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by NHMike
Sat Sep 12, 2020 11:16 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Constipation after Ileostomy Reversal
Replies: 8
Views: 561

Re: Constipation after Ileostomy Reversal

Certain foods are known to slow things down. Potatoes slow things down a lot for me. A prebiotic and/or probiotic might help. I find that Dulcolax is quite a stronger laxative compared to Miralax and will be productive within eight hours while Miralax can take up to a few days. I haven't taken a lax...
by NHMike
Fri Sep 11, 2020 10:35 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1714
Views: 425953

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Mike I setup a IRA with JP Morgan Chase and logged into my 401k account online and requested a rollover withdrawal, check payable to the institution where the IRA is. It was all really simple and completed in about 2 weeks total. 401K company mailed mea check - I had to take the check to the bank (...
by NHMike
Thu Sep 10, 2020 4:59 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 3b with Mets to my liver
Replies: 3
Views: 557

Re: Stage 3b with Mets to my liver

I'm glad that you're NED (No Evidence of Disease) and I think that we all share the concern that it will return but you have to live your life as well. I assume that you're on surveillance now and you'll think about recurrence at every appointment, scan or test. But it will gradually fade over time ...
by NHMike
Thu Sep 10, 2020 4:55 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1714
Views: 425953

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

It's been one month and six days since losing my job and I've been adjusting to the world of being unemployed and it's not bad. I wanted to schedule an appointment with my surgeon but I technically didn't have health insurance coverage for the past 2 1/2 weeks. I received the COBRA letter confirming...
by NHMike
Sun Aug 30, 2020 12:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Onc appt
Replies: 16
Views: 2400

Re: Onc appt

beach sunrise wrote:Thank you for the update, Riki! Thanks for sharing the side effect of hands getting dark. I was wondering why lines on my palms are dark. No pigmentation on the back of my hands yet. I didn't have that with the pump.


It's a common side-effect. Back of the hands and top of the toes.
by NHMike
Sat Aug 29, 2020 5:49 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Opinions welcome: how old to test?
Replies: 4
Views: 497

Re: Opinions welcome: how old to test?

I think that 35 is reasonable.
by NHMike
Sat Aug 29, 2020 6:15 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Constipation During Radiation/Chemo
Replies: 4
Views: 510

Re: Constipation During Radiation/Chemo

Could you post a diagnosis and history in your signature as I'm not sure what you have. I had CRT for six weeks for rectal cancer and went through alternating diarrhea and constipation and also lost weight but nothing like what you are going through. I had not hear of a treatment for six months befo...
by NHMike
Sat Aug 29, 2020 6:06 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Black Panther Actor Dead at 43
Replies: 14
Views: 1832

Re: Black Panther Actor Dead at 43

I'm stunned - he had the best medical care available and he was in great physical shape. I'd love to know more but that's unlikely. The only place I see details is on this board.
by NHMike
Fri Aug 28, 2020 8:14 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1714
Views: 425953

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

It's been a month and things have generally improved. I've not worked in my job for three weeks and my cardiac numbers, except for VO2Max, are a lot better. The combination of more sleep, less stress and more exercises have made changes for the better. It has been a busy three weeks though. Stuff re...
by NHMike
Sun Aug 16, 2020 9:52 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Not tolerating Xeloda. Are there any options?
Replies: 15
Views: 2410

Re: Not tolerating Xeloda. Are there any options?

I had minimal side-effects with Xeloda and had just about all of them with Oxaliplatin and I have the impression that the vast majority have a tougher time with the latter. You could try the pump instead of the pills as I've heard that that's tolerated better. Your oncologist should suggest that opt...
by NHMike
Fri Aug 14, 2020 2:38 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Onc appt
Replies: 16
Views: 2400

Re: Onc appt

Ya, I feel great! Bloodwork is scary concerning. I wanted to move to less days of xeloda for a lil bit anyway because WBC, RBC, neutrophils and platelets are taking a hit and afraid it may mean stop completely for a while to let them rise. My logic was 8 or 7 days on to give my counts enough time t...
by NHMike
Fri Aug 14, 2020 10:10 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Ileostomy Reversal Surgery Aftermath
Replies: 2
Views: 1123

Re: Ileostomy Reversal Surgery Aftermath

I'm two years out and still sleep on a recliner. Things are a lot better compared to the first three months. Many try to find some combination of supplements to speed things up or slow them down provide bulking to reduce clustering. I usually take a kit with me to deal with problems though I'm takin...
by NHMike
Fri Aug 14, 2020 6:40 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Onc appt
Replies: 16
Views: 2400

Re: Onc appt

You sound like you're doing great. Yes, your bloodwork does look scary but the Oncs say it's okay.

I gained weight during chemo which happens but most seem to lose weight through it.
by NHMike
Fri Aug 14, 2020 6:15 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Trying to select a surgeon and hospital in Mass
Replies: 8
Views: 1313

Re: Trying to select a surgeon and hospital in Mass

The overall organization is Mass General Brigham and they recently changed their name from Partners Healthcare. Dana Farber actually doesn't provide surgical or in-patient services. Brigham and Women's Hospital provides surgical and in-patient services for Dana Farber patients. The main campus of Br...
by NHMike
Thu Aug 06, 2020 5:53 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1714
Views: 425953

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

I have my first appointment at Dana Farber since before the pandemic started tomorrow morning. They called today with a list of COVID questions. I'm planning on driving down around 5:15 AM to get there at 6:15 AM for bloodwork and a 7:30 AM appointment. I'll wear my own mask into the building and t...

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