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by NHMike
Thu Jun 21, 2018 8:31 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Canadians-Husband diagnosed-what about WORK and PAY?
Replies: 2
Views: 65

Re: Canadians-Husband diagnosed-what about WORK and PAY?

I'm in the US but what cbsmith described is what we have where I work. I have five sick days. If I need to take more than that, then I must go out on short-term disability and I did this last year for my surgery which took two weeks to have and recover from. You didn't indicate the staging or course...
by NHMike
Wed Jun 20, 2018 12:25 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Hello from a new member
Replies: 5
Views: 194

Re: Hello from a new member

I know it's stage 3 but didn't get a letter after that. Based on the breakdown over at http://www.cancer.net I think it has to be Stage 3B. The pathology report says it's pT3 pN1c pMX (they found nothing on a chest CT scan afterwards and the liver biopsy looked clean, so there's no evidence of mets...
by NHMike
Wed Jun 20, 2018 10:08 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Hello from a new member
Replies: 5
Views: 194

Re: Hello from a new member

You seem to have things together quite well. Your tumor size was about 10% smaller than mine so I can imagine the discomfort of the thing. So is your official stage 3A? I think that the protocols might be less chemo. There are certainly trials going on for half. I did the full six months because I'm...
by NHMike
Wed Jun 20, 2018 7:42 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 966
Views: 83365

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

The hands and feet/neuropathy peaked yesterday. It's often worst in the morning and it's notable when I don't notice it when waking up. The bigger problem right now is blisters. But those aren't cancer-related problems. My neuropathy got worse about a month after finishing chemo. That was over 2 ye...
by NHMike
Wed Jun 20, 2018 7:29 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 966
Views: 83365

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

The hands and feet/neuropathy peaked yesterday. It's often worst in the morning and it's notable when I don't notice it when waking up.

The bigger problem right now is blisters. But those aren't cancer-related problems.
by NHMike
Wed Jun 20, 2018 6:12 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: ***News Stories Thread*** ONGOING 2018
Replies: 35
Views: 8159

Re: ***News Stories Thread*** ONGOING 2018

NCI: Antibody-linked drug shrinks various types of tumors in preclinical study In a preclinical study, a Center for Cancer Research investigator-designed therapy using a drug attached to an antibody which can target blood vessels, connective tissue and other cells that infiltrate tumors—collectively...
by NHMike
Tue Jun 19, 2018 9:31 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: What should I expect for port placement???
Replies: 24
Views: 299

Re: What should I expect for port placement???

I haven't been able to do some of my favorite exercises: dips and pullups. Heavy weight bearing on the side with the port is not recommended.
by NHMike
Tue Jun 19, 2018 6:38 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Just diagnosed with rectal cancer and terrified
Replies: 15
Views: 633

Re: Just diagnosed with rectal cancer and terrified

Thank you all for your wonderful words of support! After talking with my doctors and getting scans out of the way, I am feeling calmer. I do have a question though: I had a pet scan that came back clear (except for my tumor), no spread to other organs. Is it still possible I could be staged at a fo...
by NHMike
Tue Jun 19, 2018 6:30 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: What should I expect for port placement???
Replies: 24
Views: 299

Re: What should I expect for port placement???

When I was taking Xeloda, yes, it was EXPENSIVE but back then, there were no restrictions from the insurance companies. Nowadays, with a generic form of Xeloda, I don't think any insurance companies have an issue with this option. I have heard, however, than some insurance companies require the pat...
by NHMike
Tue Jun 19, 2018 5:27 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: What should I expect for port placement???
Replies: 24
Views: 299

Re: What should I expect for port placement???

You are correct that Xeloda has a much higher chance of hand/foot syndrome than infused 5FU but studies have shown that overall, people tolerate Xeloda much better than infused 5FU. I've had both and can only speak for myself but when I was on 5FU I felt TERRIBLE. The leucovorin exacerbates the sid...
by NHMike
Tue Jun 19, 2018 5:21 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: What should I expect for port placement???
Replies: 24
Views: 299

Re: What should I expect for port placement???

From what I have read here and elsewhere it is pretty clear that Xeloda/capecitabine has significantly worse side effects than being infused with 5-FU for many if not most. Although I apparently had more discomfort immediately after the port installation than most, I personally would NEVER choose t...
by NHMike
Tue Jun 19, 2018 2:41 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: What should I expect for port placement???
Replies: 24
Views: 299

Re: What should I expect for port placement???

I didn’t use any painkillers at all after surgery so that should give you some idea as to the level of pain. I’m sure that I could have gotten something fairly strong if I asked for it.
by NHMike
Tue Jun 19, 2018 1:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 966
Views: 83365

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

The oncologist indicated that it would be removed after four months. The surgeon hasn't said though I haven't discussed it with her yet. I guess that they could always put it on the other side - hopefully that will never have to happen. I can manage with the neuropathy. I haven't dropped anything ye...
by NHMike
Tue Jun 19, 2018 10:55 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Is chemotherapy advisable for 68 years old Heart patient after LAR surgery
Replies: 5
Views: 165

Re: Rectal Cancer: Is chemotherapy advisable for 68 years old Heart patient after LAR surgery

Do you have the dimensions of the tumor? It sounds like my staging and I had chemo and radiation before surgery but my tumor was quite large. May his was very small and they felt that they could get it out as is. Adjuvant chemo is rough. There are some 68-year-olds that can handle it because of gen...
by NHMike
Tue Jun 19, 2018 9:30 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Another new diagnosis
Replies: 5
Views: 424

Re: Another new diagnosis

So I just got signed up for the portal with our oncologist. This is what it says for the chemo treatment: NCCN_COL2: Fluorouracil IVP(400)D1-Fluorouracil CI(1200)D1-2-Leucovorin(400)D1-OXALIplatin(85)D1 Q14D (mFOLFOX6) v2.1 It does say its for eight cycles. But I really have no idea what any of tha...

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