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by orlar
Mon Feb 05, 2018 12:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: any peeps with BRAF mutation on here?
Replies: 183
Views: 6595

Re: any peeps with BRAF mutation on here?

Hi Mrs. Z, I haven't checked in on Mr. Z and you in a while, but have kept you both in my prayers. I start Folfiri+Avastin on Wednesday and hope Mr Z. and I both have good responses to the Irinotecan. I was fortunate that the Mrs. and I got in a couple quick trips since my chemo ended in Dec.. I hop...
by orlar
Wed Jan 31, 2018 2:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Back in the fight
Replies: 60
Views: 3047

Re: Back in the fight

Heal fast from surgery and make each day your own. Prayers out to you and yours.
by orlar
Fri Jan 26, 2018 3:20 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Chemotherapy Journey
Replies: 59
Views: 2430

Re: Chemotherapy Journey

Chemo is harsh and constipation can be brutal. My constipation relief started on day one of the cycle by using 1 gelcap stool softner twice a day (recommended dose up to 3 gelcap daily). My GOTO that worked for me was room temp. apple juice to finally get things moving. After that, I kept taking 1 s...
by orlar
Sun Jan 21, 2018 7:12 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Chemotherapy Journey
Replies: 59
Views: 2430

Re: Chemotherapy Journey

I know several people have stated having "shocks" in their legs and feet when bending the head forward. Those may be tied to Lhermitte's Sign. Mine happen every time I tilt my head forward somewhat fast and started around cycle 9. I don't know if it affects the stomach area. As always, kee...
by orlar
Mon Jan 15, 2018 8:32 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Tribute to my dear friend Anne - aka BeansMama
Replies: 39
Views: 2713

Re: Tribute to my dear friend Anne - aka BeansMama

My heart dropped to the floor a few minutes ago when I read about Anne. Although I never made personal contact, I read her posts and admired her will and ability to stay positive. I can only hope all of us face our trials half as well as she did. Prayers to the kids and the rest of the family and fr...
by orlar
Sun Jan 07, 2018 11:13 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: GOOD NEWS ON BEANSMAMA
Replies: 122
Views: 11530

Re: GOOD NEWS ON BEANSMAMA

Hi BeansMama,

Just a quick note to say we're thinking of you and hope things are going O.K. Continue to get better!
by orlar
Fri Jan 05, 2018 11:11 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: any peeps with BRAF mutation on here?
Replies: 183
Views: 6595

Re: any peeps with BRAF mutation on here?

My best to you and Mr. Ziggy. Hoping you have great news next week!
by orlar
Thu Jan 04, 2018 8:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Starting gabapentin
Replies: 9
Views: 518

Re: Starting gabapentin

I noticed the tingling/numbness around cycle 2, but it would ease off by the before the end of the cycle. By cycle 4 or so it was more persistent and I started gabapentin. Cycle 8 OXI stopped due to infusion reaction and the neuropathy. I finished cycle 12 and have been on gabapentin 300mg since cyc...
by orlar
Mon Jan 01, 2018 10:46 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rough end to 2017, 2018 ?
Replies: 5
Views: 624

Re: Rough end to 2017, 2018 ?

Thanks for the input. I already expect I will be changing my ONC just because of the available options locally. Yesterday I was in a funk, today I'm getting my battle spirit back. Still hoping on NEDville some day!
by orlar
Sun Dec 31, 2017 12:00 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rough end to 2017, 2018 ?
Replies: 5
Views: 624

Rough end to 2017, 2018 ?

Hi Guys! I really haven't posted very much since being a member, but have valued the insight and compassion of the members on the forum. I find myself ending 2017 being somewhat discouraged, but trying to regain my fighting spirit. As you can tell from my signature, I had my 12th round of Folfox on ...
by orlar
Fri Dec 15, 2017 11:04 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: GOOD NEWS ON BEANSMAMA
Replies: 122
Views: 11530

Re: GOOD NEWS ON BEANSMAMA

Just wanted you to know we're thinking of you Beansmama and hope your recovery is continuing O.K..
by orlar
Wed Nov 22, 2017 1:10 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: FINANCIAL PLANNING / ADVICE NEEDED
Replies: 6
Views: 495

Re: FINANCIAL PLANNING / ADVICE NEEDED

I'm sorry you have to deal with all this. As mentioned earlier, I would check with the social worker at the treatment center (if they have one). You can also check with the hospitals Financial Department as most have financial assistance programs (at least in the U.S.). If you are U.S. based, a lot ...
by orlar
Tue Nov 21, 2017 6:04 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Peri mets, Stage IV --- Need advice
Replies: 27
Views: 2548

Re: Peri mets, Stage IV --- Need advice

Let the healing be quick and uneventful. Glad to hear you're doing well!
by orlar
Sun Nov 12, 2017 7:46 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Four years.
Replies: 8
Views: 608

Re: Four years.

Congrats! I hope lots of us can say the same in a few years.

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