Search found 1537 matches

Go to advanced search

by NHMike
Tue Aug 14, 2018 10:52 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1152
Views: 98096

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Saw the surgeon today. She said the first month is the worst and that full recovery will take a year (!!!). I mentioned this to my manager and she said that makes sense. My manager has Crohn's and it would take her body two years to recover from a flare-up. Wound looked fine. She said I could stop b...
by NHMike
Tue Aug 14, 2018 5:40 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Good news
Replies: 5
Views: 529

Re: Good news

Very good news. He can proceed to get on with life.
by NHMike
Tue Aug 14, 2018 5:39 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone with a Similar Experience?
Replies: 6
Views: 193

Re: Anyone with a Similar Experience?

I had two or three delays, one reduction of Xeloda and a few reductions of Oxaliplatin. The biggest benefit is from the first half of the treatment which is why there are trials with fewer cycles as the second half of treatment is the one that results in stronger side-effects, permanent neuropathy b...
by NHMike
Tue Aug 14, 2018 5:36 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Head colds and chemo?
Replies: 3
Views: 115

Re: Head colds and chemo?

I had one on chemo (or I wasn't feeling that well) and we delayed chemo for a week.

I had two people in my household with lung infections while on chemo and believe me, I did my best to keep my distance.
by NHMike
Tue Aug 14, 2018 5:34 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I need help understanding CEA
Replies: 9
Views: 369

Re: I need help understanding CEA

My CEA was normal through most of chemo but was rising through it and then made a small jump on the next-to-last cycle and then really jumped out of the normal range on the last cycle. It wasn't at levels where the oncologist would really worry (20s and higher) but he ordered a CT scan anyways and i...
by NHMike
Tue Aug 14, 2018 5:28 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal fissure post reversal
Replies: 1
Views: 44

Re: Rectal fissure post reversal

Hello Stacy, I was wondering how she was doing and it sounds like she's still having a tough time. I'm having a tough time as well with these crazy bouts of three to four hours in the bathroom to clear out the colon and it often gets a little painful and there's some blood. But I'm able to get out o...
by NHMike
Tue Aug 14, 2018 5:07 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Correlation between weight loss and prognosis?
Replies: 3
Views: 113

Re: Correlation between weight loss and prognosis?

I dropped a fair bit of weight in worrying but also the size of the tumor made going to the bathroom difficult so eating less meant less effort in the bathroom. Not eating enough can result in lightheadedness, headaches, and somewhat diminished cognitive ability. I think that it's good to have some ...
by NHMike
Tue Aug 14, 2018 5:04 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 3 rectal cancer....
Replies: 9
Views: 247

Re: Stage 3 rectal cancer....

I've had chemo/radiation, surgery, an ileostomy and adjuvant chemo. I'd say that all of these were challenging in their own ways and one person may find one of them harder than the others. I lived with the ileostomy for nine months and got used to it. There were some annoyances with it but there are...
by NHMike
Mon Aug 13, 2018 10:15 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1152
Views: 98096

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Yesterday was an unusually good day. As I speculated earlier, I would have very good days and very bad days. I felt the urge to go six times Sunday morning and made it to a bathroom within five to twenty minutes and things worked out fine. Sometimes I didn't make it in the evening but those things w...
by NHMike
Sun Aug 12, 2018 3:08 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Low Anterior Resection Syndrome: Do you have it?
Replies: 75
Views: 20014

Re: Low Anterior Resection Syndrome: Do you have it?

... I was hoping that someone could just type in a top ten or twenty list off the top of their head... Here are 10 links to start with... ⋅  https://www.massgeneral.org/pelvicfloor/treatments/ . ⋅  https://www.semc.org/services-directory/imaging-radiology/diagnostic-imaging-cent...
by NHMike
Sat Aug 11, 2018 8:44 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1152
Views: 98096

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

NHMike, I totally feel you. I DETEST Facebook. From the beginning. Never trusted the platform. And as it turned out...I was correct! However...for this situation, the COLON TOWN groups are an incredible resource. I've read up so much on everything, including LARS. You will get a lot out of it. My f...
by NHMike
Sat Aug 11, 2018 6:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1152
Views: 98096

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

I'm going to do some research on LARS solutions now that I have something to search on and given that I am VERY highly motivated to get a list of potential solutions.
by NHMike
Sat Aug 11, 2018 6:49 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1152
Views: 98096

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

I have a few friends who haven't joined for the same reason. It's understandable. I joined way back in 2007 and mostly just have family/extended family and a few close friends. That's unfortunate they do that - especially with new people wanting to join for the support groups. It's understandable b...
by NHMike
Sat Aug 11, 2018 6:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1152
Views: 98096

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

A fairly good day today. I spent a moderate amount of time in the bathroom but none of the four hour marathons today. One of my responses to LARS is caloric restriction. I weighed myself Tuesday night at the hospital and I'm down 13 pounds since then (11 days). This is obviously not sustainable in t...
by NHMike
Sat Aug 11, 2018 6:39 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Low Anterior Resection Syndrome: Do you have it?
Replies: 75
Views: 20014

Re: Low Anterior Resection Syndrome: Do you have it?

I'm confused as to what you mean when you say "solutions." Doing a warm water enema could not be easier. It's simply filling an enema bag that you'd buy on amazon or at a drug store with warm tap water. There are instruction on the box and all over the internet including this forum. http:...

Go to advanced search