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by NHMike
Sun Jul 15, 2018 10:40 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mop up chemo experiences
Replies: 149
Views: 15224

Re: Mop up chemo experiences

Hi guys, while im delighted to see u all come through this alive and kicking,,, I on the other hand am n the horrors I'm post 1st FOLFOX chemo 5 days,,, while I thought I would chick to death day after disconnect, Thursday Today Sunday I feel kinda" normal" As per New European protocol, I...
by NHMike
Sat Jul 14, 2018 8:27 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Salami
Replies: 33
Views: 916

Re: Salami

"but maybe feeling good and relaxed is important too??" Absolutely... which is why I don't push him to do healthy things in way that stresses him out or gets a negative reaction. However, my own test results that I got at the end of June were extremely interesting relative to the issue of...
by NHMike
Fri Jul 13, 2018 7:21 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1023
Views: 90319

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

I found a study indicating that CEA went down with exercise but I doubt that they were talking about the exercise levels that some do here. All of the walking I do does cause some inflammation - I get a little chondromalacia (knee-tracking issues) from time to time and it results in losing cartilag...
by NHMike
Fri Jul 13, 2018 6:58 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Salami
Replies: 33
Views: 916

Re: Salami

It sounds like it counteracts stress which is a good thing.
by NHMike
Fri Jul 13, 2018 3:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Just Diagnosed
Replies: 1
Views: 187

Re: Just Diagnosed

There's a chart at https://cancerstaging.org/references-to ... Medium.pdf which explains what you have. It looks like Stage I cancer to me.
by NHMike
Fri Jul 13, 2018 3:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Worried about recurrence.
Replies: 3
Views: 282

Re: Worried about recurrence.

I'm hoping that you can get some down time and take a break. Perhaps a friend, relative might be able to help out for a while.
by NHMike
Thu Jul 12, 2018 1:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1023
Views: 90319

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

I noticed a leak in my bag two days ago - slow but annoying. It appears to be due to a misaligned Velcro strip not sealing the bottom of the bag all of the way. I put some Hypafix tape to try to contain it but I think that I'm just going to change it now. The annoying thing is that the next bag has...
by NHMike
Thu Jul 12, 2018 1:36 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: what happens after chemo?
Replies: 15
Views: 418

Re: what happens after chemo?

Our local hospital is a different system but I have access to my records, can download and send them to Stanford but the visiting doctor's note are not detailed. I will try anyway and hope it is enough. In the mean time I will try to schedule the enema, things tend to book out months in advance out...
by NHMike
Thu Jul 12, 2018 10:20 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Salami
Replies: 33
Views: 916

Re: Salami

There is quite a bit of evidence that regular exercise post cancer diagnosis can help prevent a reoccurrence. http://blog.dana-farber.org/insight/2018/02/can-exercise-reduce-risk-cancer-recurrence/ My onc, Dr. B, is a huge advocate of exercise, especially walking. Best Wishes, peanut I worked out a...
by NHMike
Thu Jul 12, 2018 6:44 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1023
Views: 90319

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

I noticed a leak in my bag two days ago - slow but annoying. It appears to be due to a misaligned Velcro strip not sealing the bottom of the bag all of the way. I put some Hypafix tape to try to contain it but I think that I'm just going to change it now. The annoying thing is that the next bag has ...
by NHMike
Wed Jul 11, 2018 7:06 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: what happens after chemo?
Replies: 15
Views: 418

Re: what happens after chemo?

My surgeon needs a treatment summary so I called local oncologist and was told I needed to come in for another appointment. I asked why as seeing me shouldn't be necessary for them to basically give a historical timeline of treatment, it is all in medical record, but they insist. They are sticking ...
by NHMike
Tue Jul 10, 2018 7:53 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CEA false positives?
Replies: 11
Views: 394

Re: CEA false positives?

So far haven't found anyone on the forums remotely close to what I'm going through. Last year went in for my 3 month routine checkup. Had one in December with a clear scan and CEA at around 5.4 if I recall correctly. I've always been on the high side so that number hasn't been alarming. March thing...
by NHMike
Tue Jul 10, 2018 6:44 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1023
Views: 90319

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

I found a study indicating that CEA went down with exercise but I doubt that they were talking about the exercise levels that some do here. All of the walking I do does cause some inflammation - I get a little chondromalacia (knee-tracking issues) from time to time and it results in losing cartilage...
by NHMike
Tue Jul 10, 2018 5:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CEA false positives?
Replies: 11
Views: 394

Re: CEA false positives?

I'm kind of in this space right now. CEA went from 3.2 to 4.5 in a month (3.8 and lower is normal). Oncologist ordered a CT scan which came back clean. The increase coincided with much more exercise but I looked around and found a study indicating that 12 weeks of exercise should lower CEA. I'm goin...
by NHMike
Tue Jul 10, 2018 10:43 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Are we doing everything we can?
Replies: 28
Views: 784

Re: Are we doing everything we can?

Interesting... this is the first I've heard of NextGen and it indeed sounds promising. Son has been working with it for about five years but they were in the game pretty early. Son said that RT-PCR can be used with any kind of sequencing. With NextGen sequencing, though, you could just look at all ...

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