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by NHMike
Sun Jul 22, 2018 7:27 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1025
Views: 91884

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Barium Enema tomorrow morning and I'm not fully sure of the directions but looking around it's not eating after midnight so I stopped at 8:00 PM. Only clear liquids after midnight. I need to read the literature now for the surgery the following week. Pre-op after the BE.
by NHMike
Sat Jul 21, 2018 7:07 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: problems after surgery chemo
Replies: 1
Views: 156

Re: problems after surgery chemo

I am guessing that you had surgery and then Adjuvant chemo afterwards and are now on chemo or have finished up and are experiencing pain and nausea. Perhaps you could clarify with: - Type of cancer (colon or rectal) - Stage - When you had surgery - If you are on chemo now and if so, when you started...
by NHMike
Fri Jul 20, 2018 5:11 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Freaking Out a Little
Replies: 9
Views: 277

Re: Freaking Out a Little

Okay so we’ve been planning, we’re so close to the end of his 12 rounds of chemo that we have been planning the future. Just two more treatments is our current mantra. Plans to go on a short trip, plans to find him a better job, looking forward to a life without chemo and being NED. Tomorrow he’s g...
by NHMike
Thu Jul 19, 2018 10:06 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 4 more days until reversal for mom..
Replies: 8
Views: 153

Re: 4 more days until reversal for mom..

It's been a long road for you and your mother and hopefully she can get back to normal, at least physically, soon. It's hard when you don't have enough support but I think that a lot of life is like that. Sometimes I think that that may be a benefit to having a lot of kids. I think that the "ta...
by NHMike
Thu Jul 19, 2018 9:41 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1025
Views: 91884

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Well I'd venture to guess that while your body is still under the effects of chemo that CEA levels may increase even more with exercise. The skin issue should start to resolve itself soon. I remember while not getting oxaliplatin I still had some skin issues, so most likely 5FU related. But all of ...
by NHMike
Wed Jul 18, 2018 10:38 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surviving radiation for rectal cancer
Replies: 72
Views: 6930

Re: Surviving radiation for rectal cancer

Thanks so much ..why don't they give a stronger chemo ? Is the radiation good enough to get rid of any lymph involvement or stray cells ? .. Radiation will eventually kill anything in its way. If the stray cells have left the area via the bloodstream, then radiation can't go after it as the therapy...
by NHMike
Wed Jul 18, 2018 1:21 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Just Diagnosed
Replies: 43
Views: 1097

Re: Just Diagnosed

A lot of the challenges that you read about here are on illeostomies. I have one right now and it is a bit of a headache and there are things that I can't do with it but I think that it's easier for chemo than not having it which is why it is there.
by NHMike
Wed Jul 18, 2018 11:32 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surviving radiation for rectal cancer
Replies: 72
Views: 6930

Re: Surviving radiation for rectal cancer

The radiation shrunk my tumor by over 90% so it was successful from my point of view. In some cases, radiation results in a pathological complete response - it's been around for a long time and there's a reason for that.
by NHMike
Tue Jul 17, 2018 9:46 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Just Diagnosed
Replies: 43
Views: 1097

Re: Just Diagnosed

My tumor was so big that it popped out from time to time. The measurement of 5.? cm from AV was done after chemo and radiation. I don't recall what (or if) the measurement was before chemo and radiation. I think that your question is one for the radiology oncologist.
by NHMike
Tue Jul 17, 2018 3:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Just Diagnosed
Replies: 43
Views: 1097

Re: Just Diagnosed

My surgeon told me a few weeks ago that she could always do a colostomy if it was too hard with the reversal.
by NHMike
Tue Jul 17, 2018 2:58 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Leakage.....
Replies: 3
Views: 312

Re: Leakage.....

I used Depends Shield for men for leakage from radiation. These are quite thin and they're not huge so sometimes I used two of them end-to-end. These may be more comfortable than the much larger ones with complete coverage.
by NHMike
Tue Jul 17, 2018 12:28 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Just Diagnosed
Replies: 43
Views: 1097

Re: Just Diagnosed

Hi. Does all this mean I am going to have a colostomy bag? Or does it mean there is nothing the surgeon can do? I noticed that this report is a lot lower Your surgeon would tell you about the odds of a colostomy. I had chemo and radiation to shrink the tumor. It shrank more than 90%. The surgeon wa...
by NHMike
Mon Jul 16, 2018 10:22 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mop up chemo experiences
Replies: 162
Views: 16206

Re: Mop up chemo experiences

Adele, I haven't seen you post in a while, glad to hear you made it through first round. I also had, have the rock in my throat which doesn't go away, a fan or cool temps make it worse. My tongue and roof of mouth feel funny as well. I can only tolerate warm liquids. My feet and hands are intoleran...
by NHMike
Mon Jul 16, 2018 8:49 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mop up chemo experiences
Replies: 162
Views: 16206

Re: Mop up chemo experiences

Michael Brava tape from coloplast is brilliant,,,, It's semi circle so fits perfectly Not sure Uve tried it, if not deffinatly do,,,, were Lucky in Ireland because they will give u anything y need to get through Ur chemo or ostomy process, I know u lot are limited with Ur insurance companies. Adele...
by NHMike
Mon Jul 16, 2018 6:49 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mop up chemo experiences
Replies: 162
Views: 16206

Re: Mop up chemo experiences

I add two-inch wide Hypafix tape around the wafer tape and also use a belt that attaches to the wafer. I won't run without the added security of the stuff to hold the wafer in place.

Everyone figures out what works for them.

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