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by NHMike
Sat Jun 23, 2018 7:28 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: The Miseries - But 'Hey I have it pretty good...'
Replies: 30
Views: 1522

Re: The Miseries - But 'Hey I have it pretty good...'

You might want to put together a timeline for the surgery as there's a lot of prep stuff for surgery these days and it's nice to see everything on a calendar or timeline so that you can see if there are any issues which need to be resolved.
by NHMike
Sat Jun 23, 2018 7:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Hello from a new member
Replies: 7
Views: 321

Re: Hello from a new member

Thanks for the welcomes! I got a 2-hour infusion of Oxaliplatin and have my 5FU pump; I get that off tomorrow morning. My Oxaliplatin dosage was 72.5mg/m2; 145mg total. I got clarification on the anti-nausea meds when I went in. They suggested that I take the zofran in the morning and evening for t...
by NHMike
Fri Jun 22, 2018 12:14 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 976
Views: 84247

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

If you want, you can read about my experience on my thread here: http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=59411&start=15#p472865 Also, my surgeon told me about this procedure for months before it took place, so I searched for it on this forum and found lots of helpful inf...
by NHMike
Fri Jun 22, 2018 9:15 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 976
Views: 84247

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

We should make this more generally known - I've been here for a year and this is the first I've heard about it.
by NHMike
Fri Jun 22, 2018 7:10 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 976
Views: 84247

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

I'm sure that my surgeon will explain it and maybe that's part of what the meeting next week is for. She's been great about explaining things. I'm glad I found out beforehand though. After the meeting next week I should be able to start coming up with a timeline and then filling it in.
by NHMike
Thu Jun 21, 2018 7:15 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 976
Views: 84247

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

I was in a hurry to get the reversal and then the Dana Farber Oncologist said four months so my frame of mind was four months. Then I called the surgeon and she said one month after end of chemo. Most people seem to have it done one month after but I have seen a few people report two months or thre...
by NHMike
Thu Jun 21, 2018 5:51 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Chemo before or after surgery?
Replies: 17
Views: 450

Re: Chemo before or after surgery?

I had Neo-Adjuvant and Adjuvant and my hair thinned slightly. Many people expressed shock when they found out that I had cancer as not that much changed about me in everyday interactions including my hair.
by NHMike
Thu Jun 21, 2018 10:25 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Chemo before or after surgery?
Replies: 17
Views: 450

Re: Chemo before or after surgery?

Hi again. My mom is getting her port tomorrow and will start her FOLFOX chemo on Monday. Did anyone with this same protocol have experience with hair loss? She has pretty thick, healthy hair so we are hoping for the best. Also what about travel while on chemo? Any experience or advice? My strong-wi...
by NHMike
Thu Jun 21, 2018 10:22 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Canadians-Husband diagnosed-what about WORK and PAY?
Replies: 9
Views: 274

Re: Canadians-Husband diagnosed-what about WORK and PAY?

Thanks everyone. My husbsnd has a rectosigmoid tumor about 11cm from anal verge. The tumor is sessile, about 6cm...doctor said it’s like the size of an egg. Surgeon claims no colostomy bag. So far: T3N2b and when asked about M over phone surgeon said none but I am waiting for oncologist to confirm ...
by NHMike
Thu Jun 21, 2018 8:31 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Canadians-Husband diagnosed-what about WORK and PAY?
Replies: 9
Views: 274

Re: Canadians-Husband diagnosed-what about WORK and PAY?

I'm in the US but what cbsmith described is what we have where I work. I have five sick days. If I need to take more than that, then I must go out on short-term disability and I did this last year for my surgery which took two weeks to have and recover from. You didn't indicate the staging or course...
by NHMike
Wed Jun 20, 2018 12:25 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Hello from a new member
Replies: 7
Views: 321

Re: Hello from a new member

I know it's stage 3 but didn't get a letter after that. Based on the breakdown over at http://www.cancer.net I think it has to be Stage 3B. The pathology report says it's pT3 pN1c pMX (they found nothing on a chest CT scan afterwards and the liver biopsy looked clean, so there's no evidence of mets...
by NHMike
Wed Jun 20, 2018 10:08 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Hello from a new member
Replies: 7
Views: 321

Re: Hello from a new member

You seem to have things together quite well. Your tumor size was about 10% smaller than mine so I can imagine the discomfort of the thing. So is your official stage 3A? I think that the protocols might be less chemo. There are certainly trials going on for half. I did the full six months because I'm...
by NHMike
Wed Jun 20, 2018 7:42 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 976
Views: 84247

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

The hands and feet/neuropathy peaked yesterday. It's often worst in the morning and it's notable when I don't notice it when waking up. The bigger problem right now is blisters. But those aren't cancer-related problems. My neuropathy got worse about a month after finishing chemo. That was over 2 ye...
by NHMike
Wed Jun 20, 2018 7:29 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 976
Views: 84247

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

The hands and feet/neuropathy peaked yesterday. It's often worst in the morning and it's notable when I don't notice it when waking up.

The bigger problem right now is blisters. But those aren't cancer-related problems.
by NHMike
Wed Jun 20, 2018 6:12 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: ***News Stories Thread*** ONGOING 2018
Replies: 35
Views: 8389

Re: ***News Stories Thread*** ONGOING 2018

NCI: Antibody-linked drug shrinks various types of tumors in preclinical study In a preclinical study, a Center for Cancer Research investigator-designed therapy using a drug attached to an antibody which can target blood vessels, connective tissue and other cells that infiltrate tumors—collectively...

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