Search found 2527 matches

Go to advanced search

by NHMike
Mon Apr 05, 2021 8:19 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Sigh - Here we go again
Replies: 8
Views: 2102

Re: Sigh - Here we go again

I did XELOX starting December 2017 in New Hampshire so it was pretty challenging. I think that keeping warmer clothes around during the day is helpful. The cold can affect your eyelids, mouth, throat, fingers and toes - those were the worst areas for me. The chest port is a bit of a pain as it's har...
by NHMike
Sat Apr 03, 2021 6:36 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Covid 19 vaccine
Replies: 98
Views: 26080

Re: Covid 19 vaccine

NH opened appointments to everyone yesterday. I had to reschedule my second dose because Walgreens screwed up and they don't have second appointments available. I found something but it's not ideal. First dose of Pfizer this past Thursday. My arm was sore Thursday night until Friday afternoon. It wa...
by NHMike
Sat Apr 03, 2021 6:06 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Post Surgery Issues
Replies: 5
Views: 614

Re: Post Surgery Issues

I had rectal cancer and surgery so quite a bit of a difference in anatomy but your problems have some similarities. You still have a rectum (my presumption), so, when things are back to normal, it should act as a cache to grab waste, extract water from it so that you have normal stools. I had an ile...
by NHMike
Sat Apr 03, 2021 5:34 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Applying for New Jobs Advice
Replies: 5
Views: 717

Re: Applying for New Jobs Advice

Chemo hits people differently. I've read about people that wind up sleeping most of the day to those that run half-marathons. If you're young and fit, then you may do quite well. I worked normally while on chemo except that i worked in the office early in the morning and then worked from home the re...
by NHMike
Sat Apr 03, 2021 5:25 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Update Well its time for a CT Scan
Replies: 17
Views: 1304

Re: Update Well its time for a CT Scan

I had an unexplainable rise in CEA through chemo such that my Oncologist ordered a CT scan and found nothing. I believe the rise was exercise-related. I charted the rise in CEA against the number of steps I took and it correlated nicely.

Scans with contrast should find any area with unusual activity.
by NHMike
Thu Mar 25, 2021 9:16 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer stage IV
Replies: 202
Views: 86003

Re: Rectal cancer stage IV

Atoq wrote:Hi! Just checking in, I had my three years’ scan in February and everything is still fine.

All the best

Claudia


No news is the best news. Keep on running!
by NHMike
Fri Mar 19, 2021 12:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1741
Views: 450448

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

"I’m glad you are doing well! I am starting my chemo today. In fact, I took 3 xeloda pills at 8AM, going to MSK at noon for my oxali. infusion, and then taking another 3 xeloda tonight for the next 14 days, one week off, start again, for 3 months." You will likely have had your first infus...
by NHMike
Fri Mar 19, 2021 8:42 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1741
Views: 450448

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

I returned to the gym about three weeks ago and started doing a lot of abdominal work and it's resulted in a considerable improvement with regard to clustering. I was away from the gym for about a year and there were two particular exercises I did that contributed to abdominal muscle strength: weigh...
by NHMike
Fri Mar 05, 2021 9:03 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Covid 19 vaccine
Replies: 98
Views: 26080

Re: Covid 19 vaccine

Glad to hear that SOMEONE is getting vaccinated! They're still working on people 70+ only here in Maine. In NH, those over 65 are getting vaccinations. Our vaccine supply has tripled this week though. I'm in the 50-65 category and we can start making resrvations March 22 for vaccinations starting M...
by NHMike
Fri Mar 05, 2021 9:02 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: From what point are you 'NED'?
Replies: 6
Views: 1074

Re: From what point are you 'NED'?

Beckster wrote:My doctor counted it as the day of surgery because all cancer was removed. I am now in my 5th year and God willing, I will be released in December.


This is my understanding as well.
by NHMike
Thu Mar 04, 2021 2:28 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage IIA: Chemo or not?
Replies: 46
Views: 11028

Re: Stage IIA: Chemo or not?

NHMike, I see you had a reversal (colostomy?) 1 year after, and it has now been about 2+ years since then. How did it go? I understand that the first few months are challenging, but do you have any issues now? In reading other support groups specifically in the ostomy boards, it makes it seem that ...
by NHMike
Thu Mar 04, 2021 11:50 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage IIA: Chemo or not?
Replies: 46
Views: 11028

Re: Stage IIA: Chemo or not?

I mispoke. My treatment is oxaplatin infusion every 3 weeks, with 1 xelora pill in the AM and 1 in the PM for 14 days in between. This will go for 6 months. The perforation in the bowel was caused by, according to the surgeon’s notes “complete large bowel obstruction”. The procedures performed were...
by NHMike
Tue Mar 02, 2021 11:20 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage IIA: Chemo or not?
Replies: 46
Views: 11028

Re: Stage IIA: Chemo or not?

I was planning on using local medical resources for chemo and radiation but many coworkers and friends (on this board too) recommended getting a second opinion. So I worked on getting second opinions scheduled in Boston, about an hour away for me. It was quite difficult even getting to talk to someo...
by NHMike
Sun Feb 28, 2021 5:03 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage IIA: Chemo or not?
Replies: 46
Views: 11028

Re: Stage IIA: Chemo or not?

On the colostomy - I had a lot of problems initially and was supposed to meet with a WOC (wound, ostomy, continence) nurse about two weeks after discharge but the appointment got rescheduled for a month later. I had leaking and burning at the ileostomy site. The WOC nurse gave me a different pouchin...

Go to advanced search



cron