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by NHMike
Fri Sep 21, 2018 7:12 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Finally....some really great news!!!
Replies: 39
Views: 3941

Re: Finally....some really great news!!!

I dug up this old thread that I had started to share recent good news. Husband had a colonoscopy Wednesday. His results: completely clear not even a tiny polyp in sight. He only has about 7 inches of colon - so not much territory for one to develop. This was his first since his subtotal colectomy a...
by NHMike
Fri Sep 21, 2018 7:12 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Finally....some really great news!!!
Replies: 39
Views: 3941

Re: Finally....some really great news!!!

I dug up this old thread that I had started to share recent good news. Husband had a colonoscopy Wednesday. His results: completely clear not even a tiny polyp in sight. He only has about 7 inches of colon - so not much territory for one to develop. This was his first since his subtotal colectomy a...
by NHMike
Fri Sep 21, 2018 7:10 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: IMMUNOTHERAPY
Replies: 1
Views: 94

Re: IMMUNOTHERAPY

Hello Adele, There are likely two services here: one that determines whether or not you are MSI-High or not. People that are MSI-High are generally good candidates for Immunotherapy drugs like Keytruda and Opdivo. The other test is a standard next-gen genomic tumor analysis. They will request your b...
by NHMike
Thu Sep 20, 2018 2:45 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Post-Op Bowel Issues - What's Worked for You?
Replies: 4
Views: 154

Re: Post-Op Bowel Issues - What's Worked for You?

I had diarrhea when I had an Ileostomy and there were certain foods that did a good job soaking things up and potatoes and sweet potatoes definitely did that. Diarrhea in the bag was only a problem in that it was so liquidy and could result in leakage and stinging problems and it could spoil the gas...
by NHMike
Thu Sep 20, 2018 9:13 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1277
Views: 115683

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

This watch provides something called the Stress Level and it looks like it is computed by looking at your heart rate relative to your activity level. It's amazingly sensitive. You can see the level rise and fall with your emotional state. If you get angry or upset, the level rises and then falls whe...
by NHMike
Thu Sep 20, 2018 9:10 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: NEW-Need some positivity here.
Replies: 461
Views: 51749

Re: NEW-Need some positivity here.

what a nerve wracking experience, more so than actual diagnosis. so i couldn't bear it, the anxiety afterwards. my wife called the dr's office from Riyadh to pester them about the results of my PET/CT scan today....and I am still NED. nothing. it's a wave of euphoria to say the least, but it lasted...
by NHMike
Wed Sep 19, 2018 11:49 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1277
Views: 115683

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

I had two days with going to the bathroom after midnight for about 90 minutes. The good part is that I was completely cleaned out and it made the test of the day easy. The only difference in routine was a Greek Salad both days. So I had one this evening to see if that becomes a natural laxative. I h...
by NHMike
Wed Sep 19, 2018 11:39 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surgery Next Week
Replies: 7
Views: 426

Re: Surgery Next Week

Glad you caught it early as treatment should be a lot easier.
by NHMike
Tue Sep 18, 2018 7:06 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: what happens after chemo?
Replies: 22
Views: 1386

Re: what happens after chemo?

Caat55 wrote:CT CAP 9/11/2018 NED


Welcome to the club. Be sure to stay.
by NHMike
Tue Sep 18, 2018 7:04 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Any body knows of Clinical trials for BRAF 600?
Replies: 4
Views: 335

Re: Any body knows of Clinical trials for BRAF 600?

My wife had 8 rounds of FOLFOX + ERBUTAX and 4 rounds of FOLFIRI + ERBUTAX but the recent scans showed new tumors in the peritoneum. Oncologist wants her to stop Conventional Chemo and start with clinical trials. We live in DFW area. Does any one know of promising clinical trials for BRAF mutation ...
by NHMike
Mon Sep 17, 2018 8:24 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mop up chemo experiences
Replies: 192
Views: 23111

Re: Mop up chemo experiences

It’s the best of news.
by NHMike
Mon Sep 17, 2018 7:07 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1277
Views: 115683

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

I like also that is calculating your VO2 max. It is nice to track progress! Claudia Most reviews for these watches say that you need to be a professional or very dedicated athlete to get the most out of these watches but they have a lot of features for ordinary people too. I'm not really sure what ...
by NHMike
Sun Sep 16, 2018 7:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1277
Views: 115683

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

It was eight days after the last Imodium that I took another one. I wanted to see how well I could manage without it. Things were good for the first five days but they got progressively worse and I took one last night. It allowed me to sleep well last night and I'll take another one early in the mor...
by NHMike
Sun Sep 16, 2018 6:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1277
Views: 115683

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

I know some doctors recommend or have no problems with enemas while others are not onboard. It may be too soon after your reversal. I was a year and a half after my reversal before enemas were recommended to me. I went through a couple tests, met with a dietician, and had pelvic floor therapy. The ...

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