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by NHMike
Mon Jul 15, 2019 7:11 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CLUSTERINGGGGGGGGG!!!!!!!
Replies: 33
Views: 1206

Re: CLUSTERINGGGGGGGGG!!!!!!!

Clustering is miserable, painful and time consuming. My radiation onc told me to never wipe my bottom clean. He said always "pat, pat, pat" and get the same results without hurting yourself. He also gave me several peri-anal bottles (I think that is what they are called) to squirt myself ...
by NHMike
Mon Jul 15, 2019 7:52 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CLUSTERINGGGGGGGGG!!!!!!!
Replies: 33
Views: 1206

Re: CLUSTERINGGGGGGGGG!!!!!!!

I don't think I have LARS. My issue is that sometimes I have pooping 4-5 times a day, then someday its one time. The problem is it starts to burn sometimes when I go 4-5 times a day, also the unpredictability of it all makes it hard to do a job, or meet with clients, or do uber/lyft.etcc...I have m...
by NHMike
Mon Jul 15, 2019 7:30 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1488
Views: 309021

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

It was a horrible weekend and this morning but those things happen. Takeaways: - Get back to fasting more diligently - Get enough sleep so that I wake up if there's a signal or go back to setting an alarm at 3:00 AM - Eat smaller meals The Nopalina seems to be a net benefit in getting things out fas...
by NHMike
Sat Jul 13, 2019 2:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CLUSTERINGGGGGGGGG!!!!!!!
Replies: 33
Views: 1206

Re: CLUSTERINGGGGGGGGG!!!!!!!

Yesterday was worse then normal. I clustered and I don't know what caused it maybe it was the Jambalaya I made, My wife was craving it. I use the Zatarain's® Jambalaya Rice Mix - 8oz. Either way I hate Clustering, its burns the butt and It's annoying. Your day is pretty much shot. I miss my Ileosto...
by NHMike
Sat Jul 13, 2019 2:54 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CLUSTERINGGGGGGGGG!!!!!!!
Replies: 33
Views: 1206

Re: CLUSTERINGGGGGGGGG!!!!!!!

Mike if I'm stressed it won't work eg , yesterday had to catch a flight to Spain. Had to b at the airport at about 9 am .... Awake all night worried, Then got up at 7 am took my bicarbonate ( :twisted: :twisted: :twisted: :twisted: :twisted: still waiting at 8!45 !!!!!) It always happens when I hav...
by NHMike
Wed Jul 10, 2019 8:15 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1488
Views: 309021

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

40 ours of GI peace and it has been so suite. My Garmin says my stress levels are way down this morning at 21. The high was in the mid-60s a few days ago. I expect to go to the bathroom within the next four hours (it will be 48 hours since I started eating on Monday in four hours). I gained about 38...
by NHMike
Wed Jul 10, 2019 8:09 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colon Cancer Stage 3 May2019 new member
Replies: 5
Views: 407

Re: Colon Cancer Stage 3 May2019 new member

I did not experience those symptoms but did experience arthritis-like feelings in my hands and I believe it was due the Xeloda. This was different from the Neuropathy which I experienced in my toes from the Oxaliplatin. I still have the feelings in my fingers but it is very mild; most of the time I ...
by NHMike
Wed Jul 10, 2019 8:05 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scared Son, dad maybe has IIIC? Can anyone help me understand this pathology?
Replies: 7
Views: 624

Re: Scared Son, dad maybe has IIIC? Can anyone help me understand this pathology?

Neoadjuvant Chemo and Radiation are usually for Rectal Cancer. With Colon Cancer, they can just remove it and then decide on Adjuvant Chemo. IIIC is scary but a lot of people survive. The Genomic Tumor testing mentioned above is not always covered by insurance and it's not available everywhere as mo...
by NHMike
Wed Jul 10, 2019 7:59 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CLUSTERINGGGGGGGGG!!!!!!!
Replies: 33
Views: 1206

Re: CLUSTERINGGGGGGGGG!!!!!!!

I'm planning to experiment more with Miralax. I've been doing more experiments but progress is slow. I will add Baking Soda to my list of things to consider.

I threw out a bunch of Imodium after the disaster on my trip to Orlando. I will throw out the rest this week.

I can't live without beans.
by NHMike
Wed Jul 10, 2019 7:53 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Ice Pop During Chemo
Replies: 6
Views: 328

Re: Ice Pop During Chemo

It's not permanent. I started XELOX in December 2017 in New Hampshire. First day going home it was about 24 degrees and there was a blizzard out. My hands were in pain because the steering wheel was so cold. So it may be painful but it will go away. I think that my eyes froze open too and breathing ...
by NHMike
Sat Jul 06, 2019 11:28 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ June 26/2019
Replies: 262
Views: 104798

Re: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ June 26/2019

CR your situation is a good reminder to all cancer sufferers that there is a whole book full of stuff trying to kill us. It is not just cancer we have to worry about. I have just spent two days in hospital, I have been under the control of a senior cardiologist for over four years. I remember an on...
by NHMike
Sat Jul 06, 2019 5:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1488
Views: 309021

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

I used Imodium yesterday for the first time since 2018 to get some control. It did not go well. If you have any kind of obstruction, don’t use Imodium.
by NHMike
Sat Jul 06, 2019 5:16 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: O/T How do I post photos?
Replies: 6
Views: 249

Re: O/T How do I post photos?

You need to upload your pictures to an image hosting site and then inline link them at this forum. Some forums allow you to upload images but most don’t because it results in a huge amount of storage over time. It’s a bit of work figuring out the hosting and sometimes you have to create an account. ...
by NHMike
Sat Jul 06, 2019 5:14 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Reversal post-op nightmare :(
Replies: 14
Views: 858

Re: Reversal post-op nightmare :(

I’m glad that she’s through this setback.

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