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by NHMike
Tue Mar 31, 2020 11:04 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Precautions at MD Anderson?
Replies: 4
Views: 369

Re: Precautions at MD Anderson?

Dana Farber has been sending me about one email a week talking about the restrictions that they keep adding. The latest is where they have cell-phone parking areas for those driving patients to Dana Farber. I guess you drop off the patient at the door, drive to one of these lots and wait for a phone...
by NHMike
Tue Mar 31, 2020 10:59 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Chemo break due to covid-19 outbreak
Replies: 14
Views: 695

Re: Chemo break due to covid-19 outbreak

I had my 3-month surveillance at Dana Farber in Boston in early February and they moved me to 6-month visits. Dana Farber is cancer-only (they do some rare blood disorders too) so I feel better about that and they have been regularly adding restrictions. But I'm not even feeling good about going int...
by NHMike
Tue Mar 31, 2020 10:51 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 2weeks post Ileostomy Reversal... 4 months post LAR
Replies: 2
Views: 156

Re: 2weeks post Ileostomy Reversal... 4 months post LAR

I have had Small Bowel Obstructions, one requiring a visit to the ER and an overnight stay. Mine is due to scar tissue around the ileostomy site. It is constricted but it's only a problem if I eat too much at one time. Several small amounts of food several times a day is much better than big meals. ...
by NHMike
Fri Mar 27, 2020 8:18 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1668
Views: 389208

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

I've been working from home for the past two weeks and I've noticed less clustering than before.

It's possible that it's due to less coffee as I haven't had any in two weeks. I normally get it at the office and I'm not comfortable with buying it at coffee stores right now.
by NHMike
Tue Mar 24, 2020 4:57 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: One year anniversary and now delayed surveillance
Replies: 6
Views: 560

Re: One year anniversary and now delayed surveillance

My physical therapy appts--for arthralgia caused by Keytruda--have been cancelled, as have my accupuncture appts for the same thing. My colonoscopy--ironically, a 10-year followup to my first in 2010!--was cancelled. My insurance company FINALLY authorized an MRI instead of a CT, but it looks like ...
by NHMike
Tue Mar 24, 2020 3:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1668
Views: 389208

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

In Maryland we are not technically being told to shelter in place, but all nonessential businesses are now closed and we cannot gather in groups larger than 10. We have 349 cases in our state, mostly in the DC suburbs; 24 in my county and 41 in Baltimore City proper. Mike, I have a friend who just ...
by NHMike
Tue Mar 24, 2020 2:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I hate CEA Test
Replies: 3
Views: 421

Re: I hate CEA Test

Rikimaroo wrote:Thanks NHMike. Yes I have 3 months surveillance plan at the moment. Next tests in May, so hopefully it does go down. Is there any recommendations on things to take perhaps to help? Natural stuff? :P


Not that I know of. I'd rather have the real number anyways.
by NHMike
Tue Mar 24, 2020 8:08 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1668
Views: 389208

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Five inches of heavy, wet snow this morning. It was quite refreshing clearing off the cars, shoveling and clearing the roof. It was about 37 degrees, sunny, no wind. I'm going to try to run this afternoon as it is supposed to get into the low 50s. The ground will be wet with melting snow but all of ...
by NHMike
Tue Mar 24, 2020 8:07 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: One year anniversary and now delayed surveillance
Replies: 6
Views: 560

Re: One year anniversary and now delayed surveillance

Thank you Stu, I hope they will come up with a safe plan. NHMike, we are going to call and ask—that bloodwork was supposed to be up at Mayo as well same day as scan so now we are wondering if we should get it local “on time” (or if that’s even safe...) Unrelated NHMike but I was reading your signat...
by NHMike
Mon Mar 23, 2020 4:38 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: One year anniversary and now delayed surveillance
Replies: 6
Views: 560

Re: One year anniversary and now delayed surveillance

My August appointments for CEA will likely get delayed. Could you get the CEA on time?
by NHMike
Mon Mar 23, 2020 4:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I hate CEA Test
Replies: 3
Views: 421

Re: I hate CEA Test

I think that many of us have run into this - hopefully it's nothing. I assume that you're getting 3-month blood tests so you should have another next month, hopefully it goes down.
by NHMike
Mon Mar 23, 2020 4:32 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1668
Views: 389208

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

I'd guess that everyone is trying to figure out the new normal with finding toilet paper or sanitizing wipes to figuring out how to go to their hospital now. I've received a number of emails from Dana Farber on increasing restrictions on patient visits and also from Brigham and Womens. My next appoi...
by NHMike
Mon Mar 23, 2020 4:22 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer stage IV
Replies: 187
Views: 55254

Re: Rectal cancer stage IV

Hi! Today I had a new rectoscopy and they also give me the results of the CAT scan of abdomen and ecography to the lungs. Everything is fine, CEA normal. :D :D :D Next check in six months! Now I will celebrate with a walk in the fields with my dog: https://imgur.com/a/oOnMM24? All the best Claudia ...
by NHMike
Mon Mar 23, 2020 4:04 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: For Stage III's: NED for how long now?
Replies: 778
Views: 308154

Re: For Stage III's: NED for how long now?

Always good to see success stories. I'm sure you're looking forward to #5 and making the books.
by NHMike
Tue Mar 10, 2020 3:20 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1668
Views: 389208

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

I haven't been to Whole Foods to look for Potassium yet but I'll look for it on my next trip. I did some hills today and that's really different. We have lots of hills where I work but it's flat at home so I will try to do hills on a regular basis. What I've found is that running on a treadmill or t...

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