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by NHMike
Tue May 22, 2018 3:33 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New Member here on the forum
Replies: 85
Views: 11176

Re: New Member here on the forum

Caat55 wrote:The CBD helped the nausea but the lump is still in my chest. Feels like When you swallow air but big time. I called oncologist to see about a reduction but am afraid even a small change will reduce my possibility of a cure.
S


Did you have a Pathological Complete Response with surgery?
by NHMike
Mon May 21, 2018 6:58 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Treos Bio’s PolyPEPI™ Precision Cancer Vaccine Metastatic Colorectal Cancer
Replies: 3
Views: 226

Re: Treos Bio’s PolyPEPI™ Precision Cancer Vaccine Metastatic Colorectal Cancer

I had a look around the web (including the trial) for details and I couldn't find any. It references the most common CRCs and I have some knowledge of the first two most common but it would be nice if they listed out the genetic mutations covered by the vaccine. I am pretty sure that I know what the...
by NHMike
Mon May 21, 2018 2:12 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Start tomorrow. So scared.
Replies: 17
Views: 354

Re: Start tomorrow. So scared.

Thanks to all of the folks who have posted here! Such wonderful support - THANK YOU!! I returned from the infusion center around mid-day and took a walk with a friend and I feel mostly okay so far. As far as what I've experienced so far.... it did hurt a little when they accessed my chest port for ...
by NHMike
Mon May 21, 2018 5:45 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mop up chemo experiences
Replies: 98
Views: 9463

Re: Mop up chemo experiences

Our county legalized medical growing with a permit. New board banned it two years later for the reasons you state. Since the THC levels are next to nothing, I am not going to worry. I prefer chocolate to alcohol and drugs. On the positive side, I was able to get in10000 steps today, eat normal meal...
by NHMike
Sun May 20, 2018 11:15 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mop up chemo experiences
Replies: 98
Views: 9463

Re: Mop up chemo experiences

This gives me courage to proceed with Thursday's chemo, knowing I have some control of side effects. How come there is so much resistance to this plant? I have never been a pot user, drugs of any kind but this is my miracle. It's been claimed that it's a gateway drug and has been illegal for most o...
by NHMike
Sat May 19, 2018 12:30 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: oxaliplatin how long does neuropathy last
Replies: 24
Views: 2177

Re: oxaliplatin how long does neuropathy last

I have slight neuropathy in the fingers; but it's more pronounced in the toes. I hope that it goes away with time but I have heard of people where it flares up after treatment ends.
by NHMike
Sat May 19, 2018 12:02 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 894
Views: 76113

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

I've gotten in 10K+ steps the past four days and have been hitting the weight machines. They've tired me out quite a bit which makes for really good sleep but sometimes I just want to fall asleep standing. So I'm working on the physical stuff to get into shape for the surgery. Four months is a lot o...
by NHMike
Sat May 19, 2018 11:59 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Question about MSI
Replies: 3
Views: 204

Re: Question about MSI

My mom is having genetic testing on her tumor. She is MSI. I’m confused by some things I’ve read. Would/should her treatment change from Xelox regime to something different? Forgive me for not remembering but there were 4 things that are indicators (not sure if that’s the right terminology). She ha...
by NHMike
Thu May 17, 2018 6:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Hi - looking for advice re possible bowel cancer
Replies: 1
Views: 136

Re: Hi - looking for advice re possible bowel cancer

I went into the hospital emergency room at 2 AM and left at around 6 PM after getting examined, getting a CT Scan and a Colonoscopy and got the official diagnoses within a week (from pathology). The guy that does colonoscopies just happened to be there that day (he does a circuit around my state) an...
by NHMike
Thu May 17, 2018 6:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Pexa-Vec ... Trial Results
Replies: 4
Views: 202

Re: Pexa-Vec ... Trial Results

This, along with the other vaccine trial, provides a lot of promise and hope.
by NHMike
Thu May 17, 2018 4:12 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: radiation therapy & bleeding
Replies: 4
Views: 120

Re: radiation therapy & bleeding

I was diagnosed 3B and had the 28 days of radiation and I don't recall blood coming out but there were tumor flakes that came out and they had blood spots on them. I would guess that was an attachment point to the overall tumor. After Neo-Adjuvant Chemo and Radiation, I had surgery and they removed ...
by NHMike
Thu May 17, 2018 4:03 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colon cancer stage IV
Replies: 3
Views: 398

Re: Colon cancer stage IV

It took about two or three weeks with the Xeloda and Radiation before I cold see the effects on the tumor (it started shedding and passing got easier). It was painful for me (my tumor was 100 cubic centimeters) as well and I worried that it wasn't shrinking; until I had evidence that it was. I did n...
by NHMike
Wed May 16, 2018 7:57 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 894
Views: 76113

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

My reversal was about a month after chemo ended. It had nothing to do with the timing of the scans, but rather waiting for my blood counts to go up. I'm not sure why your oncologist thinks you have to wait to have a scan before having the reversal. What does your surgeon say? My oncologist told me ...
by NHMike
Wed May 16, 2018 5:24 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 894
Views: 76113

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Read the post again and he said that the reversal and port removal would be at the same time. I would take that as a good sign, that they got it all. Congratulations Lee The DFCI oncologist told me that I had a PCR and that I was in the best part of the 69% survival rate last fall. I haven't looked...

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