Search found 866 matches

Go to advanced search

by susie0915
Mon Nov 19, 2018 4:58 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CEA as a marker during chemo?
Replies: 2
Views: 58

Re: CEA as a marker during chemo?

My oncologist told me that CEA can actually go up during chemo. Mine did go up a little but was within normal range. I dont know if it is a marker for me.
by susie0915
Sat Nov 17, 2018 9:32 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: RESTRICTIONS ON IMMODIUM SALE
Replies: 6
Views: 241

Re: RESTRICTIONS ON IMMODIUM SALE

Isn't this crazy? I read some will take up to 300 Imodium to get high. There are stores that already have Imodium behind the counter. I know Costco does. I use lomotil, and in the last year my doctor cannot call in the prescription anymore. I have to go to his office and pick up the script and take ...
by susie0915
Thu Nov 15, 2018 9:19 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Extrusions vs Nuggets
Replies: 14
Views: 317

Re: Extrusions vs Nuggets

I understand this so well. You think you have turned a corner and nope, not to be. I tried different things for a year and a half. Not having a rectum to store stool until it is filled and ready to evacuate I think is the issue. Yes, diet can make things difficult but I think the lack of a storage f...
by susie0915
Wed Nov 14, 2018 1:55 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1332
Views: 237400

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Good to see that bloodwork draws at other hospitals. My local hospital is hit or miss. Sometimes they are good and sometimes they are awful. It was like that in the hospital too. The phlebotomist was as good as it gets but I only had him once. Most of the other draws weren't as good as the people d...
by susie0915
Wed Nov 14, 2018 9:47 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1332
Views: 237400

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

That's how the blood draw area is at Henry Ford Hospital in Detroit area. They are really good at it. My bloodwork came back fine CEA 0.6, so all good there. I'm okay with not getting a scan until the spring, just a little anxious as there was a tiny nodule on my lung that was being monitored for th...
by susie0915
Tue Nov 13, 2018 3:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1332
Views: 237400

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

I just saw my oncologist for my 6 month check. She told me she will order a ct scan for April, one year after the last. She had been doing them every 6 months but said she thinks yearly is fine. I know there is a balance of radiation exposure and how often to monitor. I guess less to worry about for...
by susie0915
Sun Nov 11, 2018 2:30 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surviving radiation for rectal cancer
Replies: 125
Views: 29001

Re: Surviving radiation for rectal cancer

Hi Annie! W&W approach is changing. Used to be only chemo/rad, risk was high, one doesn’t know if any microcell is left in the body, or not. That extra chemo is to wipe out those questionable microcells. California was most advaneced, they have been doing this kind of approach for more than 10 ...
by susie0915
Fri Nov 09, 2018 7:30 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: To share my “ghost” story
Replies: 9
Views: 599

Re: To share my “ghost” story

Those six months scans and check ups are bitter sweet. You want to go and confirm everything is fine and you are still NED, but at the same time you are anxious because it's time to go and get checked to see if you are still NED. I go next week to see oncologist. I am 3 years from resection when I w...
by susie0915
Thu Nov 08, 2018 8:40 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Did Daily Enema Users consult Doctors?
Replies: 13
Views: 628

Re: Did Daily Enema Users consult Doctors?

The only thing I take anymore are a couple lomotil just to make sure I'm okay all day. I use for peace of mind, don't really think I need. Did your doc ever mention any long term effects of immodium? My surgeon said it can mess with the natural process of peristalsis and warned against using it. No...
by susie0915
Wed Nov 07, 2018 4:22 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Did Daily Enema Users consult Doctors?
Replies: 13
Views: 628

Re: Did Daily Enema Users consult Doctors?

I was given cholestyramine during chemotherapy for diarrhea. It worked pretty well. Since doing enemas I don't need anymore. The only thing I take anymore are a couple lomotil just to make sure I'm okay all day. I use for peace of mind, don't really think I need.
by susie0915
Fri Nov 02, 2018 8:08 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Did Daily Enema Users consult Doctors?
Replies: 13
Views: 628

Re: Did Daily Enema Users consult Doctors?

. . . my surgeon who said "oh, you'll just make a couple extra trips to the bathroom...no biggie" , , , ! WOW :shock: just wow :evil: My surgeon was a bit more honest. 2/3 of my rectal muscles were destroyed due to radiation damage. I was already doing 20+ visits to the bathroom on a dail...
by susie0915
Thu Nov 01, 2018 12:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Did Daily Enema Users consult Doctors?
Replies: 13
Views: 628

Re: Did Daily Enema Users consult Doctors?

I asked my Surgeon and she said no. But I'm only three months out. The reversal has been difficult. It is improving very slowly. It does take time. I tried many different things. Three months may be too soon. I just know some doctors recommend them, others don't seem to think it's a problem, and so...
by susie0915
Thu Nov 01, 2018 8:12 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Did Daily Enema Users consult Doctors?
Replies: 13
Views: 628

Re: Did Daily Enema Users consult Doctors?

I started doing enemas 15 months after reversal. I researched doctors dealing with LARS since all that I tried did not help. I found the bowel control clinic at the University of Michigan. I called and spoke with the nurse and she said I was a perfect candidate to become a patient. The GI I saw orde...
by susie0915
Thu Nov 01, 2018 7:41 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Does the successful result of hydrocortisone suppositories rule out cancer?
Replies: 6
Views: 382

Re: Does the successful result of hydrocortisone suppositories rule out cancer?

I had symptoms of red streaks of blood on stool periodically. I was sure it was hemorrhoids as I had a colonoscopy 5 years prior and it was clear, just internal hemorrhoids. However, during a regular visit with GP he gave me a stool test sample to take home. I used a sample when I did not see blood ...
by susie0915
Mon Oct 29, 2018 7:37 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Liver Lesion Identified, Four Years After Original Diagnosis
Replies: 8
Views: 1037

Re: Liver Lesion Identified, Four Years After Original Diagnosis

I had a 4mm nodule show up in my ct scan 5/2017. Since it was too small to biopsy or for a pet scan to pick up, I have had repeat scans at 3 months, 6 months after that, and again 6 months later. My nodule has not changed. My oncologist explained that growth is a sign of a cancer and lesions can gro...

Go to advanced search