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by veckon
Sun Dec 03, 2017 8:22 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Nocturnal Urgency
Replies: 2
Views: 128

Re: Nocturnal Urgency

Are you on treatment? Chemotherapy or immunotherapy?
by veckon
Sun Dec 03, 2017 8:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Feeling hopeless. Para aortic nodes-inoperable?
Replies: 11
Views: 481

Re: Feeling hopeless. Para aortic nodes-inoperable?

Never give up hope. Incurable doesn’t mean untreatable. Treatment for us at stage IV is all about global control of the disease. If you can achieve some level of control from treatment, you can live for many, many years. Life slowly adapts to the new normal.
by veckon
Tue Nov 21, 2017 8:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 444
Views: 33163

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Three hours is quite a long time to be sitting at the hospital or infusion center. Sounds like something I'd want to do relatively local. If you ever have an infusion related reaction (mild allergy, heart attack, etc.) your infusion time will increase too. Mine was around two hours originally and w...
by veckon
Tue Nov 21, 2017 6:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 33 year old - Stage 4 - no family history
Replies: 13
Views: 567

Re: 33 year old - Stage 4 - no family history

MSI-H can be determined by ImmunoHistoChemistry testing which insurance companies will cover more easily than genomic testing. The IHC testing should be standard practice on a biopsy with a colonoscopy (that's what they did to me). I think that genomic testing of the tumor is a good idea but I thin...
by veckon
Tue Nov 21, 2017 2:39 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 33 year old - Stage 4 - no family history
Replies: 13
Views: 567

Re: 33 year old - Stage 4 - no family history

Have you had genetic testing done yet? If your tumor is MSI-H, you may qualify for Keytruda, but you might have to fail FOLFOX first if insurance complains. I also have spread into fatty tissue, and once that happens IV chemotherapy can’t reach soft body tumors well due to lack of blood vessels.
by veckon
Mon Nov 20, 2017 8:27 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Age 30 (M) Recently Diagnosed, Family History
Replies: 35
Views: 2982

Re: Age 30 (M) Recently Diagnosed, Family History

I am not sure I experienced the first bite everyone else has since I wouldn’t describe the experience as necessarily painful, but I definitely went through something similar. When I took the first bite of something my tongue would react as if I had eaten something extremely sour and feel really weir...
by veckon
Mon Nov 20, 2017 8:20 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone with persistent Abscess and strong cramping STG IV
Replies: 8
Views: 383

Re: Anyone with persistent Abscess and strong crampi

Sounds familiar to what I went through beginning around May. Ended up being peritoneal carcinomatosis. Where is her abdominal pain exactly? Does it feel like it’s near the bladder? Edit: I missed the fact she already has been diagnosed with peritoneal spread. So... the only thing that helped me was ...
by veckon
Mon Nov 20, 2017 8:04 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: No confirming diagnosis
Replies: 9
Views: 388

Re: No confirming diagnosis

Mid summer a cat scan revealed expanded lymph nodes which was deemed to be lymphoma. A subsequent biopsy of the lymph nodes showed almost all dead cells but the few alive indicated colon cancer. Following was a colonoscopy, a P.E.T. scan, a bone marrow test (which indicated 0.2% lymphoma). None of ...
by veckon
Wed Nov 15, 2017 8:24 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone diagnosed in their 20's?
Replies: 16
Views: 719

Re: Anyone diagnosed in their 20's?

Dr. Stadler is not my primary oncologist but I actually have had appointments with her and she is fantastic.
by veckon
Tue Nov 14, 2017 10:11 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone diagnosed in their 20's?
Replies: 16
Views: 719

Re: Anyone diagnosed in their 20's?

Yes. Diagnosed on my 27th birthday actually.
by veckon
Mon Oct 23, 2017 9:43 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: NYC-Queens-Colonoscopy/Endoscopy
Replies: 1
Views: 248

Re: NYC-Queens-Colonoscopy/Endoscopy

Hi, New here...I just moved to NYC, in Queens and I'm looking for a doctor that does colonoscopy/endoscopy in office with demerol/versed as I'm allergic to propofol. I prefer a doctor's office as insurance gets to be a pain in the butt (no pun intended) with bills from doctor, hospital, anesthesia,...
by veckon
Wed Oct 18, 2017 5:14 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Family history
Replies: 8
Views: 398

Re: Family history

Hey guys, My brother recently underwent surgery for bowel cancer in his late twenties, and I've just found out that my grandma also had bowel cancer in her late 20s. Since two relatives have had bowel cancer so young, what age would I be wanting to start screening? I am 23. GPs don't seem to think ...
by veckon
Wed Oct 18, 2017 4:06 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Keytruda induced pancolitis (help me please!)
Replies: 13
Views: 723

Re: Keytruda induced pancolitis (help me please!)

Just so this thread isn’t all doom and gloom on my part, I will note that there is no longer evidence of peritoneal carcinomatosis; at all. Largest liver tumor left is about 1 cm. They noted two on last CT they could measure, down from 7 that were originally visible. So I really hope I can get throu...
by veckon
Wed Oct 18, 2017 3:53 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Keytruda induced pancolitis (help me please!)
Replies: 13
Views: 723

Re: Keytruda induced pancolitis (help me please!)

Thank you! I have never heard of kefir before, I will look into it. Thank you again!

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