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by susie0915
Thu Mar 14, 2019 9:17 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Marking time from first diagnosed or??
Replies: 10
Views: 512

Re: Marking time from first diagnosed or??

My oncologist told me that I was considered NED after surgery, even though I had adjuvant chemotherapy. She also said that most recurrences will occur within 2 years of original diagnosis. Having a my first yearly ct scan since finishing treatment in April. Up until then was having every 6 months. I...
by susie0915
Wed Mar 13, 2019 8:21 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: University of Michigan Hospital
Replies: 4
Views: 268

Re: University of Michigan Hospital

I was treated at Henry Ford Hospital in Detroit. I have been very pleased with the treatment and coordination I received. Very happy with my surgeon. I went to Henry Ford as a second opinion as my treatment was to be the same at both hospitals. I was just more comfortable with the team at Henry Ford...
by susie0915
Wed Mar 06, 2019 8:53 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: NEW-Need some positivity here.
Replies: 529
Views: 122235

Re: NEW-Need some positivity here.

Great news. I have a scan coming up in April, my first one since progressing to yearly scans. Starting to get a little nervous, but my CEA was .6 in November so that's good. So happy for you.
by susie0915
Thu Feb 28, 2019 9:44 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: NEW-Need some positivity here.
Replies: 529
Views: 122235

Re: NEW-Need some positivity here.

Positive vibes coming your way. I understand the anxiety, my one year scan is coming up in April. It's the first one since graduating to a yearly scan schedule. Been having them every 6 months which gave me more security. I know being moved to yearly scans is a good thing, but some much can happen i...
by susie0915
Mon Feb 25, 2019 8:42 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Is a ileostomy reversal worth it for a 60 year old guy?
Replies: 13
Views: 983

Re: Is a ileostomy reversal worth it for a 60 year old guy?

I have no bowel and the DRs had to cut into my sphincter muscles to get clear margins. Due to an infection, I had my reversal very soon. I do remember the 1st 2 weeks of very painful clustering, but they gave me strong pain killer and told me to try to time things around that. But it hurt like craz...
by susie0915
Tue Feb 19, 2019 3:46 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1422
Views: 284075

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Isn't it sad that health insurance is what drives so many of the important decisions about our life? I am concerned that is I were to retire I would not be able to get insurance I can afford because of this preexisting condition. Glad to here things are settling for you. Susan This is the reason my...
by susie0915
Mon Feb 18, 2019 6:17 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Is a ileostomy reversal worth it for a 60 year old guy?
Replies: 13
Views: 983

Re: Is a ileostomy reversal worth it for a 60 year old guy?

Hello Steve, Mike, Did your surgeon say no to enemas because it was too soon after reversal when you asked? I know there needs to be a healing period. I was almost a year and a half after reversal when I began doing them. I am on that LARS page and there are some that were given the okay or surgeon...
by susie0915
Mon Feb 18, 2019 4:06 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 355
Views: 103163

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

I was instructed to do two fleet enemas a couple hours before the sigmoidoscopy.
by susie0915
Mon Feb 18, 2019 8:54 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Is a ileostomy reversal worth it for a 60 year old guy?
Replies: 13
Views: 983

Re: Is a ileostomy reversal worth it for a 60 year old guy?

I also do daily tap water enemas. There are many with very little or no rectum left that do this. It is a very easy process, takes me about 30 minutes every morning and gives me 24 hours free from the bathroom until I do again the next morning. Doing the daily enemas to me is less maintenance than a...
by susie0915
Sat Feb 16, 2019 2:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Vaginal stenosis - an issue for women with rectal cancer
Replies: 37
Views: 2340

Re: Vaginal stenosis - an issue for women with rectal cancer

My doctor gave me Premarin to help plump the tissue. My tissue became so thin that just using rough toilet paper could cause mild bleeding. The Premarin has really helped with that. I use it on the external area mostly.
by susie0915
Mon Feb 11, 2019 2:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: smallest tumors that turned up on your PET, PET/CT or PET/MRI ??
Replies: 15
Views: 1146

Re: smallest tumors that turned up on your PET, PET/CT or PET/MRI ??

I had a 4mm nodule show up on a scan 2 years ago. My oncologist and pulmonologist both said too small for pet scan to pick up or to biopsy. Pulmonologist said it would have to at least double in size. I had 3 repeat scan within the following year with no change in size. The last scan in May, the rad...
by susie0915
Wed Jan 30, 2019 12:19 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1422
Views: 284075

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Mike, I had surgery to remove scar tissue 4 weeks after my resection for a blockage. I went into the hospital had an ng tube inserted and waited a week to see if it would resolve itself. My surgeon decided to remove the scar tissue and reverse my ileostomy at the same time. That was 3 1/2 years ago ...
by susie0915
Mon Jan 28, 2019 7:02 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Daily enema question - new member
Replies: 4
Views: 620

Re: Daily enema question - new member

I am the developer (CRP) of the lowrectalcancer.com web site. The site was developed to give people like yourself an option to a colostomy and LARS. I have been doing a "daily enema" since 1997 (almost 8000). When I originally posted on Colon Talk there was little interest in the daily en...
by susie0915
Fri Jan 11, 2019 3:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: What Week Of Chemo/Radiation Do The Symptoms Start Getting Worse?
Replies: 20
Views: 2447

Re: What Week Of Chemo/Radiation Do The Symptoms Start Getting Worse?

It will get worse, it is cumulative. I really didn't notice any issues until the last two weeks. The skin does become sore. My biggest issue was I felt like I was passing glass when I urinated. I had to use lidocaine to numb the area every time i went. I don't know if you're a man or woman. If you a...

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