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by NHMike
Tue Jun 19, 2018 2:41 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: What should I expect for port placement???
Replies: 10
Views: 85

Re: What should I expect for port placement???

I didn’t use any painkillers at all after surgery so that should give you some idea as to the level of pain. I’m sure that I could have gotten something fairly strong if I asked for it.
by NHMike
Tue Jun 19, 2018 1:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 961
Views: 82729

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

The oncologist indicated that it would be removed after four months. The surgeon hasn't said though I haven't discussed it with her yet. I guess that they could always put it on the other side - hopefully that will never have to happen. I can manage with the neuropathy. I haven't dropped anything ye...
by NHMike
Tue Jun 19, 2018 10:55 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Is chemotherapy advisable for 68 years old Heart patient after LAR surgery
Replies: 5
Views: 123

Re: Rectal Cancer: Is chemotherapy advisable for 68 years old Heart patient after LAR surgery

Do you have the dimensions of the tumor? It sounds like my staging and I had chemo and radiation before surgery but my tumor was quite large. May his was very small and they felt that they could get it out as is. Adjuvant chemo is rough. There are some 68-year-olds that can handle it because of gen...
by NHMike
Tue Jun 19, 2018 9:30 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Another new diagnosis
Replies: 5
Views: 353

Re: Another new diagnosis

So I just got signed up for the portal with our oncologist. This is what it says for the chemo treatment: NCCN_COL2: Fluorouracil IVP(400)D1-Fluorouracil CI(1200)D1-2-Leucovorin(400)D1-OXALIplatin(85)D1 Q14D (mFOLFOX6) v2.1 It does say its for eight cycles. But I really have no idea what any of tha...
by NHMike
Tue Jun 19, 2018 9:25 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Reversal
Replies: 44
Views: 1001

Re: Reversal

Atoq wrote:Two weeks since reversal and everything is fine, today I removed the one external stitch since the stomy hole is almost completely closed. New surgery in a week. Today I also did an ultrasound of the urine bladder and no more residual.

Atoq


What's the new surgery in a week?
by NHMike
Tue Jun 19, 2018 8:59 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Taste Change Advice
Replies: 18
Views: 337

Re: Taste Change Advice

I had a really bad episode of nausea and taste change during xeloda chemo. There were huge episodes before each meal . ... Bananas and apples with black salt. Eggs sunny side up with lots of salt. ... The chemo drugs really drain your electrolytes - it showed up as leg cramps for me. I bought Nuun ...
by NHMike
Tue Jun 19, 2018 8:24 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Communicating the Complexities
Replies: 2
Views: 174

Re: Communicating the Complexities

I have a co-worker going through an aggressive form of MS and I'd say that it's worse than Stage 3 CRC as there aren't any cures yet. There are infusions to put people in remission but they haven't worked for her. The breakdown in nervous system function is a lot different from CRC as you lose piece...
by NHMike
Tue Jun 19, 2018 8:19 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 961
Views: 82729

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Bag change has been quite quick for me. About 5-7 minutes right out of the shower. I usually shower with the bag on then change it afterwards. 9th round of Folfox this Wednesday. Neuropathy has been a bit rough, numbess in hands and feet is worse at night, more feet then hands. Typing on keyboard y...
by NHMike
Tue Jun 19, 2018 8:11 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: What should I expect for port placement???
Replies: 10
Views: 85

Re: What should I expect for port placement???

Hello Kathie, I had this done last December. The doctor asked me a bunch of questions and explained what I could and couldn't do (or suggested) with the port and how the procedure would go. They gave me something which was something like a sedative - it made me tired though I didn't fall asleep, and...
by NHMike
Mon Jun 18, 2018 9:41 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New Member here on the forum
Replies: 111
Views: 13102

Re: New Member here on the forum

Thank you! Doc said my body needs to recuperate from all the trauma and he will see me back in 2 months to talk about surveillance etc. He doesn't want any blood work etc. until then. Mike - Dr. Kin at Stanford was able to skip the ileostomy so no reversal - just a matter of bouncing back. Will cal...
by NHMike
Mon Jun 18, 2018 7:36 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Is chemotherapy advisable for 68 years old Heart patient after LAR surgery
Replies: 5
Views: 123

Re: Rectal Cancer: Is chemotherapy advisable for 68 years old Heart patient after LAR surgery

Do you have the dimensions of the tumor? It sounds like my staging and I had chemo and radiation before surgery but my tumor was quite large. May his was very small and they felt that they could get it out as is. Adjuvant chemo is rough. There are some 68-year-olds that can handle it because of gene...
by NHMike
Mon Jun 18, 2018 7:12 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New Member here on the forum
Replies: 111
Views: 13102

Re: New Member here on the forum

Oncologist recommended stopping the chemo - so completion of four cycles rather than five. He says with the gut problems (capecetibine) and foot neuropathy (ice picks in toes) the negative side effects may be outweighing positive benefits, given my staging etc. He has felt the this third phase show...
by NHMike
Mon Jun 18, 2018 2:11 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 961
Views: 82729

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Good for you Mike. I have the change down to 5 minutes when my fingers work. Still not my favorite thing honestly, but hate meds more. My absolutely best time was around 9 minutes. Perhaps due to using a two-piece and using paste. I can only do it around 9-11 minutes if there is no output. If there...
by NHMike
Mon Jun 18, 2018 6:13 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Losing the will to live
Replies: 11
Views: 643

Re: Losing the will to live

The Stage 3 treatment regimen is very rough and it's a marathon. I've been at it for a year and it is very hard but I'm younger than your mother. I've chatted with people that have been on and off chemo for a very long time and they think about just looking for quality of life for some time instead ...
by NHMike
Sun Jun 17, 2018 3:26 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 961
Views: 82729

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Yes! :mrgreen: Congratulations! Today I have only done 9669 because I was at work and then we had a summer party and did not walk the dogs :D But tomorrow I will try to compensate for it. Claudia I kind of crashed and burned with only 32K yesterday and I'm not going to worry about steps at all toda...

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