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by NHMike
Fri Dec 15, 2017 8:36 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone with Stage IVa just do Xelolda or 5-fu?
Replies: 82
Views: 4084

Re: Anyone with Stage IVa just do Xelolda or 5-fu?

Thanks for the pdf. I hope to find some time this weekend to look at it. I am so swamped with work, it's crazy! Husband has done remarkably well this round. He went to work right after his infusion yesterday and went to a late night showing of the new Star Wars movie. He does have cold sensitivity ...
by NHMike
Fri Dec 15, 2017 6:00 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 461
Views: 33609

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Take something for pain this evening. The numbing agent they gave me lasted 10 hours, then I started to feel it. They poke and prod and tunnel through tissue to place the port, it will be sore for a bit. I made it through with Tylenol. Press N Seal works great to cover the surgical site when shower...
by NHMike
Fri Dec 15, 2017 12:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 461
Views: 33609

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Congrats on the successful port placement! Definitely set up reminders, but also know that the mail order pharmacy will likely robocall you when it’s time to order new pills. That’s what they do with me anyway. I use Briova Rx. That's who we use as well. They did send me a reminder today but I'd li...
by NHMike
Fri Dec 15, 2017 10:30 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 461
Views: 33609

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Port is installed and leaving in half an hour. Overall mostly painless. I do feel it though, when moving around. I went in around 7 and was out before 11 walking out without a wheelchair. It was easy and fast with minimal pain (just a couple of needles). I have to take antibiotics for three days and...
by NHMike
Fri Dec 15, 2017 5:38 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 461
Views: 33609

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

There was a huge cart at my surgeon’s office with Convatec supplies so I assume that they have some kind of arrangement as many will just keep using what they are used to and that’s what I’m doing so far. There are so many things to deal with that experimentation takes a back seat to setting up for ...
by NHMike
Fri Dec 15, 2017 5:07 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Age 30 (M) Recently Diagnosed, Family History
Replies: 38
Views: 3099

Re: Age 30 (M) Recently Diagnosed, Family History

Surgery this Monday. Nervous as hell but going to try to enjoy the weekend, fancy dinner Saturday night as it might be my last for a long, long time! Any tips for an extended Hospital stay? I imagine I'm going to be out of it for days so won't be worried about comforts until maybe the last couple o...
by NHMike
Fri Dec 15, 2017 5:02 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New on the forum
Replies: 48
Views: 1810

Re: New on the forum

I had a total of 28 injections, 4 in the hospital and the rest I did myself.

12,000 steps per day is excellent. I’ve been doing about 7,000 per day average but am working full time.
by NHMike
Thu Dec 14, 2017 10:27 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 461
Views: 33609

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Thanks for the reassurances on the port install tomorrow. I'm supposed to be at the hospital at 7 AM so I'll get up around 4:30. I ordered the Convatec Stoma Powder so I'm going with Convatec for now as it has been the best that I've tried so far (though that's only two things). I will eventually tr...
by NHMike
Thu Dec 14, 2017 7:41 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 461
Views: 33609

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

I have a power port, it's purple and not very big. It's inserted in the right side of my chest below my collar bone. The needle doesn't feel big to me when it's inserted, I like the fact that they always get it in first try and it does stay inserted during the entire infusion time. There are sprays...
by NHMike
Thu Dec 14, 2017 6:47 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 461
Views: 33609

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

For those with a chest port, what's the chest port like, roughly where is it located and how careful do you have to be with it?

Also, I understand that the needle used for infusions is rather large. Is this needle plugged into the port for the infusion? Also, how large is the needle?
by NHMike
Thu Dec 14, 2017 10:33 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Throat issue/ Xeloda/Radiation
Replies: 4
Views: 110

Re: Throat issue/ Xeloda/Radiation

I did Xeloda 5 days a week for 28 days along with the radiation. The Xeloda made me feel more tired but I worked full time (mostly from home), ran a few miles a week and typically got in 4-5 miles walking or running per day. I also played 50 minutes of moderately intense tennis once a week. Though I...
by NHMike
Wed Dec 13, 2017 1:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 461
Views: 33609

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Just got back from the filling. Took about 20 minutes. Just a little bit of pain as I don't use painkillers for dentistry. The assistant said that her mother had just gone through the treatment for colon cancer and there were a number of complications from the surgery. I asked her where she had it d...
by NHMike
Tue Dec 12, 2017 1:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 461
Views: 33609

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Thanks for the reply, I was a bit unsure about stretching as well. Claudia List of stretches that I've done after surgery: - Sit, put one leg over the other knee, gentle press down - I usually do this while putting on socks. - Stand, inner elbow in front of chin, pull outer elbow with other hand to...
by NHMike
Tue Dec 12, 2017 12:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 461
Views: 33609

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

We had three inches of heavy, wet snow and I did some pushing of it down the driveway. My son cleaned it up (carried it off). He helped me clear the lower roof as well. I used a roof rake with five sections to clear off a second story roof. It uses a lot of upper back, shoulder and chest muscles. W...
by NHMike
Tue Dec 12, 2017 9:09 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 461
Views: 33609

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

..Had a dental cleaning and they said that one of my old fillings is failing. So I have an appointment this Wednesday to get it replaced. It's just a composite so it should be simple.... What kind of composite is it? Is it a resin composite or an amalgam with mercury? You might want to read this ar...

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