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by NHMike
Fri Mar 22, 2019 1:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1422
Views: 279967

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

I wrote the first paragraph of the introduction. I find that it helps to put something down and get the document started as a placeholder. Mike - I was wondering how your writing project is progressing. Is it still in the pipeline? Do you have a proposed title or a proposed outline yet? I haven't m...
by NHMike
Fri Mar 22, 2019 10:09 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1422
Views: 279967

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Minor update: no obstructions for a week which is good. I have been running more and doing less strength-training and have been very busy at work. I can't wait until retirement to build my body back up. It's possible that I take a year off, rebuild and then go back to work again but I don't know at ...
by NHMike
Mon Mar 18, 2019 5:14 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CEA Levels
Replies: 67
Views: 4342

Re: CEA Levels

I just got back from the onc...he was not concerned about the .6 increase in my cea. He said that if I took the test 3 times in one day, it would be different each time. He thinks that it increased from the antibiotic for my sinus/tooth problem. Apparently the antibiotic that my dentist put me on p...
by NHMike
Thu Mar 14, 2019 5:38 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: TIL Immunotherapy at NCI
Replies: 608
Views: 173924

Re: TIL Immunotherapy at NCI

You guys are pioneers in this treatment which I hope gets developed for far more mutations.
by NHMike
Wed Mar 13, 2019 11:26 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CEA Levels
Replies: 67
Views: 4342

Re: CEA Levels

Just left doctors office. I am MSS. So I am not a candidate for immunotherapy, which he mentioned when I asked about my genetic. He said he is not worried about lung met as he can use radiation for that but more concerned about local recurrence in pelvic area by rectum. Starting chemo next week thi...
by NHMike
Wed Mar 13, 2019 7:53 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CEA Levels
Replies: 67
Views: 4342

Re: CEA Levels

I have been exercising big time...training for my first 5k. I had a CT scan in Dec, but I will discuss this with him on Monday during my appt. That must feel great. I am running but work has been keeping my mileage down. I figured out that it was exercise as I did a chart of the CEA vs time and the...
by NHMike
Wed Mar 13, 2019 7:45 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CEA Levels
Replies: 67
Views: 4342

Re: CEA Levels

Mike...reference range is the same...the type of testing assay changed. I think that it would concern me then. The same thing happened to me and it eventually went above the normal range and the oncologist ordered a CT scan which found nothing. It later went down. I'm pretty sure that the rise in C...
by NHMike
Wed Mar 13, 2019 7:35 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CEA Levels
Replies: 67
Views: 4342

Re: CEA Levels

Just got my bloodwork back...cea went from 2.5 to 3.1. Not happy :evil: I go to Labcorp for my bloodwork and I noticed that the CEA test changed from "Roche methology" to "Roche Diagnostics Electrochemiluminescence Immunoassay (ECLIA)" Even though I am still in normal range, I a...
by NHMike
Tue Mar 12, 2019 4:38 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CEA Levels
Replies: 67
Views: 4342

Re: CEA Levels

Hi , We even have a clinical trial in our city for Immuotherapy with MSS patients !! My friend is having an amazing response with Keytruda for stage 4 lung cancer . Fifty percent reduction with just two cycles . Her fractured sternum has healed!! She has had it as first line treatment along with a ...
by NHMike
Tue Mar 12, 2019 11:47 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Marking time from first diagnosed or??
Replies: 10
Views: 405

Re: Marking time from first diagnosed or??

I'd say from NED and I'd guess that it would depend on your treatment protocol. I had Chemo + Radiation and then Surgery so for me, it would be the surgery date. I had Adjuvant Chemo but I'd still start the counter at surgery.
by NHMike
Tue Mar 12, 2019 11:03 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CEA Levels
Replies: 67
Views: 4342

Re: CEA Levels

Well Doctor called me last night around 8:30 PM....Not good news. Spot on Lung and in Pelvic region. I will get more information tomorrow and let you guys know. He will come up with a game plan, he did say this is still beatable. It's tough to digest this news as I was hoping to be done with it. Go...
by NHMike
Mon Mar 11, 2019 6:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Coordination between oncologists - how to proceed?
Replies: 8
Views: 353

Re: Coordination between oncologists - how to proceed?

I started with a local oncologist and radiation guy and got second opinions from Dana Farber in Boston (an hour away). Dana Farber's recommendations were the same as the local doctors so we just went with the local doctors and the doctors didn't have any interactions. After treatment, I decided to g...
by NHMike
Fri Mar 08, 2019 8:12 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1422
Views: 279967

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

One thing about the beginning of the year that surprises me but it shouldn't. That is in paying the deductibles on medical costs. It may be $2,000, $4,000 or $7,000 but it's front-loaded into the beginning of the year. United Healthcare sent me a note on what I may owe so I expect the bills to roll ...
by NHMike
Fri Mar 08, 2019 5:25 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1422
Views: 279967

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

I played tennis for the first time in 1.5 years last Sunday and am scheduled to play again this Sunday. I am having obstruction bouts weekly and they are a headache but I'm managing through it. The LARs issues are still there but I think that the body is adapting very slowly. There are still days wi...
by NHMike
Fri Mar 08, 2019 1:48 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Just can't let it go
Replies: 31
Views: 1496

Re: Just can't let it go

It's possible that the entire report wasn't made available to you. I get path reports on my hospital portals but there was one time where the surgeon gave me a few photocopied pages of what was obviously the details of the pathology report - but those pages weren't available to me in the portal. I k...

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