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by orlar
Sat Jun 16, 2018 12:16 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Taste Change Advice
Replies: 13
Views: 259

Re: Taste Change Advice

Sometimes, I still go through the "what's going to taste good today" routine. For me the cooking smells set the tone. On several occasions I had my wife stop cooking (even microwaving) due to the smell as I wouldn't eat it when finished. I have found out some of my favorites before chemo a...
by orlar
Fri Jun 15, 2018 11:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Better news, Neuropathy & questions
Replies: 8
Views: 250

Re: Better news, Neuropathy & questions

I can only give you my neuropathy experience so far. I had full strength FOLFOX for 8 cycles when the OXAL became to much (bad neuropathy, but final straw was reaction during infusion). Continued with 5FU to cycle 12 which ended 12/17 . My hands and feet worsened for awhile after treatment. Eventual...
by orlar
Fri Jun 15, 2018 10:45 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: hospice
Replies: 9
Views: 463

Re: hospice

There are few words I can think of that will comfort you and yours right now.
So maybe, just hold his hand and tell him how much he's loved as often as you can.
You're in my thoughts and prayers.
by orlar
Wed Jun 13, 2018 1:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Trying Keytruda Off-Label (MSS with a Twist)
Replies: 33
Views: 2543

Re: Trying Keytruda Off-Label (MSS with a Twist)

I'm really glad to see your CEA dropping. Keep that trend going!
by orlar
Fri Jun 01, 2018 6:28 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CEA dropped!
Replies: 27
Views: 874

Re: CEA dropped!

That's great to hear! Let's go for another double digit drop on the next CEA.
by orlar
Thu May 24, 2018 10:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: It's baaaaaaack!
Replies: 13
Views: 1306

Re: It's baaaaaaack!

Disappointing news to say the least. Trying not to be clique, but you've been down this road before and what's involved. Hang tough and I hope whatever treatment plan you decide on kicks the big "C" to the curb for the duration! Larry
by orlar
Tue May 15, 2018 12:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scan results not what I had hoped for ...
Replies: 29
Views: 1548

Re: Scan results not what I had hoped for ...

Shana, I know your latest scan wasn't what was hoped for, but with the increased Irinotecan I'm hoping that may push things back on the right track. I would be interested on what you find out concerning potential clinical trials and that process since you are feeling strong. Positive thoughts headin...
by orlar
Wed May 09, 2018 12:30 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Déjà vu
Replies: 11
Views: 1015

Re: Déjà vu

Really happy to hear it is not a recurrence! Hope your recovery is a gentle one.
by orlar
Mon May 07, 2018 10:08 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Trying Keytruda Off-Label (MSS with a Twist)
Replies: 33
Views: 2543

Re: Trying Keytruda Off-Label (MSS with a Twist)

I hope Keytruda does the trick! I've noticed several people have been going off label (other forums) and having success. Good luck and keep us posted!
by orlar
Fri Apr 27, 2018 10:57 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Working during Irenotecan
Replies: 5
Views: 697

Re: Working during Irenotecan

I just completed cycle 5 with Folfiri + Avastin. So far I've found it overall more tolerable than Folfox. Usually I get one good loose stool after infusion on day 1, then pretty much o.k. with no or very little diarrhea the rest of the cycle. I seem to notice more fatigue and less nausea (from cycle...
by orlar
Wed Apr 11, 2018 7:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surgery Completed
Replies: 11
Views: 1159

Re: Surgery Completed

Can't comment on the staples as I never had them, but hope the healing goes well and you have a smooth ride from here.
by orlar
Wed Apr 11, 2018 7:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scanxiety: Anyone else having testing now?
Replies: 60
Views: 5434

Re: Scanxiety: Anyone else having testing now?

Zephyr, Excellent news! I just found out how it feels to finally have a better one too.

Robin, I know your scan was today so I hope you hear Great news soon!

Best to all with scans coming up!

Larry
by orlar
Sun Apr 08, 2018 10:48 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scans tomorrow
Replies: 10
Views: 1022

Re: Scans tomorrow

Sorry you had the extra wait, but so glad it was good news!
by orlar
Thu Apr 05, 2018 10:26 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scans tomorrow
Replies: 10
Views: 1022

Re: Scans tomorrow

Waiting it out is always so tough. Hope your scan is clean as a whistle!
by orlar
Wed Apr 04, 2018 1:07 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scanxiety: Anyone else having testing now?
Replies: 60
Views: 5434

Re: Scanxiety: Anyone else having testing now?

WOOHOO! Just got a call from my ONC office about yesterday's PET Scan. My nurse advised it showed significant improvement. No particulars as I have an appointment with ONC Monday, but it's the first time one is better than the last! Hopefully the first step of many in the right direction.

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