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by susie0915
Sun May 27, 2018 7:46 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CEA and the chicken pox virus?
Replies: 2
Views: 132

Re: CEA and the chicken pox virus?

My CEA is generally less than .5. However last summer it was 1.0. My oncologist told me not to worry and the next draw was back to less than .5. Your increase is very small and is still well within the normal range. I agree I wouldn't worry about it and the biggest indicator would be the trend. If i...
by susie0915
Thu May 24, 2018 8:05 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New Member here on the forum
Replies: 98
Views: 11974

Re: New Member here on the forum

This is such a tough decision. I was originally diagnosed stage 2a rectal and also had a good response to preadjuvant therapy. Only scar tissue remained and pet scan was negative before surgery. After surgery pathology came back showing no lymph nodes, clean margins but did have minimal residual ca...
by susie0915
Wed May 23, 2018 9:00 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New Member here on the forum
Replies: 98
Views: 11974

Re: New Member here on the forum

This is such a tough decision. I was originally diagnosed stage 2a rectal and also had a good response to preadjuvant therapy. Only scar tissue remained and pet scan was negative before surgery. After surgery pathology came back showing no lymph nodes, clean margins but did have minimal residual can...
by susie0915
Sun May 20, 2018 1:51 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Start tomorrow. So scared.
Replies: 27
Views: 750

Re: Start tomorrow. So scared.

I also did the Xelox. I did xeloda alone before surgery with radiation and really did okay. The side effects I had from oxi was first bite syndrome, which no one told me about. Even when I told my oncologist she looked at me like she never heard of it. For 2-3 days after an infusion anytime I would ...
by susie0915
Thu May 17, 2018 7:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: How can I help my family watch me die?
Replies: 20
Views: 1180

Re: How can I help my family watch me die?

I hope you can tell them all how much you love them, and how important they are all to you. My heart is breaking thinking of what your are feeling and going through. I am praying that you find peace and comfort in the arms of your family.
by susie0915
Tue May 15, 2018 7:50 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scan results not what I had hoped for ...
Replies: 29
Views: 1403

Re: Scan results not what I had hoped for ...

Hopefully you will qualify for a clinical trial Shana. I'm sorry to hear your scan results were not totally positive but glad you are feeling good and strong. I'll pray your CEA will come down in two weeks. Keep fighting, I am always inspired by your positive attitude.
by susie0915
Sat May 12, 2018 8:38 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New Member Needs Support/Advice
Replies: 5
Views: 279

Re: New Member Needs Support/Advice

Hi Geoman, Welcome and sorry to read about your bad news. I had my scan today but won't get results until Monday which is just fine with me. I want to enjoy Mother's Day just in case. I don't have any information about lung mets to share but wanted to wish you well. Have you gone for a second opini...
by susie0915
Sat May 12, 2018 8:30 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Question: Friend with Stage 4 rectal cancer
Replies: 4
Views: 731

Re: Question: Friend with Stage 4 rectal cancer

I am so sorry for your loss. Cancer does suck.
by susie0915
Fri May 11, 2018 7:39 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Please need prayers
Replies: 23
Views: 1825

Re: Please need prayers

Good luck to all of us on our scans.
by susie0915
Thu May 10, 2018 5:39 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Please need prayers
Replies: 23
Views: 1825

Re: Please need prayers

Good news! I have a scan on Tuesday. Getting anxious
by susie0915
Wed May 09, 2018 9:00 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Déjà vu
Replies: 11
Views: 977

Re: Déjà vu

Glad to hear no cancer. Hope you are recovering well from your surgery.
by susie0915
Wed May 09, 2018 8:39 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 904
Views: 77347

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

I remember the excitement of knowing it was my last infusion. Even though, I told my husband I didn't even want to go. Good luck today Mike, only two more weeks and no more chemo.
by susie0915
Sat May 05, 2018 3:32 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I Have a Life Again! Updated for those who are interested
Replies: 26
Views: 4505

Re: I Have a Life Again! Updated for those who are interested

Hey y'all, I'm new to the forum and this is my first post. I got here by googling "enema lars" and I've been so inspired by what I've read. I've been doing daily enemas since 11/16, so I'm probably just past the 500 mark. I learned how to do this without the amazing support of this group ...
by susie0915
Thu May 03, 2018 1:32 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 904
Views: 77347

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Morning does seem to be the worst. I think moving helps alot, getting the circulation going.
by susie0915
Thu May 03, 2018 8:13 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scan scheduled
Replies: 24
Views: 1172

Re: Scan scheduled

You have the right attitude. Trying to eliminate stress helps in dealing with all the testing and waiting for results we have to endure. I am 2 years from my last chemo treatment and cancer is still always on my mind. I also have a 6 month appointment with my oncologist on Monday. She will order blo...

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