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by NHMike
Sat Jan 20, 2018 4:20 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Looking For Hope DH Stage IV CRC
Replies: 3
Views: 160

Re: Looking For Hope DH Stage IV CRC

This looks like a relatively rare mutation (G12* are the most common) and I only found https://targetedcancercare.massgeneral.org/My-Trial-Guide/Clinical-Trial/NCT02079740.aspx?context=/My-Trial-Guide/Genes/KRAS/Q61R-(c-182A-G) as matching (it's a KRAS trial - not specific to the gene mutation). You...
by NHMike
Wed Jan 17, 2018 10:38 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 622
Views: 40426

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Mike I am sorry things are so rough for you. I appreciate your honesty as it give those of us behind in treatment you a realistic picture of what's ahead. I don't like euphemisms, but facts. Honestly everyone's comments and suggestions are great. I found No Crack Super Hand Cream works great, doesn...
by NHMike
Wed Jan 17, 2018 11:15 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 622
Views: 40426

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

I called McKesson last night asking where my ostomy supplies were. I had started the ordering process mid-December. They dropped the ball multiple times (I was calling weekly). The guy went through the notes on my account, said that nothing had been done, apologized and said that they'd send them ou...
by NHMike
Tue Jan 16, 2018 6:08 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Goblet Cell Carcinoid
Replies: 5
Views: 253

Re: Goblet Cell Carcinoid

I've never heard of it before either. Will take a quick peek around for papers.
by NHMike
Mon Jan 15, 2018 3:00 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Holiday Weekend Fistula
Replies: 4
Views: 211

Re: Holiday Weekend Fistula

Thank you for your responses. My sister was very worried and we went to Beth Isreal Deaconess ER last night...for hours. My potassium was very low so they gave me the horse pills. Good news is my platlets went from below 50 to 80 in 2 days! They did an adomine to pelvis CT scan to see if any absess...
by NHMike
Mon Jan 15, 2018 9:18 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: NEW-Need some positivity here.
Replies: 384
Views: 19179

Re: NEW-Need some positivity here.

Happy new yr everyone! Hoping you are all ok. Just checking in. Had chemo 5 and the fatigue has been hard. Onc wants me to ge the neulasta shot today. Depression continues. I don’t hear enough stories of stage 3c survivors and I get so worried. Reading everything about diet- trying the green tea, b...
by NHMike
Sun Jan 14, 2018 12:38 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surgery scheduled, clinical study for Lifeseal, questions about recovery
Replies: 20
Views: 461

Re: Surgery scheduled, clinical study for Lifeseal, questions about recovery

I have started having my treatments on Wednesdays. I take Wednesday off, then work from home Thursday and Friday. Thankfully I have the flexibility to do this. I use the weekend to recover, then back to the office on Monday. If I had a more physical job I'm not sure if I could go back so soon. The ...
by NHMike
Sun Jan 14, 2018 12:00 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surgery scheduled, clinical study for Lifeseal, questions about recovery
Replies: 20
Views: 461

Re: Surgery scheduled, clinical study for Lifeseal, questions about recovery

Regarding working and infusions. I have had two so far and I worked from home in the afternoon of both. It's challenging though because of the cold sensitivity and other side-effects. I have gone into the office the next day after both infusions but the second time was harder and I did nap at my des...
by NHMike
Sun Jan 14, 2018 11:49 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Beansmama is gone.
Replies: 37
Views: 1762

Re: Beansmama is gone.

It's disheartening when this happens and when I see so many people struggling. Anyone know what happened? I thought that she was doing okay on Keytruda.
by NHMike
Sun Jan 14, 2018 8:51 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surgery scheduled, clinical study for Lifeseal, questions about recovery
Replies: 20
Views: 461

Re: Surgery scheduled, clinical study for Lifeseal, questions about recovery

I work a desk job and took two weeks off after surgery. That worked out fairly well for me but I did a lot of weight training before surgery to make recovery easier. The bag was definitely a challenge and it really helps if you have someone to help you change the bag. The challenges of the bag: - Ch...
by NHMike
Fri Jan 12, 2018 2:14 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Question for Canadians re genomic testing
Replies: 20
Views: 520

Re: Question for Canadians re genomic testing

Interesting study. It appears that they want to see whether or not doing the testing is overall beneficial for patients with Stage 4 (of course it is).
by NHMike
Thu Jan 11, 2018 8:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Xeloda or 5fu only for adjuvant chemotherapy?
Replies: 7
Views: 189

Re: Xeloda or 5fu only for adjuvant chemotherapy?

I'm a bit surprised that you had a recommendation for Oxaliplatin at Stage 1 but your oncologist knows more about your case than I do. Are you at a major cancer center? If not, perhaps you could go for a second opinion at a major cancer center.
by NHMike
Thu Jan 11, 2018 8:53 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Got good news today!
Replies: 12
Views: 569

Re: Got good news today!

That sounds like great news and especially as it means progress.

I'm really glad that the Oxaliplatin is so effective in attacking cancer.
by NHMike
Thu Jan 11, 2018 1:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: any peeps with BRAF mutation on here?
Replies: 120
Views: 3759

Re: any peeps with BRAF mutation on here?

Cardiologist has been trying to get me but of corse I ignore, you know like you do... so get this one. I thought I had a heart attack November 29. Figured I was just being a girl or anxiety attack. That was some chest crusher let me tell you. Next day weak couldn’t walk. So finally went for stress,...
by NHMike
Thu Jan 11, 2018 12:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 622
Views: 40426

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Either calories or electrolytes has something to do with the cold sensitivity. I was feeling it late this morning and went down to get some food and tossed a ton of salt in and that stopped the cold sensitivity. So not sure that it's the lytes or the calories but I guess I need to do some testing to...

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