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by veckon
Mon Nov 20, 2017 8:27 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Age 30 (M) Recently Diagnosed, Family History
Replies: 32
Views: 2507

Re: Age 30 (M) Recently Diagnosed, Family History

I am not sure I experienced the first bite everyone else has since I wouldn’t describe the experience as necessarily painful, but I definitely went through something similar. When I took the first bite of something my tongue would react as if I had eaten something extremely sour and feel really weir...
by veckon
Mon Nov 20, 2017 8:20 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone with persistent Abscess and strong cramping STG IV
Replies: 2
Views: 48

Re: Anyone with persistent Abscess and strong crampi

Sounds familiar to what I went through beginning around May. Ended up being peritoneal carcinomatosis. Where is her abdominal pain exactly? Does it feel like it’s near the bladder? Edit: I missed the fact she already has been diagnosed with peritoneal spread. So... the only thing that helped me was ...
by veckon
Mon Nov 20, 2017 8:04 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: No confirming diagnosis
Replies: 8
Views: 270

Re: No confirming diagnosis

Mid summer a cat scan revealed expanded lymph nodes which was deemed to be lymphoma. A subsequent biopsy of the lymph nodes showed almost all dead cells but the few alive indicated colon cancer. Following was a colonoscopy, a P.E.T. scan, a bone marrow test (which indicated 0.2% lymphoma). None of ...
by veckon
Wed Nov 15, 2017 8:24 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone diagnosed in their 20's?
Replies: 16
Views: 591

Re: Anyone diagnosed in their 20's?

Dr. Stadler is not my primary oncologist but I actually have had appointments with her and she is fantastic.
by veckon
Tue Nov 14, 2017 10:11 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone diagnosed in their 20's?
Replies: 16
Views: 591

Re: Anyone diagnosed in their 20's?

Yes. Diagnosed on my 27th birthday actually.
by veckon
Mon Oct 23, 2017 9:43 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: NYC-Queens-Colonoscopy/Endoscopy
Replies: 1
Views: 234

Re: NYC-Queens-Colonoscopy/Endoscopy

Hi, New here...I just moved to NYC, in Queens and I'm looking for a doctor that does colonoscopy/endoscopy in office with demerol/versed as I'm allergic to propofol. I prefer a doctor's office as insurance gets to be a pain in the butt (no pun intended) with bills from doctor, hospital, anesthesia,...
by veckon
Wed Oct 18, 2017 5:14 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Family history
Replies: 8
Views: 374

Re: Family history

Hey guys, My brother recently underwent surgery for bowel cancer in his late twenties, and I've just found out that my grandma also had bowel cancer in her late 20s. Since two relatives have had bowel cancer so young, what age would I be wanting to start screening? I am 23. GPs don't seem to think ...
by veckon
Wed Oct 18, 2017 4:06 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Keytruda induced pancolitis (help me please!)
Replies: 13
Views: 654

Re: Keytruda induced pancolitis (help me please!)

Just so this thread isn’t all doom and gloom on my part, I will note that there is no longer evidence of peritoneal carcinomatosis; at all. Largest liver tumor left is about 1 cm. They noted two on last CT they could measure, down from 7 that were originally visible. So I really hope I can get throu...
by veckon
Wed Oct 18, 2017 3:53 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Keytruda induced pancolitis (help me please!)
Replies: 13
Views: 654

Re: Keytruda induced pancolitis (help me please!)

Thank you! I have never heard of kefir before, I will look into it. Thank you again!
by veckon
Wed Oct 18, 2017 12:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Keytruda induced pancolitis (help me please!)
Replies: 13
Views: 654

Re: Keytruda induced pancolitis (help me please!)

Thank you Maia and crguy. Really, really appreciate any/all advice here.
by veckon
Wed Oct 18, 2017 10:13 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Keytruda induced pancolitis (help me please!)
Replies: 13
Views: 654

Re: Keytruda induced pancolitis (help me please!)

Veckon, I'm so sorry!! I know you are asking for dietary advice but if you are not sleeping because of this, I think that even the dietary part requires an urgent intervention from your MSK palliative team. Be a pain and ask them to give you exact directions about what to do. Maybe they need to add...
by veckon
Wed Oct 18, 2017 7:50 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Keytruda induced pancolitis (help me please!)
Replies: 13
Views: 654

Keytruda induced pancolitis (help me please!)

Long story short, I developed ulcerative colitis in my whole colon as a side effect of pembrolizumab. They said this happens about 2% of the time so it’s rare but not unheard of. I started a high dosage of prednisone last week which helped curtail bleeding a lot. Bleeding is still improved, but I th...
by veckon
Sun Oct 08, 2017 7:53 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Right side pain --mets?
Replies: 13
Views: 909

Re: Right side pain --mets?

My liver mets have not to my knowledge ever caused pain. However, my peritoneal mets did present with pain in the abdomen.
by veckon
Thu Sep 28, 2017 11:12 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rooms at MSK Hospital
Replies: 9
Views: 742

Re: Rooms at MSK Hospital

I had a roommate but I found the partition pretty good at providing privacy for my wife and I. Very caring and attentive nurses. I was impressed, but it is still a hospital.
by veckon
Thu Sep 28, 2017 11:08 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Keytruda? What else is new?
Replies: 10
Views: 1116

Re: Keytruda? What else is new?

Fatigue is the most persistent. It started out as just standard fatigue, but has since progressed to what can only be described as narcoleptic. The last two weeks I have seen a large increase in bleeding during loose bowel movements, which have become frequent enough to keep me from sleeping. I was ...

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