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by susie0915
Fri Jan 11, 2019 3:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: What Week Of Chemo/Radiation Do The Symptoms Start Getting Worse?
Replies: 8
Views: 593

Re: What Week Of Chemo/Radiation Do The Symptoms Start Getting Worse?

It will get worse, it is cumulative. I really didn't notice any issues until the last two weeks. The skin does become sore. My biggest issue was I felt like I was passing glass when I urinated. I had to use lidocaine to numb the area every time i went. I don't know if you're a man or woman. If you a...
by susie0915
Thu Jan 10, 2019 9:52 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surviving radiation for rectal cancer
Replies: 177
Views: 42536

Re: Surviving radiation for rectal cancer

Annie xxx Annie, I had a complete response according to scan but no biopsy. My oncologists, 1st and 2nd opinion, both recommended surgery and follow up chemo. According to them, they scans don't pick up cancer cells until they a certain threshold. I didn't want to take any chance of any of those st...
by susie0915
Thu Jan 10, 2019 9:43 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surgery Considerations
Replies: 27
Views: 4512

Re: Surgery Considerations

This is great news that your tumor is gone. My sigmoidoscopy also showed no tumor after finishing chemo/radiation, only scar tissue. I was never offered wait and watch but was told I may not need to do chemo after depending on pathology after surgery. Pathology showed clear margins, no lymph nodes, ...
by susie0915
Tue Jan 08, 2019 9:55 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scans tomorrow.
Replies: 6
Views: 874

Re: Scans tomorrow.

Wishing for good news. I understand the scanxiety I also get it.
by susie0915
Fri Jan 04, 2019 9:11 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage II but puzzle with the chemo.. : (
Replies: 40
Views: 3070

Re: Stage II but puzzle with the chemo.. : (

I was also 2a rectal cancer. I did do 6 rounds of Xelox after surgery. I had chemo/radiation before chemo and a sigmoidoscopy showed only scar tissue left and pet scan showed no cancer before surgery. My surgeon suggested depending on pathology after surgery may not have to do chemo. The pathology d...
by susie0915
Sat Dec 29, 2018 2:36 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Had endoscopy, lesions found. Also hernia surgery this Thursday
Replies: 3
Views: 909

Re: Had endoscopy, lesions found. Also hernia surgery this Thursday

My son just had a hernia repaired and the mesh was not used. He said the dr told him it was tiny so he would not use. I have seen they have had problems with the mesh as well. I also have a hernia at my ileostomy sight. It is small and does not bother me, so my surgeon wants to just watch and not do...
by susie0915
Sat Dec 29, 2018 1:10 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anastomosis Breakdown?
Replies: 1
Views: 316

Re: Anastomosis Breakdown?

Does the doctor think the enemas could be causing the issue? Also, can they see anything via exam or scope in the office? I know my surgeon does an endoscope every visit to be sure everything looks good. I also do daily enemas. My anastomosis is prob 2-3 cm from the anal verge, that is why I ask if ...
by susie0915
Fri Dec 28, 2018 10:47 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surviving radiation for rectal cancer
Replies: 177
Views: 42536

Re: Surviving radiation for rectal cancer

This is my question about wait and watch. I had a sigmoid and pet scan after radio/chemo. The pet scan showed no cancer and the surgeon said all that was left was scar tissue after the sigmoid. I did have surgery and the pathology did show minimal residual cancer cells in the area where tumor was, ...
by susie0915
Fri Dec 28, 2018 9:20 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1380
Views: 256764

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

I went without a BM for about 3 1/2 days and then it started slowly and then a day like today where it's about 15 hours of clustering. I must say that it's nice not to have to deal with bathroom stuff but not going for over two days gives me anxiety over a blockage. Water and gas were getting passe...
by susie0915
Fri Dec 28, 2018 9:17 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surviving radiation for rectal cancer
Replies: 177
Views: 42536

Re: Surviving radiation for rectal cancer

This is my question about wait and watch. I had a sigmoid and pet scan after radio/chemo. The pet scan showed no cancer and the surgeon said all that was left was scar tissue after the sigmoid. I did have surgery and the pathology did show minimal residual cancer cells in the area where tumor was, b...
by susie0915
Thu Dec 27, 2018 3:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I need help deciding treatment after surgery!! THIS isn't Easy!!
Replies: 8
Views: 596

Re: I need help deciding treatment after surgery!! THIS isn't Easy!!

I did the chemo radiation before surgery. It worked well, as the surgeon did a sigmoidoscopy before surgery and said only scar tissue remained, so may not need chemo after surgery. The pathology showed clear margins, 0/24 lymph nodes, but minimal residual cancer cells. Chemo was recommended. My onco...
by susie0915
Sun Dec 23, 2018 4:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lung mets 2mm
Replies: 7
Views: 936

Re: Lung mets 2mm

I ... had repeat scans 3 months later, 6 months after that, and at 6 months again. In a similar circumstances I had a follow up scan in 3 month (low dose chest only) and then my regular yearly full body scan. They have not noticed any significant change in these nodules and I was told not to worry ...
by susie0915
Sun Dec 23, 2018 9:12 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My Heart Is Gone
Replies: 17
Views: 2583

Re: My Heart Is Gone

I am so sorry for your loss. Prayers for you and your family.

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