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by NHMike
Mon Sep 23, 2019 6:42 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Diagnosed while working abroad
Replies: 33
Views: 1839

Re: Diagnosed while working abroad

Hi, Thanks everyone for the replies. I thought I would post an update from last week. There are two hospitals in my city that are certified for colo-rectal cancer. The smaller one is the one I visited before (they do about 40 rectal surgeries per year, but I had trouble communicating with the surge...
by NHMike
Sun Sep 22, 2019 9:08 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surgery Pathology Report
Replies: 22
Views: 542

Re: Surgery Pathology Report

I have hand and foot in my hands. But it is very mild. It is a bit worse in cold weather but it doesn’t stop me from doing what I did before diagnosis Hi Mike, sorry to hear you’re still dealing with this. Just to check - you definitely mean hand & foot syndrome, not neuropathy? Yup. I have neu...
by NHMike
Sun Sep 22, 2019 8:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surgery Pathology Report
Replies: 22
Views: 542

Re: Surgery Pathology Report

Wow, I didn't realize that hand/foot could be permanent. Sounds like its a really good thing that you have the MSK consult scheduled. More clarity would help. I've had it for 15 months so I'm considering it permanent. Of course if it goes away in the next year, two, five or ten, I'll get to change ...
by NHMike
Sun Sep 22, 2019 3:41 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1544
Views: 328986

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Hi! The colostomy was reconnected when they operated the tumor and made an ileostomy instead. They used the same opening (so my ileo was on the left side). All the best Claudia It sounds like you don't have a bag if I'm reading the timeline correctly. It would be quite amazing if you could run as f...
by NHMike
Sun Sep 22, 2019 3:02 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Upcoming Surgery
Replies: 17
Views: 690

Re: Upcoming Surgery

12 CM should be very good. Best wishes for a successful surgery and we'll see you on the other side.
by NHMike
Sun Sep 22, 2019 11:36 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Quick intro -- diagnosed Friday
Replies: 129
Views: 10858

Re: Quick intro -- diagnosed Friday

I never smelled anything weird, fortunately. I got cold sensitivity with every infusion, so I could not have done the ice chips thing. I had to ask the nurses not to put ice in my water and even then it was sometimes too cold. So I eventually started to microwave water to heat it up a bit, and take...
by NHMike
Sun Sep 22, 2019 10:08 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surgery Pathology Report
Replies: 22
Views: 542

Re: Surgery Pathology Report

I have hand and foot in my hands. But it is very mild. It is a bit worse in cold weather but it doesn’t stop me from doing what I did before diagnosis. I still play tennis, spend a lot of time typing and I can deadlift 225 pounds. The fingers are the weakest link in the deadlift as that’s usually th...
by NHMike
Sun Sep 22, 2019 8:42 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surgery Pathology Report
Replies: 22
Views: 542

Re: Surgery Pathology Report

My meeting with the oncologist was not bad. He explained everything and said to come back in one week to tell him which option I choose. This is based on the fact that some of the cancer cells may have escaped and got into the liver. I have the following options: #1 – Do Nothing. He says out of 100...
by NHMike
Sat Sep 21, 2019 4:15 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Questions regarding Folfox treatments
Replies: 13
Views: 231

Re: Questions regarding Folfox treatments

Chemo is tough and things happen to your body, sometimes unexpectedly. I did a lot of walking and some weight-training but there were things that I couldn't do because of the ileostomy. I'd say workout but take it easy. I'm stronger today than I was before chemo but that's because I'm lifting much h...
by NHMike
Sat Sep 21, 2019 4:12 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Questions regarding Folfox treatments
Replies: 13
Views: 231

Re: Questions regarding Folfox treatments

The other option on Oxaliplatin besides lowering the dose is to take a chemo break. I took one of these for one week two times.
by NHMike
Sat Sep 21, 2019 4:11 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Questions regarding Folfox treatments
Replies: 13
Views: 231

Re: Questions regarding Folfox treatments

I had cramps following infusions and sometimes before them. The oncologist sometimes added magnesium to the infusion IV. I've had cramps in the past from working out. Normally I get enough in electrolytes from regular food but I would supplement with table salt. With chemo, I've added magnesium tabl...
by NHMike
Fri Sep 20, 2019 11:59 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1544
Views: 328986

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

So nice that you had 4 days without issues in a row! I hope it is just the start of a new normality. The hospital adviced lactulose when I was doing radiation. How is it going with training? Here it is autumn now and raining a lot. I try to run three times a week and do strength twice, but the weat...
by NHMike
Fri Sep 20, 2019 7:24 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1544
Views: 328986

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Done in about 30 minutes this morning. I also got a good night's sleep. So about four good days in a row. It's actually pretty amazing when you're so used to waking up three to four times in the middle of the night. I am still undecided about the Miralax. I was originally planning to use it just to...
by NHMike
Fri Sep 20, 2019 5:42 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1544
Views: 328986

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Done in about 30 minutes this morning. I also got a good night's sleep. So about four good days in a row. It's actually pretty amazing when you're so used to waking up three to four times in the middle of the night. I am still undecided about the Miralax. I was originally planning to use it just to ...
by NHMike
Thu Sep 19, 2019 7:19 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Newly diagnosed rectal cancer
Replies: 136
Views: 8599

Re: Newly diagnosed rectal cancer

For me, the diarrhea started in about the 3rd week of radiation, and hung around until maybe 2 weeks after I finished. However it did seem to get “better” in the sense that it wasn’t as uncomfortable - I’m not sure why but it seemed like my anatomy just sort of got used to it a bit? I was told diar...

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