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by NHMike
Wed Nov 22, 2017 2:47 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: KRAS G12V Mutation Question
Replies: 16
Views: 423

Re: KRAS G12V Mutation Question

I thought that KRAS G12V was more or less the same as the other G12* mutations but it's associated with worse prognosis. A person posted that his wife has this mutation this morning and the prognosis doesn't sound good. I did a search on the forum for G12V and a few of Maia's posts came up for clini...
by NHMike
Wed Nov 22, 2017 10:36 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 33 year old - Stage 4 - no family history
Replies: 13
Views: 342

Re: 33 year old - Stage 4 - no family history

Lynch Syndrome, MYH-Associated Polyposis, and Hyperplastic Polyposis Syndrome are all inherited types of colon cancer so you're not likely to have them since you have no family history. However, get tested anyway to make sure. Other genetic tests you should have include: KRAS, BRAF, MLH1, MSH2, APC...
by NHMike
Wed Nov 22, 2017 10:25 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 33 year old - Stage 4 - no family history
Replies: 13
Views: 342

Re: 33 year old - Stage 4 - no family history

2) I'm young, have no co-morbidities, and have spent much of this year in unbelievable agony. Treatment is tolerated differently by everyone, and I'm glad you're doing well, but I've been told "but you're young and look good!" so many times when I've wanted to just die already, that the s...
by NHMike
Wed Nov 22, 2017 7:46 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Update: It's just a matter of time
Replies: 12
Views: 428

Re: Update: It's just a matter of time

I'm very sorry to hear about your wife as I also have a KRAS mutation. I looked up G12V at https://targetedcancercare.massgeneral.org/My-Trial-Guide/Diseases/Colorectal-Cancer/KRAS/G12V-(c-35G-T).aspx and see the paragraph: There is no clear association between activating KRAS mutations and poor pro...
by NHMike
Wed Nov 22, 2017 7:41 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: O/T The 4 Kinds Of Health Chatroom Users (Article)
Replies: 5
Views: 112

Re: O/T The 4 Kinds Of Health Chatroom Users (Article)

I'm not a participant of the survey but I think our group is unlike any other. I have tried to join a group for Meniers disease and TNA, but both were non funtional. Also, I despise surveys. I am the jerk who chooses the middle answer for every question just to be difficult. I am always annoyed the...
by NHMike
Tue Nov 21, 2017 9:40 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Just finished treatment
Replies: 3
Views: 139

Re: Just finished treatment

It took me one to two weeks for the radiation burns to go away. I think that it took that long to get my energy back too.
by NHMike
Tue Nov 21, 2017 7:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 366
Views: 30201

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Three hours is quite a long time to be sitting at the hospital or infusion center. Sounds like something I'd want to do relatively local.
by NHMike
Tue Nov 21, 2017 5:28 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 366
Views: 30201

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

My Ileostomy supplies arrived and they're the right ones this time. So I'm good for at least a month. If I maintain five days per wafer/bag, I'm good for 125 days with these and my hospital supplies. I'll order another batch in December though in case the reversal doesn't go according to plan (suppo...
by NHMike
Tue Nov 21, 2017 3:40 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 33 year old - Stage 4 - no family history
Replies: 13
Views: 342

Re: 33 year old - Stage 4 - no family history

MSI-H can be determined by ImmunoHistoChemistry testing which insurance companies will cover more easily than genomic testing. The IHC testing should be standard practice on a biopsy with a colonoscopy (that's what they did to me). I think that genomic testing of the tumor is a good idea but I think...
by NHMike
Tue Nov 21, 2017 11:40 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 366
Views: 30201

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

It’s good to see that your recovery is moving very well, Mike. That is good link to the other forum,on what about to expect from folfox. They gave me zofran and dexamethasone pills before infusion, so I never experienced nausea, my apetite was more than good, managed to put on about 6 kg, mostlly f...
by NHMike
Tue Nov 21, 2017 6:50 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 366
Views: 30201

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Placeholder link for detailed description of going on Adjuvant Chemo in case I need it in a few weeks.

https://csn.cancer.org/node/313089

I did some glute bridges this morning on the bed. No problems. I've been quite afraid to do lower pelvic exercises and am just starting to wade into these.
by NHMike
Mon Nov 20, 2017 9:21 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 366
Views: 30201

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

One-hour workout tonight. Walked one mile, top speed of 3.3 MPH and spent the rest on the isolation weight machines. I did a few exercises where I had to push a little instead of doing really low-resistance stuff. I had a chat with the fitness center manager at the office and she said that I was usi...
by NHMike
Mon Nov 20, 2017 2:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: ileostomy
Replies: 9
Views: 159

Re: ileostomy

I don't want to hyjack anyone's thread but I have a question. First my wife has had no itching or redness but I remember them saying that it does happen. You might be reacting to the material so i would contact the nurse. My wife has been home from surgery for almost a week now. The majority of the...
by NHMike
Mon Nov 20, 2017 11:50 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: ileostomy
Replies: 9
Views: 159

Re: ileostomy

Are you applying the barrier wipes? The stuff coming out of you has enzymes which can be rough on your skin and the stuff on the wipes protects your skin from them. I've done three bag changes on my own (well with assistance from family handing me things) and the bags were changed at 5 to 5.5 days. ...

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