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by NHMike
Tue Dec 18, 2018 10:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 3A Rectal Cancer Diagnosis
Replies: 1
Views: 62

Re: Stage 3A Rectal Cancer Diagnosis

Welcome to the board and I'm happy to see that you've read a lot already and have some idea as to what to expect. I had a similar course of treatment with 28 days of Xeloda and Radiation, surgery in 8 weeks, and 7 months of Adjuvant chemo. I was able to work through the Xeloda and Radiation but I tr...
by NHMike
Tue Dec 18, 2018 10:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1364
Views: 244105

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

I'm back at home. I was itching to get out as waiting around in the hospital is not my idea of a good use of time and hospital resources. I ate toast and oatmeal for lunch and haven't had any problems so far and it should have been long enough for it to make its way to the junction of the small and ...
by NHMike
Tue Dec 18, 2018 7:45 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1364
Views: 244105

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

It looks like the rate of SBO following ileostomy reversal is 7%
by NHMike
Mon Dec 17, 2018 7:53 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1364
Views: 244105

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

It looks like the obstruction cleared itself. I lay again in my left side, passed a little gas and then felt an urge and the floodwaters opened up. Actually normal, easy poops and then a ton of water. I was sleeping on my back last night. I couldn’t sleep on my side because of the foam wedge. It may...
by NHMike
Mon Dec 17, 2018 6:02 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1364
Views: 244105

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Small bowel obstruction due to scar tissue at around one of the incisions. 2-3 days in the hospital.
by NHMike
Mon Dec 17, 2018 4:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1364
Views: 244105

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

In the ER waiting for a CT. I had intense abdominal pain this afternoon and threw up multiple times. I was on the floor of the waiting room ina fetal position as I could not get conform their chairs. I felt surprisingly better afterwards. They are doing a CT to rule out obstructions, infections and ...
by NHMike
Sun Dec 16, 2018 5:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Any experience with typhlitis?
Replies: 3
Views: 198

Re: Any experience with typhlitis?

We'll hope for the best. I just had a look at your history and it's got to be tough with four kids. Glad you have a positive outlook.
by NHMike
Sat Dec 15, 2018 11:16 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Adjuvant Chemo
Replies: 8
Views: 345

Re: Adjuvant Chemo

I had chemo before surgery and not doing the chemo and radiation wasn't an option. A surgeon wouldn't operate on me without radiation and chemo first. So I knew what chemo was like. I had adjuvant chemo as well but it was rougher because the drug strength was higher and there was an additional drug....
by NHMike
Sat Dec 15, 2018 11:09 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Any experience with typhlitis?
Replies: 3
Views: 198

Re: Any experience with typhlitis?

Those are great results on the chemo. Is it operable now (5 cm is still pretty big)?
by NHMike
Sat Dec 15, 2018 11:04 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: No longer NED - DEVASTATED
Replies: 37
Views: 1824

Re: No longer NED - DEVASTATED

It's great to get an appointment so quickly at this time of the year.
by NHMike
Sat Dec 15, 2018 11:04 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: No longer NED - DEVASTATED
Replies: 37
Views: 1824

Re: No longer NED - DEVASTATED

I don't know what you mean by "Was it difficult to get the appointment?" Many of us have had a hard time getting appointments at hospitals. I would say that getting my initial appointments at Dana Farber and Brigham and Women's was a nightmare. I think that it took me two weeks to schedul...
by NHMike
Thu Dec 13, 2018 12:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Fingertip and toe numbness from Cape or Oxaly?
Replies: 4
Views: 201

Re: Fingertip and toe numbness from Cape or Oxaly?

For me, the Oxaliplatin results in numbing and tingles in my toes. The Cap gave me a bit of arthritic feeling in the knuckles on my hands. The numbing in the toes increased about a month after ending treatment. The arthritic feeling declined with time.

Cold exacerbates the numbing/tingles.
by NHMike
Wed Dec 12, 2018 6:44 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CEA Levels
Replies: 5
Views: 286

Re: CEA Levels

My CEA went up because I was walking a lot (100 miles/week). Oncologist was concerned and ordered a scan but nothing. It came back down when I decreased the walking. There are some other known things that increase it too.
by NHMike
Wed Dec 12, 2018 6:41 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: No longer NED - DEVASTATED
Replies: 37
Views: 1824

Re: No longer NED - DEVASTATED

It sounds like a good way to go. I'm sorry that your husband had a recurrence but I'm sure that you'll both tackle it head on as before.
by NHMike
Sat Dec 08, 2018 8:10 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Any body knows of Clinical trials for BRAF 600?
Replies: 11
Views: 1154

Re: Any body knows of Clinical trials for BRAF 600?

The trial continues to go smoothly. The only side effects I have are drowsiness/fatigue which could be caused by my pain pump actually and receiving more medicine than I actually need as my pain has gone way down. I use only one bolus a week and before about 3 a day. The rash is still only on my fa...

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