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by orlar
Thu Oct 11, 2018 3:49 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Friends, i am struggling, news of cancer are awful
Replies: 16
Views: 2382

Re: Friends, i am struggling, news of cancer are awful

To Laura and Spazzy both, hang in there! The shock will subside. Please ask for and take any meds you think will help. I found antivan helped me sleep after being diagnosed stage 4. Laura, you are going to need to heal so take that time. I'm sure your ONC team will be getting a plan in place for tre...
by orlar
Mon Oct 08, 2018 12:21 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scanxiety, here we go again.
Replies: 11
Views: 1414

Re: Scanxiety, here we go again.

Thanks everyone for the good vibes!
by orlar
Sat Oct 06, 2018 9:55 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scanxiety, here we go again.
Replies: 11
Views: 1414

Re: Scanxiety, here we go again.

I just started my trial treatments last week. Feel free to PM me and I can go into a few details.

Larry
by orlar
Sat Oct 06, 2018 9:46 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Robino1 has left us today at 6:40pm.
Replies: 25
Views: 2920

Re: Robino1 has left us today at 6:40pm.

I am truly saddened by this news. I will miss Robin's positive influence and caring for others. God Bless!
by orlar
Wed Aug 08, 2018 7:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: NIH trial update .. my T cells are growing!!
Replies: 20
Views: 4145

Re: NIH trail update .. my T cells are growing!!

Fantastic news! Here's to hoping you get a September start date!!!
by orlar
Fri Aug 03, 2018 10:40 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: ER Visit
Replies: 25
Views: 5617

Re: ER Visit

I'm surprised that you were discharged having active blood loss. Hopefully, the pain will subside and you can get back to a normal diet and enjoy that trip.
Take care of your self!

P.S. Getting a specialist appointment in the U.S. can sometimes take a while too! A lot depends on where you live.
by orlar
Sun Jul 29, 2018 11:57 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Tips for a Folfox newbie – starting Tuesday
Replies: 31
Views: 6304

Re: Tips for a Folfox newbie – starting Tuesday

1) I always took anti-nausea pills for several days after my infusion as a routine to prevent nausea. 2) Have a pair of knit gloves around for anything you touch below room temp. (items from fridge/freezer) The cold sensitivity can also affect the inside of your mouth, tongue, lips while eating/drin...
by orlar
Fri Jul 27, 2018 12:45 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scanxiety, here we go again.
Replies: 11
Views: 1414

Re: Scanxiety, here we go again.

Hi Guys, thanks for the good vibes. I did get a call from the ONC last week so I knew the scan wasn't so good. I met with my ONC yesterday to go over the results. CEA up to 7.8, no new lung nodules but existing ones enlarged. Main liver lesion essentially stable in right lobe, but 2 new ones in each...
by orlar
Sat Jul 14, 2018 2:51 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scanxiety, here we go again.
Replies: 11
Views: 1414

Scanxiety, here we go again.

Just had my 10th treatment yesterday on this regimen and ONC is currently planning on chemo holiday. I have a CT scan on Thursday (ins. wouldn't approve PET) and I have a lot more anxiety this time. April's PET showed tumors shrinking, but then I got a pretty severe cold during mid May that lasted w...
by orlar
Sat Jun 16, 2018 12:16 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Taste Change Advice
Replies: 18
Views: 3583

Re: Taste Change Advice

Sometimes, I still go through the "what's going to taste good today" routine. For me the cooking smells set the tone. On several occasions I had my wife stop cooking (even microwaving) due to the smell as I wouldn't eat it when finished. I have found out some of my favorites before chemo a...
by orlar
Fri Jun 15, 2018 11:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Better news, Neuropathy & questions
Replies: 31
Views: 5974

Re: Better news, Neuropathy & questions

I can only give you my neuropathy experience so far. I had full strength FOLFOX for 8 cycles when the OXAL became to much (bad neuropathy, but final straw was reaction during infusion). Continued with 5FU to cycle 12 which ended 12/17 . My hands and feet worsened for awhile after treatment. Eventual...
by orlar
Fri Jun 15, 2018 10:45 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: hospice
Replies: 13
Views: 1428

Re: hospice

There are few words I can think of that will comfort you and yours right now.
So maybe, just hold his hand and tell him how much he's loved as often as you can.
You're in my thoughts and prayers.
by orlar
Wed Jun 13, 2018 1:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Trying Keytruda Off-Label (MSS with a Twist)
Replies: 41
Views: 8519

Re: Trying Keytruda Off-Label (MSS with a Twist)

I'm really glad to see your CEA dropping. Keep that trend going!
by orlar
Fri Jun 01, 2018 6:28 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CEA dropped!
Replies: 27
Views: 3955

Re: CEA dropped!

That's great to hear! Let's go for another double digit drop on the next CEA.
by orlar
Thu May 24, 2018 10:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: It's baaaaaaack!
Replies: 13
Views: 1855

Re: It's baaaaaaack!

Disappointing news to say the least. Trying not to be clique, but you've been down this road before and what's involved. Hang tough and I hope whatever treatment plan you decide on kicks the big "C" to the curb for the duration! Larry

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