019 9:45 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 5 year scans clear!
Replies: 8
Views: 236

Re: 5 year scans clear!

Awesome news!
by susie0915
Wed Nov 13, 2019 9:00 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1606
Views: 346047

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

I know I have mentioned enemas to you Mike and your surgeon was not onboard. Rectal irrigation is becoming more accepted as a solution to LARS. I have been doing them daily for 3 years with both my surgeon and oncologist approval. I just had my 3 year colonoscopy and everything looked good. I use ab...
by susie0915
Thu Oct 24, 2019 2:46 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1606
Views: 346047

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

I got that virus after traveling to Florida at the end of September. It does last a long time. I am finally feeling back to normal this week. I did go to the doctor and he gave me a Z pack and prednisone. It did help. I was worried I wasn't going to be able to have my 3 year colonoscopy but was able...
by susie0915
Tue Oct 15, 2019 8:33 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Newly diagnosed rectal cancer
Replies: 218
Views: 18657

Re: Newly diagnosed rectal cancer

This chemo radiation combo has got to be the hardest thing I’ve ever gone through. Any ladies who’ve been through this have any suggestions for me for the burning in the inner labia? I’ve tried the suggestions from different doctors and nurses but nothing has helped. They’ve said try aquaphor or va...
by susie0915
Sat Sep 14, 2019 4:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Tailgate Party @ BS's!!...Menu=SUPREP, Juice & CANDY!
Replies: 12
Views: 1272

Re: Tailgate Party @ BS's!!...Menu=SUPREP, Juice & CANDY!

I am using suprep for the second time for my 3 year colonoscopy in October. My instructions only require fasting the day before when prepping. 2 1/2 days of fasting seems rough. I thought suprep was okay. It doesn't taste great but is less to drink. There are a couple newer ones (prepopik, clenpiq) ...
by susie0915
Mon Sep 02, 2019 7:49 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Daily Enema Therapy for LARS
Replies: 23
Views: 3469

Re: Daily Enema Therapy for LARS

I have been doing enemas daily for 2 1/2 years. I did start out using more water, but have found that about 4 cups works fine. I think any position is fine. Whatever every works to administer the water. I lie on my left side with top leg bent to administer the water, then wait a few minutes before s...
by susie0915
Fri Jul 26, 2019 11:01 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CLUSTERINGGGGGGGGG!!!!!!!
Replies: 56
Views: 4447

Re: CLUSTERINGGGGGGGGG!!!!!!!

Clustering is where you go to the bathroom a lot. The rectum collects and stores waste for when you have the opportunity to go to the bathroom and it can release large amounts quickly. Waste normally comes into the rectum over a long period of time. If you don't have a rectum, then it wants to exit...
by susie0915
Thu Jul 18, 2019 7:26 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: daily enema HELP
Replies: 18
Views: 1562

Re: daily enema HELP

Lots of good advice in here, i want to warn the community of the other outcome of this horrible path, blockages. I’ve messed up and spent the last week in the hospital with an emergency surgery to remove a blockage. These things hurt like hell and there was nothing I could have done on my own to re...
by susie0915
Wed Jul 17, 2019 7:34 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CLUSTERINGGGGGGGGG!!!!!!!
Replies: 56
Views: 4447

Re: CLUSTERINGGGGGGGGG!!!!!!!

Thanks Susie I really appreciate your time and effort to help with this. I don't think your pushing enemas on everyone, you just found a solution that works or you. I am so nervous to try it lol...I need to give it a try though because I rather not get the bag back. I too felt the pressure of poopi...
by susie0915
Wed Jul 17, 2019 7:23 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: daily enema HELP
Replies: 18
Views: 1562

Re: daily enema HELP

the past four days she has changed it up some and it has been working as far as it is down to an hour in the bathroom. She wakes up and has a glass of celery juice and than goes and walks with the girls for an hour. After her walk she does the enema. After about an hour she feels done and takes 1-2...
by susie0915
Tue Jul 16, 2019 6:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: daily enema HELP
Replies: 18
Views: 1562

Re: daily enema HELP

Nate is it safe to use laxatives daily? When does he use it? When my GI recommended enemas, his other option was miralax daily. The goal was to empty at one sitting. I chose enemas as I had control of when I was in the bathroom. He did say as you take miralax everyday your body will adjust and you ...
by susie0915
Tue Jul 16, 2019 10:29 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CLUSTERINGGGGGGGGG!!!!!!!
Replies: 56
Views: 4447

Re: CLUSTERINGGGGGGGGG!!!!!!!

I been slacking on Metamucil every night before I go to bed. Has anyone taking it and things are better? Sometimes I think it makes me cluster, but I have not consistently taking it every night. I am going to try to take it every night to see if it keeps everything together. Today is another day of...
by susie0915
Sun Jul 14, 2019 2:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CLUSTERINGGGGGGGGG!!!!!!!
Replies: 56
Views: 4447

Re: CLUSTERINGGGGGGGGG!!!!!!!

Hi Suzie, I totally would go for ur option but ATM my mornings with the kids don't allow, In saying that, I've just giving up work so might b an option after summer, My surgeons nurse mentioned enemas to me if Im desperate ,and she said shes experienced and would go throug it with me so, obviously ...
by susie0915
Sun Jul 14, 2019 2:28 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: daily enema HELP
Replies: 18
Views: 1562

Re: daily enema HELP

I wish I had some suggestions. My routine is somewhat like yours. I get up and walk for an hour, do some resistance training. I then go up to the bathroom, and do my enema. I put on music, light a candle, put a thick yoga mat down with a towel on it. I use 4 cups of water and lie on my left side wi...

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