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by NHMike
Tue Jul 17, 2018 9:46 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Just Diagnosed
Replies: 20
Views: 481

Re: Just Diagnosed

My tumor was so big that it popped out from time to time. The measurement of 5.? cm from AV was done after chemo and radiation. I don't recall what (or if) the measurement was before chemo and radiation. I think that your question is one for the radiology oncologist.
by NHMike
Tue Jul 17, 2018 3:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Just Diagnosed
Replies: 20
Views: 481

Re: Just Diagnosed

My surgeon told me a few weeks ago that she could always do a colostomy if it was too hard with the reversal.
by NHMike
Tue Jul 17, 2018 2:58 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Leakage.....
Replies: 3
Views: 246

Re: Leakage.....

I used Depends Shield for men for leakage from radiation. These are quite thin and they're not huge so sometimes I used two of them end-to-end. These may be more comfortable than the much larger ones with complete coverage.
by NHMike
Tue Jul 17, 2018 12:28 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Just Diagnosed
Replies: 20
Views: 481

Re: Just Diagnosed

Hi. Does all this mean I am going to have a colostomy bag? Or does it mean there is nothing the surgeon can do? I noticed that this report is a lot lower Your surgeon would tell you about the odds of a colostomy. I had chemo and radiation to shrink the tumor. It shrank more than 90%. The surgeon wa...
by NHMike
Mon Jul 16, 2018 10:22 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mop up chemo experiences
Replies: 157
Views: 15516

Re: Mop up chemo experiences

Adele, I haven't seen you post in a while, glad to hear you made it through first round. I also had, have the rock in my throat which doesn't go away, a fan or cool temps make it worse. My tongue and roof of mouth feel funny as well. I can only tolerate warm liquids. My feet and hands are intoleran...
by NHMike
Mon Jul 16, 2018 8:49 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mop up chemo experiences
Replies: 157
Views: 15516

Re: Mop up chemo experiences

Michael Brava tape from coloplast is brilliant,,,, It's semi circle so fits perfectly Not sure Uve tried it, if not deffinatly do,,,, were Lucky in Ireland because they will give u anything y need to get through Ur chemo or ostomy process, I know u lot are limited with Ur insurance companies. Adele...
by NHMike
Mon Jul 16, 2018 6:49 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mop up chemo experiences
Replies: 157
Views: 15516

Re: Mop up chemo experiences

I add two-inch wide Hypafix tape around the wafer tape and also use a belt that attaches to the wafer. I won't run without the added security of the stuff to hold the wafer in place.

Everyone figures out what works for them.
by NHMike
Sun Jul 15, 2018 10:40 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mop up chemo experiences
Replies: 157
Views: 15516

Re: Mop up chemo experiences

Hi guys, while im delighted to see u all come through this alive and kicking,,, I on the other hand am n the horrors I'm post 1st FOLFOX chemo 5 days,,, while I thought I would chick to death day after disconnect, Thursday Today Sunday I feel kinda" normal" As per New European protocol, I...
by NHMike
Sat Jul 14, 2018 8:27 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Salami
Replies: 33
Views: 1014

Re: Salami

"but maybe feeling good and relaxed is important too??" Absolutely... which is why I don't push him to do healthy things in way that stresses him out or gets a negative reaction. However, my own test results that I got at the end of June were extremely interesting relative to the issue of...
by NHMike
Fri Jul 13, 2018 7:21 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1023
Views: 90855

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

I found a study indicating that CEA went down with exercise but I doubt that they were talking about the exercise levels that some do here. All of the walking I do does cause some inflammation - I get a little chondromalacia (knee-tracking issues) from time to time and it results in losing cartilag...
by NHMike
Fri Jul 13, 2018 6:58 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Salami
Replies: 33
Views: 1014

Re: Salami

It sounds like it counteracts stress which is a good thing.
by NHMike
Fri Jul 13, 2018 3:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Just Diagnosed
Replies: 20
Views: 481

Re: Just Diagnosed

There's a chart at https://cancerstaging.org/references-to ... Medium.pdf which explains what you have. It looks like Stage I cancer to me.
by NHMike
Fri Jul 13, 2018 3:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Worried about recurrence.
Replies: 4
Views: 344

Re: Worried about recurrence.

I'm hoping that you can get some down time and take a break. Perhaps a friend, relative might be able to help out for a while.
by NHMike
Thu Jul 12, 2018 1:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1023
Views: 90855

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

I noticed a leak in my bag two days ago - slow but annoying. It appears to be due to a misaligned Velcro strip not sealing the bottom of the bag all of the way. I put some Hypafix tape to try to contain it but I think that I'm just going to change it now. The annoying thing is that the next bag has...
by NHMike
Thu Jul 12, 2018 1:36 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: what happens after chemo?
Replies: 15
Views: 471

Re: what happens after chemo?

Our local hospital is a different system but I have access to my records, can download and send them to Stanford but the visiting doctor's note are not detailed. I will try anyway and hope it is enough. In the mean time I will try to schedule the enema, things tend to book out months in advance out...

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