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by NHMike
Tue Feb 09, 2021 8:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1737
Views: 442669

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Great news, Mike!! I know I haven't been very active around here but I do still come back to check on peeps. :) I'm relieved to see that you've got a process that's working for you. I got Visbiome through the mail when I was trying to get rid of my third c diff flareup; it's another probiotic that ...
by NHMike
Tue Feb 09, 2021 10:07 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1737
Views: 442669

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Doctor said no more scans. Colonoscopies every three years. So just bloodwork. It will be five years from diagnosis in 2022. We actually didn't talk much about my health in the visit after it was clear that things are going fairly well.
by NHMike
Sun Feb 07, 2021 9:40 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1737
Views: 442669

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

The spinal stuff is very common with tennis players. It may be do to weightlifting as well and I'll modify what I do to decrease stress. I'm taking Garden of Life Raw Probiotics Men 50 & Wiser - Acidophilus and Bifidobacteria Probiotic-Created Vitamins, Minerals, Enzymes, and Prebiotics, Gluten ...
by NHMike
Fri Feb 05, 2021 10:54 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1737
Views: 442669

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

CT and bloodwork. Everything fine but some degenerative stuff in the spinal column which I will ask the doc about next week. On scans, some pathologists throw in stuff. I've found that they vary what they make comments on and this time he mentioned the spinal stuff which I will have to look into. Th...
by NHMike
Sun Dec 13, 2020 12:26 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer stage IV
Replies: 198
Views: 79364

Re: Rectal cancer stage IV

Atoq wrote:I just got the resuts of my CAT scan and everything is fine.
I also had some problems with the wound where the stomy was that was not healing, and they found a surgery stitch that was still under the skin after 3 years!
:D

All the best

Claudia


Good to hear that things continue to go well.
by NHMike
Mon Nov 30, 2020 10:21 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1737
Views: 442669

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Glad you found a probiotic that helps, Mike. I ran out of mine and it took a few days to get more. It was amazing how stuffed up I felt. Dave I like being able to go to Whole Foods to pick up the bottle and not worry about it going bad due to shipping. I've noticed that I've had no Small Bowel Obst...
by NHMike
Fri Nov 27, 2020 12:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1737
Views: 442669

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

The Garden of Life Probiotics for Men over 50 are working well. They've decreased pressure (from Small Bowel Obstructions) and have improved stool consistency and color. They claim 85 billion live cultures but you take three capsules so maybe 30 billion per capsule; still 10 to 20 times as much as o...
by NHMike
Fri Nov 20, 2020 3:54 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1737
Views: 442669

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

I'm still taking the Kombucha and just bought a package of Garden of Life Probiotics for men over 50. They are marketed as 85 billion live cultures and a wide variety of cultures. Most have around 1 to 2 billion. Of course I don't know if more is better. The daily does is three capsules so I'll star...
by NHMike
Wed Nov 11, 2020 11:37 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Xeloda Avastin Maintenance Plan
Replies: 24
Views: 4140

Re: Xeloda Avastin Maintenance Plan

Rikimaroo wrote:Sixth cycle starts today.

CEA is 16....WTF.

CT scans clear NED. Doctor is not concerned by CEA but we do a pet scan maybe next time in February.


That's pretty high. My doctor said he worries in the high-teens but mine was a lot lower than that when he ordered a CT. We're all different.
by NHMike
Tue Oct 27, 2020 1:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Xeloda Avastin Maintenance Plan
Replies: 24
Views: 4140

Re: Xeloda Avastin Maintenance Plan

I was on Xeloda for a little over six months and my CEA rose through treatment. I attributed to an increasing exercise load but it could have been the Xeloda as well. The oncologist was worried enough by it that he ordered a CT scan in the last month.
by NHMike
Tue Oct 27, 2020 5:38 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New stage 4 colon cancer diagnosis
Replies: 19
Views: 3032

Re: New stage 4 colon cancer diagnosis

After bugging the oncologist about the testing results, I finally got a copy of them. The results say that my husband's tumor is MSS, low TMB, with mutations in APC, PIK3R1, and TP53. No mutations in KRAS or BRAF. Based on what I've read on this message board and elsewhere, this means that the canc...
by NHMike
Tue Oct 27, 2020 5:23 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1737
Views: 442669

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

I have tried Kirkland which is a Ginger Lemon flavor and I believe that Sujo is the supplier. I also have a Sujo Blood Orange Ade (it's fizzy) that I like. It does not guarantee a cleanout the first day. That happened the first time I tried it. This second time, it was on the second day. But it was ...
by NHMike
Mon Oct 26, 2020 1:22 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1737
Views: 442669

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Hi Mike, I enjoyed making kumbacha before my diagnosis but lost the taste for it during treatment. I may have to try it again. I haven’t had the need to crush the system too often but it is nice to know that that might do it! Hope you are enjoying your retirement. I am a year away from when I can r...
by NHMike
Sat Oct 24, 2020 4:34 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1737
Views: 442669

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

The Kombucha works quite well - I just have to drink 1/4 bottle for it to do its thing. Maybe two bottles a week. I'd like to buy it at Costco but it would take up a lot of space in the fridge. One option would be to get a mini-fridge in the basement - which I'm thinking about.
by NHMike
Wed Oct 21, 2020 6:58 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Is W&W an option for a partial response
Replies: 24
Views: 3137

Re: Is W&W an option for a partial response

At MSK, the doctor there suggested to do the chemotherapy before surgery because they have observed complete clinical response in patients that have residual tumors post radiation. You are going to have to do the chemo anyway. I’d much happier I did it pre surgery when I functioned normally. Doctor...

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