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by NHMike
Tue Sep 18, 2018 7:06 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: what happens after chemo?
Replies: 21
Views: 1076

Re: what happens after chemo?

Caat55 wrote:CT CAP 9/11/2018 NED


Welcome to the club. Be sure to stay.
by NHMike
Tue Sep 18, 2018 7:04 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Any body knows of Clinical trials for BRAF 600?
Replies: 4
Views: 255

Re: Any body knows of Clinical trials for BRAF 600?

My wife had 8 rounds of FOLFOX + ERBUTAX and 4 rounds of FOLFIRI + ERBUTAX but the recent scans showed new tumors in the peritoneum. Oncologist wants her to stop Conventional Chemo and start with clinical trials. We live in DFW area. Does any one know of promising clinical trials for BRAF mutation ...
by NHMike
Mon Sep 17, 2018 8:24 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mop up chemo experiences
Replies: 192
Views: 22318

Re: Mop up chemo experiences

It’s the best of news.
by NHMike
Mon Sep 17, 2018 7:07 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1274
Views: 114064

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

I like also that is calculating your VO2 max. It is nice to track progress! Claudia Most reviews for these watches say that you need to be a professional or very dedicated athlete to get the most out of these watches but they have a lot of features for ordinary people too. I'm not really sure what ...
by NHMike
Sun Sep 16, 2018 7:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1274
Views: 114064

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

It was eight days after the last Imodium that I took another one. I wanted to see how well I could manage without it. Things were good for the first five days but they got progressively worse and I took one last night. It allowed me to sleep well last night and I'll take another one early in the mor...
by NHMike
Sun Sep 16, 2018 6:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1274
Views: 114064

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

I know some doctors recommend or have no problems with enemas while others are not onboard. It may be too soon after your reversal. I was a year and a half after my reversal before enemas were recommended to me. I went through a couple tests, met with a dietician, and had pelvic floor therapy. The ...
by NHMike
Sun Sep 16, 2018 6:38 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: When I started chemotherapy...
Replies: 12
Views: 565

Re: I'm cleaning house...

Another step forward today. I am off to the pharmacy this afternoon to return my sharps bin and I won't be coming back home with an empty one!!! I'm also returning a box of unused Lovenox shots, plus some unused anti-nausea meds. By my estimation I've self-injected 225 blood thinner shots (at $25 p...
by NHMike
Sun Sep 16, 2018 5:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surgery Tomorrow - 27th New Zealand Time
Replies: 34
Views: 1580

Re: Surgery Tomorrow - 27th New Zealand Time

Thank you for your replies. UPDATE- At day 18 after op bowel was still not working. :( Very painful and I look like I am having twins. X-ray showed swoolen areas and blockages. Pretty sure it is the irradiated intestines playing up. Being fed by IV. Day 19 bowel finally started slowly and with much...
by NHMike
Sat Sep 15, 2018 8:11 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surviving radiation for rectal cancer
Replies: 93
Views: 10899

Re: Surviving radiation for rectal cancer

I'm not Adele but two weeks after radiation I felt great. It was the most normal I've been on the journey. The tumor shrank over 90% so it was easy to go to the bathroom.
by NHMike
Thu Sep 13, 2018 4:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1274
Views: 114064

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Phillypatient wrote:
Doctor said no enemas.


What was the reason the doctor said no enemas?


My doctor is very succinct.

Her reply was two words: No enemas. And that's good enough for me.
by NHMike
Thu Sep 13, 2018 4:07 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1274
Views: 114064

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Doctor said no enemas. It looks like everything else is okay.
by NHMike
Thu Sep 13, 2018 3:02 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1274
Views: 114064

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

So cool that you are training strenght! And I am glad I inspired you. In the Alps I lost my Suunto running watch and then I bought a Garmin Fenix 5s. It is measuring hearth rate, sleep, stress and has also some smart watch functions. Claudia I'm trying to decide on a 5 Plus or a 5X Plus. I like the...
by NHMike
Thu Sep 13, 2018 1:54 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1274
Views: 114064

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Yesterday was tough but I'm working on my control without the Imodium so that's to be expected. It was manageable but not fun. But I'm getting more sleep than before on the order of 7-8 hours. I ran a bit over 1.5 miles yesterday and did about an hour of weights and other exercises. The weight amoun...
by NHMike
Thu Sep 13, 2018 1:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colonoscopy October 5th, Age 30. Freaked out.
Replies: 6
Views: 282

Re: Colonoscopy October 5th, Age 30. Freaked out.

It's hard not to worry about what it might be but there are a of things that can cause rectal bleeding besides cancer. So one step at a time. I personally know several people that have had this and they had other conditions.
by NHMike
Wed Sep 12, 2018 6:44 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Final Chemo Anniversary
Replies: 8
Views: 388

Re: Final Chemo Anniversary

It does feel like it goes on forever. Glad that you’re living a normal life a year out.

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